1. Welcome To The Official Site Of The Hughes Syndrome Foundation Information about antiphospholipid syndrome, the symptoms, diagnosing and treatment. Also information Category Health Conditions and Diseases Antiphospholipid Syndrome......hughes syndrome FOUNDATION. Welcome to the Official Home Page of thehughes syndrome Foundation. It provides information on Hughes http://www.hughes-syndrome.org/

HUGHES SYNDROME FOUNDATION Welcome to the Official Home Page of the Hughes Syndrome Foundation. It provides information on Hughes Syndrome (Antiphospholipid Syndrome or 'sticky blood') and the work of the Foundation. You can contact us at the details below. The Hughes Syndrome Foundation The Rayne Institute St Thomas' Hospital London Charity Reg. No. 1089077 Tel: Fax: Email: hsf@btclick.com TREK PERU Regrettably, we cannot provide answers to your specific medical enquiries, as we would require comprehensive information concerning your medical history. We would be negligent if we did so. In all cases we advise you to seek professional medical assistance.

2. THE FACTS ABOUT HUGHES SYNDROME hughes syndrome FOUNDATION. hughes syndrome. Sticky Blood . The AntiphospholipidSyndrome. Written by Dr Graham RV Hughes MD FRCP. Contents 1. Forward. http://www.hughes-syndrome.org/facts_about_hughes_syndrome.htm

HUGHES SYNDROME FOUNDATION Home Who What HS ... Links THE FACTS ABOUT HUGHES SYNDROME Hughes Syndrome "Sticky Blood" [The Antiphospholipid Syndrome] Written by Dr Graham R V Hughes MD FRCP Contents Forward Main Features Do you think you have Hughes Syndrome? Hughes Syndrome and Pregnancy ... What research is going on? Forward Top In 1983 Dr Graham Hughes and his colleagues described a condition often known as “sticky blood”, in which there was a danger of thrombosis. Patients with the syndrome were at risk, both from vein thrombosis (including DVT’s ), and in some, more dangerous arterial thrombosis, including a risk of strokes and heart attacks. In women with the syndrome, the “sticky blood” is unable to get through the sensitive small blood vessels to the fetus, and there is a risk of miscarriage. Fortunately, the syndrome is usually detected by a simple blood test, and correct treatment is effective – usually very effective. The aim of the treatment is to thin the blood – the commonly used medicines being either low dose (‘junior’) aspirin, heparin or

3. Hughes Syndrome (THE ANTIPHOSPHOlIPID SYNDROME) A GUIDE FOR PATIENTS By Dr. Graham Hughes Life President, LUPUS UK. From Lupus UK No. 50, 1996 This is the way th media have categorised hughes syndrome. http://www.lupusvic.org.au/hughes.htm

HUGHES SYNDROME (THE ANTIPHOSPHOlIPID SYNDROME) A GUIDE FOR PATIENTS By Dr. Graham Hughes Life President, LUPUS UK. From Lupus UK No. 50, 1996 DEFINITION: "Lustily blood". This is the way th media have categorised Hughes syndrome. Although technically not absolutely correct, this label provides a useful way of thinking about the disease. Essentially, patients with certain blood antibodies (antiphospholipid antibodies) have an increased risk of thrombosis dotting in the veins and arteries. This tendency to bloodclotting can affect individuals of any age, both male and female. It can happen suddenly,for example, as a leg thrombosis (~deep vein thrombosis or DVT) or chronically with a history of, for example, headaches, memory loss and fatigue going back over a number of years. The presence of these antibodies in pregnant women is especially important the "sticky" blood is sometimes unable to flow through the small and delicate blood vessels to the placenta and foetus. The placenta withers and the foetus is aborted. The syndrome has now come to be regarded as an important cause of recurrent spontaneous abortion or foetal loss.

4. WMC Library - New To The Library February 1-28, 2001 575.5 .A6 M7455 2000 ANTIPHOSPHOLIPID SYNDROME. hughes syndrome antiphospholipid syndrome. London ; New York Springer, http://library.med.cornell.edu/Library/HTML/OCLC/nbk0201.html

5. Lupus-support.org.uk Maintained by consultant rheumatologist and featuring information and support for patients and those with variant and other autoimmune connective tissues diseases, such as hughes syndrome. http://www.lupus-support.org.uk/

The website for lupus-support.org.uk can be found by clicking here . lupus-support.org.uk is registered through Easily.co.uk - get web site hosting or domain name registration here

6. Hughes Syndrome What is hughes syndrome? What causes hughes syndrome? hughes syndrome is caused bythe presence of antibodies in the blood, called antiphospholipid antibodies. http://www.homehealth-uk.com/medical/hughessyndrome.htm

Printing Help What is Hughes syndrome? Hughes syndrome, also known as antiphospholipid syndrome or 'sticky blood' is a disorder characterized by blood clotting, both in the arteries and veins. What causes Hughes Syndrome? Hughes syndrome is caused by the presence of antibodies in the blood, called antiphospholipid antibodies. These antibodies make the immune system work too hard, increasing blood clotting. Blood clotting can affect anyone of any age and can happen suddenly e.g. leg thrombosis or over a number of years. For more information on deep vein thrombosis (DVT) click here What are the symptoms of Hughes Syndrome? In some people the only symptom of Hughes syndrome is recurrent miscarriage (often late in pregnancy). This is due to small clots affecting the placenta , preventing vital nutrients getting to the growing baby. However, other symptoms could include any of the following: Headaches ( migraine type).

7. Hughes Syndrome - The Syndrome Behind The Name (otherwise Known As Antipholipid Here you can find the article written by Graham R.V. Hughes, MD, which was published in IMAJ. IMAJ 1999; 1; October; 100103 http://www.ima.org.il/imaj/oct99-9.htm

Past Issues October 1999, Table of Contents >> Hughes Syndrome - the Syndrome Home Page Instruction for authors Search Facilities Subscribing to IMAJ ... Contact Us Hughes Syndrome - the Syndrome behind the Name (otherwise known as Antipholipid Syndrome) C lick here for article written by Graham R.V. Hughes, MD. IMAJ 1999; 1; October; 100-103 gggggggggggggggggggggggggggggggggggggggggg Full Text

8. Miscarriage A condition known as hughes syndrome, sticky blood or antiphospholipidsyndrome is a possible cause of recurrent miscarriages. Hughes http://www.homehealth-uk.com/medical/miscarriage.htm

Printing Help What is a miscarriage? What causes a miscarriage? German measles Miscarriages are very common and in most cases there is nothing you could have done to avoid it and no explanation as to why it happened. However, when pregnant or planning a pregnancy you should try to maintain a healthy diet and start taking folic acid, while avoiding smoking, illegal drugs and drinking alcohol. What are the symptoms? The first symptom of a miscarriage is usually vaginal bleeding. If the bleeding is only light and there is little or no pain the baby is probably okay. This is known as a threatened miscarriage, your doctor will usually recommend that you rest and take it easy for awhile. If you notice any bleeding during your pregnancy you should contact your doctor or midwife for help and advice. Other symptoms to look out for include: Cramping pains in your stomach. Ve ry heavy bleeding - often with clots of blood.

9. Hughes Syndrome hughes syndrome A patient's Guide Author Dr Graham Hughes, Publishedby Springer, London, 63 pages. £6 (UK) £7 (Europe) £8 (Overseas). http://www.lupus.org.uk/Publications&LUPUS.html

Publications and LUPUS International Journal Books Book Chapters Journal Papers Case Reports ... LUPUS International Journal Publications PRINTABLE LUPUS LEAFLET Books We are able to offer the following books at the cost below: to make a credit or debit card purchase of these books online via a secure system from this page just click here.... BUY BOOKS Lupus: A Guide for Patients Author - Dr Graham Hughes; Published by Lupus UK, 25 pages £3 (UK) £7 (Europe) £8 (Overseas) Lupus: the facts Author - Dr Graham Hughes; Published by Oxford University Press, 127 pages £10 (UK) £11 (Europe) £12 (Overseas) Lupus: a guide for nurses Author - Sister A Barwick, Published by Lupus UK, 32 pages (ISBN 0-19-263145-4) £3 (UK) £3.50 (Europe) £4 (Overseas) Prices include postage and packing. Please complete the details below and send to: St. Thomas' Lupus Trust, The Rayne Institute, St. Thomas' Hospital, London SE1 7EH (Cheques made payable to: St. Thomas' Lupus Trust). Name ........................................................................................

10. Hughes Syndrome hughes syndrome, a potentially preventable condition was contributing to knowledgein conditions as diverse as recurrent abortion, DVT, multiple sclerosis http://www.lupus.org.uk/Latest_news.html

Latest news International Honour for Dr Graham Hughes At a recent ceremony in France, doctor Graham Hughes was awarded the title "Docteur Honoris Causa" at the Universit de la Mediteran e. This professorship, the highest award the university offers was given to five scientists, including Prof G’t Hooft (Netherlands), Nobel Prize winner in physic Dr Hughes' citation was for his work in describing the antiphospholipid syndrome, now known internationally as Hughes’ Syndrome. This clotting disorder, first described in lupus, is having a major impact in several branches of medicine, notably in the prevention of strokes and of recurrent miscarriage. Professor J M Durand in his citation said that Graham Hughes’ discoveries had proved arguably the most important advance in the world of obstetrics in the last 30 years. Dr Khamashta awarded "Unsung Heroes of the National Health Service Award" Staff and patients at the Louise Coote Lupus Unit were delighted at the news that their very own Dr Khamashta was awarded an "Unsung Heroes of the National Health Service Award", presented by the Daily Mail. As winner of the

11. Young-Hughes Syndrome Syndromes. View the Full Record Syndrome, Younghughes syndrome. Synonym,mental retardation-short stature-obesity-hypogonadism syndrome. http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome720.html

Multiple Congenital Anomaly/Mental Retardation (MCA/MR) Syndromes View the Full Record Syndrome Young-Hughes syndrome Synonym mental retardation-short stature-obesity-hypogonadism syndrome Summary Mental retardation with short stature, obesity, hypogonadism, and other disorders. Major Features Eyes: Nystagmus and strabismus. Skin: Ichthyosis, atopic dermatitis, photodermatitis. Nervous system: Convulsions. Urogenital system: Hypogonadism. Growth and development: Growth and mental retardation. Behavior and performance: Myopia. Happy disposition. Heredity: The syndrome is familial and is transmitted as an X-linked trait. Additional features: Obesity. View the Full Record U.S. National Library of Medicine , 8600 Rockville Pike, Bethesda, MD 20894 National Institutes of Health Privacy Accessibility Last updated: 27 October 1999

12. Living With Hughes Syndrome Living with hughes syndrome. hughes syndrome ('sticky blood') is a common iflittle known condition in which blood is prone to thickening and clotting. http://www.mypharmacy.co.uk/health_books/books/l/living_with_hughes_syndrome.htm

Living with Hughes syndrome By Triona Holden - a Sheldon Press book "Hughes syndrome ('sticky blood') is a common if little known condition in which blood is prone to thickening and clotting. Despite the fact that Hughes syndrome can be identified with a simple test and treated easily, many people have not received the help they need because the condition is not well known. In clear, straightforward language, Triona Holden explains what 'sticky blood' is, its symptoms and treatment. The chapters are illustrated with moving stories of those who have struggled to live with the syndrome and whose lives were transformed once it was diagnosed." Contents Foreword Preface 'Know the Enemy' Clots Baby Blues Stroke Headaches Do You Really Have MS?

13. Springer Medical Books/Hughes Syndrome hughes syndrome Edited by MA Khamashta hughes syndrome is at the root of diverseconditions such as stroke, leg vein thrombosis and recurrent abortion. http://www.infotech.demon.co.uk/Books2.htm

Hughes Syndrome Edited by M. A. Khamashta In1983 Dr Graham Hughes (one of the editors) described a syndrome in which the blood has a tendency to clot - now often called "sticky blood syndrome" or Hughes Syndrome. Hughes Syndrome addresses the complete range of conditions produced by this common disorder which is also known as antiphospholipid Syndrome. Hughes Syndrome is at the root of diverse conditions such as stroke, leg vein thrombosis and recurrent abortion. It is easily prevented and treated using commonly available drugs including low-dose aspirin. This book fulfils the need for a cross-disciplinary clinical textbook and contains contributions from the leading international authorities. £60.00 September 2000 352 pages ISBN 1-85233-232-8. Publishers: http://www.springer.co.uk/ BACK

14. The Contact A Family Directory - HUGHES SYNDROME printer friendly, hughes syndrome, hughes syndrome FOUNDATION. HughesSyndrome Foundation The Rayne Institute St Thomas' Hospital London http://www.cafamily.org.uk/Direct/h50.html

printer friendly HUGHES SYNDROME home more about us in your area conditions information ... how you can help search this site Hughes Syndrome: Antiphospholipid Syndrome Antiphospholipid syndrome (APS), also known as Hughes Syndrome, was first described by Dr Graham Hughes in 1983. The features of the clinical picture may include migraine, memory loss, vein and artery thrombosis, multiple sclerosis and recurrent miscarriage. Because one of the main features includes thrombosis (blood clotting), the name "sticky blood syndrome" has often been used as a shorthand to describe this condition. APS affects individuals from all ethnic backgrounds. Although individuals of all ages may be affected, most show features of APS before 45 years. The increased tendency to form blood clots in individuals with APS may have a devastating effect on any part of the body including the legs, arms, chest, head and a number of 'internal' organs such as the kidney and liver. Commonly, blood clots develop in the veins of the legs (deep vein thrombosis) causing pain and swelling, usually starting in the calf. Clotting in the leg may happen once or several times. Clots may also occur in the lung (pulmonary embolus). Clotting in arteries can result in strokes or heart attacks.

15. The Contact A Family Directory - Index A AMC see Arthrogryposis AML see Leukaemia and other Allied Blood Disorders APRTsee Purine Pyrimidine Metabolic Diseases APS see hughes syndrome ASA see http://www.cafamily.org.uk/Idx/a.html

printer friendly home more about us in your area ... how you can help search this site Please use the Index below to access the condition on which you require information. If you do not find what you want in the Index then try our search facility in the navigator on the left. Contact a Family also has information on many other specific conditions and rare disorders. If you cannot find the information you require in The Contact a Family Directory Online , you may wish to use our Contact a Family Helpline service. aAA see Acquired Aplastic Anaemia ACI see Arterial Calcification of Infancy ADA see Primary Immunodeficiencies ADD see Attention Deficit Hyperactivity Disorder ADEM see Acute Disseminated Encephalomyelitis (ADEM) ADHD see Attention Deficit Hyperactivity Disorder AHT see Thyroid Disorders AIDS see HIV Infection and AIDS ALA dehydratase deficiency see Porphyria ALD see Adrenoleukodystrophy ALL see Leukaemia and other Allied Blood Disorders AMC see Arthrogryposis AML see Leukaemia and other Allied Blood Disorders APRT see APS see Hughes Syndrome ASA see ASD see Heart Defects ATR-X see Alpha Thalassaemia - Mental Retardation on the X Chromosome Abdominal Exstrophies Abdominal Migraine Abetalipoproteinaemia see Metabolic Diseases Achondroplasia Acne Acne Vulgaris see Acne Acoustic Neuroma Acquired Aplastic Anaemia Acquired Haemochromatosis see Haemochromatosis Acquired Hypothyroidism see Thyroid Disorders Acrodermatitis Enteropathica see Metabolic Diseases Acrofacial dysostosis see Nager Syndrome Acromegaly see Pituitary Disorders Leukaemia and other Allied Blood Disorders Acute Diffuse Glomerulonephritis see

16. Living With Hughes Syndrome Living with hughes syndrome by Triona Holden hughes syndrome ('sticky blood') isa common if littleknown condition in which blood is prone to thickening and http://www.sheldonpress.co.uk/books/085969884X.html

Living with Hughes Syndrome by Triona Holden Hughes syndrome ('sticky blood') is a common if little-known condition in which blood is prone to thickening and clotting. The range of serious health problems this can cause is alarming: recurrent miscarriage, stroke, deep vein thrombosis ('economy class syndrome'). Fatigue, migraine, joint pain, speech difficulties and memory loss may also be consequences – symptoms which can be mistaken for multiple sclerosis or early onset Alzheimer's disease. If you think you may be affected Living with Hughes Syndrome will explain the simple diagnostic test that is used to identify the condition and the measures that can be taken to control it, sometimes as straightforward as junior aspirin. The chapters are illustrated with moving stories from those who have struggled to live with the syndrome and whose lives have been transformed once it was diagnosed. Triona Holden is a journalist and patron of the Hughes Syndrome Foundation. She formerly worked as a BBC TV news presenter and correspondent. New Publication 216 x 138mm ISBN: 0-85969-884-X More books on More books on More books on

17. HELP WITH LUPUS, APS ,MS AND HUGHES SYNDROME HELP WITH LUPUS, APS ,MS AND hughes syndrome. SANDRA (EMail MACCOLCLOUGH@AOL.COM)from NORTH WALES on Mar 11 2003, 212 asked HELP http://www.disabledliving.org.uk/forum/2003Mar1121229.htm

HELP WITH LUPUS, APS ,MS AND HUGHES SYNDROME SANDRA (EMail: MACCOLCLOUGH@AOL.COM ) from NORTH WALES on Mar 11 2003, 2:12 asked: HELP WITH LUPUS, APS ,MS AND HUGHES SYNDROME MY SISTER IS SUFFERING TERRIBLY WITH ALL OF THESE DISEASES IF THERE IS ANY ONE WHO IS SUFFERING WITH ANY ONE OF THESE DISEASES LET ALONE ALL OF THEM PLEASE GET IN TOUCH, OR GIVE ADVICE ON WHERE OR TO WHOM I COULD GET SOME PROPER SUPPORT FOR HER. THANKS Kanga (EMail: ) from Scotland on Mar 11 2003, 19:57 responded: Have you been to http://www.hughes-syndrome.org/ and www.msif.org or http://www.lupusuk.com/? These are the main sites for information and support. You should be able to find fellows sufferes there too. I noticed that Hughes Syndrome is often diagnosed as MS so it might be worth checking the diagnosis of all three conditions. Elaine Hollingsworth (EMail: eholli@lineone.net ) from Sussex, UK on Mar 28 2003, 21:01 responded: I was diaagnosed with MS in 1983, not on the grounds of MRI scan, or any new technology. I was originally in Hospital for weeks in 1962 with the same symptoms, but in spite of three LP's no diagnosis was made. The symptoms started after a flu like illness, and in the end I was told I had had a Cocksacki virus. I went into remission after six months, and apart from burning pains and pins and needles, several fals over the years, I was well, brought up two children. In 1983 the relapse was muich more sever, loss of balance, giddyness, uninary frequency, and a very unpleasant feeeling of a tight band round my waist, wrists and ankles. I was admitted to Hurstwood Park Hospital, had a lumbar puncture, and some visual response tests, and was told that a protien in my spinal fluid was raised, and we must assume that I had MS

18. Hughes Syndrome You are here Health topics Health conditions Heart and circulationsystem Circulation problems hughes syndrome. hughes syndrome. http://www.disability.vic.gov.au/dsonline/dsarticles.nsf/pages/Hughes_syndrome?O

19. BBC Health - Features - Hughes Syndrome A feature on hughes syndrome, causes, symptoms and treatment for thiscondition. Tests for hughes syndrome. There are two blood tests http://www.bbc.co.uk/health/features/hugues.shtml

CATEGORIES TV RADIO COMMUNICATE ... INDEX SEARCH MONDAY 31st March 2003 Text only BBC Homepage Health Homepage Ask the Doctor ... Help Like this page? Send it to a friend! Feature Hughes Syndrome (Sticky Blood Syndrome, Antiphospholipid Syndrome) By Dr. Trisha Macnair Features of Hugues Syndrome A treatable cause of recurrent miscarriage Headaches may be another symptom ... Stop the clotting Hughes Syndrome goes by several other names including Sticky Blood Syndrome or more technically the Antiphospholipid Syndrome (APS). But for most of those affected, none of these names will ring any bells. Despite the fact that it is an important cause of blood clotting problems, and that it accounts for as many as 1 in 5 cases of recurrent miscarriage, few people have heard of the condition. It was first recognised just 20 years ago, and linked to an increased risk of vein thrombosis, including blood clots in the legs such as DVT's - Hughes syndrome may the answer in some cases of 'economy class syndrome' which has lead to deaths of young people travelling in crowded conditions on long haul flights. There is also a great risk of more dangerous arterial thrombosis, including strokes and heart attacks. 1 in 5 cases of stroke in young people (under 45) are associated with Hughes Syndrome. (You can order information on stroke from The Stroke Association at

20. Monicas Lupus - Associated Autoimmune Conditions - Antiphospholipid cover. Living with hughes syndrome (Overcoming Common Problems) Graham Hughes (Foreword),Triona Holden. Antiphospholipid, Sticky blood, hughes syndrome, Lupus. http://www.monicaslupus.co.uk/antiph.htm

Antiphospholipid Syndrome T he syndrome was discovered by Dr Graham Hughes and named the Hughes Syndrome. Although this syndrome was first discovered in lupus patients it is now recognised that many, if not the majority, of patients with Hughes’ syndrome have no other features of lupus nor will they develop lupus in the future as Dr Hughes succinctly puts it in his paper "Some Lupus patients have Antiphospholipid Syndrome but not many!" In 1983 Dr Graham Hughes and his colleagues described a condition often known as “sticky blood”, in which there was a danger of thrombosis. Patients with the syndrome were at risk, both from vein thrombosis (including DVT’s ), and in some, more dangerous arterial thrombosis, including a risk of strokes and heart attacks. In women with the syndrome, the “sticky blood” is unable to get through the sensitive small blood vessels to the fetus, and there is a risk of miscarriage. Fortunately, the syndrome is usually detected by a simple blood test, and correct treatment is effective – usually very effective. The aim of the treatment is to thin the blood – the commonly used medicines being either low dose (‘junior’) aspirin, heparin or

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