1. Craniosynostosis The cranial sutures involved in craniosynostosis are depicted and the specific occurrences discussed.Category Health Conditions and Diseases craniosynostosis......The cranial sutures involved in craniosynostosis are depicted and the specificoccurrences discussed. craniosynostosis. How is craniosynostosis diagnosed? http://www.kidsplastsurg.com/craniosynostosis.html

Craniosynostosis Craniosynostosis is a term that refers to the early closing of one or more of the sutures of an infant's head. The skull is normally composed of bones which are separated by sutures. This diagram shows the different sutures which can be involved. As an infant's brain grows, open sutures allow the skull to expand and develop a relatively normal head shape. If one or more of the sutures has closed early, it causes the skull to expand in the direction of the open sutures. This can result in an abnormal head shape. In severe cases, this condition can also cause increased pressure on the growing brain. Types of Craniosynostosis In sagittal synostosis (scaphocephaly), the sagittal suture is closed. As a result, the infant's head does not expand in width but grows long and narrow to accommodate the growing brain. The sagittal suture is the most common single suture involved in craniosynostosis. The incidence of sagittal synostosis in the population is approximately 1 in 4200 births. Males are affected about three times as often as females. When the metopic suture is closed, this condition is called metopic synostosis. You may also hear the term trigonocephaly used to describe your child's head shape. The deformity can vary from mild to severe. There is usually a ridge down the forehead that can be seen or felt and the eyebrows may appear "pinched" on either side. The eyes may also appear close together.

2. CRANIOSYNOSTOSIS Pediatric Database (PEDBASE); Discipline CNS; Last Updated 5/21/94craniosynostosis. DEFINITION CLINICAL FEATURES 1. craniosynostosis. http://www.icondata.com/health/pedbase/files/CRANIOSY.HTM

Pediatric Database (PEDBASE) Discipline: CNS Last Updated: 5/21/94 CRANIOSYNOSTOSIS DEFINITION: A congential anomaly of the CNS characterized by premature closing of one or more cranial sutures due to abnormalities of skull development. EPIDEMIOLOGY: age of onset: most cases evident at birth risk factors: familial - autosomal dominant and autosomal recessive chrom.#: 7p21.3-p21.2 gene: ? genetic syndromes account for 10-20% of cases: Apert Syndrome Chotzen Syndrome Pfeiffer Syndrome Carpenter Syndrome Crouzon Syndrome CLASSIFICATION: 1. Primary 2. Secondary results from failure of brain growth and expansion TYPES: Suture % Skull Shape Sagittal 40 scaphocephaly Bicoronal 20 brachycephaly Unicoronal 15 plagiocephaly (frontal) Coronal + Sagittal 10 acrocephaly Total 10 microcephaly Metopic 4 trigonocephaly Lambdoid + Sagittal 1 plagiocephaly (occipital) CLINICAL FEATURES: 1. Craniosynostosis

3. HotDog Express For AOL Hometown Document Personal experiences of a family and a child born with craniosynstosis. http://members.aol.com/cdbosworth/brynnespage.html

htmlAdWH('7002423', '120', '30'); htmlAdWH('7002418', '234', '60'); Main Create Edit Help Welcome, Brynne Anne ! born April 20th, 1999 6:19 pm 9 lb. 3 oz. 22+1/2" long Three Days Old My mommy and daddy are Donna and Chuck. My big brother's name is Chuckiehe is four years old. I am already 5 months old (this big girl picture shows me at 3 months, right after my Christening). The doctor told my mommy that she better watch outI'm a strong girl! I have been rolling over onto my tummy for over a month, and can push up on one hand while reaching for a toy with the other. I can almost sit up by myself, but I still wobble. Daddy helps me to stand up, and I can stay there and dance a long time. I love playing with Mommy's hair and laughing when Daddy tickles me. Chuckie can make me laugh, too! He is a great brother and even lets me hold some of his toys (sometimes). This past week, I realized that sucking on my big toe is great fun! And I had Grandma hysterical playing the No-No game! What's All the Fuss? I took a long time to come into the world. Mommy was in labor for 50 hours, and pushed for 3+1/2 hours. After trying everything, the doctor helped deliver me by cesearan.

4. NINDS Craniosynostosis Information Page Information sheet compiled by National Institute of Neurological Disorders and Stroke.Category Health Conditions and Diseases craniosynostosis......craniosynostosis information sheet compiled by the National Institute ofNeurological Disorders and Stroke (NINDS). More about craniosynostosis, http://www.ninds.nih.gov/health_and_medical/disorders/craniosytosis_doc.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Craniosynostosis Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Craniosynostosis Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Craniosynostosis? Is there any treatment? What is the prognosis? What research is being done? ... Organizations What is Craniosynostosis? Craniosynostosis is a congenital anomaly characterized by premature closure—before the completion of brain growth—of one or more cranial sutures (the fibrous joints between the bones of the skull). The disorder results in an abnormality of the shape of the skull. The condition may be familial; a result of a chromosomal or genetic abnormality; or it may occur sporadically, with no other affected relatives. Some cases are associated with disorders such as microcephaly (abnormally small head) and hydrocephalus (excessive accumulation of cerebrospinal fluid in the brain). The first sign is an abnormal head shape. Other symptoms, which include increased intracranial pressure, developmental delay, and mental retardation, may be caused by constriction of the growing brain. Seizures and blindness may also occur.

5. Craniosynostosis craniosynostosis. What is craniofacial surgery? What is craniosynostosis?Diagram of skull, showing location of fontanelles and sutures. http://www.pedisurg.com/PtEduc/Craniosynostosis.htm

CRANIOSYNOSTOSIS What is craniofacial surgery? Craniofacial surgery is a surgical subspecialty developed by Paul Tessier thirty years ago in France. It involves surgery of the skull and face for tumors, trauma, and congenital deformities. For many years, the severity of these conditions was thought too risky for surgical intervention. Tessier, a surgeon himself, challenged this belief and began building the foundation of craniofacial surgery. In doing so, he recognized that this complex form of surgery could only be performed by a specially trained surgeon who was supported by a highly skilled team. The surgical team at Hermann Children's Hospital includes a pediatric neurosurgeon and craniofacial surgeon as well as a specialized anesthesiologist. The neurosurgeon works on the skull and the craniofacial surgeon on the face. With both areas being closely related the combined approach offers the best possible results with the highest level of safety. What is craniosynostosis? Diagram of skull, showing location of fontanelles and sutures The skull of an infant is made up of free-floating bones separated by fibers called sutures. This arrangement allows the infant's head to pass through the birth canal and also enables the skull to grow with the brain in early infancy.

6. NEUROSURGERY://ON-CALL® Craniosynostosis And Craniofacial Disorders To display this page you need a browser with JavaScript support. http://www.neurosurgery.org/health/patient/detail.asp?DisorderID=21

7. Cranioysynostosis And Positional Plagiocephaly Support, Inc. WELCOME to the CAPPS Website! craniosynostosis And Positional Plagiocephaly Support, Inc. http://www.cappskids.org/

CAPPS THE ORGANIZATION SUPPORT CAPPS GUARDIAN ANGELS PAGE CAPPS FAMILY FUNDRAISING PAGE ... HELPFUL LINKS CRANIO PLAGIO CLICK LOGO TO ENTER CAPPS ONLINE STORE CLICK LOGO TO ENTER THE CRANIOKID STORE CLICK LOGO TO ENTER THE PLAGIOKID STORE CLICK LOGO FOR DOLLS BY SHELBY CLICK LOGO FOR ITEMS OF INTEREST AT AMAZON.COM 6905 Xandu Court Fredericksburg, VA 22407 Cranio: 540-786-9563 Plagio: 845-454-5902 WELCOME to the CAPPS Website! Craniosynostosis And Positional Plagiocephaly Support, Inc. CAPPS is a non-profit, 501 (c)(3) tax exempt organization. Click below for information on the different conditions: CRANIOSYNOSTOSIS POSITIONAL PLAGIOCEPHALY Craniosynostosis Survey Positional Plagiocephaly Survey ... Positional Plagio Survey Update SPECIAL NOTICES: Order Your CAPPS Awareness Bracelet here Recipes Needed For CAPPS Cookbook! Please click here to add your recipe. Click here to Submit your Child's Story for the CAPPS Media Campaign. Unfortunately, Jaya has been having e-mail trouble again. If you sent an e-mail to Jaya at Plagio@optonline.net

8. Craniosynostosis craniosynostosis, or premature fusion of the skull plates, occurs in about one in 2 000 infants. It can be an isolated abnormality or part of a broader malformation syndrome. http://www.drhull.com/EncyMaster/C/craniosynostosis.html

Help for sleepless parents Encyclopedia Index C craniosynostosis Search craniosynostosis Craniosynostosis, or premature fusion of the skull plates, occurs in about one in 2,000 infants. It can be an isolated abnormality or part of a broader malformation syndrome The joints between the plates are called the sutures . Craniosynostosis occurs when for whatever reason, sporadic or as part of a larger problem, one or more of these sutures fuse prematurely. Constrained abnormally in one part of the skull, brain growth forces the remainder of the skull to expand out of proportion, leading to abnormal skull shape. Isolated sagittal synostosis (the suture that runs from the anterior fontanelle to the posterior fontanelle) occurs in about 55% of cases and isolated coronal suture synostosis (the suture that runs down laterally from the anterior fontanelle) occurs in 20% of cases. Diagnosis of craniosynostosis is by xrays, and increasingly by CT scan . Early evaluation and possible neurosurgical intervention is imperative, since the synostosis may be a marker for a larger pattern of abnormalities, and if synostosis is left uncorrected, head and facial shape can be severely affected. There is also concern that some forms of synostosis can cause damage to the infant brain by constraint of normal brain growth.

9. Devin's Craniosynostosis Page Devin was born with a condition called craniosynostosis (Sagittal Synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada. http://www.geocities.com/mikayla_cutiepatootie/Devin3_cranio.html

Devin's Craniosynostosis Page CRANIOSYNOSTOSIS Craniosynosotosis is the premature closing of one or more of the sutures in the skull. More specifically Devin was diagnosed with Sagittal Synostosis, which is the premature closing of the Sagittal Suture (the suture that runs front to back). Because it had fused prematurely his skull would not be able to grow properly. As the brain was developing his skull would only be able to grow where the sutures were open (the front and the back). Hence Devin's skull was growing in a boat shape - very long and narrow with a bossing forehead and back on the head. Sagittal Synostosis is the most common form and occurs in approx. 1 out of every 2000 births. There is debate as to the cause and the effects that it may have (is there pressure on the brain?), no one really knows for sure but what they do know is that it can have profound psychological effects on the individual (looking abnormal, teasing etc). And that's when we knew we had to do something, something to give Devin the best possible childhood and the best possible chance for a healthy and happy future. To us that meant proceeding with the surgery. Although we were given the choice, to us it hardly seemed like a choice, how could we opt not to have the surgery. I hope as Devin grows up he realizes that everything we did and all the choices we made for him are because we love him so much. When deciding we asked ourselves - At 10, 15 or 20 years old would Devin be happy with the choices we made for him? and the only answer we could come to was YES

10. Craniosynostosis Hub A brief definition of craniosynostosis, followed by links to research articles, photos, clinical trials and case reports. http://www.healthubs.com/craniosynostosis

Craniosynostosis is a congenital anomaly characterized by premature closure of one or more cranial sutures. The disorder results in an abnormality of the shape of the skull. Treatment for craniosynostosis generally consists of surgery to relieve increased intracranial pressure, assure capacity of the skull to accommodate brain growth, and improve the appearance of the head. On this hub site, you will find reviewed and categorized links about craniosynostosis. Acne Allergy Antibiotics Antioxidants ... Wedding Overviews - Full text articles - Clinical trials and programs - NINDS Craniosynostosis Information Page - by The National Institute of Neurological Disorders and Stroke National Institutes of Health. The Craniosynostosis Division of the Institute of Reconstructive Plastic Surgery - from NYU Department of Reconstructive Plastic Surgery. Craniosynostosis / Craniofacial Anomaly - from the University of Maryland Medical Center. Craniosynostosis from the Johns Hopkins University Craniosynostosis by Jeffrey Fearon, M.D., F.A.C.S. Craniosynostosis - by Raj D Sheth, MD, Chief, Section of Pediatric Neurology, Director of Comprehensive Epilepsy Program, Associate Professor, Departments of Neurology and Pediatrics, University of Wisconsin at Madison. Craniosynostosis Syndromes (FGFR-Related) - by Nathaniel H Robin, MD, Case Western Reserve University.

11. EBay - The World's Online Marketplace Site dedicated to giving families dealing with craniosynostosis support and information. http://www.caps2000.org

What are you looking for? Smart Search Specialty Sites eBay Live! Event: June 26 - 28, 2003, Orlando, FL eBay Motors eBay Stores Half.com by eBay PayPal ... Sothebys.com Categories Antiques Art Books Cars ... Wholesale Global Sites Argentina Australia Austria Belgium ... eBay Downloads Last updated: My eBay Site Map Browse Sell ... eBay Inc. Designated trademarks and brands are the property of their respective owners. Use of this Web site constitutes acceptance of the eBay User Agreement and

12. Parents Of Children With Craniosynostosis (PCC) A site offering information and support about craniosynostosis. For families in Eastern Idaho and parts of Utah. http://www.pcc2000.org

13. Craniosynostosis, A New Technique, Endoscopic Strip Craniectomy, Neuromedicine Our doctors have developed a less invasive way to correct craniosynostosis. They have performed more than 163 endoscopic strip craniectomies over the Care. http://www.hsc.missouri.edu/~neuromedicine/craniosynostosis.shtml

As of October 21, 2002, 215 patients have undergone the endoscopic strip craniectomy at University of Missouri Health Care. CRANIO QUESTIONS Ask Cathy CRANIOSYNOSTOSIS About craniosynostosis Making a helmet Helmet wearers References ... Elias Ramsvik traveled from Oslo, Norway to become the 167th endoscopic craniectomy patient. NEUROMEDICINE Family guide topics Neurological Surgery Craniosynostosis A new and better treatment (CRAY-nee-o-SIN-os-Toe-sis) Your baby's skull cap is made up of five bones held together by fibrous material called sutures. Normally, these sutures remain open as long as the brain is growing. This allows the brain room to grow in all directions. Craniosynostosis, or closure of these sutures, occurs when the bones in your baby's skull fuse together before the brain has stopped growing. This can happen before your baby is born or in the first few months of life. If even one suture closes before it is supposed to, the brain will grow in the direction of least resistance. This results in a misshapen skull or face. Types of craniosynostosis Traditional treatment A new technique Sagittal suture synostosis treatment ... Helmet care, cleaning and problems

14. FAQ About Craniosynostosis FREQUENTLY ASKED QUESTIONS ABOUT craniosynostosis. What is the idealage at which a child should have surgery for craniosynostosis? http://www.pedisurg.com/PtEduc/FAQ_About_Craniosynostosis.htm

FREQUENTLY ASKED QUESTIONS ABOUT CRANIOSYNOSTOSIS When is craniofacial surgery necessary? The surgery is necessary in an infant who has craniosynostosis when the bones of the skull fuse together, or a craniofacial syndrome which causes fusion of the bones of the head and also abnormalities of the skull and face. What is the ideal age at which a child should have surgery for craniosynostosis? Surgery should be done within the first two weeks of life on those infants born with multiple fused sutures involved. When the sagittal suture is involved, surgery is done at three months of age. For fusion of the remaining sutures, surgery is done at six months. Will one operation be sufficient for craniosynostosis? Most children who have single suture involvement require only one surgical procedure. However, for those with multiple suture involvement and those with craniofacial abnormalities associated with the craniosynostosis, multiple procedures are necessary. What are the risks to the child in this type of surgery? For healthy children with no other major medical problems, the risks are minimal. The major concern during surgery is blood loss because an infant's blood volume is low and the loss of a small amount may require replacement.

15. Cranioysynostosis And Positional Plagiocephaly Support, Inc. A national non profit organization that assists families that have, or suspect their child has, craniosynostosis or Positional Plagiocephaly. Includes information about the conditions, organization details, events, doctor listings and contact details. http://www.CAPPSkids.org

CAPPS THE ORGANIZATION SUPPORT CAPPS GUARDIAN ANGELS PAGE CAPPS FAMILY FUNDRAISING PAGE ... HELPFUL LINKS CRANIO PLAGIO CLICK LOGO TO ENTER CAPPS ONLINE STORE CLICK LOGO TO ENTER THE CRANIOKID STORE CLICK LOGO TO ENTER THE PLAGIOKID STORE CLICK LOGO FOR DOLLS BY SHELBY CLICK LOGO FOR ITEMS OF INTEREST AT AMAZON.COM 6905 Xandu Court Fredericksburg, VA 22407 Cranio: 540-786-9563 Plagio: 845-454-5902 WELCOME to the CAPPS Website! Craniosynostosis And Positional Plagiocephaly Support, Inc. CAPPS is a non-profit, 501 (c)(3) tax exempt organization. Click below for information on the different conditions: CRANIOSYNOSTOSIS POSITIONAL PLAGIOCEPHALY Craniosynostosis Survey Positional Plagiocephaly Survey ... Positional Plagio Survey Update SPECIAL NOTICES: Order Your CAPPS Awareness Bracelet here Recipes Needed For CAPPS Cookbook! Please click here to add your recipe. Click here to Submit your Child's Story for the CAPPS Media Campaign. Unfortunately, Jaya has been having e-mail trouble again. If you sent an e-mail to Jaya at Plagio@optonline.net

16. Craniosynostosis, A New Technique, Endoscopic Strip Craniectomy, Neuromedicine Our doctors have developed a less invasive way to correct craniosynostosis. craniosynostosis.A new and better treatment. (CRAYnee-o-SIN-os-Toe-sis). http://www.muhealth.org/~neuromedicine/craniosynostosis.shtml

As of October 21, 2002, 215 patients have undergone the endoscopic strip craniectomy at University of Missouri Health Care. CRANIO QUESTIONS Ask Cathy CRANIOSYNOSTOSIS About craniosynostosis Making a helmet Helmet wearers References ... Elias Ramsvik traveled from Oslo, Norway to become the 167th endoscopic craniectomy patient. NEUROMEDICINE Family guide topics Neurological Surgery Craniosynostosis A new and better treatment (CRAY-nee-o-SIN-os-Toe-sis) Your baby's skull cap is made up of five bones held together by fibrous material called sutures. Normally, these sutures remain open as long as the brain is growing. This allows the brain room to grow in all directions. Craniosynostosis, or closure of these sutures, occurs when the bones in your baby's skull fuse together before the brain has stopped growing. This can happen before your baby is born or in the first few months of life. If even one suture closes before it is supposed to, the brain will grow in the direction of least resistance. This results in a misshapen skull or face. Types of craniosynostosis Traditional treatment A new technique Sagittal suture synostosis treatment ... Helmet care, cleaning and problems

17. Craniosynostosis, Page 2, A New Technique -- Endoscopic Strip Craniectomy, Neuro Our doctors have developed a less invasive way to correct craniosynostosis.They Types of craniosynostosis. Sagittal (SAJut-ul). Closure http://www.muhealth.org/~neuromedicine/craniosynostosis02.shtml

As of October 21, 2002, 215 patients have undergone the endoscopic strip craniectomy at University of Missouri Health Care. CRANIO QUESTIONS Ask Cathy CRANIOSYNOSTOSIS About craniosynostosis Making a helmet Helmet wearers References NEUROMEDICINE Family guide topics Neurological Surgery Types of craniosynostosis Sagittal (SAJ-ut-ul) Closure of the sagittal suture is the most common form of craniosynostosis. It occurs in three to five babies for every 1,000 live births, usually in males. It also is called scaphocephaly (SKAF-o-Sef-a-lee). A baby with this will have an elongated head, protrusion of the forehead and narrowing of the temples. Coronal (co-RO-nul) With this type, the coronal suture on the side of the head is closed. It is also called anterior plagiocephaly (an-TEAR-ee-ur PLAY-gee-o-SEF-a-lee). This causes the baby to have a flattened forehead, an elevation of the eye socket of the involved side, a deviated nose and a slanted skull. Metopic (mih-TOP-ick) This is the early closure of the metopic suture and also is called trigonocephaly (try-GO-no-SEF-a-lee). This causes the baby to have a pointed forehead, a triangular shaped skull, eyes that seem too close together and protrusion of the back of the skull. Lambdoidal (lam-DOID-ul) Early closure of the lambdoid suture also is called posterior plagiocephaly (pos-TEAR-ee-ur PLAY-gee-o-SEF-a-lee). This causes the baby to have a mild flattening of the back of the head on the involved side. It can also cause the ear on the affected side to shift forward as well as causing the deformities that occur with coronal craniosynostosis.

18. Pediatric Plastic Surgery Pediatric Plastic Surgeons treat children with congenital anomalies (such as craniosynostosis and cleft lip and/or palate) and deformities from trauma or cancer surgery. http://www.pedisurg.com/plassurg.htm

Pediatric Plastic Surgery involves the treatment of children who present with congenital anomalies and deformities from trauma or from cancer surgery. At the Texas Cleft and Craniofacial Center, our pediatric plastic surgeon works with our pediatric neurosurgeons to treat children with craniofacial conditions, such as craniosynostosis, craniofacial syndromes, and tumors; with the Cleft Lip and Palate team, our pediatric plastic surgeon treats children with clefting deformities of the face such as cleft lip and/or cleft palate. The surgeon also treats children with hemangiomas and other skin lesions and hand deformities. You can contact our surgeon to discuss your child's care or schedule appointments for any office location by calling (713) 704-5869. Our Pediatric Plastic Surgeon: John Teichgraeber, M.D.: graduate of Emory University Medical School in Atlanta surgical internship and otolaryngology residency at Emory, residency in Plastic and Reconstructive Surgery at University of Texas Health Science Center at Houston, and fellowship in Head and Neck Surgery at M.D. Anderson Cancer Center Associate Professor of Surgery, Division of Plastic and Reconstructive Surgery and Assistant Professor of Otolaryngology, University of Texas Medical School at Houston, Assistant Professor of Oral/Maxillofacial Surgery, University of Texas-Houston Dental Branch, and co-director of the Cleft-Craniofacial Clinic

19. The Simian Line Her quotations collection, information on selfinjury, anosmia, craniosynostosis, and other details of her life. http://www.angelfire.com/md2/simianline/

Welcome to my simple little lair. There isn’t much that is new on my site these days, because real life has been so much more hectic. I have a new job and a new apartment, I marched in the Godless Americans March on Washington , and I chopped off 10+ inches of my hair in order to donate it to charity . Things are certainly busy! Read my guestbook! Sign my guestbook! You may have to hit your refresh button to see the most recent entries. Escape is not the safest place Everyone’s pain has a different smell This page was last updated on 9 March 2003. Links last added on 17 February 2003. Quotations last added on 9 March 2003 This has been a Simian Line Production, ©1999-2003

20. Classification Of Previously Unclassified Cases Of Craniosynostosis Classification of previously unclassified cases of craniosynostosis. KeyWords * craniosynostosis * complex disease * cranial suture. http://www.neurosurgery.org/journals/online_j/dec96/1-6-p1.html

Classification of previously unclassified cases of craniosynostosis Paul D. Chumas, F.R.C.S.(SN), Giuseppe Cinalli, M.D., Eric Arnaud, M.D., Daniel Marchac, M.D., and Dominique Renier, M.D. Cases of craniosynostosis usually fall into well-demarcated categories: those related to a syndrome or identified by a combination of suture involvement and morphological appearance. Between 1976 and 1995, 53 (3.6%) of 1474 cases in the craniofacial databank were assessed and designated as nonsyndromic but unclassifiable. The records and radiological studies obtained in these patients were retrospectively analyzed and comparisons were made with patients classified in the databank as having simple craniosynostoses. "Two-suture synostosis" is a relatively straightforward condition and is treatable with standard craniosynostosis techniques. However, possibly as a result of surgical compromise when two sutures are involved, the rate of reoperation is far higher than in simple suture cases. In contrast, patients in the "complex" group presenting with severe multisuture involvement require a more tailor-made approach to their management that often entails a second procedure. Key Words * craniosynostosis * complex disease * cranial suture The classification of craniosynostoses depends on a combination of criteria: 1) whether the sutural disease is part of a syndrome; 2) the morphological appearance of the patient; 3) the actual sutures involved; and 4) progression of the disease over time.[1] Using these criteria, it is possible to classify the vast majority of craniosynostoses. In a minority of cases the initial classification proves to be incorrect and other features indicating a more complex nature become apparent. It is thus necessary to have a sufficient follow-up period to be confident that the initial diagnosis still holds.

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