21. Cystic Fibrosis Research Directions Every year, 1,000 children with cystic fibrosis (CF) are born in theUnited States. One in 3,000 Caucasian babies have the disorder http://www.niddk.nih.gov/health/endo/pubs/cystic/cystic.htm

Symptoms of CF New Approaches to CF Treatment The Molecular Basis of CF Gene TherapyA Look Into the Future Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. These carriers do not have symptoms of CF, because a person must inherit two defective gene copies-one from each parent-to develop the disease. However, each child of two CF carriers has a one in four chance of being born with CF. Genetic testing is now available to identify couples at risk for having children with CF. Improved therapy has transformed CF from a disease characterized by death in early childhood to a chronic illness, with most patients living to adulthood. But despite this progress, there still is no cure for the disease and most patients eventually succumb to infections of the airways and lung failure. Since the 1989 identification of the gene which is altered in CF, the pace of basic research has increased rapidly, and scientists hope to translate new knowledge about the molecular basis of the disease to new therapies to improve the lives of patients with this genetic disease. The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), in partnership with other components of the National Institutes of Health and the Cystic Fibrosis Foundation, continues to foster research on the molecular processes contributing to CF, exploration of gene therapy to cure the disease, and efforts to develop other new and effective treatments.

22. NIDDK Centers . P30DK027651, Davis,Pamela, Case Western Reserve University, Core Centercystic fibrosis....... Gene Therapy and cystic fibrosis Centers http://www.niddk.nih.gov/fund/other/centers.htm

"You are now leaving the NIDDK website. The NIDDK is not responsible for the content of web pages found on this linked website. Links to nonfederal organizations are provided solely as a service to our users. These links do not indicate an endorsement of these organizations by NIDDK or the federal government." Quick Links for Investigators Office of the Director Extramural Activities Intramural Research Nutrition Research Coordination Office of Minority Health Research NIDDK Home Research Funding : NIDDK-Sponsored Research Centers NIDDK-Sponsored Research Centers Gene Therapy and Cystic Fibrosis Centers Diabetes and Endocrinology Research Centers Diabetes Research and Training Centers Hematology Centers ... Molecular Therapy Core Centers (Guidelines) *(pdf-320kb) Gene Therapy and Cystic Fibrosis Centers Description Davis, Pamela Case Western Reserve University Core CenterCystic Fibrosis Miller, Arthur University of Washington Core Center for Gene Therapy Wilson, James University of Pennsylvania Gene Therapy for Cystic Fibrosis and Other Genetic Diseases Engelhardt, John

23. Nederlandse Cystic Fibrosis Stichting Een ernstige aangeboren aandoening, wordt meestal ontdekt in de eerste twee levensjaren.Category World Nederlands Gezondheid Patiëntenverenigingen......Website van de Nederlandse cystic fibrosis Stichting met Engelstalig gedeelte. Websitevan de Nederlandse cystic fibrosis Stichting met Engelstalig gedeelte. http://www.ncfs.nl/

moveTo(0,0);resizeTo(screen.width,screen.height); Website van de Nederlandse Cystic Fibrosis Stichting met Engelstalig gedeelte. Informatie over Cystic Fibrosis (CF), NCFS, vakanties, Golden Earring, andere websites op het gebied van Cystic Fibrosis enz. Nederlandse Cystic Fibrosis Stichting, NCFS, Cystic Fibrosis, CF, Taaislijmziekte, Mucoviscidose, Mucoviscidosis, Cystische Fibrose, Kystische Fibrose, Nederlandse Cystic Fibrosis Vereniging, Nederlandse Cystic Fibrosis Organisatie, CF Vereniging, CF Organisatie, Dutch Cystic Fibrosis Foundation, Dutch Cystic Fibrosis Organization, Dutch Cystic Fibrosis Organisation, Dutch CF Organization, Dutch CF Organisation, Dutch CF Association

24. Userdir Rule Failure The CysticFibrosis Index of OnLine Resources is intended to be an exhaustive guide toAll on-line Category Health Conditions and Diseases Support Groups...... http://vmsb.csd.mu.edu/~5418lukasr/cystic.html

The server was unable to resolve the requested /~ username reference, possible causes include: Username invalid Server is unable to determine username's login directory due to insufficient privilege to read the SYSUAF data.

25. European Cystic Fibrosis Society ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient Category Health Conditions and Diseases......EUROPEAN cystic fibrosis SOCIETY(ECFS). (formerly known as the European WorkingGroup for cystic fibrosis). European Thermatic Network for cystic fibrosis. http://www.ecfsoc.org/

EUROPEAN CYSTIC FIBROSIS SOCIETY(ECFS) (formerly known as the European Working Group for Cystic Fibrosis) Welcome To the ECFS Web Page Mission Statement: The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis The polymorphic nature of cystic fibrosis has resulted in the involvement of a large number of different clinical and scientific disciplines for the study and treatment of the disease. The European Cystic Fibrosis Society provides a European forum where such clinicians and scientists can meet, present and discuss the latest findings concerning the disease. Membership of the society is open to any clinician or scientist actively engaged in CF research or CF care. For genernal information or enquiries e-mail: info@ecfsoc.org fax: mail: European CF Society Hyrdebakken 246 DK-8800 Viborg Denmark The ECFS web page is managed on behalf of the Board of the ECFS by Dr H C Ryley (ryleyh@Cardiff.ac.uk) Index ECFS Home Page Society Details History The Board The Constitution Application for membership ... Previous Meetings Presentations.

26. Cystic Fibrosis: What Is It? cystic fibrosis link, DNA Learning Center Link, Concept 1 Children resembletheir parents. Learn how Mendel worked out inheritance in pea plants. http://www.yourgenesyourhealth.org/ygyh/mason/ygyh.html?syndrome=cf

27. International Association Of Cystic Fibrosis Adults IACFA International association with the purpose of improving the quality of life of alladults with cystic fibrosis, by identifying common problems, enhancing the http://ourworld.compuserve.com/homepages/FAntognini/iacfa.htm

Welcome to IACFA providing hope for those to come We are moving. Now you can find the IACFA web site at www.iacfa.org Moving to a wider space? The IACFA web site is growing up and we decided to get serious.... Go to www.iacfa.org and update your bookmarks What is IACFA? A letter from our Chair Read our Newsletter Medical research, personal experiences, your letters and much more. The August 1998 issue is now online Read all the information about our Conferences , including announcements of the forthcoming IACFA events Missed the abstracts of our latest conference? Now you can read them here We are always looking for individuals who wish to get involved in our activities. And we welcome the opinions of parents , too. Links around the world (updated) Find out about other WebSites dedicated to CF and the next CF congresses around the world. Or register your own site Your comments are welcome, even if you think this site stinks... Help us make it better What's new: The web site has moved to www.iacfa.org Update your bookmarks. The August 1998 newsletter featuring: A report on the Berlin IACFA Conference The experience of an African American with CF A personal account of a gene therapy trial The May 1998 newsletter Updated conference section , including the abstracts from Berlin Updated links : announcement of the next CF congresses.

28. Welcome To The Cyber Campus. The Cyber Campus is a computer course aiming to empower and educate people with cystic fibrosis. From Category Health Conditions and Diseases cystic fibrosis...... http://www.internet-ireland.ie/horizon/

29. Boomer Esiason Cystic Fibrosis Foundation-Sponsoring Hope To Those Affected By C A resource for those affected by this disease. Includes details about the organization, fund raising, Category Health Conditions and Diseases Foundations......The Boomer Esiason Foundation was established in 1993 to fund research aimed atfinding a cure for cystic fibrosis, increase cystic fibrosis education and http://www.esiason.org/

Home Boomer's_Book_Club Boomer's_Book_of_the_Month_Club CF_Care_Centers_A-E Home Boomer's_Book_Club Boomer's_Book_of_the_Month_Club CF_Care_Centers_A-E ... Boomer's_Monday_Night_Football_Radio_Show

30. Boomer Esiason Cystic Fibrosis Foundation - We Sponsor Hope To Those Affected By KNOWLEDGE IS POWER! cystic fibrosis News cystic fibrosis includes detailedCF information, cystic fibrosis Outlook, What is cystic fibrosis? http://www.esiason.org/home.html

Mission Statement The Boomer Esiason Foundation is a partnership of leaders in the medical and business communities joining with a committed core of volunteers to provide financial support to research aimed at finding a cure for cystic fibrosis. The Foundation works to heighten education and awareness of cystic fibrosis and to provide a better quality of life for those affected by cystic fibrosis. Make a Donation CF/BEF Highlights Cystic Fibrosis Boomer Esiason Foundation ... About BEF Site Cystic Fibrosis News NEWS Register for CF NEWS FROM AROUND THE WORLD email updates CF News Sent Directly to Your Mailbox KNOWLEDGE IS POWER! A magical suite for children Montreal Gazette Mar 29 2003 2:28PM GMT High school students learn from MIT biologists Paul Krugman Mar 28 2003 6:44PM GMT Young Life Full Of Smiles Celebrated This is Staffordshire Mar 28 2003 4:58PM GMT Good luck charms for a good cause Bristol Phoenix Mar 28 2003 11:47AM GMT Targeted Genetics Reports Fourth Quarter and Year-End 2002 Earnings Pharma Live Mar 28 2003 6:18AM GMT New techniques reveal workings of bacteria linked to cystic fibrosis Science Blog Mar 28 2003 5:19AM GMT 'Designer' baby rules laid out The Mercury Mar 28 2003 1:45AM GMT 'Designer' baby rules laid out The Advertiser Mar 28 2003 1:40AM GMT

31. Living With Cystic Fibrosis Site by a young man with CF.Category Health Conditions and Diseases Personal Pages......I have cystic fibrosis. I was diagnosed when I was born (1978). Get yourfree cystic fibrosis email address for life! First Name Last Name http://frontpage.velocity.net/yanc/

Hi, My name is Yancee Mathews. I have Cystic Fibrosis. I was diagnosed when I was born (1978). I created this web page for everyone to come and view my thoughts on living with CF. If you can't find what your looking for here, feel free to E-mail me, yanc@velocity.net You are visitor since February 28, 1998. Login to CysticFibrosis mail User Name: Password: Technical Support Help Password Reminder Sign Up with CysticFibrosis Mail Get your free cystic fibrosis e-mail address for life! First Name: Last Name: Thanks for visiting! Come back again. privacy

32. Cystic Fibrosis Australia - Education And Research Organisation - CF CFA cystic fibrosis Australia. http://www.cysticfibrosisaustralia.org.au/

General Information Aims Objectives Current Newsletter CF Facts ... CURRENT NEWSLETTER: Download Cystic Fibrosis Australia February 2003 Newsletter - Issue 23 (1.1Mb Acrobat PDF file) From the Archives: Cystic Fibrosis Australia February 2002 Newsletter - Issue 22 (953k Acrobat PDF file) These files will open in a new window. It may take a little while to download if you are running a dial-up connection. *Adobe Acrobat reader is required to view the PDF files, available free of charge CFA is a national body comprising member State Associations. The national office is located in North Ryde, New South Wales. The national organisation assists the member organisations to achieve common objectives by developing national education programs and collecting and distributing information about Cystic Fibrosis (CF) at national and international levels. This allows member organisations to efficiently and effectively direct their activities to the provision of high quality health and welfare services to children and young adults with CF and their families.

33. Cystic Fibrosis Similar pages How To Handle Living with cystic fibrosisHow to Handle Living With cystic fibrosis. Welcome to my website! For othergreat links about cystic fibrosis, here are some websites I found useful! http://www2.dal.ca/distsite/frank/cf.html

Computer Labs Return Links Academic Computing Services Computing Services Cystic Fibrosis These pages are outdated and no longer updated, please refer The Canadian Cystic Fibrosis Foundation for up to date info. I have obtained some very comprehensive information about Cystic Fibrosis and wish to share it with others via these pages. The information was obtained from LISTSERV@YaleVM.CIS.Yale.Edu, which is home of the CYSTIC-L mailing list, in which my late colleague and friend Frank Smyth participated for some time. I would like to thank those members of CYSTIC-L who pointed me in the direction of this information. I would also like to thank those members who contributed to this information. Also, special thanks to Antony Dugdale who created CYSTIC-L and continues to make it possible. Here are some excerpts from the CYSTIC-L documents: A Basic Description of Cystic Fibrosis How Cystic Fibrosis is Diagnosed Why an Individual Gets Cystic Fibrosis Sources of Further Information I am also including a link to Robert Calhoun and Michael Ernst's CF-Web Page The Cystic Fibrosis Ibuprofen Laboratory at Case Western Reserve University has been kind enough to provide a link to these pages from their "Relevant Sites" page.

34. The Cystic Fibrosis Association Address Book Homepage of Panzytrat®, The International cystic fibrosis (Mucoviscidosis)Association ICF(M)A. International Directory Homepage. TOC. Access http://www.access.ch/cfaddresses/welcome.html

The production and updating of this CF address directory is supported with a grant from Knoll AG, the producer of The International Cystic Fibrosis (Mucoviscidosis) Association ICF(M)A International Directory Homepage Access the Table of Contents of the International Directory Download the entire International Directory to your computer Send changes of addresses to the International Directory Coordinator and the Secretary of ICF(M)A Acknowledgement and gratitude to the past sponsor: F.Hoffmann-La Roche Ltd.

35. Welcome To The International Cystic Fibrosis Support Group. Purpose is to disseminate information concerning cystic fibrosis, to give support to those involved Category Health Conditions and Diseases Support Groups......Feature Story. Rick Gropper ’04 Meeting the challenge. Rick Gropper´04. A sociology major, with a minor in economics, Ridgewood http://cf.conncoll.edu/

THOSE WHO POST AND/OR READ POSTS TO THE CONNCOLL CYSTIC FIBROSIS SUPPORT LIST AND WEB PAGE AGREE TO SAVE HARMLESS CONNECTICUT COLLEGE FROM CIVIL AND OTHER LEGAL LIABILITIES THAT COULD ARISE FROM POSTS SENT TO THE LIST AND WEB PAGE. INFORMATION SENT TO THE LIST AND WEB PAGE SHOULD NOT BE CONSTRUED AS MEDICAL ADVICE. PARTICIPANTS SHOULD GET MEDICAL INFORMATION ONLY FROM MEDICAL PROFESSIONALS

36. The Cystic Fibrosis (CF) Center At Stanford Information on services provided, ongoing clinical trials, news from and about individuals with CF Category Health Conditions and Diseases Medical Facilities......cystic fibrosis Center at Stanford research and clinical trials, Pediatric and AdultCF Programs, CF sweat chloride tests, education regarding pulmonary issues http://cfcenter.stanford.edu/

Banner Navigatiion Guide Main Page Thank you for visiting The CF Center at Stanford, a site dedicated to Cystic Fibrosis. Since your browser doesn't support frames, you will need to go directly to the main page

37. Cystic Fibrosis of human genes and disorders Information Fact sheet from the National Heart, Lungand Blood Institute, NIH The cystic fibrosis foundation information and links. http://www.ncbi.nlm.nih.gov/disease/CF.html

This Genes and Disease page has been moved to: Please update your bookmarks. If you are not automatically transported to the new page after 15 seconds, click on this link Genome View CFTR on chromosome 7 Databases PubMed the literature LocusLink collection of gene-related information OMIM catalog of human genes and disorders Information Fact sheet from the National Heart, Lung and Blood Institute, NIH The cystic fibrosis foundation information and links CYSTIC FIBROSIS (CF) is the most common fatal genetic disease in the US today. It causes the body to produce a thick, sticky mucus that clogs the lungs, leading to infection, and blocks the pancreas, stopping digestive enzymes from reaching the intestines where they are required to digest food. CF is caused by a defective gene, which codes for a sodium and chloride (salt) transporter found on the surface of the epithelial cells that line the lungs and other organs. Several hundred mutations have been found in this gene, all of which result in defective transport of sodium and chloride by epithelial cells. The severity of the disease symptoms of CF is directly related to the characteristic effects of the particular mutation(s) that have been inherited by the sufferer. CF research has accelerated sharply since the discovery of CFTR in 1989. In 1990, scientists successfully cloned the normal gene and added it to CF cells in the laboratory, which corrected the defective sodium chloride transport mechanism. This technique - gene therapy - was then tried on a limited number of CF patients. However this treatment may not be as successful as originally hoped. Further research will be required before gene therapy, and other experimental treatments, prove useful in combating CF.

38. Pennsylvania Cystic Fibrosis Inc. Dedicated to education and information for those interested in CF.Category Regional North America United States Pennsylvania Health...... and Curing cystic fibrosis in a unanimous 1990 vote by the PA House of Representativesin June, 1999. What is Pennsylvania cystic fibrosis. Inc. (PACFI)? http://www.pacfi.org/

Home of the million dollar bear campaign Flying And Dreaming With........Burke P Bear "Million Dollar Bear" Campaign and "Burke's Tour" FAQ What Is Cystic Fibrosis Wonderful Legacy ... Click here to order Burke P. Bear Burke P. Bear was proclaimed "The Pennsylvania Ambassador for Love, Peace, Having Fun, and Curing Cystic Fibrosis" in a unanimous 199-0 vote by the PA House of Representatives in June, 1999. "Burke's Tour" is taking the traveling ambassador through each state and several world countries. So far, he has visited 31 states in addition to England, the United Arab Emirates, Thailand, Russia, Greece, Nepal, Uruguay, Chile, Argentina, Brazil, and Israel where he spreads his ambassador's message: To love each other, to live peacefully, to have fun, and to help cure CF.

39. HealingWell.com - Cystic Fibrosis Resource Center Directory about cystic fibrosis, including books, medical news, articles and information, links, message Category Health Conditions and Diseases cystic fibrosis......cystic fibrosis Resource Center. New Books on cystic fibrosis More CysticFibrosis Articles ». Medical News. Recent News on cystic fibrosis http://www.healingwell.com/cysticfibrosis/

Search Site: Search Web: Cystic Fibrosis Resource Center New Books on Cystic Fibrosis Find new book releases, featured titles, and reviews about books on Cystic Fibrosis at our Amazon affiliate bookstore, WellnessBooks.com What is Cystic Fibrosis? Browse this comprehensive guide to causes, symptoms, approaches to treatment, and ongoing research into this disease. Cystic Fibrosis Resources Online Looking for an organization, support group, chat room, information site, book, or research on your illness? Browse our directory for links to the web's best resources. Select - Home AIDS Allergies Alzheimer's Disease Anxiety/Panic Disorders Arthritis Breast Cancer Chronic Fatigue Syndrome Crohn's Disease Cystic Fibrosis Depression Diabetes Epilepsy Fibromyalgia GERD (Acid Reflux) Headaches Heartburn Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Migraines Multiple Sclerosis Parkinson's Disease Prostate Cancer More Conditions/Diseases Community Forums Select - Forum Home AIDS Allergies Alzheimer's Disease Anxiety/Panic Disorders Arthritis Breast Cancer Chronic Fatigue Syndrome Crohn's Disease Cystic Fibrosis Depression Diabetes Epilepsy Fibromyalgia GERD (Acid Reflux) Headaches Heartburn Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Migraines Multiple Sclerosis Parkinson's Disease Prostate Cancer More Diseases/Conditions Video Webcasts Select - ADD/ADHD Arthritis Allergy Alternative Medicine Arthritis Asthma Beyond Dieting Body Aches and Pains Breast Cancer

40. My Cystic Fibrosis - Log On For Living With Cystic Fibrosis Personal management tools to help track important health measures, together with indepth articles Category Health Conditions and Diseases cystic fibrosis......An online resource that helps people with cystic fibrosis (CF) monitor their healthand improve their understanding of this chronic disease through support and http://www.mycysticfibrosis.com/

Mycysticfibrosis.com is a free resource for people living with cystic fibrosis (CF). The tools and resources on this site enable all members physicians, patients, and caregivers to exchange important information to help ensure optimal living with cystic fibrosis. APPLY HERE Register online today. On this site, you'll find in-depth articles, an interactive diary, charts, and graphs. For personalized education and support, you can connect online with our site specialists. Log on now to learn about Wee Care , a new program brought to you by Solvay Pharmaceuticals and CF Services that provides free enzymes and vitamins to children under age two. Receive your free copy of Growing Older With CF , a valuable resource for adults with cystic fibrosis. (Limited offer, available to US residents only.) Solvay Pharmaceuticals, Inc. is proud to sponsor an unrestricted educational grant to PDHI for the development of mycysticfibrosis.com. Date Last Modified: January 17, 2002 E-Mail: Webmaster

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