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         Floating-harbor Syndrome:     more detail

21. Floating-Harbor Syndrome Website Results :: Linkspider UK
floatingharbor syndrome Websites from Linkspider UK. Keyword Floating-HarborSyndrome. Linkspider UK Directory floating-harbor syndrome Search for.
http://www.linkspider.co.uk/Health/ConditionsandDiseases/GeneticDisorders/Floati
Floating-Harbor Syndrome Websites from Linkspider UK Keyword: Floating-Harbor Syndrome Linkspider UK Directory
Floating-Harbor Syndrome
Search for
Directory Tree: Top Health Conditions and Diseases Genetic Disorders : Floating-Harbor Syndrome (4) Add URL Advertise Here! Personalize Amazon ...
    Floating Harbor Syndrome Support Group - Provides a description, including a list of symptoms, things to do and links to other resources. Also contact detail. National Library of Medicine: FHS - Floating-harbor syndrome, the synonyms, a summary and a list of major features. The CaF Directory - A brief discussion about floating harbor syndrome, with some history and information about a support group located in Essex, United Kingdom. Readers Digest Health - A general discussion about floating harbor syndrome and some resources for further information.

22. Rare Disorders Website Results :: Linkspider UK
Familial Dysautonomia@ (8); Fanconi Anemia@ (20); floatingharbor syndrome@(4); Friedreich Ataxia@ (4); Galactosemia@ (3); Gaucher's@ (14
http://www.linkspider.co.uk/Health/ConditionsandDiseases/RareDisorders/
Rare Disorders Websites from Linkspider UK Keyword: Rare Disorders Linkspider UK Directory
Rare Disorders
Search for
Directory Tree: Top Health Conditions and Diseases : Rare Disorders (126) Add URL Advertise Here! Personalize Amazon ...
  • Zollinger-Ellison Syndrome
    See Also:
    • Health: Conditions and Diseases: Genetic Disorders National Organization for Rare Disorders, Inc. - Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching. Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. Office of Rare Diseases - Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. International Rare Disease Support Network - A community providing more than a 1000 different links to support groups for the people of all nations. Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization.
  • 23. LSHSS April 1999 Table Of Contents
    Oral Language Development in a Child With floatingharbor syndrome This clinicalexchange presents a 3-year case study of oral language skill development in a
    http://professional.asha.org/resources/journals/LSHSSApr99TOC.cfm

    Professional Home Page
    Resource Center Journals
    Table of Contents Vol. 30, No. 2, April 1999
    Articles are listed alphabetically within category. Article/Report The Effectiveness of Audiologists’ Information Sources for Classroom Teachers
    This study investigated how well 273 teachers in Georgia understood the needs of mainstreamed children who were hard of hearing who were in their classrooms. A survey was sent to 273 teachers of students with hearing loss who were not receiving special education services. The survey sought information regarding the teachers’ awareness of their students’ hearing loss and what they knew about the loss. Teachers were also asked how they received information about the hearing loss and how they preferred to receive it. Deficiencies were found in the teachers’ level of awareness and knowledge regarding their students’ hearing loss across all grade levels. Teachers generally preferred the information sources with which they were most familiar. Recommendations are offered to improve communication with classroom teachers regarding students’ hearing loss.
    The Hearing Aid Effect in African American and Caucasian Males as Perceived by Female Judges of the Same Race

    Assessment of Complex Sentence Production in a Narrative Context

    Effects of Familiarity on Idiom Comprehension in African American and European American Fifth Graders

    Language Testing in Adolescents With Brain Injury: A Consideration of the CELF–3
    ...
    The Effectiveness of Audiologists’ Information Sources for Classroom Teachers

    This study investigated how well 273 teachers in Georgia understood the needs of mainstreamed children who were hard of hearing who were in their classrooms. A survey was sent to 273 teachers of students with hearing loss who were not receiving special education services. The survey sought information regarding the teachers’ awareness of their students’ hearing loss and what they knew about the loss. Teachers were also asked how they received information about the hearing loss and how they preferred to receive it. Deficiencies were found in the teachers’ level of awareness and knowledge regarding their students’ hearing loss across all grade levels. Teachers generally preferred the information sources with which they were most familiar. Recommendations are offered to improve communication with classroom teachers regarding students’ hearing loss.

    24. Clinical Exchange
    MB. floatingharbor syndrome (FHS), named after the two hospitals where the firsttwo patients were described, has infrequently been described in the literature
    http://www.childguidanceclinic.ca/Clinical Exchange.htm
    Clinical Exchange Oral Language Development in a
    Child With Floating-Harbor Syndrome
    Nicole Y. Muir
    Glenn B. Allard
    Child Guidance Clinic of Winnipeg, Winnipeg, MB Cheryl Greenberg
    Health Sciences Centre. Winnipeg. MB
    Abstract This clinical exchange presents a 3-year case Study of oral language skill development in a child with Floating-Harbor syndrome (FHS). FHS is a rare condition that is characterized by short stature, expressive language delay, and triangular facies. Oral language skills were developed in the context of a naturalistic language intervention approach, within an early childhood school-based Program. Initial presenting speech and language characteristics, as well as long-term needs, are discussed. Key Words Floating-Harbor syndrome, speech and language development, naturalistic intervention Early Childhood Language Centre Naturalistic Language Intervention Naturalistic language intervention. described by Norris and Hoffman (1990), is consistent with the principles of whole language learning. Language intervention is meaning-based and occurs in socially meaningful interactions. Children are assisted in attending to meaningful aspects of the environment. which enables them to conceptualize the physical and social environment. and function as active participants, thus integrating a linguistic code. Communication is expanded and refined within the communication setting. Goal setting and language intervention take place in a classroom setting. Clinician roles include observation and ongoing language sampling and analysis. Language intervention is provided daily through child-centered play activities. Strategies include modeling. expansion, use of closure. and scaffolding (Hubbell. 1977). Modeling is used extensively to provide ongoing feedback regarding use of specific syntactic structures and correct sound production.

    25. Web Site Information
    Rosen, AC, Newby, R., Lubinsky, R., Saur, C. (1998) floatingharbor syndromein a mother and daughter Evidence for a dominantly inherited complex
    http://www-psych.stanford.edu/~rosena/
    Allyson C. Rosen, Ph.D. Email rosena@psych.stanford.edu Education Stanford Psychology Department, Stanford CA
    Visiting Scholar, 1999-present. NIA/Palo Alto VA Medical Center, Bethesda, MD/Palo Alto, CA
    Post-Doctoral Fellow, 1998-1999 Medical College of Wisconsin, Milwaukee, WI
    Clinical Instructor, Neuropsychology, 1998
    Post-Doctoral Fellow in Clinical Neuropsychology, 1994-1997 Long Island Jewish-Hillside Hospital Long Island NY
    Intern, Clinical Neuropsychology 1993-1994. Case Western Reserve University Cleveland OH
    Ph.D./MA, Psychology, 1988-1993. Brown University Providence RI
    BA Psychology, Honors, Magna Cum Laude, 1982-1986.
    BA Biology Licensed Clinical Psychologist
    Wisconsin
    Massachusetts California General Area of Research My primary goal is to apply functional MRI ( fMRI ) and cognitive neuroscience to answer questions which are meaningful for older adults. The focus of my research has been to refine our understanding of individual differences in age-related brain changes. I have spent my years before coming to Stanford completing training in clinical neuropsychology so that my research will be sensitive to the everyday needs of older adults. My initial research focused on attention and explored the impact of perceptual impairment on visual search. During my clinical postdoctoral training, I studied the relationship between attention and inhibitory motor behavior. I am continuing this work by performing fMRI studies of response competition. After years of assessing patients with memory complaints, I have expanded my focus to the study of memory, specifically, the impact of perception on memory retrieval.

    26. Electricbrain Home: Index: Health: Conditions And Diseases: Genetic Disorders
    Wiedemann Syndrome Coffin Lowry Syndrome CriglerNajjar Syndrome Familial HypercholesterolemiaJoubert Syndrome floating-harbor syndrome Hereditary Spastic
    http://www.electricbrain.com/index/Health/Conditions_and_Diseases/Genetic_Disord
    electricbrain
    Index
    Health Conditions and Diseases : Genetic Disorders home index write privacy ...
    Noonan Syndrome

    Famous quotes: When a man you like switches from what he said a year ago, or four years ago, he is a broad-minded man who has courage enough to change his mind with changing conditions. When a man you don't like does it, he is a liar who has broken his promises. Franklin Adams Find someone: Old Friends New Friends Lost Love
    New Love
    ... privacy

    27. Links: Health: Rare Disorders- Alabama Council For Developmental Disabilities
    Dysautonomia; Fanconi Anemia; floatingharbor syndrome; Friedreich Ataxia;Galactosemia; Gaucher's; Gerstmann Syndrome; Glutaricaciduria; Guillain
    http://www.acdd.org/Links/conditions/Rare_Disorders.htm
    You are here: Home Links Conditions Rare Disorders
    Rare Disorders
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    On this page:
    General
    • Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization. International Rare Disease Support Network - A community providing more than a 1000 different links to support groups for the people of all nations. Kindler Syndrome - An article and case study of this rare disease. Includes links. National Organization for Rare Disorders, Inc.

    28. F
    Alcohol Syndrome; @ Fetal Face Syndrome; @ Fibrocystic Breasts; @ Fibromyalgia.@ Fifth Disease; @ floatingharbor syndrome; @ Flu; @ Food
    http://www.ad.com/Health/Conditions_and_Diseases/F/
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    29. Genetic Disorders
    Ectodermal Dysplasia; Familial Hypercholesterolemia; Fatty Oxidation;floatingharbor syndrome; Fragile X Syndrome; Glutaricaciduria;
    http://www.ad.com/Health/Conditions_and_Diseases/Genetic_Disorders/
    search
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    Categories:
    Dr. Greene's HouseCalls A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease.
    Category: Health > Conditions and Diseases > Genetic Disorders
    http://www.drgreene.com/html/21614.html
    Gene Clinics
    Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.
    Category: Health > Conditions and Diseases > Genetic Disorders
    http://www.geneclinics.org/ Genetic and Rare Conditions Site Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z. Category: Health > Conditions and Diseases > Genetic Disorders http://www.kumc.edu/gec/support/ Genetic Disorders: The Links to Diet Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy and homocystinuria and cystic fibrosis. Category: Health > Conditions and Diseases > Genetic Disorders http://www.mindspring.com/~sandysimmons/genetic_disorders.html

    30. Open Directory & Pay Per Click Search Engine: Health/Conditions And Diseases/Gen
    Ectodermal Dysplasia (6). Familial Hypercholesterolemia (5). Fatty Oxidation (4).floatingharbor syndrome (4). Fragile X Syndrome (14). Glutaricaciduria (4).
    http://www.searchpixie.com/Health/Conditions_and_Diseases/Genetic_Disorders/
    Need Traffic TrafficGiveAway.com Search the Web Home Toolbar LinkManager bookmark ... Conditions and Diseases : Genetic Disorders CATEGORIES: Aarskog Syndrome Aase Syndrome Ablepharon-Macrostomia Syndrome Alagille Syndrome ... Zellweger Syndrome LINKS:
    • Dr. Greene's HouseCalls
      A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease.
      http://www.drgreene.com/html/21614.html
    • Gene Clinics
      Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.
      http://www.geneclinics.org
    • Genetic and Rare Conditions Site
      Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z.
      http://www.kumc.edu/gec/support/
    • Genetic Disorders: The Links to Diet
      Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy and homocystinuria and cystic fibrosis. http://www.mindspring.com/~sandysimmons/genetic_disorders.html

    31. NEWS.TERADEX.COM - Health/Fitness/Diseases/Genetic Disorders
    Syndrome, Fatty Oxidation, Schizencephaly, floatingharbor syndrome, ShwachmanSyndrome, Fragile X Syndrome, Smith-Magenis Syndrome, Glutaricaciduria,
    http://news.teradex.com/Health_Fitness/Diseases/Genetic_Disorders/
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    E-Mail: webmaster@teradex.com Aaex Corp.

    32. MetaEUREKA Metasearch
    Fanconi Anemia, Fatty Oxidation. floatingharbor syndrome, Fragile XSyndrome. Friedreich Ataxia, Galactosemia. Gaucher's, Glutaricaciduria.
    http://www.metaeureka.com/cgi-bin/odp2.pl?dir=Health/Conditions_and_Diseases/Gen

    33. MetaEUREKA Metasearch
    Dystonia, EhlersDanlos Syndrome. Erythromelalgia, Fabry's. Familial Dysautonomia,Fanconi Anemia. floating-harbor syndrome, Friedreich Ataxia. Galactosemia, Gaucher's.
    http://www.metaeureka.com/cgi-bin/odp2.pl?dir=Health/Conditions_and_Diseases/Rar

    34. Definitions Of Genetic Disorders-F.
    Flavin Containing Monooxygenase 2 http//www.stepstn.com/nord/rdb_sum/997.htm.floatingharbor syndrome http//www.stepstn.com/nord/rdb_sum/934.htm.
    http://www.icomm.ca/geneinfo/def-f.htm
    The GAPS INDEX
    to Information on the Internet about Genetic Disorders and Birth Defects

    Genetic Information and Patient Services, Inc. (GAPS)
    HOME
    DISORDERS GLOSSARY
    Definitions of Genetic Disorders beginning with the letter F Click on the link next to the disorder to view its definition. fanconi.htm
    FAA fanconi.htm
    Fabry Disease fabry.htm
    FAC fanconi.htm
    FACB fanconi.htm
    FACD fanconi.htm
    FACE fanconi.htm FACF fanconi.htm FACG fanconi.htm FACH fanconi.htm Facial Nerve Palsy bellsp.htm Facial Paralysis bellsp.htm Facial Ectodermal Dysplasias ed.htm Facial Ectodermal Dysplasia setleis.htm Facio-Scapulo-Humeral Dystrophy fsh.htm Facio-Auriculo-Vertebral Spectrum goldenhar.htm Facio-cardio-cutaneous syndrome cfc.htm Facio-Fronto-Nasal Dysplasia ffnd.htm Faciocutaneoskeletal Syndrome costello.htm Faciodigitogenital syndrome aarsk.htm Faciogenital dysplasia aarsk.htm Faciogenitopopliteal Syndrome popiteal.htm Faciopalatoosseous Syndrome opd.htm

    35. Institut Für Humangenetik, Uniklinikum Essen
    A, Harms E, Meinecke P floatingharbor syndrome in two unrelated girls Mild shortstature in one and effective growth hormone therapy in the other patient.
    http://www.uni-essen.de/humangenetik/Publikationen/publikationen.html
    Institut f¼r Humangenetik Essen Publikationen Publikationen 1976-2002 als pdf-Dokument Publikationen 2002 Giglio S, Calvari V, Gragato G, Gimelli G, Camanini S, Giorda R, Ragusa S, Guerneri A, Selicorni A, Stumm M, Tonnies H, Ventura M, Zollino M, Neri G, Barber J, Wieczorek D, Rocchi M, Zuffardi O: Heterozygous submicroscopic inversions involving olfactory receptor-gene clusters mediate the recurrent t(4;8)(p16;p23) translocation. Am J Hum Genet 2002, 71:276-285. Anastassiou G, Tschentscher F, Zeschnigk M, Bornfeld N: Cadherin expression in uveal melanoma. Exp Eye Res 2002, 74:423-425. Anastassiou G, Tschentscher F, Zeschnigk M: Prognostically relevant markers of malignant melanoma of the uvea. Ophtalmologe 2002, 99:327-332. Kunath M, L¼decke H-J, Vortkamp A: Expression of Trps1 during mouse embryonic development. Gene Expression Patterns 2002, 2:119-122. Klutz M, Brockmann D, Lohmann DR: A parent-of-origin effect in two families with retinoblastoma is associated with a distinct splice mutation in the RB1 gene. Am J Hum Genet 2002, 71:174-179. Starke H, Seidel J, Henn W, Reichardt S, Volleth M, Stumm M, Behrend Ch, Sandig KR, Kelbova Ch, Senger G, Albrecht B, Hansmann I, Heller A, Claussen U, Liehr T: The regions 9p12 and 9q13-21.1 contain highly homologous sequences – towards a better understanding of the heteromorphic patterns in chromosome 9. Europ J Hum Genet 2002, 10:790-800

    36. Katalog Health Conditions_and_Diseases F - Netz-Tipp.
    Disease (*); floating-harbor syndrome (*); Flu (*); Food Poisoning
    http://www.netz-tipp.de/kat/Health/Conditions_and_Diseases/F/

    37. Open Directory - Health: Conditions And Diseases: Rare Disorders
    Familial Dysautonomia@ (8); Fanconi Anemia@ (18); floatingharbor syndrome@(4); Friedreich Ataxia@ (4); Galactosemia@ (3); Gaucher's@ (14
    http://www.mptdo.com/Health/Conditions_and_Diseases/Rare_Disorders/
    about dmoz add URL update URL become an editor ... help the entire directory only in Conditions_and_Diseases/Rare_Disorders Top Health Conditions and Diseases : Rare Disorders Description See also: This category in other languages: Italian
    • National Organization for Rare Disorders, Inc. - Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
    • Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
    • Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
    • Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
    • Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization.

    38. SpringerLink: European Journal Of Pediatrics - Abstract Volume 154 Issue 8 (1995
    floatingharbor syndrome description of a further patient, review ofthe literature, and suggestion of autosomal dominant inheritance.
    http://link.springer-ny.com/link/service/journals/00431/bibs/5154008/51540658.ht
    European Journal of Pediatrics
    ISSN: 0340-6199 (printed version)
    ISSN: 1432-1076 (electronic version) Table of Contents Abstract Volume 154 Issue 8 (1995) pp 658-661
    Floating-Harbor syndrome: description of a further patient, review of the literature, and suggestion of autosomal dominant inheritance
    D. Lacombe (1), M. A. Patton (2), C. Elleau (3), J. Battin (1)
    (2) S. W. Thames Regional Genetics Service, St George's Hospital, London, United Kingdom
    (3) Department of Paediatrics, CHG Mont-de-Marsan, France
    Received: 26 August 1994 Accepted: 17 February 1995 Abstract The Floating-Harbor syndrome is a growth retardation syndrome with delayed bone age, speech development, and typical facial features. The face is triangular with deep-set eyes, long eyelashes, bulbous nose, wide columella, short philtrum, and thin lips. We present an additional patient and review 16 cases from the literature. The possible phenotype in the patient's mother suggests a dominant mode of inheritance for the syndrome. Conclusion The Floating Harbor syndrome is a growth deficiency syndrome characterized by proportionate short stature, characteristic face and delayed speech development. Inheritance is possibly autosomal dominant.

    39. Health Education Board For Scotland: Health And Support Groups: Heart Disease
    SYNDROME/ EHLERS DANLOS SYNDROME/ ELLISVAN CREVELD SYNDROME/ FETAL ALCOHOL SYNDROME/FETAL ANTI-CONVULSANT SYNDROME/ floating-harbor syndrome/ FRAGILE X
    http://www.hebs.scot.nhs.uk/topics/heart/heartgroup.cfm
    to of records
    ASSOCIATION FOR CHILDREN WITH HEART DISORDERS
    Ms Irene Robertson, Scottish Secretary
    7 Parkview
    North Donside Road
    ABERDEEN
    Tel:
    Internet: http://www.achd.org.uk
    Health board area: Grampian
    Covers: Scotland
    Scottish head office of the Association; aims to provide support to children and young adults with heart disorders, and their families. Raises money for research, equipment, welfare grants and weekend holidays. Priority groups: Children/ Families/ Young adults/ Parents/ CHILDHOOD DISEASES/ CARDIOVASCULAR DISEASES/ CHILDREN/ CARDIOVASCULAR SYSTEM/ FAMILY SUPPORT/ DISABILITY EQUIPMENT/ HOLIDAYS/ FUNDRAISING/ HEART DISEASES/ HEART DEFECTS/ Updated: ASSOCIATION FOR CHILDREN WITH HEART DISORDERS - BRAVEHEARTS YOUNG ADULTS (YA) Mr Mark Maguire 168 Meadowburn Bishopbriggs GLASGOW Tel: Email: mmaguire@stac.ac.uk

    40. 1Up Health > Health Links Directory > Conditions And Diseases: Genetic Disorders
    The CaF Directory A brief discussion about floating harbor syndrome, with some historyand information about a support group located in Essex, United Kingdom.
    http://www.1uphealth.com/links/genetic-disorders-floating-harbor-syndrome.html
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    ... Genetic Disorders : Floating-Harbor Syndrome Description
    Sites The CaF Directory
    A brief discussion about floating harbor syndrome, with some history and information about a support group located in Essex, United Kingdom.
    Floating Harbor Syndrome Support Group
    Provides a description, including a list of symptoms, things to do and links to other resources. Also contact detail. National Library of Medicine: FHS Floating-harbor syndrome, the synonyms, a summary and a list of major features. Readers Digest Health A general discussion about floating harbor syndrome and some resources for further information. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Parts of the directory made available on 1UpHealth have been modified. External Web site links provided on this site are meant for convenience and for informational purposes only; they do not constitute an endorsement. Search: The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only they do not constitute endorsements of those other sites.

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