41. Care For Life hemophilia home care, full service pharmacy that provides all products and therapies (including alternative therapies such as herbal remedies, vitamins and weight gain supplements) needed to treat hemophilia, other bleeding disorders and their complications including HIV, AIDS, hepatitis, liver disease, joint disease and arthritis. http://www.careforlife.com/

Post 9/11 Travel Form Because of heightened airport security, we have drafted a letter to help you in avoiding unnecessary inconveniences. Print this 2-page document prior to traveling. We take your privacy seriously! Our Patient Confidentiality statement shows you exactly how we protect you and your information. Are you a mental health care provider? Learn what Care for Life can offer you and your patients! Factor Mat These effective learning tools were developed for you by Care for Life's experienced clinical staff. Ask the Pharmacist Bleeding Disorders Infectious Disease States MentalHealth ... Respiratory

42. Welcome FEDERACION ESPANOLA DE HEMOFILIA. You are visitor FastCounter by LinkExchangeSince 1 April, 1999. Please bookmark this page for counting purposes. http://www.hemophiliaofiowa.org/

FEDERACION ESPANOLA DE HEMOFILIA You are visitor # FastCounter by LinkExchange Since 1 April, 1999. Please bookmark this page for counting purposes. Come on in and have a look around. Click here to Enter

43. A Little Web Page About Me... Personal information, photos, growing up with hemophilia and favourite links. http://hometown.aol.com/jscott420/JScott420.html

htmlAdWH('7008212', '120', '30'); htmlAdWH('7004796', '234', '60'); Main Create Edit Help ... FOX NEWS Growing up and living with Hemophilia... I am 26 years old, living with severe Hemophilia A. As a kid, dealing with hemophilia and/or other types of bleeding disorders is a little bit more difficult than when you get older. When I was a young kid, I had to learn what my body could handle without causing internal bleeding. I wanted to play football, I wanted to wrestle, I wanted to jump on our trampoline with my older sister and cousins.. :) just had to learn the hard way in some of those cases.. well, this is me.. just chillin gettin ready to head out for a bit.. I'm a very romantic guy, always out to please my lady.. ;) My main interests are camping, rafting, hiking, rock climbing, boating, playing the lastest video games, fixin up my car, checkin out the stars at night when its clear. I am a counselor for a youth camp for kids with bleeding disorders, helping kids have a chance to experience activities that they otherwise would not have the opportunity to fully participate in. E-mail me for additional information about camp. Up Down Top Bottom Links I Recommend BAYER EQUALS DEATH.COM

44. Hemophilia Club Global Network of people suffering with hemophilia their families. http://www.geocities.com/hemophiliaclub/

45. Hemophilia: Nevada, Coumadin, Von Willebrand’s Disease & Deep Vein Thrombosis. Information about the organization, bleeding and clotting disorders, research projects and contact details. http://www.htcnevada.org

The Hemophilia and Thrombosis Center of Nevada 2020 W. Palomino Lane Suite 110 Las Vegas, Nevada 89106 since M arch 5, 2003 The Hemophilia and Thrombosis Center of Nevada (HTCN) was founded in 1997 as the first treatment center in the state of Nevada dedicated to the diagnosis and treatment of patients with bleeding or clotting disorders. The HTCN is a non profit corporation. We support ourselves with educational grants and research grants. All team members are employed through community organizations who donate their time to the treatment center. We currently care for patients and families throughout Nevada and the neighboring underserved regions. While clinics are held in Las Vegas, we attempt to coordinate care through the primary care physician's office locally. We have an active advisory board composed only of affected and concerned persons. This board promotes the mission of the HTCN and helps to guide the activities of the treatment center staff. If you are interested in volunteering at the HTCN or helping support us, please call the center at the number below. We always need help with our newsletters published three times per year and special events. Our Mission The HTCN is dedicated to improving the care of patients with bleeding or clotting disorders regardless of the ability to pay.

46. Welcome To Hempohilia Center Of Western New York Offers a variety of services related to hemophilia and other hereditary blood disorders. http://www.wnyhemophilia.com/

Hemophilia Center of WNY, Inc. Chapter of the National Hemophilia Foundation 462 Grider Street Buffalo, NY 14215 Table Of Contents Facts about Hemophilia What We Provide Directions Email Us ... Yellow Pages Hemophilia Center of WNY Chapter of the National Hemophilia Foundation The Center is a not-for-profit, licensed diagnostic and treatment center. It offers a variety of services for persons with hemophilia and other hereditary blood disorders ensuring that the patient is cared for at all times- whether at the hospital, at home, at the Center, at school, or on the job. Hemophilia Center of WNY A Chapter of the National Hemophilia Foundation Adult Unit Erie County Medical Center 462 Grider Street 5th Floor Buffalo, New York 14215 Pediatric Unit 219 Bryant Street 3rd Floor D Bldg. Buffalo, New York 14222 Office Hours: Monday - Friday 8:30 a.m. - 4:30 p.m. 24 Hour emergency service Comprehensive clinic visits scheduled by appointment.

47. Hemophilia List of all transmissible spongiform encephalopathies affecting humans. http://www.hemophilia.ca/en/4.2.3.html

Last update: December 12, 2001 TSE - Transmissible Spongiform Encephalopathies Human TSE's TSE - Transmissible Spongiform Encephalopathies Human TSE's Kuru Sporadic Creutzfeldt-Jakob Disease (spCJD) Familial Creutzfeldt-Jakob Disease Gerstmann-Straussler-Scheinker Disease ... Human BSE (nvCJD) Kuru Kuru is the first human spongiform encephalopathy recognized to be transmissible. The Fore tribe in Papua New Guinea used to practice ritual cannibalism. When a member of the tribe died, the women and children ate the person's brain. The men ate the muscle tissue. The practice had two goals - to take in the spirit of the departed ancestor and to ingest a rich source of protein, difficult to get in the area. The practice ended about 1956. Kuru affected a large number of people, especially women. The men who contracted Kuru are believed to have been exposed as children. Clearly, the brain tissue proved far more infectious than the muscle tissue. The symptoms of Kuru were uncoordinated movements, neurological weakness, and decay in brain function. However, dementia was not a symptom as it is with CJD. The incubation period can be as long as 40 years. People usually died within 1 year of the onset of symptoms. Sporadic Creutzfeldt-Jakob Disease (spCJD) Sporadic CJD, along with the familial form described in 3.3, and the iatrogenic form described in 3.6, are also called classical CJD.

48. Hemophilia What is hemophilia? There are numerous inherited bleeding disorders.The disability. Viral Complications of hemophilia. HIV/AIDS. http://www.hemophilianevada.org/Hemophilia/hemophilia.html

What is Hemophilia? There are numerous inherited bleeding disorders. The most common ones are the hemophilias and von Willebrand Disease. Female carriers of the hemophilia gene may also exhibit abnormal bleeding. This occurs when their own factor VIII or IX level is below normal. Treatment Treatment is aimed at replacing the deficient clotting factor. This is done via infusions of concentrates containing the needed factor. Many patients are on a home infusion program whereby they self-infuse the clotting factor concentrate when they bleed or administer it regularly to prevent bleeding. This ensures prompt treatment, and gives them greater independence and more control over managing their disorder. The costs of treating severe hemophilia are high, sometimes $60,000 to $100,000 per year or more. Prevention, early recognition, and prompt treatment of bleeds can help keep these costs down as well as reduce disability. Viral Complications of Hemophilia HIV/AIDS Prior to 1985 many hemophiliacs became infected with HIV, the virus that causes AIDS (Acquired Immune Deficiency Syndrome), through blood products contaminated with the virus. Since that time, commercially prepared blood clotting concentrates have been screened for the presence of HIV and then further treated with other means such as heating and pasteurization to make them free of the virus.

49. THE MERCK MANUAL, Sec. 11, Ch. 131, Hemostasis And Coagulation Disorders Information for doctors from this online textbook. http://www.merck.com/pubs/mmanual/section11/chapter131/131c.htm

This Publication Is Searchable The Merck Manual of Diagnosis and Therapy Section 11. Hematology And Oncology Chapter 131. Hemostasis And Coagulation Disorders Topics [General] Hemostasis Hereditary Coagulation Disorders Acquired Coagulation Disorders Hereditary Coagulation Disorders HEMOPHILIA Common forms of hereditary bleeding disorders caused by clotting factor deficiencies of factor VIII, IX, or XI. Hemophilia A (factor VIII deficiency), which affects about 80% of hemophiliacs, and hemophilia B (factor IX deficiency) have identical clinical manifestations, screening test abnormalities, and X-linked genetic transmission. Specific factor assays are required to distinguish the two. Genetics Hemophilia may result from gene mutations: point mutations involving a single nucleotide, deletions of all or parts of the gene, and mutations affecting gene regulation. About 50% of cases of severe hemophilia A result from a major inversion of a section of the tip of the long arm of the X chromosome. Because factor VIII and factor IX genes are located on the X chromosome, hemophilia affects males almost exclusively. Daughters of hemophiliacs will be obligatory carriers, but sons will be normal. Each son of a carrier has a 50% chance of being a hemophiliac, and each daughter has a 50% chance of being a carrier. (See also Ch. 286.

50. WYETH: Hemophilia Information At Hemophiliavillage.com Brought To You By Wyeth G hemophilia Village is a hemophilia resource for patients, caregivers of hemophiliapatients and health care professionals treating bleeding disorder from the http://www.hemophiliavillage.com/

© 2001, Wyeth. Please read our and our Terms and Conditions

51. Matt Klimshuk's Home Page Information on von Willebrand's Disease and links to von Willebrand's and hemophilia sites. http://www.mindspring.com/~mattrk/

"Information is Power" Providing Information on von Willebrand's Disease Go To Personal Information What Is Von Willebrand's Disease? Von Willebrand's Disease (vWD) is not a disease at all, but the most common genetic disorder in the world (classic hemophilia is more well known due to its connection with the royal families of Europe). In fact, vWD is times more common than classic hemophilia! It was discovered by a Finnish doctor in the 1920s, who named it after himself and called it a disease. Later, Dr. von Willebrand discovered in truth that the illness was linked to a missing blood factor, which assists with the clotting of blood. He named the factor after himself as well - von Willebrand's Factor (vWF). The disorder is not sex linked (autosomal), meaning that both men and women can have it, but some can be carriers only and not manifest any of the symptoms. VWD occurs when the body makes either inferior vWF or none at all. Other blood factors can be short-changed as well. Generally, vWD is divided into three types: Type I (mild), Type II (Medium) and Type III (severe). The lower the type, the less the symptoms will occur and the less strenuous they will be. What Are the Symptoms?

52. Hemophilia Association The Mission of the hemophilia Association is to enhance the quality of life forthose in Arizona with hemophilia, hemophiliarelated HIV/AIDS and other http://www.hemophiliaz.org/

T he Mission of the Hemophilia Association is to enhance the quality of life for those in Arizona with Hemophilia, Hemophilia-related HIV/AIDS and other coagulation disorders.

53. Factor Foundation Of America - Welcome Locating financial support for those dealing with hemophilia and related bleeding disorders. Membership. http://www.factorfoundation.org/

Click Here for printable version of Grant Application Guidelines For Press Release click Here Click Here to continue.

54. Copernicus Therapeutics, Inc. Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors. http://www.cgsys.com/

You will be redirected if not click here HOME

55. Hemophilia Pedigree A Pedigree of hemophilia. Fortunately, the family shows genetic segregation fora RFLP polymorphism which is tightly linked with the hemophilia gene. http://www.people.virginia.edu/~rjh9u/hemaped1.html

A Pedigree of Hemophilia The sister (II-1) of the boy with hemophilia (II-2) will be getting married soon and wants to know if she is a carrier for the hemophilia allele. Fortunately, the family shows genetic segregation for a RFLP polymorphism which is tightly linked with the hemophilia gene. The unaffected father (I-1) has the 3 kb polymorphism on his X chromosome (F) and must contribute that to each of his daughters. The mother has both the 3 kb (M2) and the 4 kb (M1) polymorphisms, one on each X chromosome. Since the affected son must have received his X chromosome from his mother and he has the 3 kb polymorphism, the hemophilia allele (indicated by a red area on the fragment M2) must be segregating with the 3 kb (M2) polymorphism carried by the mother. So, the ready to be married daughter received the X with the 4 kb polymorphism from her mother and an X with the 3 kb polymorphism from father. Since she didn't receive the 3 kb polymorphism from her mother, she is not a carrier for hemophilia. On the other hand, the other daughter (II-3) is homozygous for the 3 kb polymorphism receiving one copy from her father and the other copy (with the hemophilia allele linked to it) from her mother and she is a carrier for hemophilia.

56. ïÆÉÃÉÁÌØÎÁÑ ÓÔÒÁÎÉÃÁ ïÂÝÅÓÔ×Á âÏÌØÎÙÈ çÅÍÏ ÐŸÑ€Ð¾Ð±Ð»ÐµÐ¼Ñ‹ гемофилии в СанктПетербурге, деятельность местного Общества Ð‘Ð¾Ð»ÑŒÐ½Ñ‹Ñ Ð“ÐµÐ¼Ð¾Ñ„Ð¸Ð»Ð¸ÐµÐ¹. Актуальные материалы, связанные с гемофилией, для врачей и Ð±Ð¾Ð»ÑŒÐ½Ñ‹Ñ , подписка на новости, форумы. http://hemophilia.spb.ru/

57. Medical And Hemophilia References Personal page from Rick and Linda Thomas. http://www.geocities.com/HotSprings/3160/medpage.html

Medical And Hemophilia References Hope these references are useful if you know any more links that fit in please e-mail me Hot Links Gold Coast Division of the Florida Chapter COTT Hemophilia Page World Federation Of Hemophilia> ... Florida Chapter of the NHF This page created by Rick and Linda Thomas click to return to our Home Page If you have comments or suggestions, email me at rthomas@gate.net

58. WYETH: Hemophilia Information At Hemophiliavillage.com Brought To You By Wyeth G Provides information on the signs, symptoms, causes and treatments of hemophilia A and B.Category Health Conditions and Diseases Blood Disorders hemophilia......An information resource on the bleeding disorder hemophilia and its causes, treatmentand management. Also includes information on hemophiliaVillage. http://www.hemophilia-village.net/

© 2001, Wyeth. Please read our and our Terms and Conditions

59. Hemophilia Resources Of America (HRA): About Hemophilia Von Willebrand Disease F Information from hemophilia Resources of America. http://www.hrahemo.com/abouthemo/vonwillebrand.html

This information sheet was compiled by Doris Michalovic, RN, MS, FNP Clinical Director, Hemophilia Resources of America Phone (800) 549-2654 Causes Symptoms Who should be tested? Diagnosis ... Resources for additional information What causes von Willebrand disease? Von Willebrand (VWD) is a genetic disorder which can be inherited from either parent. It affects both males and females. VWD is the most common bleeding disorder. It is estimated to occur in approximately one in 100 people and affects all ethnic groups. Over 3,000,000 people in the U.S. are affected. Most people who have this disorder do not know that they have it. What are the symptoms of von Willebrand disease? Symptoms in people with VWD vary from time to time. They may range from none to severe. Typical symptoms include: Frequent or prolonged nosebleeds Easy bruising Heavy or prolonged menstrual periods Prolonged bleeding after injury, surgery, childbirth, or dental work.

60. Corautus Genetics Inc :: Bringing Gene Therapy To Life A biopharmaceutical company developing innovative gene therapy products, for the treatment of serious medical disorders, focusing on hemophilia, cancer and HIV/AIDS. http://www.genstar-rx.com/

Home GenStar Therapeutics and Vascular Genetics Announce Completion of Merger to Form Corautus Genetics Cronometric.com

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