1. Welcome To The International Myeloma Foundation Provides information about the condition. A nonprofit organization, it features such topics such Category Health Conditions and Diseases multiple myeloma......Information and services for everyone battling multiple myeloma, a cancerof the bone marrow for which there is currently no known cure. http://www.myeloma.org/

Welcome to the International Myeloma Foundation

2. The Multiple Myeloma Research Foundation (MMRF) Receive important information on multiple myeloma, research updates, ways you can help, and more. http://www.multiplemyeloma.org/

Receive important information on multiple myeloma, research updates, ways you can help, and more. Learn more about registering Meet our founders, Kathy Giusti and her sister Karen Andrews. Watch the video Features Register Now for Blood Cancer Advocacy Day 2003 MMRF Events Clinical Trials Monitor Ann Landers Research Fund MMRF Case Studies in Multiple Myeloma: Treatment Strategies for Myeloma Bone Disease James R. Berenson, MD Cedars-Sinai Medical Center, Los Angeles, CA Complete an interactive CME case study MMRF Home The Foundation About Myeloma ... Events

3. Multiple Myeloma Research Web Server multiple myeloma Research Web Server This site is maintained by To increase the chance that you will meet others in the chat room, you are encouraged to enter between the hours of 911 PM EST. http://myeloma.med.cornell.edu/

4. Multiple Myeloma General/Overviews. multiple myeloma (Patient Education Institute) - requires Flash plug-in http://www.clevelandclinic.org/myeloma

General information: Multiple Myeloma is part of a spectrum of diseases labeled Plasma Cell Dyscrasia. Plasma cells are the cells responsible for forming antibodies against bacteria and foreign proteins. For reasons that are unclear, these cells lose their ability to respond to controlling signals from a hierarchy of immune cells. Plasma cells then divide and form abnormal proteins, which results in damage to the bone, the bone marrow, and/or other organs of the body. Why Research in Multiple Myeloma: The results of different therapeutic modalities for multiple Myeloma have not changed the course of the disease significantly since the late 1960's. Therefore, we believe that active research and new treatment modalities are a must to achieve our goals in controlling the disease. Over the past 2 years, the understanding of the biology of the disease, has resulted in a large flux of new promising agents that are being studied at the Cleveland Clinic independently and/or in collaboration with other myeloma institutions in the US and Europe. This will allow for better treatments, and hopefully translates in to better quality and survival for the myeloma patients. Research and Development: The Cleveland Clinic Myeloma Research Program focuses on new drug development, as well as studying the effect of the immune system on tumor biology to modify its behavior. Over the past few years the research in the biology area has remarkably improved our understanding to develop less toxic and more rational maintenance therapy. The development of Immunomodulatory agents such as

5. Ariail Family's Myeloma Information Page Information about multiple myeloma. multiple myeloma. THE ARIAIL FAMILY'S INFORMATION PAGE http://www2.gasou.edu/facstaff/jariail/myeloma

MULTIPLE MYELOMA THE ARIAIL FAMILY'S INFORMATION PAGE OK, now that that's over, this is a set of links to information on multiple myeloma that my family has found useful. It is not intended to be comprehensive, but focuses on specific sets of information that we have not found assembled in this way in our previous searches. If you are new to the world of multiple myeloma, go first (and then return often) to the International Myeloma Foundation site. Corrections for any of the linked addresses in my site should be sent to jariail@gasou.edu . My family and I will be grateful for any such corrections or suggestions as we continue our MM journey. I regret to report that my wife, Laura, died on July 19, 2000. I have not been able to update this page since that time, and am considering various options for my MM activity in the future. Currently, it's just too painful to continue sifting through new MM publications, although as a professional librarian I regret to admit that. One project that I am considering is the posting of Laura's medical records on this site, including our personal diaries since her diagnosis in 1997, so that others may benefit from her personal struggle with this disease. When that posting is complete, I will announce its availability on the ACOR MM list. Julius 08/14/00 = new listings as of 06/04/2000. Last updated with new MM information on June 4, 2000.

6. Cancer.gov - URL Changed Information about detection, symptoms, diagnosis, and treatment of multiple myeloma. NIH Publication No. 951575 http://cancernet.nci.nih.gov/wyntk_pubs/myeloma.htm

Site redesigned, URL changed The page you requested has been integrated into NCI's redesigned Cancer.gov Web site. Please update your links/bookmarks. Click continue , or wait to be automatically directed to the new page.

7. Multiple Myeloma, Its Journey Into My Life, Tom Holm-Hansen Describes the transition of Tom HolmHansen from an active outdoors person to a cancer survivor. It includes a brief discussion of activities that have sustained him since his diagnosis. Several links to myeloma sites provided. http://hometown.aol.com/hansenholm/THH.html

htmlAdWH('7008160', '120', '30'); htmlAdWH('7004798', '234', '60'); Main Create Edit Help MULTIPLE MYELOMA AND ITS JOURNEY INTO MY LIFE, TOM HOLM-HANSEN The Diagnosis My doctor called me at work on September 19, 2001, telling me that my monoclonal blood proteins were high and iron was low, indicating multiple myeloma, a form of blood cancer. It starts in the bone marrow and causes bone lesions. I needed to get to a hematologist quickly and get going on more tests and begin chemotherapy. On October 15, 2001, I began a chemotherapy regimen of the drugs VMCP/VBAP. This regimen consists of 6-week cycles divided into two 3-week parts. Stem cell therapy may follow over the next several months. The Setting I am now living in the place that I love, the beautiful, soggy Pacific Northwest, just north of Seattle. Perfect for ferry riding, watching the water, and sea kayaking. Donna, Kristen, Ian, and I live in a comfortable house about two miles from the waterfront. We left our friends and enchanting pond-front house in Aiken, South Carolina in January of 2001. Donna and I have

8. Multiple Myeloma Resources Directory - CancerIndex Cancer Types Hematological multiple myeloma. multiple myeloma (also known as myelomatosis or myeloma) is a cancer http://www.cancerindex.org/clinks2v.htm

Home Site Map Cancer Types Treatments ... About Multiple Myeloma Resources Directory Home Cancer Types Hematological Multiple Myeloma Multiple myeloma (also known as myelomatosis or myeloma) is a cancer in which there is abnormal growth in the number of plasma cells in the bone-marrow and blood. This can suppress the normal production of blood cells, including those associated with the body's immune system. The plasma cells may collect in the bone to make small tumours known as plasmacytomas. Multiple myeloma is most common in people aged over 60, and is rare before the age of 40. Menu: Multiple Myeloma Resources Directory Myeloma Organisations Information for Patients and the Public Information for Health Professionals / Researchers Molecular Biology of Multiple Myeloma Haematological Malignancies Myeloma Organisations (10 links) Cancer and Leukemia Group B (CALGB) (USA) multidisciplinary cooperative cancer treatment group, NCI / NIH International Meyeloma Foundation - UK (UK) The IMF established an office in Edinburgh in April 1997. IMF-UK is a registered charity. This site provides details about the organisation, support groups, meetings, newsletters and other related information. International Myeloma Foundation This site contains details of the IMF, telephone hotline, and information packs. Online resources include a newsletter, email discussion group, and patient handbook. Also there is information for researchers: grant applications etc.

9. Treating Refractory Multiple Myeloma With VAD Plus Valspodar A 1999 article about treatment using the chemotherapy regimen of vincristine, doxorubicin and dexamethasone plus Valspodar. http://www.CancerNews.com/myeloma/therapies1999.htm

Click over the LOGO below to visit CancerNews.com This site is a service of CancerNews.com Treating Refractory Multiple Myeloma With VAD Plus Valspodar Published online November 1999 By Mohamad Hussein, M.D. Dr. Mohamad Hussein is a Board Certified Oncologist (specialist in the treatment of adult cancers), Staff at the Cleveland Clinic Cancer Center, and Director, Cleveland Clinic Multiple Myeloma Programs . He directs clinical trials and designs treatment programs for Chronic Leukemia's and Multiple Myeloma at the South West Oncology Group "SWOG", a national cooperative group devoted to the treatment of adult cancers. This article is provided for information purposes only. It is not intended to be used for medical advice. Please read Clinical trials have demonstrated the safety and efficacy of this novel MDR modulator in chemotherapy-refractory MM patients. Sonneveld et al reported the first phase I trial (a study evaluating the safety of the drug) of valspodar in 22 patients with VAD- or melphalan-refractory MM.(Sonneveld, Leukemia, 1996; 10:1741-1750) In this study, patients were treated with three cycles of VAD plus an escalating dose of valspodar (2.5 to 15 mg/kg). The dose-limiting toxicities were myelosuppression (bone marrow suppression) and neuropathy (nerve damage. Because valspodar inhibits the normal clearance of some chemotherapeutic agents (eg, doxorubicin) via the liver and kidneys, it increases the drug levels in patients. Consequently, dose reductions, depending on the specific agent, are required. This does not, however, compromise the therapeutic efficacy of the chemotherapy regimen.

10. International Myeloma Foundation multiple myeloma Concise Review Of The Disease And Treatment OptionsBy Brian GM Durie, MD 10.1.00 You can review or download the http://www.myeloma.org/TheIMF/imf_mmc.html

You will be transferred automatically to IMF Multiple Myeloma Concise Review If that doesn't happen, please click here.

11. Multiple Myeloma Survivor Stories Provides a resource for patients who want to share stories and advice to others facing this disease. Also includes information, links and news. http://www.acor.org/mm

[Note: In this list, the first year is the birth year, and "Class of..." refers to year MM was diagnosed.] Jack Aiello San Jose, CA; jackaiello@attbi.com 1949 / Class of ’95 / Type: IgG Kappa light chain / Last Update: 12/02 Anonymous #1 1927 / Class of '83 / Type: Solitary Plasmacytoma progressing to Myeloma / Last Update: 9/01 Marla Barnett , Texas; barrs05@aol.com 1958 / Class of 2000 / Family history of immune system diseases / Possible Aspartame toxicity / Last update: 1/03 Bill Bauknecht billbauknecht@aol.com 1938 / Class of '96 / Tumors, radiation, BMT, relapse, Thal / Last update: 3/00 Nancy Bengston, Grand Haven, MI; bridgenut@triton.net Don Biddison Lewiston, ID; biddi@aol.com 1929 / Class of '91 / Type: Kappa / BMT and recurrence / Last Update: 10/98 Martin Boling , Canberra, Australia; boling@bigpond.com.au 1951 / Class of 2000 / Type: MGUS prog. to IgG (Kappa LC) within 3 mo. / Last Update: 8/02 Helen Bos Sioux Center, IA; ahb@mtcnet.net Joanna Calvert-Mindell, Canterbury, Kent, England; joc-m@lineone.net

12. Treatment Of Multiple Myeloma, Mayo Clinic In Rochester, Minn. Information for patients and referring physicians about multiple myeloma and related plasma cell proliferative disorders. http://www.mayoclinic.org/multiplemyeloma-rst/index.html

search: Mayo Clinic Locations: Arizona Florida Minnesota Mayo Clinic ... Medical Services Multiple Myeloma Multiple Myeloma Treatment Disease Characteristics Lifestyle Management Glossary of Terms ... Medical Services Treatment of Multiple Myeloma at Mayo Clinic in Rochester What is multiple myeloma? Multiple myeloma is a cancer of plasma cells . Plasma cells are found in bone marrow , the blood-producing tissue that fills in spaces within bone. Plasma cells produce antibodies , substances that help the body fight infection. Usually, plasma cells make up about 1 to 2 percent of all cells in bone marrow. In a person with multiple myeloma, however, a group of abnormal plasma cells (or myeloma cells) multiplies. How is multiple myeloma diagnosed? Special blood tests and X-rays may be done when myeloma is suspected. Blood and urine may be tested for monoclonal protein. Bone marrow may be tested to determine if myeloma cells are present. How is myeloma treated? If you have a stable form of multiple myeloma, called "smoldering myeloma," you may not need treatment. However, if the multiple myeloma you have is not stable, you will require immediate treatment. The treatment depends on your needs, medical history and general health. One treatment for myeloma is chemotherapy . Chemotherapy is the use of medicine to kill cancer cells. It may include pills or intravenous (given directly into a vein) medications.

13. Welcome To The International Myeloma Foundation Information and services for everyone battling multiple myeloma, a cancer of the bone marrow for which there is currently no known cure. Check out our research grant program. IXth Annual International Workshop On multiple myeloma. Every two years, the myeloma scientific community gathers from http://www.comed.com/IMF/imf.html

Welcome to the International Myeloma Foundation

14. Introduction To Multiple Myeloma multiple myeloma, a cancer of the plasma cell, is an incurable buttreatable disease. While a myeloma diagnosis can be overwhelming http://www.multiplemyeloma.org/about_myeloma/

Skip to Secondary Navigation Links Multiple myeloma, a cancer of the plasma cell, is an incurable but treatable disease. While a myeloma diagnosis can be overwhelming, it is important to remember that there are several promising, new therapies that are helping patients live longer, healthier lives. There are approximately 45,000 people in the United States living with multiple myeloma and an estimated 14,600 new cases of multiple myeloma are diagnosed each year. This section will provide a detailed disease overview and will discuss: Initial diagnosis Myeloma symptoms Diagnostic tests Prognostic indicators Disease staging An introduction to treatment options In addition to the information provided to you by your physician, the information in this section will serve as an invaluable resource as you begin to educate yourself about the disease. Introduction to Myeloma Definition Symptoms Diagnosis Prognostic Indicators ... Myeloma Bone Disease Related Links Disease Overview Brochure Back to top MMRF Home The Foundation ... Events

15. Nurturing The Now, An Inner Path To Healing The inspiration for this resource was a diagnosis of multiple myeloma; the theme is that of spirituality as a path to inner healing. http://www.bobwoodyard.com

Nurturing the Now Nurturing the Now is my concept of living in the present moment. You simply can’t be any other place or in any other time, so why try? We keep trying because the mental mechanism is geared that way. It takes a definite decision to leave pain and suffering, even for a little while. But the payoff is priceless. You must yearn to return....to the living experience that you are. Begin by watching your breath go in and out. Follow it and it will soon slow down. Begin watching your thoughts as they try to scramble out of the present and make a dash into the future or the comfy, cozy past. Actually, as my spiritual teacher said....."Wasn’t it bad enough at the time?" Of course it was, but sentimentality likes to suffer. It embellishes the past with rosy-hued resentment and the seductive slow-burn of being a victim of this or that. But it doesn’t have to be that way. Now-consciousness is always newly-minted. You can only surrender and watch what happens. There is no expectancy or fear....just a commitment to be a witness to what is, which is always a mystery. Prefer mystery to history and you will have it. About Us An Introduction What's New?

16. Leukaemia Research Fund Southend Branch Involved in raising funds for Leukaemia Research. Fighting leukaemia, Hodgkin's disease and other lymphomas, multiple myeloma, aplastic anaemia, myelodysplasia and related diseases. Includes description of services and contact details. http://www.lrfatsouthend.org.uk/

For a text only site click on Alt T and Enter The branch is involved in raising funds for Leukaemia Research. Fighting...leukaemia, Hodgkin's disease and other lymphomas, multiple myeloma, aplastic anaemia, myelodysplasia, the myeloproliferative disorders and related diseases. We represent the LRF locally We create a public awareness of our activities and achievements We organise fund-raising events We support individual fund-raisers Please look at the rest of our site Home Sitemap Bikeathons Bikeathon 2001 ... Stamp Collection The Leukaemia Research Fund Head office is based at 43 Great Ormond Street, London WC1N 3JJ. Created on March 21st, 2001 by Terry Joyce Updated January 28th 2003 Site hosted by

17. Multiple Myeloma Links multiple myeloma Links. multiple myeloma Research Web Server Informationabout multiple myeloma. CANCERNET Plasma Cell Neoplasm http://myeloma.med.cornell.edu/Docs/MM-Research_Web_Server/Myeloma_links.html

18. Myeloma Foundation Of Chicago - Mission Provides the philosophy of the organization, contact information, facts and treatment options for multiple myeloma and related blood cancers. http://www.chicagomyelomafoundation.com

Mission and Vision of Chicago Myeloma Foundation We exist to serve the myeloma community in the Midwest valuing ethical behavior and diversity. We will allocate resources to fund myeloma research whether it be by conventional medicine or alternative therapies. We will work together cooperatively with an urgency to accomplish our objectives. Our basic philosophy is a concern for people and patients within the myeloma community Everything we do revolves around a genuine concern to find a cure for myeloma. We recognize that a few dedicated individuals who possess the essence of passion and are committed can change the world. To support the value we place on diversity we have developed relationships to produce meaningful and measurable results. IDEOLOGY We request integrity of ourselves and from the people with whom we interact. We strive to satisfy the needs of the Myeloma community while partnering with diverse cultures to educate the public as to this blood cancer of the bone marrow. We meet the needs of the Myeloma community by focusing on a cure for Myeloma and exceed our own expectations raising funds. We compete with ourselves to achieve the highest professional standards. CMF is focused on several goals: creating an awareness for Multiple Myeloma, acting as a resource for information as to the disease, and creating a research department in Illinois dedicated to Myeloma. The strategies to achieve our goals will be as follows:

19. Cancer.gov - Multiple Myeloma/Other Plasma Cell Neoplasms Home Page multiple myeloma/Other Plasma Cell Neoplasms Home Page What You Need To Know About multiple myeloma Information about detection, symptoms, diagnosis, and treatment of multiple myeloma. NIH Publication No. 951575 PDQ® - NCI's Comprehensive http://cancer.gov/cancer_information/cancer_type/plasma_cell_neoplasm

Multiple Myeloma/Other Plasma Cell Neoplasms Home Page Information about detection, symptoms, diagnosis, and treatment of multiple myeloma. NIH Publication No. 95-1575 Full description of the NCI PDQ database Treatment Information about treatment, including surgery, chemotherapy, radiation therapy, immunotherapy, and vaccine therapy Multiple Myeloma Treatment patients health professionals BMT and Peripheral Blood Stem Cell Transplantation Thalidomide for Multiple Myeloma Clinical Trials Information on clinical trials and current news on trials and trial-related data Multiple Myeloma Updates Search for Clinical Trials Cancer Literature New Cancer Literature Search Options Coming Soon! Related Information Other information, including reports about NCI priorities for cancer research and initiatives Leukemia/Lymphoma/Myeloma Progress Review Group Statistics Information related to cancer incidence, mortality, and survival Data Sources General Cancer Library Coping with Cancer Complications of cancer and its treatment for patients, survivors, and caregivers Support and Resources Support organizations, finances, insurance, home care, and hospice care

20. Multiple Myeloma Cancer Center: Cancer Treatment Centers Of America Provides information about risk factors, symptoms, diagnosis and treatment, as well as offering contact details. http://myeloma.cancercenter.com

Search Advanced Search Cancer Center - - - Select One - - - Bladder Breast Cervical Colon Esophageal Extrahepatic Bile Duct Hodgkin's Disease Kidney Laryngeal Leukemia Liver Lung Lymphoma Melanoma Multiple Myeloma Oral Ovarian Pancreatic Pharyngeal Prostate Rectum Skin Stomach Testicular Uterine Vaginal Vulvar Other Conventional Treatment Options Radiation Therapy External Beam Radiation ... Treatment Options Multiple myeloma is a type of cancer that affects the plasma type of white blood cells. Myeloma cells tend to collect in the bone marrow and in the hard, outer part of bones. Sometimes they collect in only one bone and form a single mass, or tumor, called a plasmacytoma. In most cases, however, the myeloma cells collect in many bones, often forming many tumors and causing other problems. When this happens, the disease is called multiple myeloma. Please note that cancer is classified by the type of cell, or the part of the body, in which the disease begins. Although plasmacytoma and multiple myeloma affect the bones, they begin in cells of the immune system. This type of cancer is different from bone cancer, which actually begins in cells that form the hard, outer part of the bone. You should know this because the diagnosis and treatment of plasmacytoma and multiple myeloma are different from the diagnosis and treatment of bone cancer. According to the International Myeloma Foundation, there are over 13,500 new cases of Myeloma in the U.S. each year, representing twenty percent of blood cancers, and one percent of all types of cancer. The incidence varies from country to country, with a low of 1 in 100,000 in China to approximately 1 in 400,000 in most Western industrialized countries. Myeloma is more common in blacks that whites, with the male/female ratio 3:2. The incidence rises with age. Better diagnostic techniques and the higher average age of the general population may explain the rising incidence of myeloma over the past several decades. More patients under age 55 are being diagnosed with myeloma; risk factors include exposure to atomic radiation, petroleum products, pesticides, solvents, heavy metals and and airborne particles.

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