21. Cici's Arthrogryposis Page I was born with arthrogryposis so I'm creating this site for arthrogryposis patients. http://members.aol.com/_ht_a/pggystrk/myhomepage/

22. Arthrogryposis arthrogryposis is a broad umbrella term that encompasses about 150 individualconditions contractures or curvatures of the joints. What is arthrogryposis? http://www.shrinershq.org/patientedu/arthrogryposis.html

Home Shrine Shriners Hospitals Hospital Directory ... Next Your child has been diagnosed with Arthrogryposis This information was provided by the Spokane Shriners Hospital 911 W. 5th Avenue Spokane, Washington 99210-2472 Telephone (509) 623-0400 What is arthrogryposis? Arthrogryposis (Arthrogryposis Multiplex Congenita) is a term describing the presence of a muscle disorder that causes multiple joint contractures at birth. A contracture is a limitation in the range of motion of a joint. In some cases, few joints may be affected and the range of motion may be nearly normal. In the "classic" case of arthrogryposis, hands, wrists, elbows, shoulders, hips, feet and knees are affected. In the most severe cases, nearly every body joint may be involved, including the jaw and back. Frequently, the contractures are accompanied by muscle weakness, which further limits movement. Arthrogryposis is relatively rare, occurring in approximately one in 3,000 births. Can arthrogryposis occur again in the same family? What causes arthrogryposis?

23. Arthrogryposis arthrogryposis information and international support groups, clinics withgenetic counselors and geneticists. Image arthrogryposis. AVENUES http://www.kumc.edu/gec/support/arthrogr.html

Arthrogryposis AVENUES National Support Group for Arthrogryposis PO Box 5192 Sonora, CA 95370 Phone: (209) 928-3688 E-mail: avenues@sonnet.com Support groups in USA and Internationally Arthrogryposis Group (TAG), United Kingdom (UK), physiotherapy overview (.pdf) Also See: Arthrogryposis multiplex congenita , I Alfonso, O Papazian, et. al., ( .pdf file , International Pediatrics 15(4):197-204, 2000 , Pediatric Neurology, Miami Children's Hospital Aufgrund der Seltenheit der AMC (German) Arthrogryposis Hub Arthrogryposis multiplex congenita , Pediatric Pathology List,Wide World of Physical Therapy Arthrogryposis , Orthopedic Topics Arthrogryposis Multiplex Congenita OMIM (Online Mendelian Inheritance in Man) #108110, clinical synopsis Your child has been diagnosed with Arthrogryposis , Shriner's Hospital Arthrogryposis Multiplex Congenita (Belgian) Arthrogryposis: Personal Pages , Open Directory To locate a genetic counselor or clinical geneticist in your area: Professional Genetics Societies Genetic clinics, centers, departments

24. Theresa's Page A personal story of an artistic woman with arthrogryposis. http://members.aol.com/_ht_a/terry2745/

Believe in yourself- in the power you have to control your own life, day by day, Believe in the strength that you have deep inside, and your faith will help show you the way. Believe in tomorrow and what it will bring- Let a hopeful heart carry you through, For things will work out if you trust and believe there's no limit to what you can do. ~Emily Mathews Psalm 23:4 "Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me;" Arthrogryposis. When I was born the doctors told my parents that I would never be able to walk or do things for myself. We proved them wrong! Sister had a lot to do with that, I think she was tired of carrying me! At age 5, most children are enrolled in kindergarten with no problems. My parents had to fight to get me enrolled in public school in a regular graduated in 1983. I did everything a "normal" child would do growing up like girl scouts, camping trips, attending basketball games in high school (I live in Indiana, high school basketball is a BIG thing here!) . I have never been

25. The Contact A Family Directory - ARTHROGRYPOSIS printer friendly, arthrogryposis, upon Tyne, UK. THE arthrogryposisGROUP (TAG). The arthrogryposis Group (TAG) Beak Cottage Dunley http://www.cafamily.org.uk/Direct/a72.html

printer friendly ARTHROGRYPOSIS home more about us in your area conditions information ... how you can help search this site Arthrogryposis: amyoplasia congenita : arthrogryposis multiplex congenita:AMC: Otto Syndrome Arthrogryposis Multiplex Congenita (AMC) is a term used to describe a baby born with multiple joint contractures and covers a wide range of conditions. The contractures limit the range of movement of the joints. The joints themselves may be fixed in a flexed or extended position. The number of joints affected can range from two or three to almost total involvement, including spine and jaw, resulting in a wide range of disability. AMC is a non-progressive condition with a normal life-span. However, joint contractures are sometimes linked to rare syndromes with limited life expectancy. Although AMC is associated with fetal immobility, the exact causes are not known. Early and specific diagnosis for each case is essential so that appropriate therapy can begin as soon as possible. Such treatment includes physiotherapy (including passive stretching) splinting and surgery. Inheritance patterns These are variable. In Amyoplasia, the most common form of AMC, there is no significant inheritance risk. Distal arthrogryposis, which primarily affects the hands and feet, is autosomal dominant. However, as there are over one hundred types of AMC, precise diagnosis of individual cases is necessary to establish the risk of possible recurrence.

26. Geno's Page! This page is all about my son Geno and arthrogryposis. http://www.geocities.com/deb40965ky/Geno.html

This page is all about my son Geno and Arthrogryposis. My name is Debbie and I am a 31 year old mother of two beautiful children named Jessica and Geno. Both of whom have birthdays next month! Jessica will be 10 on July 28th and Geno will be 4 on July 22nd. This page is about my littlest angel, Geno. He was born with Arthrogryposis.. A very rare condition that occurs in only 1 out of 3000 births. Thankfully I have been lucky enough to find others through this little screen who have "AMC" (Athrogryposis Mulitplex Congenita), or loved ones who do, and I have created this page so that I can share Geno's Story with all of you. I hope it helps you in some way. Just browse through the site by clicking the links below. Thanks for visiting. I hope you enjoy your stay. :) This page is currently under construction. I hope to have it completed by the end of July.. Please come again soon. Thanks! :) Hi! My name is Geno. My mommy is making this page that tells all about me and a conditon I have called Arthrogryposis. There will be lots of good stuff here soon! This page was designed and is best viewed on a 17" monitor with display settings at 800x600 and text size set to Medium.

27. Arthrogryposis Back Home Next. arthrogryposis. Clay's arthrogryposis Homepage A sitedovoted to arthrogryposis, and special needs children. Copyright http://www.ability.org.uk/Arthrogryposis.html

Our Aims Services Stats ... Z Arthrogryposis Clay's Arthrogryposis Homepage A site dovoted to Arthrogryposis, and special needs children Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

28. JDnD Dylan has a condition called arthrogryposis. http://communities.msn.com/JDnD

MSN Home My MSN Hotmail Search ... Money Groups JDnD JDnD@groups.msn.com Groups Home My Groups Language Help ... Tools Dylan's Web Page! Hi, my name is Dylan. I am 4 years old and I have a condition called Arthrogryposis, which makes it hard for me to move. But I don't let that get in my way. I love to play, color, and drive in my power chair. I've come a very long way since I was born. I am really into the Muppets and as you can Yellow is my favorite color. I am in Pre-school and pretty smart, just ask me and I'll tell you. There are tons of pictures of me on these pages if you want to take a look. I have a little brother named Casey who is 1 year. We play really well together and soon will be able to plot against mom and dad. If you would like to see pictures of him check out Casey's page If you would like to learn more about Arthrogryposis please visit the websites Mom and Dad posted. Click here to see the pictures! If you want to e-mail me send it to my mom and Dad at jddncb@hotmail.com and they will make sure I get it Notice: Microsoft has no responsibility for the content featured in this Group.

29. Contractures arthrogryposis multiplex congenita (AMC). Distal arthrogryposis, type3 (Gordon syndrome) (DA3) l Autosomal Dominant Clinical features http://www.neuro.wustl.edu/neuromuscular/msys/contract.html

Front Search Index Links ... Patient Info CONTRACTURES Contractures with neuromuscular disorders Arthrogryposis Bethlem Myopathy Congenital muscular dystrophy ... Scleroatonic muscular dystrophy (Ullrich) Spinal Muscular Atrophy 5q-linked Congenital X-linked Infantile Tel Hashomer camptodactyly Williams-Beuren syndrome Contractures with myopathy or other neuromuscular disease Congenital Muscular Dystrophy Fukuyama Merosin Deficient Occidental; Normal Merosin With Rigid spine Scleroatonic muscular dystrophy (Ullrich) Dystrophies Dystrophinopathies Bethlem Myopathy (Dominant) Emery-Dreifuss Other myopathies Rigid Spine Syndrome: ? Emery-Dreifuss variant Hereditary IBM + Ophthalmoplegia Congenital myopathy with spindle excess King-Denborough Myasthenia Gravis: Neonatal Spinal Muscular Atrophy 5q-linked Congenital X-linked Infantile Other Tel Hashomer camptodactyly Camera-Marugo-Cohen syndrome Dermatomyositis Fasciitis ... Muscle fibrosis due to injections Meperidine Pentazocine Heroin Antibiotics in infants Williams-Beuren syndrome Rhabdomyolysis : Severe Emery-Dreifuss Muscular Dystrophy : Emerin; Chromosome Xq28; Recessive

30. Having Arthrogryposis My name is Denise and I was born with arthrogryposis. http://www.geocities.com/denisecsus/LittleDeniseandherfamily.html

My name is Denise. I was born on November 15th 1972. I was diagnosed with Arthrogryposis Multiplex Congenita. The actual cause of the condition is unknown in my situation.     At birth my feet were clubbed, my hands were in an abnormal position and I had a cleft pallate, acutally three of them. I have had numerous surgeries and only some of them were successful.  Years of physical and speech therapy proved to be the most helpful intervention for me. Therapy only worked for me because it began at a very early age, I was still an infant.     I can speak with out any type of defect and I am mobile. I discontinued physical therapy as a pre-teen. I have since suffered for that decision. I have lost fleibility and range of motion. I have recently tried to stretch my joints but I am very forgetful and need to motivate or pay the price even further.     I am currently attending a California University and I have a dream to counsel disabled kids. Being a kid isn't easy and being disabled sure doesn't help. I feel that my disability would allow the kids to open up to me and to think that maybe I do know where they are comming from. I can only hope I am right. Little Me Links: Yahoo!

31. Our Daughter's Arthrogryposis Special needs adoption story a baby with arthrogryposis grows up to bea talented young girl. Our Daughter's arthrogryposis. By Barb Burke. http://www.comeunity.com/adoption/special_needs/arthrogryposis.html

Our Daughter's Arthrogryposis By Barb Burke Our family has come in contact with so many beautiful children and families struggling with Arthrogryposis. They have been such an inspiration and encouragement to our family! My husband and I did some ground work prior to accepting the referral of our daughter from the adoption agency. We attended a full-day seminar on Arthrogryposis at our local Children's Hospital headed by Dr. Judith Hall, the leading expert on the subject. She has researched this condition for the past 20 years and revealed cutting-edge information on the subject. I also contacted a few parents who were raising children with arthrogryposis and found them most helpful. Initial Contact We first heard of our daughter residing in a babies home in Seoul, Korea when she was 4 months old. At that time, she had been diagnosed as being born with a type of Arthrogryposis known as Amyoplasia, affecting only her upper limbs. Within 10 days of life, her biological parents placed her in the care of an agency for adoption because they were given little hope for her future, and felt unable to afford the needed care. We first met Soo (Excellent) Hee (Brilliant) through a picture at age four months. She was born with shoulders internally rotated, elbows fixed in extension,and flexion contracture of her wrists. She received range of motion by a therapist visiting her 3x's weekly in the orphanage. The US doctors believe this saved her small muscles from atrophying.

32. Desertroses_Page I was born with a condition called arthrogryposis multiplex congenita. http://www.geocities.com/desertroze2000/Desertroses_Page.html

Desertrose - Arthrogryposis Muliplex Congenita My Personal Info: I was born with a condition called Arthrogryposis Multiplex Congenita Name: Jennifer Lee Sosich D.O.B: Hobbies: Listening to Music (loud) Going Cross Country through the forest in my chair.....yeeehaaa! WATCHING Motor Sports (cuz my chair doesn't go fast enoungh for me to join in...lol) Crafts and Painting Animals Socialising with Friends Email: desertrose@zfree.co.nz

33. Kimberly's Autobiography This is the life story of a woman with multiple disabilities, including arthrogryposis multiplex congenita. http://communities.msn.com/KimberlyAngelheart

MSN Home My MSN Hotmail Search ... Money Groups Groups Home My Groups Language Help ... Back Hmmm, We Can't Find that Page... The page you're looking for might have been moved or deleted. Or, perhaps the Web address is misspelled? Ideas to help you find what you're looking for: Try refreshing the page (click Refresh or Reload on your browser). Check the address for spelling and punctuation errors. Go to MSN Groups Home and look around from there. Back MSN - More Useful Everyday MSN Home My MSN ... GetNetWise

34. Special Child: Disorder Zone Archives - Arthrogryposis Multiplex Congenita Disorder Zone Archives. arthrogryposis Multiplex Congenita Dylan Brown. He wasdiagnosed as having severe arthrogryposis Multiplex Congenita and scoliosis. http://www.specialchild.com/archives/dz-036.html

Disorder Zone Archives Arthrogryposis Multiplex Congenita Dylan Brown Jess Daniel Introduction Arthrogryposis Multiplex Congenita (AMC) is a musculoskeletal disorder characterized by the presence of multiple joint contractures (limitation of the range of motion of a joint) at birth. In some cases, only a few joints may be affected, however, in the classic cases of AMC, hands, wrists, elbows, shoulders, hips, feet, and knees are affected. In the more severe cases, joints in the back and jaw can be affected as well. In addition to having joint contractures, children also experience muscle weakness, which further limits movement. There may be as many as 10 to 20 different arthrogrypotic disorders, all with similar joint manifestations. However, the most common form of AMC is amyoplasia. There are many different causes of AMC, but typically it is a result of either problems with joint growth and development, decreased fetal movement (not enough room in the uterus to move), or problems with spinal development in the first 3 months of pregnancy. AMC occurs in 1 out of every 3,000 live births. In most cases, AMC is not inherited and does not occur more than once in a family. However, in about 30% of the cases, a genetic cause has been identified.

35. JUST A KROOKED KID Born with arthrogryposis and author of his autobiography Just a Krooked Kid. http://www.geocities.com/gjhaleus/krookedkid.html

JUST A KROOKED KID An autobiography written by Goodwin Hale concerning his life with the crippling disease, Arthrogryposis Multiplex Congenita.(AMC) Born to a very poor family during The Great Depression, Hale details his life through the hard times and the good times. Even though there were difficult times, the book is inspirational and upbeat. He has lived a relatively normal life, attending public schools in the lower grades, becoming a college student at age 39, and obtaining a law degree at age 44. He has practiced law since 1975. Hale is married with two daughters, five grandchildren and two great-grandsons. YOU WILL ENJOY THE BOOK!!!! ORDER TODAY!! My Favorite Links: Yahoo! Yahoo! Games Yahoo! Photos Yahoo! Greetings Address: 541 S. Ayrshire, Crosbyton, TX 79322 Name: GOODWIN HALE Email: gjhale@nts-online.net

36. Arthrogryposis.com http://www.arthrogryposis.com/

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37. Aging Gracefully With AMC Aging gracefully with arthrogryposis. http://members.aol.com/_ht_a/jfp832/myhomepage/

Aging gracefully with AMC About Me Hi! I'm Jackie. I live in Music City. I'm going on 67. Born with arthrogryposis multiplix congeniti that significantly affects my four extemities, I've been experiencing severe nerve and muscle pains in my legs, possably caused by sitting in my wheelchair all these years. I work full-time as Program Coordinator for the Disability Information Office for local government for over 21 years. I have three degrees from Peabody College/Vanderbilt University My Online Life In addition to seeking information about the aging process and my disability, I want to be kept abreast of disability rights issues, with special emphasis on home-based long term care and attendant care. I also want to be kept updated on how churches will begin to create greater inclusion of persons with disabilities and their families in ongoing programs and services. My Interests I enjoy decorating and cooking TV programs and reading materials, all types of music (I sing in my church's chior) and attending concerts and plays. A somewhat new interest is dabbling in writing my story as someone with quadriplegia who has had some measure of success, been involved with the Independent Living movement, and working for many years encouraging greater inclusion of persons with disabilities in religious experiences. My Favorite Links aol yahoo Jacquelyn e-mail: jfp832@aol.com

38. Dan's Place Florida male with arthrogryposis shares his interests. http://www.dango727.com

Last updated on March 18, 2003 My CD's My Autographs My Links FAQ ... Guestbook Hi, welcome to my page! Click around and learn a little bit about me and my interests. (Click each pic to enlarge) Me at 8 months. My parents told me I cried when they pulled the bow off...OUCH!!! Me (5) with Spiderman. Me (8) with E.T. at Universal Studios in Hollywood, California. If you have Yahoo! Messenger or AOL Instant Messenger , my screen name is dango727. Look below to see if I'm online. Download AOL Instant Messenger In the October 2000 issue of the East Lake Eagle (a local monthly newspaper,) there was a story about me helping a lady find her lost dog. The article is below. The funny thing about it is the pic they show is not of me, the dog, or its owner. Oh well, it's about me though, so here it is for your reading pleasure. Dan's CD's - My favorite type of music is Hip-Hop. I've been into it since the early 80's. I am always looking to expand my CD collection. If you are interested in trading CD-R's with me, check out the link. Dan's Autographs - One of my biggest hobbies is collecting autographs. I don't buy, sell, or trade autographs, but if you're interested in looking at whose autographs I've obtained, check out the link.

39. Helpful Arthrogryposis Links Helpful arthrogryposis Links. NEW!!! Brand PHOTOS Avenues A NationalSupport Group for arthrogryposis Multiplex Congenita. What http://www.angelfire.com/journal/adoptionhelp/helparthro.html

Helpful Arthrogryposis Links NEW!!! Brand Name Apparel at Discount Prices at Amazon Arthrogryposis: A Text Atlas by Lynn T. Staheli (Editor), Judith G. Hall (Editor), Diane O. Paholke (Editor), Kenneth M. Jaffe (Editor) PHOTOS... Avenues - A National Support Group for Arthrogryposis Multiplex Congenita What Is Arthrogryposis - From the Avenues Pamphlet Malignant Hypothermia and Arthrogryposis ... Disabled Drivers Program $1.50 per book sold will be donated to the U.S. Fund for UNICEF Over 12 Illustrators detailed the artwork in this beautiful piece of literature Adapted from: The UN Convention on the Rights of the Child Please click on the book to read an in-depth report... a must for every family Library "Whoever we are, wherever we live, these are the rights of every child under the sun and the moon and the stars." Author: Barb Burke adoptionhope@msn.com Tomorrow Is A Gift CLICK ON THE PICTURE... Educational Software for CHILDRN HOME INTRODUCTION-About Our Site Christian Adoption-"When God calls" ... $$$$ FINANCIAL ASSISTANCE TO HELP DEFRAY THE COST OF ADOPTION $$$ sw="none";sd="none";ref=""+escape(document.referrer);

40. HoppusChick182 Brief profile of a girl from Nebraska with arthrogryposis. http://www.geocities.com/bsshiningstars/hoppuschick182.htm

Name: Alicia S/N: Email: alicia_hoppus@hotmail.com Location: North Platte, Nebraska, USA Fav. BSB: A.J. Fav. BSB CD: Millenium Fav. BSB Song: Show Me the Meaning of Being Lonely Other artist(s) you like: Blink 182, Green Day, The Offspring, Limp Bizkit, Fenix Tx, Papa Roach, Linkin Park... Fav. color: Black Fav. food: Anything not healthy, haha. Stuff I want to add: I am 12 years old and have Arthrogryposis. My best friends (from school) are Christina, Trisha, Cody, Amanda, and Alisha. And I have many friends online. I have been at the board a very long time and was at the old one before it closed down.

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