1. Narcolepsy.com Home Page Online version of patient, researcher and physician newsletter. http://www.narcolepsy.com/

Free online news about narcolepsy for patients, physicians, and researchers You'll need the Adobe Acrobat Reader to view items marked with a red star . Get the Reader here . (free) Drug List Substances used for treating narcolepsy Humor and occasionally wicked satire Cartoons by Dr. Kraski Narcolepsy On-line Discussion exchange email with patients, family members, etc. Newsletter article reprints Free on-line access to key newsletter articles. GHB Being investigated as a new treatment - especially for cataplexy Clinical Trial Sites updated 6/2/01 Clinical trial description added 6/3/01 Books and Reviews Multi Purpose Link to [Get email notices when we add new articles or take positions on public policy issues (including Legislative threats to treatment)]. Please take a look at this as a means to advance our mutual interests. Link to Sleep Home Page Extensive coverage of sleep and sleep disorders including links to sleep related resources. Please report site technical difficulties to Web Mistress.

2. NINDS Narcolepsy Information Page National Institute of Neurological Disorders and Stroke describes narcolepsy and its prognosis. Table of Contents (click to jump to sections). What is narcolepsy? Is there any treatment? http://www.ninds.nih.gov/health_and_medical/disorders/narcolep_doc.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about Narcolepsy Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health NINDS Narcolepsy Information Page Reviewed 07-01-2001 Get Web page suited for printing Email this to a friend or colleague Table of Contents (click to jump to sections) What is Narcolepsy? Is there any treatment? What is the prognosis? What research is being done? ... Related NINDS Publications and Information What is Narcolepsy? Is there any treatment? There is presently no cure for narcolepsy; however, the symptoms can be controlled with behavioral and medical therapy. The excessive daytime sleepiness may be treated with stimulant drugs or with the drug modafinil (Provigil), which was approved by the FDA for this use in 1999. Cataplexy and other REM-sleep symptoms may be treated with antidepressant medications. At best, medications will reduce the symptoms, but will not alleviate them entirely. Also, many currently available medications have side effects. Basic lifestyle adjustments such as regulating sleep schedules, scheduled daytime naps and avoiding "over-stimulating" situations may also help to reduce the intrusion of symptoms into daytime activities. What is the prognosis?

3. CENTER FOR NARCOLEPSY The Stanford University Sleep Clinic was the first medical clinic established to specialize in sleep Category Health Conditions and Diseases Sleep Disorders narcolepsy......narcolepsy is a serious medical disorder and a key to understanding othersleep disorders. It is the world leader in narcolepsy research. http://www-med.stanford.edu/school/Psychiatry/narcolepsy/

Narcolepsy is a serious medical disorder and a key to understanding other sleep disorders Narcolepsy is a disabling illness affecting more than 1 in 2,000 Americans. Most individuals with the disorder are not diagnosed and are thus not treated. The disease is principally characterized by a permanent and overwhelming feeling of sleepiness and fatigue. Other symptoms involve abnormalities of dreaming sleep, such as dream-like hallucinations and finding oneself physically weak or paralyzed for a few seconds (see Symptoms). The Stanford University Sleep Clinic was the first medical clinic ever established to specialize in sleep disorders. It was founded in the early 1970s by Dr. William Dement to diagnose and treat narcoleptic patients. The Stanford Center for Narcolepsy was established in the 1980s and is now directed by Drs. Emmanuel Mignot and Seiji Nishino. The Center for Narcolepsy is part of the Department of Psychiatry and Behavioral Sciences and has published more than 100 articles on narcolepsy. It is the world leader in narcolepsy research. Several hundred patients with the disorder are currently treated at the Center or participate in various research protocols. Other research protocols are conducted in animals models of narcolespy. The Stanford Center for narcolepsy was the first to report that narcolepsy-cataplexy is caused by hypocretin (orexin) abnormalities in both animal models and humans (see Research). We are always looking for volunteers in our narcolepsy research studies.

4. Narcolepsy VER. 6.0 A large B/S and B/other archive. Also includes fanart and challenges. http://www.my-brain-hurts.org/narcolepsy/

[ the sections ] Home buffy/spike archive buffy/other archive searchers ... subscribe to Narcolepsy_updates [ the board ] leave me a message *coming back soon* Email me for story submission or any other info about this site phlem183@hotmail.com I make no claims to any of the stories that are not written by me, or any of the characters, they all belong to their respective creators (the BtVS ones being Joss and the rest of 'em) I do however own the artworks (not the original photographs) so please do not steal, it doesn't take much to send me an email ...so go do that. narcolepsy ver. 6.0 best viewed 800 x 600 19.feb.03 Sorry for the lack of site again, no idea why the q-board site was coming up thanks to those who informed me. Again no REAL update, *sigh* I really got discouraged by the quality of fics I was finding, but I've recently found a hum dinger and hopefully that'll propel me back into the world of fanfic. 03.jan.03

5. [Narcolepsy Internet] Support and Information for people with narcolepsy or ideopathic hypersomnia, their family, and care-prov Category Health Conditions and Diseases Sleep Disorders narcolepsy......Online support and education for people with narcolepsy, their family and partners,and care providers. My talk at narcolepsy Network's 1997 Conference http://www.narcolepsy.org/

[N] Welcome Narcolepsy InterNet's Acceptable Use Policy (AUP) and Charter. [N] JumpStation An annotated list of WWW links that have been mentioned on the Narcolepsy InterNet's list. This is a one-stop roadmap to information that PWN, their partners and family will find interesting. [N] TLA FAQ Frequent Asked Questions: Three Letter Acronyms, Emoticons, Smilies [N] Subscription Questionaire All members of the [N] must answer these questions before they are subscribed. NarNet 97 My talk at Narcolepsy Network's 1997 Conference What's New? News from around the [N] world.

6. Narcolepsy Association UK (UKAN) The homepage for narcolepsy Association UK UKAN a registered charityCategory Health Conditions and Diseases Sleep Disorders narcolepsy......narcolepsy Association UK (UKAN). narcolepsy Association UK (UKAN). This Association.Can you help with our study of children with narcolepsy? http://www.narcolepsy.org.uk/

7. Narcolepsy Nnetwork narcolepsy Network You will now be redireted to http//www.narcolepsynetwork.orghttp//www.websciences.org/narnet January 29, 2003 - 1 KB4. Center for narcolepsy ResearchPeople with narcolepsy are unable to resist falling asleep. Includes facts, support networks, and research activities. Tapes of Experts speaking on topics of interest to persons with narcolepsy http//www.uic.edu/depts/cnr - March 5, 2003 - 27 KB5. narcolepsy InternetOn-line support and education for people with narcolepsy, their family and partners, and care providers. An annotated list of WWW links that have been mentioned on the narcolepsy InterNet's list .http//www.narcolepsy.net/ - July 20, 2000 - 14 KB6. narcolepsy Association U.K. (UKAN)Nonprofit organization based in the United Kingdom, supporting the interests of people with narcolepsy. Provides information on symptoms, diagnosis and medications. narcolepsy Association UK (UKAN) http://www.websciences.org/narnet

Narcolepsy Network You will now be redireted to http://www.narcolepsynetwork.org

8. Sleep Apnea, Narcolepsy, Hypersomnia And Other Sleep Disorders Sleep medicine resources for detection and control of sleep apnea, narcolepsy, hypersomnia, insomnia and sleep disorders. http://www.netexp.net/~flamenco/sleepresources.html

SLEEP APNEA, NARCOLEPSY, HYPERSOMNIA AND OTHER SLEEP DISORDERS. KEY RESOURCES FOR PATIENTS, EMPLOYERS, PHYSICIANS AND THIRD PARTY PAYORS. The Sleep Site home page Sleep disorders self help center Information on major sleep disorders Management of sleep disorders ... Links to other sleep disorder and other health-related sites Sleep disorders are rampant and threaten the health, safety and productivity of millions who do not even realize they are ill. For example, sleep apnea has been documented in 10% of adult men. Complications of untreated sleep apnea include heart attack, heart failure, stroke, incapacitating sleepiness and sleep attacks with motor vehicle crashes. The impact of sleep apnea narcolepsy hypersomnia insomnia and other sleep disorders on industry and transportation is similarly dramatic. Sleep deprivation and sleepiness due to shift work escalate the risks. Annual U.S. losses from workplace sleepiness have been estimated at 189.5 billion dollars. Physicians must be detect and ensure treatment of sleep apnea and other sleep disorders , even from the standpoints of medicolegal liability and losses related to care of sleep disorders' complications in a capitated setting.

9. NHLBI Home Page: Jump To New Location Basic information on narcolepsy from National Institutes of Health National Heart, Lung, and Blood Institute. http://www.nhlbi.nih.gov/nhlbi/sleep/gp/narcolep.htm

The NHLBI Web Site has moved. Please reset your bookmarks. This page will take you to the new location in a few seconds. If you wish to go now, select the first link below. To go directly to a certain Web page, select either the site index or the search engine link. The new home page. The new site index. The new search engine. Note to users of screen readers and other assistive technologies: Please report any accessibility problems here.

10. SNaG Schweizerische Narkolepsie Gesellschaft/SNA Swiss Narcolepsy Association http://www.narcolepsy.ch/

Welcome to the homepage of the Swiss Narcolepsy Association English Deutsch Changes: geschützte Seiten für "Members only" (22.05.01) Bilder vom DNG Jugendtreff in Darmstadt 2001 (11.09.2001) Rundbrief 32 (14.09.2001) einige Aenderungen an Links-Page, neue Artikel in Diskussionforum (25.09.2001) neues Design (03.04.2002) Poesie- und Humor-Seiten, neuer Chatraum (Danke Lukas!) (08.04.2002) Rundbrief 33 (15.04.2002) Fotos DNG Jugendtreff 2002 Melsungen (19.07.2002) Planned: Latest News: dieses Wochenende Forumupgrade - das Forum kann eine Zeit offline sein

11. Narcolepsy And Hypocretin: Information And Background narcolepsy. Epidemiology; Symptoms; Diagnosis; Treatment1, 2; Genetics and HLA Part 1, 2, 3; Links. http://www.geocities.com/mhungs/

Narcolepsy Epidemiology Symptoms Diagnosis Treatment ... Genetics and HLA Part Links

12. Narcolepsy Information on the difficulties associated with diagnosis and treatment. http://users.pullman.com/beaumont/Narcolepsy.htm

Narcolepsy: What is it really like? from: "Symptom Description and Management in Narcolepsy" The Results of University of Illinois at Chicago Center for Narcolepsy Study In association with the American Sleep Disorders Association in a random sample of 1500 narcoleptics from the American Narcolepsy Association by Cohen FL, Nehring WM, Cloninger l Holistic Nursing Practice 1996;10(4):44-53 No one drug successfully treats all the manifestations of narcolepsy. The excessive daytime sleepiness/sleep attacks are often treated with stimulant medications.... Despite the array of drugs that have been used in the treatment of narcolepsy, success in symptom control is limited, and side effects may be prevalent. Patients often do not perceive a major relief of symptoms. In the present study, symptom prevalence was reported to continue in the majority of individuals despite their medications. [Because they insist on treating you like it is your fault (psychiatric), and giving drugs like Ritalin that do not function effectively even when they know good DAMN WELL what drugs are effective] Therapy is long term and usually lifelong, so that narcolepsy is categorized as a chronic illness. Because narcolepsy is an incurable illness with variable treatment results and symptoms that interfere with daily functioning, its impact on quality of life is significant.

13. Narcolepsy - A Sleep Disorder Site dedicated to narcoleptics by a narcoleptic. Includes experiences with this disorder, FAQs, message board, chat and information on medicine. http://www.cataplexic.com/

Narcolepsy - A Sleep Disorder Updated 03-28-03 This site is dedicated to all that live with the symptoms of narcolepsy To go straight to index click here 02-21-02 The following letter was posted on the message board recently and I felt it was the perfect letter to start my web page with. It is so perfectly descriptive of what we narcoleptics ALL go through at one time or another in our lives that I think we all can relate to it. Anyone who does not have narcolepsy but has a friend, relative, co-worker, etc that does, will learn so much about what we go through by reading this. Thanks to DeAnna for such a wonderfully worded letter.~~~~Melody Narcolepsy - A Sleep Disorder Index Our Experiences - Page with your stories on your experiences with narcolepsy. Updated 05-25-02. Tips and Tricks Want to submit or find ideas on coping with everyday problems associated with Narcolepsy? Updated 11-19-02. News on Narcolepsy News on research, new FDA approved medicines, etc. as it becomes available.

14. Narcolepsy Nnetwork narcolepsy Network. You will now be rediretedto http//www.narcolepsynetwork.org. http://www.websciences.org/narnet/default.html

Narcolepsy Network You will now be redireted to http://www.narcolepsynetwork.org

15. Living With Narcolepsy A site dedicated to narcolepsy and the people who live with it, including a description of symptoms, tips for coping with the disorder, treatment options, sources of help, and links to research and sleep disorder sites. http://expage.com/page/livingwithnarcolepsy

Living With Narcolepsy Going through life in a purple haze Hello! Welcome to my place. How do you like it? Well having a web page is new to me, but I thought this one was well worth the effort. Now, lets get a few things straight. I am Not a health professional, but Narcolepsy and I are old friends, well, ok, maybe not Friends, but we have lived together for more than 15 years, 17 to be exact. A lot of you who visit this page may have had it alot longer, or maybe you have just started experiencing the symptoms of this disorder. Whatever the case, I am glad that you are here and I hope that this page will contain some helpful insights and information to help you deal with your disorder. Reminder UPDATE Hi friends. I just wanted to say Hi to my readers and once again apologize for my long absence. I am trying to get back to working on this site as my mother is recovering quite well from her anyuerism and stroke and requires less of my time. For those of you interested in working on this site, the help would be most appreciated as so many updates to this page must be made in order to serve our readers.

16. Narcolepsy Research Project - University Of Pennsylvania Flyer for research project looking for narcoleptic volunteers. http://www.nursing.upenn.edu/Narcolepsy/

Narcolepsy "Imagine falling asleep while at the wheel waiting for a green light, or at work, as happened to my patients. Excessive daytime sleepiness is often the most disabling symptom of narcolepsy and the most difficult to treat. The goal of my research is to find better ways to control this symptom.." Ann E. Rogers PhD, RN Associate Professor, School of Nursing University of Pennsylvania Narcolepsy is a chronic neurological disorder characterized by excessive daytime sleepiness and sleep attacks. Other symptoms include brief episodes of muscle weakness or paralysis, dream-like images when falling asleep and disturbed sleep at night. Narcolepsy effects equal numbers of men and women and occurs in all racial groups. This sleep disorder usually develops during the late teens or early twenties and continues throughout the individual's life. Early diagnosis and appropriate medical care are critical for reducing the adverse effects of this disorder. With adequate medication and support from their teachers, employers and families, most patients can enjoy a near-normal lifestyle. Unfortunately, many patients remain undiagnosed and undertreated. The Narcolepsy Research Project consists of a group of clinicians and investigators dedicated to improving the care of narcoleptic patients. We are particularly interested in learning more about the treatment of excessive daytime sleepiness; what treatments are effective and what treatments are not effective for controlling this symptom.

17. Narcolepsy Internet Jumpstation Jumpstation and WWW links for narcolepsy, sleep disorders, and other healthrelated information. N, narcolepsy Disabilities narcolepsy. Support http://www.narcolepsy.org/narc.links.html

[N] Narcolepsy Internet's Jumpstation An annotated list of interesting WWW sites [Narcolepsy] [Sleep Disorders] [Medical] [Information] ... [Other Disabilities] Narcolepsy [Support Groups] [Research] [News] [Stories] ... [Other] Support Groups Narcolepsy Internet (http://www.narcolepsy.org) On-line support and information for people with narcolepsy and ideopathic hypersomnia, their families, their partners and care givers. Narcolepsy Network (http://www.websciences.org/narnet) Narcolepsy self-help Group. They have an annual conference and quarterly newsletters. Coordinate US-Based self-help groups. Pamphletes and information for narcoleptics and their family. Their web pages are very static. YAWN (Young Americans With Narcolepsy) (http://www.yawn.org/) YAWN is a youth outreach and development organization that aims to provide educational and social support services to all persons with narcolepsy or whose life is affected by narcolepsy family, peers, teachers, faculty, health care providers, business leaders, employers and others in the community. This site is under construction and has a lot of potential. Sleep/Wake Disorders of Canada (http://www.geocities.com/HotSprings/1837/)

18. Welcome To HealthGate Data Corp. From Healthgate information about insomnia, narcolepsy, sleep apnea, snoring, and restless legs . http://www3.healthgate.com/default.asp?docid=/hic/sleep/index

19. OMIM ENTRY 161400 narcolepsy Epidemiology Symptoms Diagnosis Treatment 1, 2 Genetics and HLA Part 1, 2, 3 Links narcolepsy http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?161400

20. Center For Narcolepsy Research Homepage General narcolepsy information and faqs, support groups, research and schedule of events. Part of Category Health Conditions and Diseases Sleep Disorders narcolepsy...... http://www.uic.edu/depts/cnr/

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