41. Support Groups: Conditions And Diseases: Facial Differences Information on Support Groups, Conditions and Diseases, facial differencesand much more Treasure Coast Health. Find Doctors on http://treasurecoasthealth.com/woman_index.php/Health/Support_Groups/Conditions_

Find Doctors on the Treasure Coast Select Specialty Ambulatory Care Anesthesiology Cardiology Dermatology Emergency Medicine Endocrinology Family Practice Gastroenterology Hematology/Oncology Infectious Diseases Internal Medicine Maxillofacial Surgery Neonatology Nephroology Neurology Neurosurgery Obstetrics/Gynecology Ophthalmology Orthopedic Surgery Otolaryngology Pathology Pediatics Physical Medicine Plastic Surgery Podiatry Psychiatry Psychology Pulmonary Radiation Oncology Radiology Rheumatology Surgery Thoracic Surgery Urology Vascular Surgery Select City Sebastian Palm Bay Vero Beach Fort Pierce Okeechobee Port St. Lucie Jensen Beach Stuart Palm City Hobe Sound Loxahatchee MENU Home Doctor Directory Health Resources Women Only ... About Us Support Groups: Conditions and Diseases: Facial Differences Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Medifocus.com, Inc. Unique in-depth health information on 120 chronic or life-threatening medical issues such as cancer, heart ailments, and chronic childhood conditions. AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.

42. Facial/ Craniofacial Anomalies AboutFace International, information and emotional support to individuals withfacial differences and their families 123 Edward St., Suite 1003, Toronto http://www.kumc.edu/gec/support/craniofa.html

Facial anomalies / Craniofacial conditions Apert Syndrome Arhinia (absent nose) Blepharophimosis , Carpenter Syndrome, Chotzen Syndrome, Crouzon Syndrome ear anomalies Goldenhar Syndrome (hemifacial microsomia) ... Costello Syndrome , Jackson-Weiss, Kabuki Syndrome Nager Miller Syndrome neurofibromatosis , Microtia (Ear Atresia) , Moebius Syndrome, Opitz, Pfeiffer Syndrome, Pierre Robin Syndrome Robinow Syndrome Romberg Syndrome Stickler Syndrome , Sturge-Weber Syndrome, Treacher Collins syndrome , and other craniosynostosis conditions AboutFace International, information and emotional support to individuals with facial differences and their families 123 Edward St., Suite 1003, Toronto, Ontario, Canada M5G 1E2 Phone: 416.597.2229 or 1.800.665.3223 (FACE) - Fax: 416.597.8494 E-mail: info@aboutfaceinternational.org Web site: www.aboutfaceinternational.org/main.html Syndromes and Conditions Craniosynostosis and Positional Plagiocephaly Support Web site: www.cappskids.org/ Children's Craniofacial Association PO Box 280297, Dallas, TX 75243-4522 Phone: 972.994.9902 - Fax 972.240.7607

43. Craniofacial Disorders AboutFace provides emotional support and information to individuals with facial differencesand their families and increases public awareness regarding facial http://www.familyvillage.wisc.edu/lib_cran.htm

Craniofacial Disorders Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search Google for "Craniofacial Disorders" Who to Contact AboutFace USA P.O. Box 969 Batavia, IL 60510-0969 E-mail: AboutFace2000@aol.com Web: http://www.aboutfaceusa.org/ AboutFace provides emotional support and information to individuals with facial differences and their families and increases public awareness regarding facial differences. They have local chapters and a current listing is available through their 800 number. They provide parent-to-parent matching through their national database of families who are willing to share experiences and provide encouragement to each other. New parents are matched with those in the most similar circumstances. AboutFace publishes the AboutFace Newsletter , four or six times a year for a requested donation of $20.00 a year. They also have brochures including, "AboutFace," a general brochure that describes services, and "Making the Difference." they also have "We all have Different Faces,"

44. Blepharophimosis This is a national voluntary health organization dedicated to providingindividual and family support to those who have facial differences. http://www.familyvillage.wisc.edu/lib_blep.htm

Blepharophimosis Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search AltaVista for "Blepharophimosis" Who to Contact AboutFace International P.O. Box 93 Limekiln, PA 19535 Fax: (610) 689-4479 Email: abtface@aol.com Website: http://www.interlog.com/~abtface Blepharophimosis, Ptosis, Epicanthus Inversus Family Network SE 820 Meadow Vale Drive Pullman, WA 99163 Email: lschauble@wsu.edu Website: http://www.wsu.edu/~i0144069/ Children's Craniofacial Association P.O. Box 280297 Dallas, TX 75228 Fax: (972) 240-7607 Website: http://www.masterlink.com/children Forward Face 317 East 34th Street Room 901 New York, NY 10016 Fax: (212) 684-5864 This is a self-help group affiliated with the Institute of Reconstructive Plastic Surgery at the New York University Medical Center and the National Foundation for Facial Reconstruction. Established in 1978, Forward Face is dedicated to helping affected individuals and family members successfully cope with craniofacial disorders. Forward Face networks affected individuals and families with similar conditions and offers a comprehensive support system including medical, psychological, and financial services. The organization works to facilitate communication between affected families and their physicians, conducts workshops, and distributes a variety of resource materials. Forward Face also funds pediatric projects at New York University, conducts community outreach programs, publishes periodic newsletters, and holds quarterly membership meetings to promote education and networking opportunities.

45. Information facial differences Birth defect causing facial deformities. Peoplewith facial differences have feelings and live life normally. http://inlove.org/information.htm

A lot of information is available on physical disabilities. We will try to help you find the information if you contact us. Just because someone is in a wheelchair or has a disability, does not mean they are mentally retarded. This page will be constantly changing and new information added as we find it. If you have anything we can use, please contact us. Physical Disability - A physical disability means the person has a physical limitation (s). A physical disability does not affect the intelligence nor emotions. Ataxia - Progressive defective muscle coordination. In some cases, it can be genetic. Resources: Ataxia Links Books: A Balancing ActLiving With Spinal Cerebellar Ataxia by Patricia B. Hamilton Brain Injury - Injury to the brain causing inability to walk, speech impediments or poor muscle coordination. Resources: TBI Resource Books: Confronting Traumatic Brain Injury : Devastation, Hope, and Healing by William J. Winslade Cerebral Palsy - Affecting ability to control movement and posture caused by brain damage. Resources:

46. Suchmaschine Acoon - Webkatalog Top Health Support Groups Conditions and Diseases facial differences http://www.acoon.de/cgi-bin/showcat.exe?cat=Top/Health/Support_Groups/Conditions

47. Healthnet News Vol. XV, No. 2 Summer 1999 PROFESSIONAL READING Trash or treasure - medical information on the Internet ORGANIZATIONS- Let's Face It - for people with facial differences NETNEWS - Y2K http://library.uchc.edu/departm/hnet/summer99.html

HEALTHNET NEWS VOL. XV, NO. 2 SUMMER 1999 Lyman Maynard Stowe Library University of Connecticut Health Center Back to the Healthnet News Index TABLE OF CONTENTS UPDATE - Healthnet Internet resources list updated PROFESSIONAL READING - Trash or treasure - medical information on the Internet ORGANIZATIONS - Let's Face It - for people with facial differences NETNEWS - Y2K and health care - Cut and paste the medical way - New edition of Merck manual available online - Important information for and about men - Resources on prevention and treatment of skin disorders FOR YOUR CONSIDERATION -Recently published books: *Harvard Medical School Family Health Guide UCHC RECENT ACQUISITIONS * Lyme disease - Daniel W. Rahn and Janine Evans. * Physician's Desk Reference for nonprescription drugs and dietary supplements UPDATE HEALTHNET INTERNET RESOURCES LIST UPDATED We recently updated the list of recommended Internet resources on our web site. The category "Government Resources" was eliminated and each site previously listed here has been placed in a more specific category - i.e. Healthfinder is now listed under "Diseases and Medical Conditions - General" as is MEDLINEplus since the primary focus of these sites is to offer information on diseases and medical conditions and their treatments. A new section "Traveler's Health" has been added with links to sites for information about recommended immunizations for travel to different countries and warnings and precautions for overseas travel.

48. Cleft Palate development. For more information on Cleft Palate, lip, and facial differencesAboutFace International/ facial differences; American http://www.comfortconnection.org/cleft_palate.htm

Cleft Palate Cleft Palate, a split of the roof of the mouth, along with cleft lip, a split of the upper lip, are common congenital facial differences. Both types of clefts result from an incomplete fusion of skin, muscle, or bone during the early weeks of fetal development. For more information on Cleft Palate, lip, and facial differences: AboutFace International/ Facial Differences American Cleft Palate/ Craniofacial Association American Speech - Language - Hearing Association Cleft Lip/Cleft Palate Resources ... Federal Interagency Coordinating Council (FICC) : Visit this sight for more information about the Federal Early Intervention collaborative. Federation for Children With Special Needs HealthlinksUSA : Searchable health resource database. LD Online Calendar: Be sure to check out this comprehensive listing of conferences and events for parents and professionals. National Information Center for Children and Youth with Disabilities/ Disability Specific Information in English and Spanish NECTAS/ National Early Childhood Technical Assistance System Special Child Online Magazine Smiles ... Zero to Three Education Resources If you need more info Click Here for our Education Resource Page!

49. AboutFace founded in Canada in 1985, is a nonprofit organisation that provides emotionalsupport and information to individuals who have facial differences and their http://www.dgc.org.uk/AboutFace.htm

ABOUTFACE AboutFace, founded in Canada in 1985, is a non-profit organisation that provides emotional support and information to individuals who have facial differences and their families. We welcome and include ` those whose facial differences are present at birth, or develop as a result of illness or trauma. Networking: AboutFace offers an international network of members for sharing information and emotional support through informal group meetings, telephone contact, or letter writing. Publications: AboutFace publishes an international newsletter which focuses on common experiences and provides current information and resources. We also produce information sheets, pamphlets, booklets and resource guides. School Program: "Unwrapping the Package; Dispelling Myths About Unusual Appearances" is a program designed to increase acceptance and understanding of the student with a facial difference, to promote positive attitudes and to increase awareness in the school community. It is based on the values of curiosity and respect for diversity. A video and workshop have been developed to help trained volunteers take this program into their local schools. Chapter Development: Volunteers establish an AboutFace presence in their area, promote community outreach, build public awareness, and foster relationships with people locally. To assist them in offering our services at the local level, AboutFace provides support training and leadership development.

50. Dr Stelnicki Pediatric Plastic Surgery, Cleft, Craniofacial And Asthetic Surgica Dr Stelnicki MDPA, The Facing It Together Foundation. What we do Childrenand adults with facial differences need our help. Medical http://www.drstelnicki.com/fit.htm

The Facing It Together Foundation What we do: Children and adults with facial differences need our help. Medical problems that produce an alteration in facial appearance dramatically affect their lives. Whether this change is the result of a birth related disorder or an acquired problem such as trauma or facial cancer, patients with these problems need support. Although not life threatening, changes in facial appearance dramatically alter the way society views and interacts with a person. Our facial appearance is the first impression people in our family and local community have of all of us. When this appearance is altered, so is the reaction of others. Therefore, unlike other medical conditions such as heart disease, liver disease, lung disease, etc., facial disorders dramatically impact the way patients interact with society on a daily basis. In our area, one out of every five hundred children born have some sort of facial disfigurement. In addition, one in every thousand adults has some form of facial deformity related to trauma or cancer. Yet in spite of the large number of people affected by these problems, very little is being done to improve their standard of living. There has been no major advancement in the treatment of these problems in over the last decade. In Florida, there is little to no research being conducted to improve the diagnosis, treatment, or prevention of these problems. More importantly, our state is only beginning to help patients and families deal with the fall of these complex problems.

51. Froedtert Medical College Wellness Resources Support Groups TOP. facial differences. Meets monthly on second Tuesday 630 to 800 pm PlasticSurgery Medical Library, 3rd floor, Froedtert West. TOP. Head and Neck Cancer. http://www.froedtert.com/wellness/support/

52. Links Related to PRS. About Face International provides information and emotionalsupport to individuals with facial differences and their families. http://www.pierrerobin.org/links.htm

Home Ab out Us What's New here ... Stickler Syndrome Stories to Share Our Kids' Stories Adult Stories Tips from our Parents Safety Tips Trach Tips Cleft Repair - coming soon Jaw Distraction - coming soon G-tube - coming soon Links Cleft Groups Cleft Notes is a group for families affected by a cleft. They have an email listserver, lots of information and a scrapbook section. Cleft Net is a site for anything related to clefts. They have a bulletin board for both adults with clefts and parents of cleft affected kids. C left Palate Foundation considers their primary purpose "to enhance the quality of life for individuals with congenital facial deformities and their families through education, research support, and facilitation of family-centered care." Related to PRS About Face International provides information and emotional support to individuals with facial differences and their families. About Face US A is a non-profit international organization dedicated to providing information, emotional support, and educational programs to individuals who have a facial disfigurement, and to their families. Their goal is to assist all persons with facial differences to have a positive self-image and self-esteem so that they can participate fully n their communities.

53. Misc. Disabilities Heart Problems, epilepsy, deafness, facial differences (cleft palate/lip,etc.), and Cerebral Palsy. Tuberous Sclerosis facial differences. http://www.adoptn.org/miscdis.html

Adoption: A Family Choice Here, you will find information on: Tuberous Sclerosis, Amniotic Band Syndrome. Heart Problems, epilepsy, deafness, Facial Differences (cleft palate/lip, etc.), and Cerebral Palsy. Tuberous Sclerosis TSCTALK Tuberous Sclerosis Lukes Tuberous Sclerosis Page is a delightful page about Luke, a darling 14 month old boy with TS. There are pictures from birth to the present, etc. Ethan's Tuberous Sclerosis Page is another family type website, about Ethan, who is a cute little 2 year old. National Tuberous Sclerosis Association. Our son has TS. It basically involves tubors, something like tumors. These may stay the same, grow, and could cause problems. Our son has multiple tubors in his brain. His story is quite interesting, so you may want to hear the whole story, but I don't know yet where I will put it. He was born in Korea, and adopted by another family when he was only 3 months old. At 8 months of age he developed infantile spasms, seizures. The family was told he would become profoundly retarded, loose all functioning, and was terminal. Anyway, we have finished the adoption for him, he is now almost 4 years old, and an absolute doll. He is "on target" in all areas. We don't know what the future holds for him, but we love him and will always be there for him. What is Tuberous Sclerosis?

54. Children & Disabilities Down's Syndrome, Misc. Disabilities (like Amniotic Band Syndrome, Tuberous Sclerosis, facial differences), Attachment Disorder, and School Inclusion. http://www.adoptn.org/disabilities.html

Adoption: A Family Choice First, though, I would like you to read a poem written by a mom of eight children. She adopted a sibling group of 3 children (3, 4, and 6), and wrote this "Letter to Santa." She gave me permission to copy it to my page. You can email her at: charly@itsnet.com People of Every Stripe There are a couple of other sites, with dolls. You can click HERE to get to my catalogue page. AIRRTC Geocities Disability Community Several Geocities sites have linked together to form this "community." Lots of great sites dealing with both children and adult disability issues. Here are some links to sites with information on IEP's: Federal Resource Center for Special Education IEP-Individual Educational Planning Writing IEP's, IEP Planning for Parents, Basic Strategy, etc. IDEA '97 US Deptarment of Education, amendments, speeches, general information, the law, etc. SERI EDLAW Center US Department of Education Department of Education Headlines/Current Events. Medical Information "When Chronic Illness...or Some Other Medical Problem...Goes to School. This site is about growing up with medical problems. Its goal is to help people understand what it's like, from the perspective of the chidlren and teens who are doing just that. These kids have become experts at coping with problems that most of you have never heard of. They'd like you to know how they do it, and they hope that you'll be glad you came to visit. Three areas: kids, teens, and adults.

55. AR Children's Hospital: Birthmarks: Resources ABOUT FACE PO Box 93 Limekiln, PA 195350093 (800) 225-3223 Contact PamOnyx, Director A support group for people with facial differences. http://www.birthmarks.org/resources_support.shtml

Support Groups and Other Resources Support groups are an invaluable resource to anyone dealing with the difficulties of having a child with a vascular birthmark. These groups can provide names of other families affected with similar conditions, referrals to physicians who have treated similar conditions successfully, and information on the latest research into new treatment options, and developments in the cause of these birth defects. Please feel free to contact any of the resources listed below. THE AMERICAN ACADEMY OF DERMATOLOGY 930 N. Meacham Road P.0. Box 4014 Schaumburg, IL 60168-4014 Write and request the "New Guidelines for Treating Hemangiomas." THE HEMANGIOMA AND VASCULAR BIRTHMARKS FOUNDATION P.O. Box l06 Latham, NY 12110-0106 e-mail - Hemangiom1@aol.com Linda Shannon is Executive Director, and Milton Waner, MD., is Medical Director. The organization is a non-profit resource providing the latest and most accurate information on the proper diagnosis and treatment of hemangiomas and vascular birthmarks. THE NATIONAL VASCULAR MALFORMATIONS FOUNDATION 8320 Nightingale Street Dearborn Heights, MI 48127-1202

56. The DRM WebWatcher: Sotos Syndrome birth. Children affected by Sotos syndrome may exhibit characteristicfacial differences and developmental delays. For information http://www.disabilityresources.org/SOTOS.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Sotos Syndrome Updated 3/19/2000 A B C D ... About/Hint/Link Sotos syndrome is a rare genetic disorder characterized by excessive growth prior to and after birth. Children affected by Sotos syndrome may exhibit characteristic facial differences and developmental delays. For information about Sotos syndrome, check these sites. Cerebral Gigantism Technical information from Online Mendelian Inheritance in Man (OMIM). Soto Syndrome Brief clinical information from Pediatric Database. Sotos Syndrome An overview and additional sources of information from the National Organization for Rare Disorders. Sotos Syndrome Support Association The web site of this nonprofit organization includes FAQs, support, and links. Related subjects: Developmental Disabilities Facial Differences Growth Disorders Rare Disorders ... Resources in your state (c) 1997-2000 Disability Resources, inc.

57. About Smiles Links AboutFace is a support network whose vision is to foster acceptance of people withfacial differences so that they may participate fully in society, with self http://www.aboutsmiles.org/links.htm

About Face ADHA Online American Academy of Pediatric Dentistry American Association of Orthodontists ... Zero to Three Search Welcome to the AboutSmiles Resource Center We feel that these organizations offer valuable information. Although About Smiles has reviewed all the links on this page, About Smiles does not endorse, nor is responsible for the quality of the products, these links are for the benefit of our visitors. AboutFace is a support network whose vision is to foster acceptance of people with facial differences so that they may participate fully in society, with self work and dignity. Our mission is to provide information services, emotional support, and educational programs, for an on behalf of, individuals with facial differences and their families. AboutFace is an international organization (with chapters in Canada and the USA) that works to increase understanding through public awareness and education. ADHA Online is a one-stop source for timely, reliable, and easy-to-use oral health information for consumers dental hygienists and the media.

58. CPF : Links International AboutFace USA International organization providing emotional supportand information to people with facial differences and their families. http://www.cleftline.org/links/

Links Cleft Palate Foundation CPF Links Links to other Support Organizations AboutFace International AboutFace USA International organization providing emotional support and information to people with facial differences and their families. About Smiles Pediatric dentist's website helping all parents understand their children's dental and oral health needs. apert.org An online support and information source for individuals and families affected by Apert Syndrome. Association of Birth Defect Children Organization providing information to parents and professionals about all kinds of birth defects, resources, support groups, and environmental exposures. Cleft Advocate Provides advice for people who are fighting insurance denials for their medical care. Cleft Lip and Palate Association (London) Organization providing support and assistance to individuals and families in the UK. Cleft Lip and Palate Association of Ireland Comprehensive information for new parents, especially those seeking treatment in the Republic of Ireland.

59. Hemangioma Hope Links AboutFace is an international organization which provides information and emotionalsupport to individuals with facial differences and their families. http://www.hemangiomahope.org/links.html

60. NA Digest, V. 00, # 05 around 100 AD) A(x,y,z) = Sqrt( (x+y+z)(xy+z)(y-z+x)(z-x+y) )/4 . For a well-formedtriangle all three facial differences like x-y+z must be positive. http://www.netlib.org/netlib/na-digest-html/00/v00n05.html

NA Digest Sunday, January 30, 2000 Volume 00 : Issue 05 Today's Editor: Cleve Moler The MathWorks, Inc. moler@mathworks.com Today's Topics: Ake Bjorck Honored Happy Birthday Vyacheslav Lebedev Looking for BICG Code Change of Address for Gassan Abdoulaev ... Contents, Journal of Approximation Theory Submissions for NA Digest: Mail to na.digest@na-net.ornl.gov. Information about NA-NET: Mail to na.help@na-net.ornl.gov. URL for the World Wide Web: http://www.netlib.org/na-net/na_home.html Date: Fri, 28 Jan 2000 08:34:34 +0100 (MET) Subject: Ake Bjorck Honored In December 1999 Ake Bjorck turned 65. On Jan 21, 2000 the mathematics department at Linkoping University organized a conference to honor Ake and celebrate his contributions and leadership in numerical analysis. The theme of the conference was "Thirty years of numerical linear algebra in Sweden", and the speakers were L. Elde'n, T. Elfving, G. Dahlquist, O. Axelsson, B. Kagstrom, A. Ruhe, J-g. Sun, and P-A Wedin. 65 is the retirement age in Sweden. I know that Ake will not stop working, but instead he will continue to devote his time to what he

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