1. CENTER FOR KERATOCONUS Information about keratoconus, including FAQs, treatment, prevention, and diagnosis, message boards, Category Health Conditions and Diseases Eye Disorders keratoconus......Information about keratoconus, including FAQs, treatment, prevention, and diagnosis,with message boards, support groups, personal stories, doctors, research http://www.kcenter.org/

A Team Effort to Cure Keratoconus Home Contact Us DISEASE INFO Keratoconus FAQs Treatment Options PATIENT SERVICES Newly Diagnosed Message Board Personal Stories Stay Informed DOCTORS ONLY Join Doctors List Message Board Related Resources SHOW SUPPORT Make a Gift Planned Giving Community Events Cars for Sight ... Volunteer ABOUT US Local Chapters O ur Team Awards ... Patient Resources OUR SUPPORTERS Corporate Support Program Public Support Program In The News MAGIC FOR SIGHT - 1ST ANNUAL GALA Please join us for our 1st annual "Magic for Sight" gala at the world famous Magic Castle in Hollywood, CA. You will have the opportunity to meet and greet with people associated with keratoconus. Join us Saturday August 16, 2003 to be a part of this magical event. more...

2. The National Keratoconus Foundation Nonprofit organization that supports research and education about keratoconus.Category Health Conditions and Diseases Eye Disorders keratoconus...... http://www.nkcf.org/

3. Keratoconus Om ¶gonsjukdomen keratoconus. Personliga erfarenheter, l¤nkar, diskussionsforum. http://hem.passagen.se/mglader/keratoconus.htm

~ Keratoconus ~ Jag har en ögonsjukdom som heter Keratoconus, inget namn som man hittar i en vanlig läkarbok som har några år bakom sig. Jag ska här dela med mig av mina personliga erfarenheter . Jag har inga medicinska kunskaper men kan förmedla lite länkar. Svenska sidor verkar det inte finnas så många av. Jag började skriva på denna sidan för att kanske komma i kontakt med andra drabbade och utbyta erfarenheter. Den har nu varit på nätet ett tag och jag har fått många frågor som jag inte kan svara på. Jag har därför startat ett Diskussions forum som kanske kan vara till hjälp. Vill du dela med dig av dina erfarenheter lägger jag gärna in din berättelse. Du får givetvis vara anonym om du vill det. Glöm inte bort att läsa och skriva i mitt nystartade Keratoconus diskussions forum Dela med dig av dina erfarenheter, fråga andra, lär känna andra drabbade. Min sjukdomshistoria Att leva med keratoconus,

4. Keratoconus Homepage keratoconus HOME. Basic Anatomy of the Eye http://www.opt.indiana.edu/lowther/keratoconus.htm

5. Digital Journal Of Ophthalmology Offers information about keratoconus. Includes resource list. keratoconus (KC) is a noninflammatory condition of the cornea in which there is progressive central thinning of the http://www.djo.harvard.edu/meei/PI/Keratoconus.html

Keratoconus Roberto Pineda II, MD Massachusetts Eye and Ear Infirmary, Harvard Medical School, Boston, MA Keratoconus (KC) is a non-inflammatory condition of the cornea in which there is progressive central thinning of the cornea changing it from dome-shaped to cone-shaped. Keratoconus comes from the Greek word meaning conical cornea. The cornea is the clear windshield of the eye and is responsible for refracting most of the light coming into the eye. Therefore, abnormalities of the cornea can greatly affect the way we see the world. Keratoconus is not a blinding disorder, but does result in increasing near-sightedness (things far away are out of focus) and irregular astigmatism (things look tilted) that can significantly distort your vision. It is almost always bilateral (affecting both eyes). It is a slowly progressive disorder, taking years to develop, and may halt at any stage from mild to severe. Keratoconus has been well described since the mid-nineteenth century, however, the underlying reason for its development remains obscure. Keratoconus is currently the topic of much research. Some cases of KC have a hereditary component and studies indicate that about 8% of patients have affected relatives. However, most cases appear to be sporadic. It has been suggested that there is less than a 1 in 10 chance of having a child with some degree of keratoconus if one of the parents have KC without a family history. The actual incidence of KC is uncertain, large studies estimate 50 to 230 per 100,000. It occurs in all ethnic groups and has a slight female preponderance.

6. Keratoconus Homepage keratoconus is a noninflammatory thinning and bulging of the cornea.This bulging results in distortion of the cornea, and an associated http://www.opt.indiana.edu/lowther/keratoconus_keratoconus.htm

Keratoconus is a non-inflammatory thinning and bulging of the cornea. This bulging results in distortion of the cornea, and an associated reduction in visual acuity. Corneal scarring occurs in more advanced cases and further reduces acuity. This page contains facts and explanations about keratoconus, and hopes to answer questions more deeply than other resources the patient may have available.

7. Collaborative Longitudinal Evaluation Of Keratoconus (CLEK) Study The CLEK Study's purpose is to prospectively characterize vision, corneal changes, and patient quality of life findings in keratoconus and to determine the progression of changes occurring with keratoconus over time. http://www.optometry.ohio-state.edu/CLEK/

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8. Keratoconus - Causes, Symptoms & Treatments For Keratoconus - AllAboutVision.com A guide to the causes, symptoms and treatment of keratoconus. keratoconus is a progressive disease, often appearing in the teens or early twenties, in which the cornea thins and http://www.allaboutvision.com/conditions/keratoconus.htm

Eye Health Topics Introduction Allergies Amblyopia or Lazy Eye AMD AMD News Astigmatism Cataracts Cataract News CMV Retinitis Color Blindness Conjunctivitis Crossed Eyes Diabetic Retinopathy Drooping Eyelids Dry Eyes Farsightedness Floaters and Spots Glaucoma Glaucoma News Keratoconus Light Sensitivity Macular Degeneration Nearsightedness Ocular Hypertension Pink Eye Presbyopia Ptosis Retinal Detachment Retinitis Pigmentosa Safety Strabismus Styes or AllAboutVision.com home Keratoconus By Judith Lee and Gretchyn Bailey ; reviewed by Dr. Vance Thompson Keratoconus means "cone-shaped cornea"; a normal cornea is rounded, but a keratoconic one bulges outward. Keratoconus is a progressive disease, often appearing in the teens or early twenties, in which the cornea thins and changes shape. The cornea is normally a round or spherical shape, but with keratoconus the cornea bulges, distorts and assumes more of a cone shape. This affects the way light enters the eye and hits the light-sensitive retina , causing distorted vision. Keratoconus can occur in one or both eyes. Signs of Keratoconus Keratoconus can be difficult to detect, because it comes on slowly.

9. Keratoconus Offers links for further keratoconus research. keratoconus. National keratoconus Foundation If you have keratoconus or have a relative or friend with keratoconus, this http://www.lowvision.org/keratoconus.htm

Keratoconus National Keratoconus Foundation If you have keratoconus or have a relative or friend with keratoconus, this web site will provide information to help you better understand this eye condition. It will help family, friends and work associates appreciate the nature of KC and its impact on daily life. NORD - Keratoconus National Organization of Rare Diseases: It is possible that Keratoconus may not be the name that you expected. Your physician may have given you another name for this disease. Please check the synonyms listed below to find other names for this specific disorder.Kertoconus Posticus Circumscriptus, Autosomal Dominant Keratoconus, Autosomal Recessive Keratoconus, Congenital Keratoconus and Conical Cornea. Keratoconus Genetic Research Program Our studies to date support the position that there is a genetic basis for keatoconus. As such, it is our goal to study patients with keratoconus and their family members in order to identify the gene(s) that cause the inherited form of the disease. We hope to be able to use this information to devise a cure high-risk individuals. Collaborative Longitudinal Evaluation of Keratoconus On March 25, 1996 the CLEK Study announced that they had enrolled their 1,000th patient, thereby reaching their recruitment goal ahead of schedule. Recruitment ended June 15, 1996 with 1,210 patients recruited. Congratulations and thanks to all CLEK Study personnel, patients, and referring doctors.

10. Keratoconus Info & Links Offers personal information about keratoconus and links to other resources. http://home.revealed.net/ddwyer/kc.html

Last updated May 20th, 2002 This is my own personal web site. It neither requires nor receives financial support from any outside resource. I am not a health care provider, opinions stated are my own. I subscribe to the HONcode principles of the Health On the Net Foundation Keratoconus Links In the fall of 1992, I was diagnosed with keratoconus , essentially a corneal thinning that produces a "cone shaped cornea". The treatment can include glasses, rigid gas permeable or other contact lenses, with a cornea transplant as a "last option". Several keratoconus patients have described their uncorrected vision as that resembling Marcel Duchamp's "Nude Descending Staircase". July 2, 1997, I received a corneal transplant for my right eye. You can read my continuing diary. Bill Funk had a transplant in February 1999. I have posted a diary of his kc experience, including his transplant. You can see a PowerPoint slideshow of a corneal transplant here (not for the squeamish) Although not exactly rare, KC is not a real common condition. I have done some research, both academic and anectdotal. Listed below are some helpful web sites. The links are primarily to other personal web sites of people who have kc. If you're interested in links for companies and research institutions, I suggest using your favorite search engine. PERSONAL EXPERIENCES Bill Pitcher, a staff writer for a New Jersey newspaper, has had a transplant. Read about his

11. OcularTimes.Com[Keratoconus] Your informative guide to eye disorders and related eyecare topics. keratoconus. keratoconus (ectatic corneal dystrophy) is an eye condition in which the shape of the cornea bulges and http://www.geocities.com/ocular_times/conus.html

12. Keratoconus Offers pictures, symptoms, and treatment options for keratoconus as well as other eye conditions. http://www.avclinic.com/keratoconus.htm

Angeles Vision Clinic This web site has detailed information on many other eye conditions. Please feel free to visit our Home Page or check out other eye conditions on our Eye Conditions page WHAT IS KERATOCONUS AND WHAT ARE THE TREATMENT OPTIONS? Glasses/ Contact lenses Transplant surgery Keratoconus is an irregular protrusion of the cornea, the clear surface over the colored part of the eye. It is similar, structurally, to the crystal of a watch. If this crystal or windowpane is not smooth, the light will not bend evenly and an irregular image will be formed. Like looking through a bumpy piece of glass. Keratoconus is a slowly progressive condition often presenting in the teen or early twenties with decreased vision or visual distortion. This condition is typically not associated with redness, inflammation or other "acute" symptoms and therefore may go undetected for long periods of time. Over 90% of patients have involvement of both eyes, though it is not unusual for there to be asymmetric changes, with one eye being more involved than the other. In most cases the cornea is the only part of the eye that is abnormal. Family history of keratoconus is seen occasionally. During the early stages of this disease, vision may still be correctable to 20/20 with glasses. The only clue to a keratoconus diagnosis may be from corneal measurements or a corneal topography map (see maps to the right). A topographical map of the cornea will show the high and low spots on the cornea, much like a topographical map of the earth will show the mountains and oceans.

13. Index Metro-Optics Creators of high quality custom contacts since 1973. Offering gas permeable and soft contacts in spherical, bifocal, keratoconus, and astigmatic designs. http://www.metro-optics.com/

Information for contact lens fitters Information for contact lens wearers s s MetroOptics 2003

14. Welcome To The Office Of Dr. Brent G. Ostoich, O.D., Contact Lens Specialist General optometry practice and specialist in bifocal, toric, keratoconus and post refractive contact lenses. Located at the SullivanOstoich Eye Center in Hoffman Estates, and at the Resurrection Hospital in Chicago. http://www.ostoicheye.com

Dr. Brent G. Ostoich, O.D. Dr. Brent Ostoich Hoffman Estates Chicago Hoffman Estates Office Hours: Monday Tuesday Thursday Friday Saturday 8am - noon FAX: Dr. Ostoich provides General Optometry Practice and Specializes in Bifocal, Toric, Keratoconus and Post Refractive Contact Lenses. We cater to families, with the specific purpose of general health recommendations on eyecare for children, teens and adults. Find out more about our services NOTE: You may email us at anytime, but we ask for your patience in our response to you, especially after office hours. See our contact page for more information. Dr. Ostoich is a contact lens specialist. Learn more about Orthokeratology , Ortho-K and bifocal lenses, and Post-Refractive contact lenses. How Did You Hear About Us?

15. Curtis And Jyl Griffin Family [ Www.curtnjyl.com ] Curtis and Jyl from Shawnee, Oklahoma. Family information, pictures, keratoconus experience, and cornea transplant journal. http://www.curtnjyl.com

Home • Griffin Family E-Mail Curt's Resume Good Books ... Site Info A surprise snow provided opportunity for the kids (with a little help from Dad) to build their first snowman - complete with my old University of Idaho cap. The weather didn't allow him to stay long, due to it being in the 60's two days later - but that's just Oklahoma for you. As always, drop Jyl or Curt an e-mail when you get a chance. Past pages: Dec.01 Mar.02 July.02 Sept.02 ... Jan.02

16. Tallmadge Vision Clinic Eye center offers Lasik consultation, glaucoma evaluation, computerized contact lens fitting, and keratoconus. http://www.eyefinity.com/TallmadgeVisionClinic/

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17. UK Keratoconus Self Help And Support Group UK keratoconus Self Help and Support Group. keratoconus is an eye condition, thisis the website for the help group. UK keratoconus Self Help and Support Group. http://www.keratoconus-group.org.uk/

UK Keratoconus Self Help and Support Group

18. North Shore Contact Lens & Vision Consultants: Contact Lenses, Keratoconus & LAS Practice of Drs. Art Epstein and Joseph Freedman specializing in contact lenses, keratoconus, and Lasik complications. http://www.northshorecontactlens.com/

Nationally known for excellence and special expertise in the contact lens management of challenging medical eye disorders such as keratoconus and LASIK complications. We also provide a full range of eyecare services, including treatment of eye disease and refractive surgery management. Our patients come from throughout the New York Metropolitan area and from across the globe; many of them referred by leading ophthalmologists and optometrists for specialized care. We believe that our office is special. Many of our patients have complex problems and have sought us out for our unique expertise. We use the latest diagnostic equipment and rely upon a skilled and dedicated staff to provide state of the art care for our patients. Our focus is on achieving a successful result, not just providing procedures or selling products. Welcome to our website. We hope that it provides insight into what makes our practice a unique resource for our patients. Arthur B. Epstein, OD, FAAO Joseph M. Freedman, OD

19. What Is Keratoconus Information about keratoconus, including FAQs, treatment, prevention, and diagnosis, with message boards, support groups, personal stories, doctors, research, clinical trials and more. Updated regularly Center for keratoconus did not write the following article which is presented solely for your information. http://www.kcenter.org/news/what_is_keratoconus.html

What is Keratoconus Keratoconus Info What is Keratoconus FAQ's Treatment Options Clinical Trial Facts ... Statistics CFK Community Message Board Chat Room Join Our Email Letter Related Resources Personal Stories Past Articles Past Polls Contact us Center for Keratoconus did not write the following article which is presented solely for your information. It is not an endorsement and may contain opinions or scientific data that we have not verified. Please consult with your doctor before making any treatment decisions. KERATOCONUS Keratoconus has no known cure, and many people do not even know they have it because it begins as nearsightedness and astigmatism. It is a progressive disorder that may progress rapidly or sometimes take years to develop. It can severely affect the way we see the world, including simple tasks such as driving, watching TV, or just reading a book. Some keratoconus patients have described their vision as being “blind with light.” Keratoconus is a non-inflammatory, self-limiting ectasia of the axial portion of the cornea. It is characterized by progressive thinning and steepening of the central cornea. As the cornea steepens and thins, the patient experiences a decrease in vision which can be mild or severe depending on the amount of corneal tissue affected. Onset of keratoconus occurs during the teenage yearsmean age of onset is age 16 yearsbut onset has been reported to occur at ages as young as 6 years. Keratoconus rarely develops after age 30 years. Keratoconus shows no gender predilection and is bilateral in over 90% of cases. In general, the disease develops asymmetrically

20. Www.giftsforsight.org Accepts donations of items including cars, furniture, computers, appliances, electronics, with free nationwide pickup. Donations are tax deductible and benefit the Center for keratoconus. http://www.giftsforsight.org/

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