41. Telegraph | Health | The Pregnancy Timebomb The pregnancy timebomb (Filed 01/05/2001). Harriet Marsh explains whywe should all know about hughes syndrome, which causes miscarriage. http://www.telegraph.co.uk/health/main.jhtml?xml=/health/2001/05/01/thhughes01.x

42. Aplwhat Wisconsin Physicians Clinics. hughes syndrome (antiphospholipidsyndrome), The hughes syndrome Foundation. A lupuslike disease http://www.med.ub.es/MIMMUN/WEBSAD/APLWHAT.HTM

ANTIPHOSPHOLIPID SYNDROME What is APS? The Antiphospholipid Syndrome, by Michelle Petri The Antiphospholipid Syndrome, by Sara Marder, Hygeia Foundation Inc Antiphospholipid syndrome, Women´s-health Information Hughes’ Syndrome, A Patient’s Guide to the Antiphospholipid Syndrome, by Graham RV Hughes, Lupus Patients Understanding and Support ... Antiphospholipid Antibody Syndrome Forum, Delphi Forums

43. OTHER SUPPORT AVAILABLE Tel 01902 498236. hughes syndrome. A Contact is available to speakto patients who have hughes syndrome (Antiphospholipid Syndrome). http://www.westmidlandslupus.co.uk/other_support_groups.htm

OTHER SUPPORT AVAILABLE OTHER SUPPORT AVAILABLE Lupus Support Group Meetings take place on the THIRD FRIDAY of each Month at 9.30am at Birmingham Maternity Hospital -partners are also welcome to attend. Pre-pregnancy counselling/discussions can be arranged by GP/consultant referral. Men with Lupus A Contact is available to speak to other male Lupus patients and to give what advice he can. Tel No via 01902 498236 Lupus Specialist Nurse The Lupus Specialist Nurse at the Queen Elizabeth CNS Involvement If Lupus patients feel in need of the help of a professional in the Mental Health Care sector of the NHS this can be arranged. Tel: 01902 498236 Hughes Syndrome A Contact is available to speak to patients who have Hughes Syndrome (Antiphospholipid Syndrome). Tel No via 01902 498236 Please note this is a service offered by the West Midlands Lupus Group not the Hughes Syndrome Foundation. Lupus Specialist Nurse The Lupus Specialist Nurse at the Queen Elizabeth/City Hospitals, Birmingham, is currently on study leave. It is hoped a 'new recruit' will soon be in post. Watch this space.......

44. Lupus In Children And Young People By Professor T R Southwood hughes syndrome, A Patient’s Guide by Dr Graham Hughes, Consultant Physician,St Thomas’ Hospital, London. Living with Lupus from Eleven. by Adam Cran. http://www.westmidlandslupus.co.uk/books_and_video.htm

LUPUS BOOKS AND VIDEO Available from West Midlands Lupus Group Lupus in Children and Young People by Professor T R Southwood, University of Birmingham and Dr Ilona S Szer, San Diego, USA. Hughes Syndrome, A Patient’s Guide by Dr Graham Hughes, Consultant Physician, St Thomas’ Hospital, London. Living with Lupus from Eleven by Adam Cran Truly from the heart (16 pages) (63 pages) pages) Lupus - A Guide for Patients by Dr Graham Hughes, Consultant Physician, St Thomas’ Hospital, London. The Challenges of Lupus A valuable resource for lupus patients, by Henrietta Aladjem, founder of the Lupus Foundation of America. Understanding Lupus Straightforward answers to some of the questions lupus patients ask, by Dr Graham Hughes, St Thomas’ Hospital. (24 pages) (238 pages) (100 pages) Friendly Fire (on autoimmune disease) by Professor David Isenberg and Dr John Morrow (London) Coping with Lupus Excellent practical guide

45. Atrium Books - Hughes Flying Boat The Langston Hughes Reader The Life of Langston Hughes 19021941 I Too, Sing America hughes syndrome Antiphospholipid Syndrome Luke That http://www.atrium.com/names/name-Hughes.html

Atrium Books The Collected Poems of Langston Hughes (Vintage Classics) Remember Me to Harlem : The Letters of Langston Hughes and Carl Van Vechten, 1925-1964 Your Name Is Hughes Hannibal Shanks : A Caregiver's Guide to Alzheimer's (Agendas for Aging) Empire: The Life, Legend, and Madness of Howard Hughes ... About

46. Anticardiolipin Syndrome Information Page Diseases Database 4 synonyms or equivalents were found. Anticardiolipin syndrome aka/or Antiphospholipidsyndrome aka/or hughes syndrome aka/or Lupus anticoagulant http://www.diseasesdatabase.com/sieve/item1.asp?glngUserChoice=775

47. Antiphospholipid Syndrome Information on Hughe's Syndrome (anthiphospholipid antibody syndrome) including risks of the disease Category Health Conditions and Diseases Antiphospholipid Syndrome...... The antiphospholipid antibody syndrome, also known as hughes syndrome, is a disordercharacterized by multiple different antibodies that are associated with http://www-admin.med.uiuc.edu/hematology/PtAPS.htm

University of Illinois - Urbana/Champaign Carle Cancer Center Hematology Resource Page Patient Resources Antiphospholipid Antibody Syndrome Home Factor V Leiden Antiphospholipid Syndrome General Clotting Information ... Protein S deficiency The antiphospholipid antibody syndrome, also known as Hughes Syndrome, is a disorder characterized by multiple different antibodies that are associated with both arterial and venous thrombosis (clots). There are three primary classes of antibodies associated with the antiphospholipid antibody syndrome: 1) anticardiolipin antibodies, 2) the lupus anticoagulant and 3) antibodies directed against specific molecules including a molecule known as beta-2-glycoprotein 1. Historically, antiphospholipid antibodies were first noted in patients who had positive tests for syphilis without signs of infection. Subsequently, a clotting disorder was associated with two patients with systemic lupus erythematosus in 1952. In 1957 a link between recurrent pregnancy loss and what is now called the lupus anticoagulant was established. Ultimately, the lupus anticoagulant was further described in 1963 and in 1972 the term lupus anticoagulant was given. In 1983, Dr. Graham Hughes described the association between antiphospholipid antibodies and arterial as well as venous thrombosis. There are two main classifications of the antiphospholipid antibody syndrome. If the patient has an underlying autoimmune disorder, such as systemic lupus erythematosus, the patient is said to have secondary antiphospholipid antibody syndrome. If the patient has no known underlying autoimmune disorder, it is termed primary antiphospholipid antibody syndrome.

48. INFO: Abstract-Cole-hughes Macrocephaly Syndrome And Associated We report two additional patients with Colehughes syndrome and associatedautistic characteristics with attention deficit hyperactivity disorder. http://hunter.apana.org.au/~cas/ozinfo/2000/00-10/msg00008.html

Date Prev Date Next Thread Prev Thread Next ... Thread Index INFO: abstract-Cole-hughes macrocephaly syndrome and associated autistic manifestations. To ozautism_info@hunter.apana.org.au Subject : INFO: abstract-Cole-hughes macrocephaly syndrome and associated autistic manifestations. From Trainland@AOL.COM Date : Fri, 13 Oct 2000 10:29:36 +1100 Reply-To ozautism_info@hunter.apana.org.au Sender owner-ozautism_info@hunter.apana.org.au Prev by Date: INFO: abstract-Potential diagnostic aids for abnormal fatty acid metabolism in a range of neurodevelopmental disorders. Next by Date: INFO: abstract-Autism as a neurodevelopmental disorder affecting communication and learning in early childhood: prenatal origins, post-natal course and effective educational support. Prev by thread: INFO: abstract-Potential diagnostic aids for abnormal fatty acid metabolism in a range of neurodevelopmental disorders. Next by thread: INFO: abstract-Autism as a neurodevelopmental disorder affecting communication and learning in early childhood: prenatal origins, post-natal course and effective educational support. Index(es): Date Thread

49. BioMed Central | Abstract | Treatment And Monitoring Of Patients With Antiphosph Report Treatment and Monitoring of Patients with Antiphospholipid Antibodies andThrombotic History (hughes syndrome) Maria J Cuadrado MD PhD Lupus Research http://www.biomedcentral.com/1523-3774/4/392/abstract

Welcome guest user home journals A-Z journals by subject advanced search ... Issue 5 Viewing options Abstract Full text PDF Other links: E-mail to a friend Download references Post a comment PubMed record ... Related articles in PubMed Search PubMed For Cuadrado MJ Report Treatment and Monitoring of Patients with Antiphospholipid Antibodies and Thrombotic History (Hughes Syndrome) Maria J Cuadrado MD PhD Lupus Research Unit, St Thomas' Hospital, London, SE1 7EH, United Kingdom Current Rheumatology Reports Abstract Patients with Hughes (antiphospholipid) syndrome who develop an initial thrombosis have an increased risk of subsequent thrombotic events. Current therapy to prevent recurrent thrombosis is controversial. While it seems clear that anticoagulant treatment is a better option than anti-aggregants alone, there is no consensus regarding the duration and intensity of oral anticoagulation. The risk of bleeding, the main complication of anticoagulant treatment, and the need for frequent monitoring of the International Normalized Ratio to measure the anticoagulant effect of warfarin concern patients and physicians. In addition, there is some debate about the validity of the International Normalized Ratio in patients with lupus anticoagulant activity. The development of new therapies that target more specific pathogenic mechanisms is highly warranted. Terms and Conditions Privacy statement Information for advertisers Contact us

50. Barbados Association Of Medical Practictioners Rheumatologist whose research of the Antiphospholipid Syndrome has led toit's being renamed hughes syndrome . Web Site www.hughessyndrome.org. http://www.bamp.org.bb/LupusConference2.cfm

Programme at a Glance THURSDAY Opening Ceremony SPEAKERS Dr Cheryl Alexis (Barbados) Heamotologist in private practice. Dr Rita Andrea (Portugal) A Lupus sufferer who single-handedly founded the Portuguese Lupus Foundation and centre in Lisbon. Dr Michael Belmont (USA) Rheumatologist and researcher. Dr Michele Callender (Barbados) Dermatologist in private practice. Professor Sally Davies (UK) Researcher in newer therapies in the treatment of Sickle Cell, particularly Hydroxy Urea and Bone Marrow Transplants. Dr Cindy Flower (Barbados) Rheumatologist in private practice, she has special interest in SLE. Dr Kwaku Frempong (USA) Sickle Cell specialist based in Washington. Dr Guy Halley (Guadeloupe) Dr Graham Hughes (UK) Rheumatologist whose research of the Antiphospholipid Syndrome has led to it's being renamed "Hughes Syndrome". Web Site: www.hughes-syndrome.org Dr Allan Inglis (USA) Attending orthopaedic surgeon at Beth Israel North Hospital, New York.

51. Springer Medicine: Gynecology MRI. Hughes, G. hughes syndrome. Keeling, JW, (Ed.) Fetal and NeonatalPathology. Khamashta, MA, (Ed.) hughes syndrome. Kingdom http://www.springer.de/medic/fglisten/gynecology/all2.html

Gynecology Highlights Books and CD-ROMs Related Journals Books and CD-ROMs Adashi, E. Y., (Ed.): Ovulation Avni, F. E., (Ed.): Perinatal Imaging Barnea, E. R.; Jauniaux, E.; Schwartz, P. E., (Eds.): Cancer and Pregnancy Bartram, C. I.; DeLancey, J. O.L., (Eds.): Imaging Pelvic Floor Disorders Behl, C.: Estrogen - Mystery Drug for the Brain? Bellino, F. L., (Ed.): Biology of Menopause Benirschke, K.; Kaufmann, P.: Pathology of the Human Placenta Blanc, B.; Marty, R.; Montgolfier, R. de: Office and Operative Hysteroscopy Bolander-Gouaille, C.: Focus on Homocysteine and Vitamins Couture, A.; Veyrac, C.: Transfontanellar Doppler Imaging in Neonates Donoghue, V., (Ed.): Radiological Imaging of the Neonatal Chest Drutz, H.; Herschorn, S.; Diamant, N. E., (Eds.): Female Pelvic Medicine and Reconstructive Pelvic Surgery Fordham, J. N., (Ed.): Manual of Bone Densitometry Measurements Fotter, R., (Ed.): Pediatric Uroradiology Gardner, D. K.; Lane, M., (Eds.): ART and the Human Blastocyst Grampp, S., (Ed.): Radiology of Osteoporosis Harnden, P.; Joffe, J. K.; Jones, W. G., (Eds.): Germ Cell Tumours V Heuck, A.; Reiser, M., (Eds.):

52. Springer Medicine: Oncology / Hematology Hughes, G. hughes syndrome. Hunt, KK; Robb, GL; Strom, EA; Ueno,NT, (Eds.) Breast Cancer. Khamashta, MA, (Ed.) hughes syndrome. http://www.springer.de/medic/fglisten/oncology/all2.html

Oncology / Hematology Highlights Books and CD-ROMs Book Series Related Journals Books and CD-ROMs Allen, D. C.: Histopathology Reporting Audisio, R. A.; Geraghty, J. G.; Longo, W. E., (Eds.): Modern Management of Cancer of the Rectum Barnea, E. R.; Jauniaux, E.; Schwartz, P. E., (Eds.): Cancer and Pregnancy Bartsch, C.; Bartsch, H.; Blask, D.E.; Cardinali, D.P.; Hrushesky, W.J.M.; Mecke, D., (Eds.): The Pineal Gland and Cancer Transplantation in Hematology and Oncology II Thyroid Cancer Buthiau, D.; Khayat, D.: Virtual Endoscopy Diagnostic and Interventional Radiology in Liver Transplantation Acute Leukemias VIII Dachman, A., (Ed.): Atlas of Virtual Colonoscopy De Schepper, A. M., (Ed.): Imaging of Soft Tissue Tumors Deutsches Krebsforschungszentrum, (Ed.): Current Cancer Research 2002 Drevelegas, A., (Ed.): Imaging of Brain Tumors with Histological Correlations Ebell, M. H.: Evidence-Based Diagnosis Eibl, M.; Mayr, W.R.; Thorbecke, G.J., (Eds.): Elgazzar, A. H., (Ed.): The Pathophysiologic Basis of Nuclear Medicine Evans, D. B.; Pisters, P. W.T.; Abruzzese, J. L., (Eds.): Pancreatic Cancer Fortuna, A.:

53. Lupus Site(SLE) - Factsheets activity. The second is the clotting disorder associated with somelupus patients, the antiphospholipid or hughes syndrome. It is http://www.uklupus.co.uk/fact5.html

Home Lupus information Lupus FAQ Lupus factsheets ... (UK customers) Please help to support this site by visiting our Store Message Board Lupus store Site updates ... Search Lupus and the Brain Doctors throughout the world are now recognising the importance of subtle forms of brain involvement in lupus as well as the more obvious brain problems. Never underestimate brain involvement. It may vary from mild depression, to memory loss, to much more severe problems such as seizures. In general there are two main causes of brain disease in lupus. The first is lupus disease itself which can cause alterations in the brain activity. The second is the clotting disorder associated with some lupus patients, the antiphospholipid or Hughes syndrome. It is very, very important for the doctor to try to distinguish between these two major causes of neurologic involvement as the treatments are clearly very different. Depression Depression is an important manifestation of lupus - in some it is the presenting sign of the disease. Many patients and, certainly, many doctors wrongly attribute depression in lupus merely to having a chronic illness and all that goes with it. This is not correct. The disease itself causes depression. Depression is an integral part of lupus in some patients - indeed management of the lupus often itself lifts the depression. The management of depression in lupus rests on a combination of treating the underlying lupus itself as well as possibly adding in antidepressant therapy. One of the medical advances in the last decade has been the introduction of newer milder antidepressants with less of the severe side-effects which so hampered older treatments.

54. Watson, Little Ltd - Author's Agents LIVING WITH hughes syndrome. Triona Holden, Publisher Sheldon, 01/09/2002,hughes syndrome, also known as Sticky Blood, as identified http://www.watsonlittle.net/book.asp?bookId=409

55. UKpage ANTIPHOSPHOLIPID SYNDROME (hughes syndrome) The hughes syndrome Foundation The RayneInstitute St Thomas' Hospital London SE1` 7EH http//www.hughessyndrome http://www.polychondritis.com/UKpage.html

Diagnosis I Differentials I Medication I Support I Mission Statement I Research I About Us Donations I Volunteer I Membership I Contact Us I Site Map I UK Self Help Groups, Our web-site provides the telephone numbers of over 780 UK self Help Groups and over 650 hyperlinks For more information about our United Kingdom support group please see: Our Legacy The Clifford Ashoworth Story Relapsing Polychondritis Support Group UK (founded in 1987 by Clifford Ashworth 1922-1989) Contact - Anne Colman colmananne@hotmail.com UK-Anne@polychondritis.com Suport Group http://groups.yahoo.com/group/realspingpolychondritisUK relapsingpolychondritisUK@yahoogroups.com Useful Contacts Steroid Aid Group P O Box 220 London Send SAE Arthritis Research Council Coperman House St Mary's Court Chesterfield Derbyshire www.arc.org Arthritis Care 18 Stephenson Way London Tel. 020 7916 1500 www.arthritiscare.org Free Prescriptions Advice Line Tel 0800 9177711 Provides advice to NHS patients and professionals about entitlement to prescription charge exemption and the evidence needed to authenticate exemption claims Relapsing Polychondritis Support Group UK (founded in 1987 by Clifford Ashworth 1922-1989) Contact - Anne Colman colmananne@hotmail.com

56. Rare Diseases List - Office Of Rare Diseases Disease Young hughes syndrome. Synonyms Sexlinked mental retardation,short stature, obesity and hypogonadism. Disease Information. http://ord.aspensys.com/diseaseinfo.asp?ID=345

57. UK Self Help Groups: H 7251 6333; also Women's Health Concern, Tel 01628 843 612. hughes syndrome.hughes syndrome Foundation. Hunter Syndrome. contact Society http://www.ukselfhelp.info/h.htm

Main Index IMPORTANT - Please use www.ukindex.info and/or the links at the foot of this page to help maintain this free resource. Click directly on the name of the condition below to reveal the associated group(s). Haemangioma contact Birthmark Support Group Haematuria Loin Pain and Haematuria Syndrome Haemochromatosis Haemochromatosis Society Haemophilia Haemophilia Society Hairless Pseudofemale Syndrome contact Androgen Insensitivity Support Group , Helpline 01295 670 140 Hair Loss Action Against Alopecia , Tel 01323 645 164 Hairline International/Alopecia Patients Association , Tel 01564 775 281 Head Injuries Child Head Injury Trust , Tel 01865 552 467 Headway Brain Injury Association , Tel 0115 924 0800 Head Lice Community Hygiene Concern, Tel 020 7686 4321 Heart Association for Children with Heart Disorders , Tel 01706 213 632 British Cardiac Patients Association British Heart Foundation , Tel 020 7935 0185 Cardiomyopathy Association , Tel 01923 249 977 Children's Heart Federation , Helpline 0808 808 5000 Coronary Prevention Group , Tel 020 7927 2125 CRY (Cardiac Risk in the Young) Down's Heart Group , Tel 01525 220 379 Family Heart Association , Tel 01628 628 638 Heart Line Association , Tel 01276 707 636 High Blood Pressure Foundation , Tel 0131 332 9211 My Heart Bypass NEW Henloch-Schonlein Purpura contact Stuart Strange Vasculitis Trust , Tel 01438 360 565

58. Lupus 3.00 (16 pages). hughes syndrome, A Patient’s Guide by Dr Graham Hughes,Consultant Physician, St Thomas’ Hospital, London. £5.00 (63 pages). http://www.lupusuk.com/booksorderform.htm

If you do not have Acrobat Reader installed on your machine click here to download your free copy. Lupus in Children and Young People by Professor T R Southwood, University of Birmingham and Dr Ilona S Szer, San Diego, USA. (16 pages) Hughes Syndrome, A Patient’s Guide by Dr Graham Hughes, Consultant Physician, St Thomas’ Hospital, London. (63 pages) Lupus in Young Women Prepared and published by LUPUS UK, giving helpful living advice. (20 pages) Lupus - A Guide for Patients by Dr Graham Hughes, Consultant Physician, St Thomas’ Hospital, London. (24 pages) The Challenges of Lupus A valuable resource for lupus patients, by Henrietta Aladjem, founder of the Lupus Foundation of America. (238 pages) Understanding Lupus Straightforward answers to some of the questions lupus patients ask, by Dr Graham Hughes, St Thomas’ Hospital. (100 pages) Friendly Fire (on autoimmune disease) by Professor David Isenberg and Dr John Morrow (London) (160 pages hardback) Coping with Lupus Excellent practical guide

59. WFH - Sources Of Information & Help - Schools & Health hughes syndrome Foundation www.hughessyndrome.org. The aim of thesite is to provide information about the symptoms and treatment http://www.wiredforhealth.gov.uk/links/linksch.html

ASDAN www.asdan.co.uk Produced (Award Scheme Development and Accreditation Network) by ASDAN Educational the site provides information on ASDAN programmes, qualifications and resources, for both registered and unregistered centres. No plug-ins required. Centre for Innovation in Primary Care www.innovate.org.uk Produced by the Centre for Innovation in Primary Care the online resource centre exists to help local practitioners share their experiences and to learn from each other as their role's evolve. Of particular use to school nurses include the database of innovation with information on new practice from across the country, and a lively and friendly e-discussion group. Council for Environmental Education www.cee.org.uk Produced by the Council for Environmental Education the site contains the latest information and guidance to teachers on education for sustainable development. www.cee.org.uk (awhite@cee.org.uk) + entry in A-Z as 'Education for Sustainable Development (ESD)' Education Extra www.educationextra.org.uk

60. NEJM -- The Management Of Thrombosis In The Antiphospholipid-Antibody Syndrome Migraine in hughes syndromeheparin as a therapeutic trial?. Atheromalinks with antiphospholipid antibodies, hughes syndrome and lupus. http://content.nejm.org/cgi/content/abstract/332/15/993

HOME SEARCH CURRENT ISSUE PAST ISSUES ... HELP Previous Volume 332:993-997 April 13, 1995 Number 15 Next The Management of Thrombosis in the Antiphospholipid-Antibody Syndrome Munther A. Khamashta, M.D., Maria Jose Cuadrado, M.D., Fedza Mujic, M.D., Nick A. Taub, M.Sc., Beverley J. Hunt, M.D., and Graham R.V. Hughes, M.D. Table of Contents Full Text of this article PDF of this article Related Letters to the Editor ... Related Articles in Medline Articles in Medline by Author: Khamashta, M. A. Hughes, G. R.V. Medline Citation ABSTRACT Background The antiphospholipid-antibody syndrome is a thrombophilic disorder in which venous or arterial thrombosis, or both, may occur in patients with antiphospholipid antibodies. The optimal treatment of these patients is unclear. We assessed the efficacy of warfarin, low-dose aspirin, or both in the secondary prevention of thrombosis in patients with the syndrome. Methods One hundred forty-seven patients (124 [84 percent] of whom were female) with the antiphospholipid-antibody syndrome and a history of thrombosis were studied retrospectively. The

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