21. PediHeart Website A collection of material on congenital heart diseases, both for the pediatrician and the patient.Category Health Medicine Medical Specialties Pediatrics...... Advanced, updated information on congenital heart disease. General considerations. Thelist is moderated by specialists in congenital heart disease. http://www.pediheart.org/

Welcome to PediHeart Pediatric News The Kidzone A place for kids with heart disease. Learn about the heart. Meet other kids. Show us your stuff. Parent's Place . A place for parents. Learn about the heart. Meet other parents. Join a discussion. Ask us your questions. Advanced Information and Practitioner Area . Advanced, updated information on congenital heart disease. General considerations. Specific lesions. Membership Required Watch pediatric health videos We welcome your feedback and input Join our mailing list: The Pediheart Organization Mailing List is open to parents, patients, and practitioners. The list is moderated by specialists in congenital heart disease. Subscribe or Unsubscribe We subscribe to the HONcode principles of the Health On the Net Foundation Content written and site maintained by HA Hennein, MD Nov-01 No part of this website may be reproduced without the consent of PediHeart Organization Last revised: November 25, 2001

22. PediHeart: Congenital Heart Disease - Anatomy Introduction to Cardiac Anatomy. An understanding of normal and abnormal cardiacmorphology is basic to the management of congenital heart defects. http://www.pediheart.org/practitioners/anatomy/

Introduction to Cardiac Anatom y An understanding of normal and abnormal cardiac morphology is basic to the management of congenital heart defects. Problems exists in the nomenclature of cardiac morphology, suffice it to say that the most appropriate terminology is that which is functional, accurate, and to the best extent possible, accepted by the majority of workers in the field. In a typical example, a ventricle may be referred to as left-sided, systemic, pulmonary, arterial, etc., but the question remains, which ventricle is it - the morphologically left or the morphologically right? The diagnostic problem is that a positional left ventricle may be a morphologically right ventricle. Morphologic anatomic identification is therefore cornerstone of accurate diagnosis. The segmental approach to the diagnosis of congenital heart defects is based upon an understanding of the morphologic features of the different segments of the heart. The cardiac segments are the building blocks out of which all hearts are built, and include the great veins, atria, ventricles, and great arteries. The ability to distinguish the different segments of the heart is the cornerstone of cardiac morphology, and distinctions are based on knowledge of the structure of the normal heart. However, what would seem to be the most diagnostic features of any particular cardiac segment in the normal heart may not always be the most reliable indicator of its true identity in the malformed heart. For example, the most distinguishing feature of the left atrium might well be considered its connections to the pulmonary veins. However, this feature is of little value in identifying the left atrium in the presence of total anomalous pulmonary venous connection. Hence, the morphological method, by which cardiac segments are identified according to their most constant features, is the most accurate way to identify structures in a malformed heart.

23. Guidant – Medical Devices For Cardiovascular Disease And Heart Disease Develops emerging therapies for cardiovascular and congenital heart disease. http://www.guidant.com/

Condition Compass Overview Abdominal Aortic Aneurysm Arrhythmias Coronary Artery Disease ... comments International Sites Guidant France Guidant Germany Guidant Italy Guidant Announces Preliminary 30-Day Results of Study of Carotid Artery Stenting as Alternative Treatment for High Surgical-Risk Patients Newsroom Guidant news and information for investors and media professionals. Webcasts Find current and archived webcasts. See the complete overview of Patients and Families information Condition Compass News for Heart Attack Survivors Women's Heart Health Heart Failure Resources Take a 10-question assessment to find out if you're at risk for coronary artery disease. What's New for Patients and Families Video: How ... Travel With Your Device See the complete overview of Medical Professionals information Education PowerPoint Resource Center MADIT II Study Visit our partner sites to stay up-to-date on cardiac and vascular conditions and treatments. 15th Annual Mirowski SCD Symposium March 29, 2003 Sleep-Disordered Breathing and Cardiovascular Disease March 29, 2003 2003 Events Calendar Terms and Conditions

24. Congenital Heart Disease: Ebstein's Anomaly - Texas Heart Institute Heart Inform Your doctor can help you decide what type of surgery is best for your child.See also on this site congenital heart disease. See on other sites http://www.tmc.edu/thi/ebstein.html

//var DOCUMENTGROUP=''; //var DOCUMENTNAME=''; //var ACTION=''; Heart Information Center Ebstein's Anomaly Ebstein's anomaly is a defect that mainly affects the tricuspid valve. The tricuspid valve is the valve that controls blood flow between the heart's upper-right chamber (the right atrium) and lower-right chamber (the right ventricle). In Ebstein's anomaly, the tricuspid valve is located lower than normal, so the upper part of the right ventricle is part of the right atrium. This means that the right ventricle is too small and the right atrium is too large. Besides being too low, the tricuspid valve may not be formed correctly. Heart valves are made up of flaps called leaflets. When the leaflets are normal, they act like doors, which control blood flow by opening and closing. But in Ebstein's anomaly, abnormal leaflets may let blood leak back into the atrium after it has flowed into the ventricle. This backward flow of blood makes the atrium even larger and the ventricle even smaller. People born with Ebstein's anomaly often have other heart problems, including

25. Home An organization promoting the health and welfare of infants and young adults with acquired or congenital heart disease by enhancing the art and science of pediatric cardiovascular nursing. http://npcna.org/

NORTHEAST PEDIATRIC CARDIOLOGY NURSES ASSOCIATION (NPCNA) The Northeast Pediatric Cardiology Nurses Association (NPCNA) was founded in 1983 to promote the health and welfare of infants and young adults with acquired or congenital heart disease by enhancing the art and science of pediatric cardiovascular nursing. NPCNA is a specialty organization with an educational focus designed to meet the needs of nurses and allied health professionals in the care of the patient with acquired or congenital heart disease across the lifespan. This web site is designed to meet the purposes of the organization and to expand organizational communication . PURPOSE: To promote the delivery of nursing care of the pediatric patient with acquired or congenital heart disease in accordance with the Standards of Nursing Care of the American Nurses Association (ANA). To promote professional and educational advancement of pediatric cardiovascular nurses. To provide educational opportunities for nurses caring for patients with acquired or congenital heart disease. To facilitate and maintain communication among pediatric cardiovascular nurses.

26. In Loving Memory Of Taylor Alyssa She was born on January 23, 1996 with congenital heart disease and passed away shortly after. http://www.ordonezonline.com/Taylor/

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27. Yale: Congenital Heart Disease congenital heart disease. YSMInfo Library Calendar Directories Search YSM HomeCopyright 2001, Yale University School of Medicine. All rights reserved. http://info.med.yale.edu/intmed/cardio/chd/

February 22, 2001 (PL)

28. Untitled Document Information about the full range of diagnostic and treatment services for infants, children, and teenagers with congenital heart disease from the common to the extremely complex. Part of the Alfred I. duPont Hospital for Children, Wilmington, Delaware. http://www.nemourscardiaccenter.com/

29. Congenital Heart Disease Provides an overview of the facility. The major topics in adult congenital heart disease are discussed for the patient and the cardiologist. http://hora.cpmc.columbia.edu/dept/congenitalheart/index.html

Successful cardiac surgery in infants and children during the 1960s and 1970s has resulted in a rapidly growing population of adults with congenital heart disease. Some of these patients have cardiac problems which are not typically seen by adult cardiologists. The Joan And Michael Schneeweiss Center for Adult Congenital Heart Disease at New York Presbyterian Hospital was developed to serve the unique needs of this population. Highly specialized care is provided by a team of physicians specifically interested in the problems of adults with congenital heart disease. The Adult Congenital Heart Disease Program is directed by Dr. Marlon S. Rosenbaum, a cardiologist trained in both adult and pediatric heart disease. The Program is a vital resource for patients with both newly diagnosed congenital heart disease and those who had cardiac surgery earlier in life. Diagnostic studies such as echocardiography, cardiac MRI, and cardiac catheterization are performed by physicians knowledgeable about adult congenital heart disease. Our cardiac MRI facility has state of the art software which permits rapid acquisition of images and provides highly detailed anatomic information. Cardiopulmonary stress testing is performed by an exercise physiologist with extensive experience in exercise and congenital heart disease. The cardiac surgical program at the Adult Congenital Heart Disease Center is led by Dr. Jan Quaegebeur and Dr. Ralph Mosca. Our surgeons have had extensive experience in the repair of many different forms of congenital heart disease, including D-transposition of the great arteries, single ventricle, Ebstein's anomaly and aortic valve disease using the Ross procedure.

30. Children's Heart Society Main Page Information about this nonprofit, volunteer based support group, dedicated to helping families affected by congenital heart disease/Defects. http://www.childrensheart.org/

Welcome to the Children's Heart Society When your child is diagnosed with heart disease, you may feel that your hopes and dreams have been shattered. Feeling helpless, frightened, and even guilty are common emotions that parents experience. The Children's Heart Society would like you to know that you are not alone. Statistically, 1 in 100 children are diagnosed each year in Alberta with Heart Disease. In this site you will find information on our Society, Children's Heart Disease, resources for parents, family and children, and stories from people just like you. For more information please do not hesitate to contact the Society at: Children's Heart Society Box 52088 Garneau Postal Outlet Edmonton, Alberta Phone: 780-454-7665 Email: ch@childrensheart.org To check out what's new with the Children's Heart society click here. To return to this page at any time during your stay on our website, just click on Harvey in the upper left corner of every page.

31. Understanding Pediatric Heart Sounds Book on pediatric heart sounds, auscultation, congenital heart disease, physical diagnosis. http://stevenlehrer.com/heart.htm

Understanding Pediatric Heart Sounds 2nd edition Steven Lehrer, MD Teaches how to examine the heart of a child, with a booklet and audio CD that reproduces heart sounds. Reviews the anatomy and physiology of a child's heart as well as principles of sound, hearing, and the proper use of the stethoscope. Details methods for history taking, performing a physical examination, and auscultating the heart. “The author's clear style makes the book, and at least a good portion of the audiotape, eminently suitable for students, house staff, and practitioners who wish to enhance their listening skills for pediatric cardiovascular examination.” New England Journal of Medicine Understanding Pediatric Heart Sounds By Steven Lehrer, MD; Associate Professor, Mount Sinai School of Medicine, New York W.B. Saunders ISBN 0-7216-2387-5

32. 3-D Visualization Of Congenital Heart Disease 3D Visualization of. congenital heart disease. congenital heart diseaseOverview. Patient Scan Protocol. Case Studies. Examples in the Literature. http://everest.radiology.uiowa.edu/nlm/app/cnjheart/cnjheart.html

3-D Visualization of Congenital Heart Disease by Susanne Shamsolkottabi, Janice Cook-Granroth, William Stanford, M.D., Simon Kao, M.D., Kevin Baskin, M.D., and Eric Hoffman, Ph.D. at the University of Iowa Congenital Heart Disease Overview Patient Scan Protocol Case Studies Examples in the Literature Other Relate Web Sites Submitting Protocols of Your Own Division of Physiologic Imaging, Dept. of Radiology, Univ. of Iowa Tutorials DPI Homepage VIDA NLM ... Search Last modified: Wed Jun 2 11:01:49 CDT

33. Little Hearts Home Page Provides support and information to families of children with congenital heart disease. Offers useful links, parent matching, email groups and activities. http://www.littlehearts.net/

Welcome to Little Hearts, Inc SM We are a non-profit organization that provides support, resources, networking, and hope to families affected by congenital heart defects. Founded in January of 1998, we are headquartered out of Connecticut but serve many families on the East Coast, primarily the New England and surrounding states. Membership consists of parents who have or are expecting a child with a congenital heart defect (CHD), adults with a CHD, and to parents whose child lost their battle to CHD. Our mission is to offer support to families affected by CHD, to promote public awareness for this #1 birth defect, and to raise money for CHD Research. If you would like to help us in our mission, please feel free to make a donation to the following address or phone in with a credit card. We are a non-profit organization and all donations are tax deductible. Thank you for your support Little Hearts, Inc. has had the wonderful opportunity to be part of a future Dateline NBC show featuring the surgical advancements and quality of life of Hypoplastic Left Heart Syndrome (HLHS). Our contribution was organizing and inviting 30 of our oldest kids with HLHS at an indoor pool for Dateline. On December 8, 2002, we had kids ranging in age from 4 years old to 16 swimming, diving, and doing whatever kids their age do in a pool.

34. The Grown Up Congenital Heart Patients Association - GUCH Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics Category Health Conditions and Diseases Heart Disease Congenital...... GUCH is here to help with the practical and emotional issues of livingwith congenital heart disease. About GUCH. Resource Library. http://www.guch.demon.co.uk/

Text Only We subscribe to the HONcode principles of the Health On the Net Foundation Welcome to GUCH What's New - Updated 29 March 2003 Congenital Heart Disease - a congenital heart defect is an abnormality of the heart that has been present from birth. Children born with heart disease, who once would not have survived, now reach adolescence and adulthood as a result of advances in cardiac surgery and medicine. The Grown Up Congenital Heart Patients Association (GUCH) is a UK charity, founded in 1993 to provide information and support for young people and adults who were born with a heart condition, and their families. The Association is supported by the British Heart Foundation GUCH Offers:- Freephone Helpline - (UK Only) Information Sheets Quarterly Magazine Workshops and Conferences Local Contacts Contacting GUCH GUCH Patients Association 75 Tuddenham Avenue Ipswich Suffolk Tel: Helpline: 0800 854759 (answerphone only at weekends) For gneneral enquiries contact: John Richardson (National Director) Paula Banda (Northern Region Co-ordinator) For website related enquiries contact: Antony Horner (Webmaster) For GUCH News related enquiries contact: Jamie Boyes (Editor) Website Designed and Maintained by Antony Horner Registered Charity No 104866 We welcome feedback about our site, please send your comments to

35. Heart Disease Online : Congenital Heart Diseases, Coronary Artery Ischemic Heart A collection of articles on the different kinds of congenital heart defects, including their treatment Category Health Conditions and Diseases Heart Disease Congenital......Heart Disease Online Read about heartdisease congenital, valve, coronaryartery or ischemic. How does heart disease affect patients? http://www.heartdiseaseonline.com/

Heart Disease information EVEN your child can understand ! LEARN ... all about Heart Disease ARTICLES ... grouped by disease NET LINKS ... handpicked, fresh NEWSLETTER ... free zines by email MEET ... patients, families, volunteers In the CHAT ROOM On the BULLETIN BOARDS Through DISCUSSION GROUPS Your resource for current and reliable information about HEART DISEASE It's so simple, even your child can understand ! BUY ... stuff on Heart Disease REPORTS ... on long term outcome BOOKS ... selected title reviews DRUGS ... fill prescriptions online COMMENT ... write to Dr.Mani ASK Dr.MANI a question Give FEEDBACK on this site Make a SUGGESTION

36. Have A Heart For Kids The Congenital Heart Center at Cardinal Glennon Childrens Hospital is a dedicated facility for the care of infants and children with congenital heart disease. http://www.haveaheartforkids.com

heart surgery for children The Saint Louis University Congenital Heart Center

37. Hershey Hearts A support group for families of children with congenital heart disease. Information about the group and meeting schedules. http://www.hersheyhearts.org

PO Box 163 Hershey, Pennsylvania 17033-0163 1-800-864-2349, mailbox #3388 HOME NEWSLETTER EVENTS CONTACT US ... LINKS Email - info@hersheyhearts.org A support group for families of children with congenital heart disease Formed in 1996 in association with the Milton S. Hershey Medical Center, Hershey Hearts is a support group for parents, siblings, and other family members of children who have been touched by congenital heart disease. Our group presently meets three times a year to provide support, advice and instruction for these families. The group's strength is drawn from the experiences of its members as well as the involvement of the physicians, nurses, technicians and social workers who provide the care at the Hershey Medical Center. Mission Statement We are committed to supporting, helping, and educating families with children with congenital heart disease. This is achieved through meetings, newsletters, and a visitation program. Our aim is to strengthen families during their long journey from despair to hope. Hershey Hearts Newsletter The Hershey Hearts Newsletter is published quarterly by Hershey Hearts volunteers in the months of February, May, August, and November. Each issue contains a variety of news, articles, interviews, and member contributions.

38. Advanced Search April 1, 1999 AFP Caring for Infants with congenital heart disease and TheirFamilies. CHD=congenital heart disease. Common Congenital Heart Defects. http://www.aafp.org/afp/990401ap/1857.html

Advanced Search Caring for Infants with Congenital Heart Disease and Their Families REBECCA B. SAENZ, M.D., DIANE K. BEEBE, M.D., and LARAMIE C. TRIPLETT, M.D. University of Mississippi Medical Center Jackson, Mississippi A patient information handout on congenital heart disease, written by the authors of this article, is provided on page 1867. T he reported incidence of congenital heart disease (CHD) is eight cases per 1,000 live births. Family physicians must know how to screen for cardiac defects in infants, how to stabilize infants with these problems and how to manage their problems in teamwork with a pediatric cardiologist and a cardiac surgeon. As patient advocates, we also must be prepared to help the parents and other family members cope with the psychosocial aspects of chronic disease in a child. Diagnosis Studies suggest that 30 to 60 percent of congenital heart defects can be detected prenatally by four-chamber screening. High-resolution four-chamber transvaginal echocardiography can provide detailed imaging of the cardiac anatomy in the fetus and can detect major abnormalities, although routine prenatal screening for CHD remains controversial. In one large study

39. Congenital Heart Disease A list of sites providing information on the diagnosis and treatment of congenitalheart disease. Advertisement. congenital heart disease Guide picks. http://heartdisease.about.com/cs/congenitaldisease/

zfp=-1 About Heart Disease/Cardiology Search in this topic on About on the Web in Products Web Hosting Heart Disease/Cardiology with Richard N. Fogoros Your Guide to one of hundreds of sites Home Articles Forums ... Help zmhp('style="color:#fff"') Subjects ESSENTIALS Cardiology 101 - the basics Common Heart Tests Symptom Checker ... All articles on this topic Stay up-to-date! Subscribe to our newsletter. Advertising Free Credit Report Free Psychics Advertisement Congenital heart disease Guide picks A list of sites providing information on the diagnosis and treatment of congenital heart disease. CHIN on congenital heart disease The Children's Health Information Network on congenital heart disease. Includes chat, support groups, and a guide to resources. Heart Disease Online review of congenital heart disease Well-written descriptions of the common forms of congenital heart disease. Overview of congenital heart disease from Heartpoint A very well-done treatment of a complex topic. Help for parents of children with congenital heart disease Resources for parents, from Pediheart.org Congenital Heart Disease Resource Page This is a well-organized site with extensive information and links Adults with congenital heart disease More and more people with congenital heart disease are living into adulthood. This page is a good resource for these individuals.

40. Children's Health System: Superior Pediatrics And A Leading Children's Hospital Pediatric specialists specialize in congenital heart disease, pediatric heart, lung and bone marrow transplantation, pain management, and other pediatric diagnoses and treatment. http://www.chw.org

document.location.href = "jhome.asp" With premier programs for congenital heart defects and heart disease in children, pediatric bone marrow transplantation, pain management in children from infants to adolescents, and other standard-setting specialties, the primary care pediatricians, pediatric specialist and subspecialist physicians and care teams at Children's Health System and Children's Hospital of Wisconsin deliver the best pediatric care to children in Milwaukee, the Great Lakes region and across the nation. Information about our top programs Children's Hospital of Wisconsin announces its new virtual tour Book Midwest Express flights here and benefit Children's Hospital Poison Information ... More News...

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