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         Parry-rombergs Syndrome:     more detail
  1. The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
  2. Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

21. WebGuest - Open Directory : Health : Support Groups : Conditions And Diseases :
parryrombergs syndrome (4). Sagittal Synostosis (3); Smith-Magenis Syndrome@(4); Stickler's Syndrome (3); Treacher Collins Syndrome (5). Sites
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the entire directory only in Top Health Support Groups Conditions and Diseases : Facial Differences
Sites:
  • AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
  • Acne Support Group - Information and support on acne, including top ten tips, beauty tips and problems.
  • Beneath the Surface - Created for all individuals of facial difference who are looking for support, resources, and a forum to share their stories and read about others.
  • Birthmark Support Group - From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
  • Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
  • Changing Faces - UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.

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parryrombergs syndrome (4) Sites. Parry Romberg Syndrome Stories frompeople affected by Parry Romberg syndrome, support and information.
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26. Parry-Rombergs Syndrome Website Results :: Linkspider UK
parryrombergs syndrome Websites from Linkspider UK. Keyword Parry-RombergsSyndrome. Linkspider UK Directory parry-rombergs syndrome Search for.
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    The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.

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  • 28. Listings Of The World Health Support Groups Conditions And
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    29. The Personal Side Of Craniofacial Differences
    Personal accounts of living with craniofacial conditions, and related webrings.Category Health Support Groups Facial Differences...... CranioSynostosis; Crouzon Syndrome; Goodman Syndrome. Page 2 Jackson-Weiss; Langer-Geidon;parry-rombergs syndrome; Pfeiffer Syndrome; Pierre-Robin Syndrome/Sequence;
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    To the Personal Side of Craniofacial Differences
    This page is dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find. We are starting out with just 15 disorders, so please feel free to e-mail me with any craniofacial disorders that are not listed here. Thanks to all who have sent me links already. Page 1
    • Antley-Bixler Syndrome
    • Apert Syndrome
    • Arhinia
    • Baller-Gerold Syndrome
    • Carpenter Syndrome
    • Cranio-Synostosis
    • Crouzon Syndrome
    • Goodman Syndrome
    Page 2
    • Jackson-Weiss
    • Langer-Geidon
    • Parry-Rombergs Syndrome
    • Pfeiffer Syndrome
    • Pierre-Robin Syndrome/Sequence
    • Saethre-Chotzen Syndrome
    • Sagittal Synostosis
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    * Website updated March 18, 2002 *

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    Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
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    Health /Consumer Support Groups /Facial Differences /Parry-Rombergs Syndrome / The Romberg's Connection
    The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another.
    (http://www.geocities.com/HotSprings/1018/) Parry-Rombergs Syndrome Information No Description available (http://www.geocities.com/HotSprings/1018/info.htm) Medical Searches for Rombergs Medical Searches for More Information on Romberg's Syndrome First of all, let us say that we are NOT professional medical researchers. We're not even professional researchers. (http://www.geocities.com/HotSprings/1018/medsearch.htm) Featured On Lycos: A brief look at related pages Websites: Links hand-picked by volunteer editors The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by (dir.lycos.com/Health/Consumer_Support_Groups/Facial_Differences/Parry-Rombergs_Syndrome/)

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    38. What Is Localized (Morphea And Linear) Scleroderma?  By  Surviving Scleroderma
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    Read Site Go To Top Return Home Scleroderma Facts What is Localized Scleroderma? There are two main types of the localized form of scleroderma. These are Linear and Morphea. These forms of scleroderma happen most often to children however some cases are reported in young and older adults. Below is an alphabetical listing of information resources I hope will be of value to you. Adopt-A-Page Care Bear For The Scleroderma Fact Pages Sandra Lehman is your Adopt-a-page care bear for the Scleroderma Fact Pages. Sandra volunteers to ensure the links here are current and researches online for related information. Information Resources

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    • AboutFace
      International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
      http://www.Aboutfaceinternational.org
    • Acne Support Group
      Information and support on acne, including top ten tips, beauty tips and problems.
      http://www.stopspots.org/
    • Beneath the Surface
      Created for all individuals of facial difference who are looking for support, resources, and a forum to share their stories and read about others.
      http://beneaththesurfaceweb.com
    • Birthmark Support Group
      From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. http://www.birthmarksupportgroup.org.uk/
    • Cancer Of The Eye Linkline (CELL) UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.

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