21. Nail Patella Syndrome Networking/Support Group nail patella syndrome Networking/Support Group. International network. Supportnetwork for persons with nail patella syndrome to exchange information. http://www.medhelp.org/amshc/amshc476.htm

Title: Myotubular Myopathy Resource Group Description: Information for patients, parents and doctors regarding myotubular myopathy, a family of three rare muscle disorders usually causing low muscle tone and diminished respiratory capacity. Exchanging of successes with other affected families. Phone support, information and referrals, newsletter, literature. Scope: International network Founded: Address: c/o Pam Scoggin 2602 Quaker Dr. Texas City, Texas, 77590 United States Telephone: Email: gscoggin@aol.com Web Address: http://www.mtmrg.org This information has been generously provided by The American Self Help Clearinghouse and hosted by Med Help International . Please send corrections/updates to ed@selfhelpgroups.org Updated: 02/2003

22. Health Library - Nail Patella Syndrome nail patella syndrome. Nailpatella syndrome (NPS) is a rare genetic disorderthat is usually apparent at birth or during early childhood. http://health_info.nmh.org/Library/HealthGuide/IllnessConditions/topic.asp?hwid=

23. Health Library - Nail Patella Syndrome nail patella syndrome. Nailpatella syndrome (NPS) is a rare genetic disorderthat is usually apparent at birth or during early childhood. http://www.laurushealth.com/library/healthguide/illnessconditions/topic.asp?hwid

24. Health Library - Nail Patella Syndrome nail patella syndrome. Self Help Clearinghouse. nail patella syndromeNetworking/Support Group. International network. http://www.laurushealth.com/library/healthguide/selfhelp/topic.asp?hwid=shc29nai

25. The DRM WebWatcher: Sotos Syndrome A Disability Resources Monthly guide to the bestonline resources about nail patella syndrome. http://www.disabilityresources.org/NAIL.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Nail Patella Syndrome (NPS) Updated 8/13/2001 A B C D ... About/Hint/Link The Nail Patella Syndrome (also known as hereditary onycho-osteodysplasia, or HOOD) is a rare, inherited disorder that can cause nail and skeletal defects, small or absent kneecaps, "iliac horns" at the rear of the pelvis, renal disease, and other conditions. BatesWorld - Nail Patella Syndrome While we tend to eschew personal homepages with medical information (see Evaluating Disability Information on the Internet ), this nicely designed and well-written site is worth visiting just for its "Contacts, Research and Links." The author pulls together a wide range of resources relating to this little-known disorder, including several other good homepages. Nail Patella Syndrome This excellent page from John Hopkins University includes links to other online resources, illustrations, a genetic overview, and a lengthy bibliography. Nail Patella Syndrome This entry from the NORD database provides a basic medical overview and links to related sites.

26. Nail Patella Syndrome Worldwide Return to Search Page nail patella syndrome Worldwide. 3070 Rosato Court SanJose, CA 95135 Conditions NailPatella syndrome. Hours Answered 24 hrs http://www.geneticalliance.org/Resources/displayorganization.html?orgname=Nail P

27. Experts, Consultants, Authorities - Nail Patella Syndrome Specialty nail patella syndrome. Physicians For Quality. 1017 W. HopkinsSan Marcos, Texas 78666 Tel 800284-3627, Fax 512-805-8358 http://www.hgexperts.com/listing/Medical-Experts-Nail-Patella-Syndrome.asp

EXPERT WITNESSES MEDICAL EXPERTS MEDIATORS ARBITRATORS LEGAL CONSULTANTS Appraisal Banking Case Management Employment ... SPEAKERS BUREAU Medical Experts - Advanced Search Search for any word(s) in Companies' Description and Expertises Company Name City State/Province Country Alabama Alaska Alberta Arizona Arkansas British Columbia California Colorado Connecticut Delaware District of Columbia Florida Georgia Guam Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Manitoba Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Brunswick New Hampshire New Jersey New Mexico New York Newfoundland North Carolina North Dakota Northwest Territory Nova Scotia Ohio Oklahoma Ontario Oregon Pennsylvania Prince Edward Island Puerto Rico Quebec Rhode Island Saskatchewan South Carolina South Dakota Tennessee Texas U.S. Virgin Islands Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Yukon Territory United States of America Afghanistan Albania Algeria American Samoa Andorra Angola Anguilla Antigua Argentina Armenia Aruba Australia Austria Azerbaijan Bahamas Bahrain Bangladesh Barbados Belarus Belgium Belize Benin Bermuda Bhutan Bolivia Bosnia and Herzegovina Botswana Brazil British Virgin Islands Brunei Brunei Darussalam Bulgaria Burkina Faso Burma Burundi Cambodia Cameroon Canada Canary Islands Cayman Islands Central African Republic Chad Channel Islands Chile China Colombia Comoros Congo Congo (Dem. Rep.)

28. Experts, Consultants, Authorities - Nail Patella Syndrome Specialty nail patella syndrome. Howard S. Shapiro, MD, PC. 2140 BloomfieldWoods Court West Bloomfield, Michigan 48323 Tel 248613 http://www.hgexperts.com/listing/Medical-Expert-Witness-Nail-Patella-Syndrome.as

EXPERT WITNESSES MEDICAL EXPERTS MEDIATORS ARBITRATORS LEGAL CONSULTANTS Appraisal Banking Case Management Employment ... SPEAKERS BUREAU Expert Witnesses - Advanced Search Search for any word(s) in Companies' Description and Expertises Company Name City State/Province Country Alabama Alaska Alberta Arizona Arkansas British Columbia California Colorado Connecticut Delaware District of Columbia Florida Georgia Guam Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Manitoba Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Brunswick New Hampshire New Jersey New Mexico New York Newfoundland North Carolina North Dakota Northwest Territory Nova Scotia Ohio Oklahoma Ontario Oregon Pennsylvania Prince Edward Island Puerto Rico Quebec Rhode Island Saskatchewan South Carolina South Dakota Tennessee Texas U.S. Virgin Islands Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Yukon Territory United States of America Afghanistan Albania Algeria American Samoa Andorra Angola Anguilla Antigua Argentina Armenia Aruba Australia Austria Azerbaijan Bahamas Bahrain Bangladesh Barbados Belarus Belgium Belize Benin Bermuda Bhutan Bolivia Bosnia and Herzegovina Botswana Brazil British Virgin Islands Brunei Brunei Darussalam Bulgaria Burkina Faso Burma Burundi Cambodia Cameroon Canada Canary Islands Cayman Islands Central African Republic Chad Channel Islands Chile China Colombia Comoros Congo Congo (Dem. Rep.)

29. Nail Patella Syndrome : Meddie Health Search David's NPS Page A British page written by a spouse and parent of nail patella syndromepatients, giving a brief description of the syndrome and some links to http://www.meddie.com/search/Health/Conditions_and_Diseases/Genetic_Disorders/Na

HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED Search Meddie: the entire directory only this category More search options Home Health Conditions and Diseases ... Genetic Disorders : Nail Patella Syndrome ITEMS: LINKS: David's NPS Page A British page written by a spouse and parent of Nail Patella syndrome patients, giving a brief description of the syndrome and some links to further information. (Rating: 0.00 Votes: 0) Rate It Healthlink USA A wide range of nail patella syndrome information concerning treatment, prevention, diagnosis, email groups, support groups, personal stories, and much more. Updated regularly. (Rating: 0.00 Votes: 0) Rate It Medstudents A review about nail-patella syndrome, including the genetics, incidence, pathophysiology, signs and symptoms, and prognosis. (Rating: 0.00 Votes: 0) Rate It Nail Patella Syndrome Written by a person who has NPS, offering medical information, photos, x-rays, discussion/support group, links to research and two guest books where over 350 people have told their stories. (Rating: 0.00 Votes: 0)

30. Nail Patella Syndrome NORD nail patella syndrome http//www.stepstn.com/cgi-win/nord.exe?proc=Redirect type=rdb_sum id=567.htm.nail patella syndrome http//www.med.jhu.edu/nps/. http://www.doctorpage.com/findit/Diseases_and_Conditions/Nail_Patella_Syndrome/

doctorpage Diseases and Conditions Nail Patella Syndrome Displaying listings 1-11 Disorder affects joints and nails http://www.freep.com/news/health/qnail3.htm NORD - Nail Patella Syndrome Nail Patella Syndrome http://www.med.jhu.edu/nps/ Nail Patella Syndrome An educational site about a rare disorder involving deformities of the fingernails, knees, elbows and other joints as well as kidney disfunction, glaucoma and more. Site contains medical info, photos, x-rays, links to NPS research study, links to other NPS-related sites and a guestbook where over 200 people with NPS have told their NPS stories and family histories. http://members.aol.com/PACALI/npspage.html Nail Patella Syndrome Information about Nail Patella Syndrome including photos, x-rays, links to NPS research, other sites and a guestbook where others with NPS have told their stories. http://hometown.aol.com/PACALI/npspage.html Nail-Patella Syndrome A UK-based page devoted to this rare genetic disorder that can affect the hands, knees, elbows and kidneys. http://www.reck-bates.demon.co.uk/nps/

31. NORD - National Organization For Rare Disorders, Inc. nail patella syndrome. To purchase fulltext report ($7.50) Copyright 1988, 1989,1997, 1998, 1999, 2001 Synonyms of nail patella syndrome Fong Disease; http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Nail Patella

32. Nail Patella Syndrome nail patella syndrome. What is it? Nail nail patella syndrome is a complexcondition that varies greatly between each individual. This http://www.nookst.btinternet.co.uk/nail.htm

Nail Patella Syndrome What is it? Nail Patella Syndrome (otherwise known as Fong's Disease, Hereditary Onychoosteodysplasia ["HOOD"] or Turner-Kieser Syndrome) is an autosomal dominant condition closely linked to the ABO blood group. The gene is located on chromosome 9q34 and is called LMX1B. The risk of gene transmission is 50% per pregnancy, irrespective of gender. It is estimated to occur in 1 in 50,000 newborns. Nail Patella Syndrome is a complex condition that varies greatly between each individual. This is aimed to provide the correct documented evidence to each specialist field of medicine and to aid in the treatments and surgical decisions that may need to be made. It is hoped also to provide the reader with a source of contact regarding many aspects of the syndrome. Orthopedics, Nephrology, Opthalmology and Genetics have been highlighted as these are the specialist fields of medicine commonly associated with NPS. There are many other areas that should be included, for example Rheumatology, but for the moment we should concentrate on the four mentioned above. ORTHOPEDICS In 1820 Chatelain first reported a link between nail abnormalities and skeletal dysplasia.

33. Qango : Health: Diseases And Conditions: N: Nail Patella Syndrome category Options Help. Home Health Diseases and Conditions N nail patella syndrome, Suggest a Site. Health, etc. If you would http://www.qango.com/dir/Health/Diseases_and_Conditions/N/Nail_Patella_Syndrome/

Chat Forums Free Email Personals Classifieds ... Help Qango Directory Nail Patella Syndrome all of Qango only this category Options Help Home Health ... N > Nail Patella Syndrome Suggest a Site Health, etc If you would like to suggest a site for this category please click here Home Health Diseases and Conditions ... N > Nail Patella Syndrome Suggest a Site Home Suggest a Site Search ... Login

34. Nature Publishing Group Original paper. nail patella syndrome in a cytogenetically balanced t(9;17)(q34.1;q25)carrier. Keywords. NPS; nail patella syndrome; balanced translocation. http://www.nature.com/cgi-taf/DynaPage.taf?file=/ejhg/journal/v6/n1/abs/5200155a

35. Nature Publishing Group Article. Molecular cytogenetic detection of 9q34 breakpoints associatedwith nail patella syndrome. Asli Silahtaroglu 1,2 , Frans http://www.nature.com/cgi-taf/DynaPage.taf?file=/ejhg/journal/v7/n1/abs/5200260a

36. FreeML ML¾ðÊó¥Ú¡¼¥¸ [Nail Patella Syndrome ML] The summary for this Japanese page contains characters that cannot be correctly displayed in this language/character set. http://www.freeml.com/ml_info.php?ml=nps_jp

37. 1Up Health > Health Links Directory > Conditions And Diseases: Genetic Disorders nail patella syndrome Worldwide The home page of NailPatella Syndrome Worldwide,the only non-profit serving the needs of people with Nail-Patella Syndrome. http://www.1uphealth.com/links/genetic-disorders-nail-patella-syndrome.html

Home Contact Us Privacy Caring For Your Well Being Alternative Medicine Clinical Trials Health News Poisons ... Health Topics A-Z Search 1Up Health Health Directory Addictions Alternative Animal ... Weight Loss By Demography Child Health Teen Health Men's Health Women's Health ... Genetic Disorders : Nail Patella Syndrome Description Sites Nail Patella Syndrome Worldwide The home page of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with Nail-Patella Syndrome. Includes information on the syndrome and the work of the organization. David's NPS Page A British page written by a spouse and parent of Nail Patella syndrome patients, giving a brief description of the syndrome and some links to further information. Medstudents A review about nail-patella syndrome, including the genetics, incidence, pathophysiology, signs and symptoms, and prognosis. Nail Patella Syndrome A patient-written site offering relevant medical information, photos, x-rays, discussion/support group, links to research and guest books where over 350 people have told their NPS stories. Nail Patella Syndrome A patient-written site. Written very much for the lay person, this page explains the syndrome in accessible, easy-to-understand terms.

38. Searchalot Directory For Nail Patella Syndrome Top Health Conditions and Diseases Genetic Disorders nail patella syndrome(9). Related Web Sites. nail patella syndrome A patient-written site. http://www.searchalot.com/Top/Health/ConditionsandDiseases/GeneticDisorders/Nail

Home Search News Email Greetings Weather ... Global All the Internet About AltaVista AOL Search Ask Jeeves BBC Search BBC News Business Dictionary Discovery Health Dogpile CheckDomain CNN Corbis eBay Education World Employment Encyclopedia Encarta Excite Fast Search FindLaw FirstGov Google Google Groups Infomine iWon Librarians Index Looksmart Lycos Metacrawler Microsoft Northern Light Open Directory SearchEdu SearchGov Shareware Teoma Thesaurus Thunderstone WayBackMachine Webshots WiseNut Yahoo! Yahoo! Auctions Yahoo! News Yahooligans Zeal Sponsored Links Top Health Conditions and Diseases Genetic Disorders : Nail Patella Syndrome Related Web Sites NPS - Information about nail patella syndrome, what it is, a look at the gene and links to resources and support groups. Nail Patella Syndrome - A patient-written site offering relevant medical information, photos, x-rays, discussion/support group, links to research and guest books where over 350 people have told their NPS stories. Nail Patella Syndrome Worldwide - The home page of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with Nail-Patella Syndrome. Includes information on the syndrome and the work of the organization. Nail Patella Syndrome - Patient-written site about a genetic syndrome that affects the joints, eyes and kidneys with links to other resources.

39. Health Library - Nail Patella Syndrome nail patella syndrome. Self Help Clearinghouse. nail patella syndromeNetworking/Support Group. International network. http://yalenewhavenhealth.org/Library/HealthGuide/SelfHelp/topic.asp?hwid=shc29n

40. Health Library - Nail Patella Syndrome Your Health. Search. nail patella syndrome. Nailpatella syndrome (NPS) is a raregenetic disorder that is usually apparent at birth or during early childhood. http://yourhealth.stlukesonline.org/Library/HealthGuide/IllnessConditions/topic.

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

Page 2     21-40 of 94    Back | 1  | 2  | 3  | 4  | 5  | Next 20