81. Links SQL Health/Conditions And Diseases/Rare Disorders Aicardi syndrome (0). Alstrom syndrome (0). Barth syndrome (0). Cerebrocostomandibularsyndrome (0). Cleidocranial Dysplasia (0). Cystinosis (0). Degos (0). http://www.4allwebmasters.com/Health/Conditions_and_Diseases/Rare_Disorders/

82. Welcome To Adobe GoLive 4 Cerebral Vasculitis. Cerebro Oculo Facio Skeletal syndrome. Cerebrocostomandibularsyndrome. Cerebrospinal Fluid. Cerebrospinal fluid test for Multiple Sclerosis. http://www.epscorp.com/healthmednet/Bob/c.htm

Directory Index HealthMedNet Example Report Request Form Directory Index ... DataBase Note: The names were derived from the specific illness/disease source directories. Therefore, there are some variations in the names. When ordering a list of URLs for your illness/disease, where possible, include the general usage, technical, acronym, and/or abbreviation names. C Syndrome C.F.S. CABG or "Cabbage" (Coronary Artery Bypass Graft Surgery) Cachexia CAD Cadmium Poisoning Caesarean Section Cafe-au-Lait Spots Caffeine Addiction Caffeine Intoxication Caisson Disease Calcaneus Calciferol Calcific Bursitis Calcific Tendonitis Calcification Calcitonin-Osteoporosis Calcium Channel Blockers Calcium Metabolism Disorders Calcium Pyrophosphate Deposition Disease (Pseudogout) Calculi Calculi, Biliary Calculus Calculus, Dental Caldwell-Luc Operation Caliper Callus Camptomelic Syndrome Campylobacter Campylobacter Enteritis Campylobacter Infection Campylobacteriosis Canaliculus Canalis Canavan Disease Cancer Cancer - New therapies in the pipeline Cancer (Reproductive Tract) Cancer and Aging Cancer antigen 125 (CA 125) for functional ovarian cysts Cancer Care Cancer Causes Cancer Center Cancer Concerns, Men

83. The Medword List - A Medical Directory Of Medical Transcription, Medicine And He Aicardi syndrome ( 8 ). Alstrom syndrome ( 4 ). Barth syndrome ( 3 ). Cerebrocostomandibularsyndrome ( 3 ). Cleidocranial Dysplasia ( 5 ). Cystinosis ( 5 ). http://www.medwordlist.com/Conditions_and_Diseases/Rare_Disorders/

Books Business Courses Diversions ... Conditions and Diseases : Rare Disorders Categories: Agnosia Aicardi Syndrome Alstrom Syndrome Barth Syndrome ... Wegener's Granulomatosis Links: Cherubs A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. http://www.cherubs-cdh.org (Added: Mon Jan 01 2001 Hits: 9 Rating: 0.00 Votes: ) Rate It Contact a Family Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. http://www.cafamily.org.uk (Added: Mon Jan 01 2001 Hits: 7 Rating: 0.00 Votes: ) Rate It Human Growth Foundation Information about growth-related disorders through education, research, and advocacy. Member driven organization. http://www.hgfound.org/ (Added: Mon Jan 01 2001 Hits: 6 Rating: 0.00 Votes: ) Rate It International Rare Disease Support Network A community providing more than a 1000 different links to support groups for the people of all nations. http://www.raredisorders.com

84. Center For The Molecular Study Of Bone And Joint Disorders Center for the Study of Genetic Bone and Joint Disorders Department of Genetics Case Western Reserve University Cleveland, Ohio USA Director Dr. Matthew Warman http://genetics.cwru.edu/bone

Center for the Study of Genetic Bone and Joint Disorders Department of Genetics Case Western Reserve University Cleveland, Ohio USA Director: Dr. Matthew Warman A consortium of professionals committed to a better understanding of human diseases affecting the skeletal system Please use this site to learn more about (Click on the underlined topic of interest) The members of our consortium The disorders on which we are currently focusing our research Acromesomelic Dysplasia, Maroteaux type ( AMDM Brachydactyly Camptodactyly-Arthropathy-Coxa Vara-Pericarditis syndrome ( CACP Cerebrocostomandibular Syndrome (CCMS Infantile Systemic Hyalinosis Juvenile Hyaline Fibromatosis Multiple Synostosis Syndromes ( SYNS Osteoarthritis ( Genetics of Osteoarthritis Study Osteoporosis ( The Twins Bone Health Study) Osteoporosis-Pseudoglioma Syndrome ( OPPG Progressive Pseudorheumatoid Dysplasia ( PPD Proximal Symphalangism ( S Spondylocarpotarsal Syndrome How to submit samples to aid in our efforts Recent publications The Bone Disorders Clinic at University Hospitals of Cleveland For additional information or comments: Please contact Shauna Heeger, MS at

85. Mental Help Net - Self-Help Sourcebook OnLine A searchable index of mental health and medical support groups and organizations throughout the world and in your community. http://www.mentalhelp.net/selfhelp

Sourcebook Home Mental Help Net "Although the world is full of suffering... it is also full of overcoming it." Helen Keller Site awards: Sponsored By CenterSite, LLC Updated March, 2003 Web version updated by Mary Ellen Kerin and Adrienne Rothblatt This guide has been developed to act as your starting point for exploring real-life support groups and networks that are available throughout the world and in your community. The self-help groups, contained in the database that you can access by keyword in the box at the bottom, can help you find and/or start a support group in your community. Local self-help group clearinghouses can also often help you find or form a group. (For other online support groups and resources, please consult the annotated Directory of Online Resources available at http://psychcentral.com/resources Introduction Frequently Asked Questions (FAQ) Research on Self-Help Groups Praise for Self-help Support Purchase A Hard Copy of This Sourcebook In Your Community ... Toll-Free Phone Numbers Nationwide listing of toll-free numbers for additional information on problems ranging from adoption and disabilities to taxes and missing children Provide Feedback Tell Us About a New Group Register Your Intent to Start a Needed Nat'l Support Group/Network Searching The Sourcebook: To find self-help organizations and groups, enter

86. Top Web Sites For Health Conditions And Diseases Genetic Disorders Plus Books, N Top web sites for Health Conditions and Diseases Genetic Disorders plus books, news, mp3 files, music, sports, and more more http://directory.searchwho.com/archive/catalog.html/Health/Conditions_and_Diseas

Search Type: Search The Web News Headlines Sports Jobs MP3 Files Music CD's Video VCR/DVD Movie Info Auction Electronics Books Recipes Computers Keywords or Phrase: Also Search: Web Search Health Business/Finance News ... *Desktop Top Web Sites for Health Conditions and Diseases Genetic Disorders Best Of The Web Health Conditions and Diseases : Genetic Disorders Aarskog Syndrome Aase Syndrome Ablepharon-Macrostomia Syndrome Alkaptonuria ... Polycystic Kidney Keywords: Websites: Acid Maltase Deficiency - A brief summary of AMD along with links and news. Chromosome Deletion Outreach. - Provides support and information to families. Includes family stories, a library, FAQs and resources. Dr. Greenes HouseCalls - A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease. GeneClinics: Medical Genetics Knowledge Base - NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients. Genetic Information and Patient Services, Inc (GAPS)

87. Top Web Sites For Health Conditions And Diseases Rare Disorders Plus Books, News Top web sites for Health Conditions and Diseases Rare Disorders plus books, news, mp3 files, music, sports, and more more http://directory.searchwho.com/archive/catalog.html/Health/Conditions_and_Diseas

Search Type: Search The Web News Headlines Sports Jobs MP3 Files Music CD's Video VCR/DVD Movie Info Auction Electronics Books Recipes Computers Keywords or Phrase: Also Search: Web Search Health Business/Finance News ... *Desktop Top Web Sites for Health Conditions and Diseases Rare Disorders Best Of The Web Health Conditions and Diseases : Rare Disorders Agnosia Aicardi Syndrome Alstrom Syndrome Barth Syndrome ... Gaucher's Keywords: Websites: Canadian Organization for Rare Disorders - Committed to the enhancement of the lives of persons affected by rare disorders. Includes history of CORD and informational support network. Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization. International Rare Disease Support Network - A rare disease support commuity providing more than a 1000 different rare disease support eGroups with support for the people of all nations. National Organization for Rare Disorders, Inc.

88. Kehitysvammahuollon Tietopankki Kehitysvammahuollon tietopankki. Rintanikamien epämuodostumat, suunja kasvojen kehityshäiriöt. Aivokylkiluu-alaleuka-oireyhtymä. http://www.saunalahti.fi/kup/syndroma/smith-theiler-schachenmann.htm

Kehitysvammahuollon tietopankki Rintanikamien epämuodostumat, suun ja kasvojen kehityshäiriöt Aivo-kylkiluu-alaleuka-oireyhtymä Kerebrokostomandibulaarinen oireyhtymä Smith-Theiler-Schachenmannin oireyhtymä Kylkiluun rakoilu-oireyhtymä Psyykkinen kehitysvammaisuus liittyy tässä oireyhtymässä pääasiassa rintanikamien epämuodostumiin ja suun sekä kasvojen kehityshäiriöihin. Henkisen suorituskyvyn madaltuminen saattaa johtua vastasyntyneen hengitysvaikeuksista. Oireyhtymän muita piirteitä ovat pienipäisyys ( mikrokefalia ), alaleuan pienikokoisuus, suulaen kovuus, lyhyys ja suulaen pehmeän osan puuttuminen, suulaen halkio, kitakielekkeen ja kielipoimun puuttuminen, kaulan ihon siipikalvomainen poimuttuminen, kylkiluun molemminpuoliset raot kylkinikamien liitos- ja sivukaarien alueella, mahdollisesti rintalastan ja solis- sekä kyynärluun vajaakasvuisuus, nikamien luhistuminen, selkärangan kieroutuminen ( skolioosi ) ja puolinikamaisuus sekä hermosolujen myeliinisaation (valkean aineen muodostuminen) viivästyminen. Noin kolmannes vammautuneista menehtyy ensimmäisen elinvuoden aikana.

89. BCcomm: Health & Fitness/Conditions & Diseases/Rare Disorders This is an informal support group for families of children with cerebrocostomandibularsyndrome (CCMS). URL http//www.members http://www.bccomm.net/dir/Health___Fitness/Conditions___Diseases/Rare_Disorders/

HOME REGISTER USER LINKS ... LOGIN entire directory this category ADVANCED SEARCH Home Rare Disorders SPONSORS Advertise Here Sponsor This Category (Rare Disorders) CATEGORIES: Progeria VATER Syndrome Wegeners Granulomatosis LINKS: My Links Reviews Details ... Office of Rare Diseases Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. URL: - http://rarediseases.info.nih.gov/ord/ Report As Bad Recommend it Review It Rate It! ... Lysinuric Protein Intolerance Support eGroup A support eGroup available to anyone interested in making friends, sharing information, and providing support for persons affected by "Lysinuric Protein Intolerance." URL: - http://www.egroups.com/group/lysinuric_protein_intolerance/fullinfo.html Report As Bad Recommend it Review It Rate It! ... Ollier/Maffucci Self Help Group A nonprofit organization for people affected Olliers Disease, a rare disorder of bone development and Maffucci Syndrome, a rare congenital disorder characterized by multiple benign skin and bone lesions. URL: - http://www.ollier-maffucci.org/

90. Health Conditions And Diseases Zare Disorders Cerebrocostomandibular Syndrome Po Health Conditions and Diseases Zare Disorders CerebrocostomandibularSyndrome 523623 Polish Yellow Pages YP.pl. http://www.yellowpages.pl/ca/523623/Health/Conditions_and_Diseases/Rare_Disorder

>English Version Polskie Firmy: Firmy wg SIC Szukaj firmy Szukaj w Internecie: Polska ¦wiat Katalog Stron Biznes Serwisy YellowPages: Rejestracja DOMEN Strony WWW DNS ZOOM ... Sklep Partner idealo.de NETSPRINT Reporter.pl Portofolio DVD Search TOP CHARTS Webkatalog Multi szukanie - mainSeek Polska - Netsprint ¦wiatowy Katalog Stron Katalog Firm Teleadreson Szukaj domeny TOP Health Cerebrocostomandibular Syndrome - Selected medical images. Cerebrocostomandibular Syndrome Support Group - This is an informal support group for families of children with cerebrocostomandibular syndrome (CCMS). National Library of Medicine CCM, CCMS - A list of synonyms cerebrocostomandibular syndrome, a summary and major features. NORD - Cerebrocostomandibular Syndrome - A general discussion, alternate names and resources. TheFetus.net - Cerebro-costo-mandibular syndrome. a definition, the etiology, diagnosis, prognosis and management. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor P³atna reklama REJESTRACJA DOMEN KATALOG STRON PROFESJONALNY DNS SKLEP ... e-mail

91. OMIM UVEAL, WITH CLEFT LIP AND PALATE AND MENTAL RETARDATION; 117650 CEREBROCOSTOMANDIBULARSYNDROME (searching for spina bifida heart defect cleft palate ); http://www.republika.pl/jmejnart/wcn_omim.htm

Ponisze odno¶niki pozwalaj± na wykorzystanie zasobów OMIM On-line Mendalian Inheritance in Man w NCBI. Strona g³ówna OMIMu Przeszukiwanie OMIMu Formularz wyszukiwania OMIMu Wpisz jedno lub wiêcej s³ów kluczowych: Aby przeszukaæ wszystkie pola, nie zaznaczaj poni¿szych kratek. Aby za¶ zawêziæ zakres szukania do poszczególnych pól, zaznacz kratki obok odpowiadaj±cej nazwy pola. Zobacz Pomoc w zadawaniu zapytañ (Query help) , aby dowiedzieæ siê jak zadawaæ zapytania w inny spoób (³±cze prowadzi do serwera OMIMu w USA). Tytu³: Numer OMIM: Odmiany alleliczne: Tekst: Bibliografia: Objawy kliniczne: Mapa genów chorób: Wpisuj±cy: Wy¶wietlaj tylko rekordy zmienione w ci±gu ostatnich 7 dni 15 dni 30 dni 60 days 90 days 180 days 365 days Bez ograniczeñ Wy¶wietla tylko 50 pozycji 100 pozycji 200 entries No Limit Wyniki przeszukiwania wg has³a "Wady cewy nerwowej" (Neural tube defect/s) w OMIMie Autosomalne dominuj±ce Autosomalne recesywne SPINA BIFIDA NEURAL TUBE DEFECT, FOLATE-RESISTANT NEURAL TUBE DEFECT, FOLATE-SENSITIVE APOLIPOPROTEIN B; APOB

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