21. Aicardi Syndrome aicardi syndrome. What is it? aicardi syndrome is a rare disorder that was firstidentified in 1965 by a French neurologist named Dr. Jean Aicardi. http://www.hmc.psu.edu/childrens/healthinfo/a/aicardi.htm

22. AICARDI SYNDROME Features Listed For aicardi syndrome. McKusick 304050. Absent ribs;Agenesis/hypoplasia of corpus callosum; Aplasia or dysplasia of retina; http://www.hgmp.mrc.ac.uk/dhmhd-bin/hum-look-up?42

23. Aicardi Syndrome Articles, Support Groups, And Resources aicardi syndrome articles, support groups, and resources for patientsfrom Med Help International (www.medhelp.org). aicardi syndrome. http://www.medhelp.org/HealthTopics/Aicardi_Syndrome.html

[Health Topics A-Z] A B C D ... Z Aicardi Syndrome Support Groups: Aicardi Syndrome Newsletter, Inc. [Med Help Home] [Library Search] [Medical Forums] ... [Patient Network] Revised: 3/30/2003

24. Aicardi Syndrome Newsletter, Inc. aicardi syndrome Newsletter, Inc. Dues $25/year. Write aicardi syndrome Newsletter,Inc., c/o Denise M. Parsons, 1510 Polo Fields Ct., Louisville, KY 40245. http://www.medhelp.org/amshc/amshc237.htm

Title: International Agnosia Foundation Description: Support, information and referrals for persons with primary visual agnosia and related traumatic brain injuries. Provides phone support, internet email support group, conferences, and advocacy. Newsletter ($10). Online discussion group for persons with primary visual agnosia. Scope: International network Number Groups: 7 affiliated groups Founded: Address: c/o Michael Herman 4774 Park Granada, Suite 2 Calabasas, California, 91302-1550 United States Telephone: Fax: Email: tauntra@aol.com This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International . Please send corrections/updates to ed@selfhelpgroups.org Updated: 02/2003

25. Aicardi Syndrome aicardi syndrome. This response submitted by anna on 8/16/96. My daughteris suffering from aicardi syndrome and has infantile spasms. http://neuro-www.mgh.harvard.edu/neurowebforum/EpilepsyArticles/aicardisyndrome.

aicardi syndrome This response submitted by anna on 8/16/96. Author's Email: asampson@hkabc.net Dear Graham, Your article is full of hope. My daughter is suffering from aicardi syndrome and has infantile spasms. Her doctor has painted a severe grim picture of her future or lack of it. She may never be able to speak, sit alone or walk. She is only 3 month old and when I think of her life ahead, it cuts me like a knife. I won't give up hope that may be one day she will be cured. She does not really have a life now, living in hospital having seizures every hour and being tried on several anti convulsants without much luck. I hope that she will be as strong as you are. Anna Next Article Previous Article Return to Main Article Article complete. Click HERE to return to the Neurology Web-Forum Menu.

26. Aicardi Syndrome aicardi syndrome. What is aicardi syndrome? Onset of aicardi syndrome generally beginsbetween the ages of 3 and 5 months. The disorder affects only females. http://www.clevelandclinic.org/health/health-info/docs/1200/1244.asp?index=6028

27. Show-documents.asp What's New. The Cleveland Clinic, aicardi syndrome Written Information.Care Treatment. aicardi syndrome. New Search1. The Cleveland http://www.clevelandclinic.org/health/search/do-query.asp?TopicId=1271

28. Agenesis Of The Corpus Callosum/Aicardi Syndrome -CORPAL A support group for the families and carers of those with Agenesis of the Corpus Callosum, and Aicardi Category Health Conditions and Diseases aicardi syndrome......Corpal is a UK Support group helping families who care for childrenwith Agenesis of the Corpus Callosum / aicardi syndrome. http://freespace.virgin.net/jan.webster/

A Support Group for the families and carers of those with Agenesis of the Corpus Callosum, and Aicardi Syndrome Registered Charity Number : 1086019 Affiliated to Contact A Family Last updated 02/11/02 By Janet Webster Animated Gifs by and Although great care has been taken in the compilation and preparation of the enclosed details to ensure accuracy, CORPAL cannot accept responsibility for any errors or omissions. Any medical information provided is for information/education purposes, you should obtain further information from your medical practitioner. HI

29. Health Library - Aicardi Syndrome aicardi syndrome. Self Help Clearinghouse. aicardi syndrome Newsletter,Inc. International network. Founded 1983.Support http://www.laurushealth.com/library/healthguide/selfhelp/topic.asp?hwid=shc29aic

30. Health Library - Aicardi Syndrome aicardi syndrome. Synonyms Disorder Subdivisions General Discussion ResourcesNational Resources. aicardi syndrome Newsletter, Inc. 1510 http://www.laurushealth.com/library/healthguide/illnessconditions/topic.asp?hwid

31. Advanced Respiratory - Airway Clearance Indications Of Aicardi Syndrome Airway Clearance Indications of aicardi syndrome, Print Version. Aicardisyndrome appears only in females; affected males die in utero. http://www.thevest.com/conditions/factsheets/aicardi.asp?gs=patients

32. 1Up Health > Aicardi Syndrome > Causes, Incidence, And Risk Factors Of Aicardi S Comprehesive information on aicardi syndrome . 1Up Health Diseases Conditions aicardi syndrome Causes, Incidence, and Risk Factors. http://www.1uphealth.com/health/aicardi_syndrome_info.html

1Up Health Aicardi syndrome Alternative Medicine Clinical Trials ... Health Topics A-Z Search 1Up Health Aicardi syndrome Information Aicardi syndrome Causes, Incidence, and Risk Factors Definition : Aicardi syndrome is a rare genetic disorder characterized by infantile spasms (jerking), absence of the corpus callosum (the connection between the two hemispheres of the brain), mental retardation, and lesions of the retina of the eye or optic nerve. Causes, Incidence, and Risk Factors The cause of Aicardi syndrome is unknown at this time, but is presumed to be a genetic disorder carried on the X-chromosome in some cases and a random, sporadic mutation in others. There are less than 500 cases of Aicardi worldwide. Previous Next Jump to Another Section of this Guide Definition Causes, Incidence, and Risk Factors Symptoms Diagnosis, Signs, and Tests Treatment Prognosis (Expectations) ... Calling your Health Care Provider Related Tools and Utilities Search Books on Amazon: Read Articles on eLibrary: Health Products on drugstore.com:

33. 1Up Health > Aicardi Syndrome Information Comprehesive information on aicardi syndrome . Covers info such provider,and more. 1Up Health Diseases Conditions aicardi syndrome. http://www.1uphealth.com/health/aicardi_syndrome.html

1Up Health Alternative Medicine Clinical Trials Health News ... Health Topics A-Z Search 1Up Health Aicardi syndrome Information Guide Definition : Aicardi syndrome is a rare genetic disorder characterized by infantile spasms (jerking), absence of the corpus callosum (the connection between the two hemispheres of the brain), mental retardation, and lesions of the retina of the eye or optic nerve. Jump to a Section of this Guide Definition Causes, Incidence, and Risk Factors Symptoms Diagnosis, Signs, and Tests ... Calling your Health Care Provider Related Tools and Utilities Search Books on Amazon: Read Articles on eLibrary: Health Products on drugstore.com: Cranial CT scan EEG MRI More More Topics Seizures More Search 1Up Health A.D.A.M., Inc. is accredited by URAC, also known as the American Accreditation HealthCare Commission (www.urac.org). URAC's accreditation program is the first of its kind, requiring compliance with 53 standards of quality and accountability, verified by independent audit. A.D.A.M. is among the first to achieve this important distinction for online health information and services. Learn more about A.D.A.M.'s editorial reviewers . A.D.A.M. is also a founding member of Hi-Ethics (www.hiethics.com) and subscribes to the principles of the Health on the Net Foundation (www.hon.ch). Home Contact Us Privacy Links Directory

34. Aicardi Syndrome Awarness And Support Group/Network aicardi syndrome Awareness and Support Group/Network. This welcome. We arelinked to the aicardi syndrome Newsletter, Inc. (AICNews@aol.com). http://www3.sympatico.ca/asasn/

Aicardi Syndrome Awareness and Support Group/Network This network is primarily a resource for Canadian families, health and education providers. Contacts from other countries are welcome. We are linked to the Aicardi Syndrome Newsletter, Inc. ( AICNews@aol.com My daughter, Megan (b.d. 1971), is, we believe, the oldest known living girl (now a woman) with Aicardi syndrome and the first to be so diagnosed in North America. Meg is one of an identical twinship. Genetic consultation indicates her twin, Susan, is not affected. We also have a contact with a neurological paediatrician in Toronto who may have the largest number of girls with Aicardi syndrome in his practice - 7 clients (approx.). It is also becoming apparent, as more girls are diagnosed and have access to early infant stimulation and good health care, that there is a wide range of ability. Not all girls have severe developmental disabilities as, for example, is indicated in recent journal papers as Paediatric Neurology and The British Journal of Ophthalmology. Small sample sizes and subjects who had been institutionalized do not result in reliability or validity. The guideline should be that we cannot presume the potential of these girls therefore each should be given all opportunities and thus, as individuals, will let us know what they will be able to achieve. Please feel free to contact Nancy Hately or Lynne Hately (Megan's sister) for more information.

35. Aicardi Syndrome HOME aicardi syndrome. aicardi syndrome Foundation; Short description ofcell lines. aicardi syndrome; AICARDI; aicardi syndrome Newsletter, Inc. http://www.bdid.com/aicardi.htm

HOME Aicardi Syndrome Aicardi Syndrome Foundation Short description of cell lines. Pathology: Aicardi syndrome (corpus callosum) Aicardi Support Groups aicardi syndrome ... HOME

36. Aicardi Syndrome Foundation Return to Search Page aicardi syndrome Foundation. 450 Winterwood Dr Roselle,IL 60172 Conditions aicardi syndrome. Hours Answered MF, 87 Voicemail yes. http://www.geneticalliance.org/diseaseinfo/displayorganization.html?orgname=Aica

37. Aicardi Syndrome Newsletter Return to Search Page aicardi syndrome Newsletter. 1510 Polo Fields Court Louisville,KY 40245 Conditions aicardi syndrome. Hours Answered MF, 87 http://www.geneticalliance.org/diseaseinfo/displayorganization.html?orgname=Aica

38. Aicardi Syndrome : Meddie Health Search ITEMS LINKS Adam.com An Overview aicardi syndrome a list of alternate names,a definition with a look at the causes, incidence and risk factors. http://www.meddie.com/search/Health/Conditions_and_Diseases/Rare_Disorders/Aicar

HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED Search Meddie: the entire directory only this category More search options Home Health Conditions and Diseases ... Rare Disorders : Aicardi Syndrome ITEMS: LINKS: Adam.com: An Overview Aicardi Syndrome: a list of alternate names, a definition with a look at the causes, incidence and risk factors. (Rating: 0.00 Votes: 0) Rate It Agenesis of the Corpus Callosum Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. (Rating: 0.00 Votes: 0) Rate It Agenesis of the Corpus Callosum (ACC) Not all ACC in utero diagnoses are accurate nor correct. Here's a story without a tragic ending. (Rating: 0.00 Votes: 0) Rate It Aicardi Syndrome Information sheet compiled by National Institute of Neurological Disorders and Stroke. (Rating: 0.00 Votes: 0) Rate It Aicardi Syndrome Foundation Information about the disease, a medical survey, where to get help, publications and a chat room for support. (Rating: 0.00 Votes: 0) Rate It Corpal A support group for the families and carers of those with Agenesis of the Corpus Callosum, and Aicardi Syndrome. Information, reports and newsletters. (Rating: 0.00 Votes: 0)

39. Health Library - Aicardi Syndrome aicardi syndrome. Self Help Clearinghouse. aicardi syndrome Newsletter,Inc. International network. Founded 1983.Support http://yalenewhavenhealth.org/Library/HealthGuide/SelfHelp/topic.asp?hwid=shc29a

40. Health Library - Aicardi Syndrome Saint Luke's Health System eLibrary. aicardi syndrome. Self Help Clearinghouse.aicardi syndrome Newsletter, Inc. International network. http://hvelink.saint-lukes.org/library/healthguide/SelfHelp/topic.asp?hwid=shc29

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