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         Parry-rombergs Syndrome:     more detail
  1. The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
  2. Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

61. 1netCommunications > Health > Consumer_Support_Groups > Facial_Differences > Par
Click here if you live outside North America! Top Health Consumer_Support_Groups Facial_Differences parryrombergs syndrome Featured Listings
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62. Parry-Rombergs Syndrome
Category Health Consumer Support Groups Facial Differences parryrombergs syndrome.http//www.geocities.com/HotSprings/6751/ Created 2000-06-14 000000.
http://www2.cybercafenet.com/Health/Consumer_Support_Groups/Facial_Differences/P
Error:
Could not connect to database because: cannot connect to search Can't connect to local MySQL server through socket '/var/lib/mysql/mysql.sock' (2) at /usr/lib/perl5/site_perl/5.6.0/Catalog/db/mysql.pm line 143 Try editing mysql.conf and check that the database server is running.

63. Suchmaschine Acoon - Webkatalog
Top Health Support Groups Conditions and Diseases Facial Differences parryrombergs syndrome Parry Romberg Syndrome Information
http://www.acoon.de/cgi-bin/showcat.exe?cat=Top/Health/Support_Groups/Conditions

64. Kangaroolinks.com: Health And Fitness/Consumer Support Groups/Facial Differences
Cleft Lip and Palate (18). Craniosynostosis (4). LangerGiedion Syndrome (2).parry-rombergs syndrome (4). Sagittal Synostosis (3). Stickler's Syndrome (4).
http://www.kangaroo-links.com/Health_and_Fitness/Consumer_Support_Groups/Facial_

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Top Health and Fitness Consumer Support Groups : Facial Differences Categories:
Apert Syndrome
Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... Treacher Collins Syndrome
Links:

  • AboutFace
    International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
    http://www.Aboutfaceinternational.org
    (Added: Tue Jan 01 2002 Hits: Rating: 0.00 Votes: 0) Rate It Review It
  • Acne Support Group
    Information and support on acne, including top ten tips, beauty tips and problems. http://www.stopspots.org/ (Added: Tue Jan 01 2002 Hits: Rating: 0.00 Votes: 0) Rate It Review It
  • Birthmark Support Group From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. http://www.birthmarksupportgroup.org.uk/ (Added: Tue Jan 01 2002 Hits: Rating: 0.00 Votes: 0)

65. 1Up Health > Health Links Directory > Support Groups: Conditions And Diseases: F
Sites. Parry Romberg syndrome Stories from people affected by ParryRomberg syndrome, support and information. Parry Romberg syndrome
http://www.1uphealth.com/links/facial-differences-parry-rombergs-syndrome.html
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... Facial Differences : Parry-Rombergs Syndrome
Sites Parry Romberg Syndrome
Stories from people affected by Parry Romberg syndrome, support and information.
Parry Romberg Syndrome Information Page
Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome General information, contacts, on-line discussion groups and links. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Parts of the directory made available on 1UpHealth have been modified. External Web site links provided on this site are meant for convenience and for informational purposes only; they do not constitute an endorsement. Search: The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only they do not constitute endorsements of those other sites.

66. Page 2
JacksonWeiss, Langer-Geidon, parry-rombergs, Pfeiffer, Pierre-Robin, Russell-Silver LangerGiedion Langer-Giedion syndrome Association National Organization of
http://members.tripod.com/~Craniofacial/page2.htm
J - Z
The Craniofacial Disorders indexed on this page are: Jackson-Weiss, Langer-Geidon, Parry-Rombergs, Pfeiffer, Pierre-Robin, Russell-Silver, Saethre-Chotzen, Sagittal Synostosis, Shprintzen-Goldberg, Stickler, and Treacher-Collins. Page 1 includes Antley-Bixler, Apert, Arhinia, Baller-Gerold, Carpenter, Craniosynostosis, Crouzon and Goodman.
Jackson-Weiss
National Organization of Rare Disorders
OMIM
Langer Giedion
Langer-Giedion Syndrome Association
National Organization of Rare Disorders
Parry-Rombergs (Rombergs)
National Organization of Rare Disorders
Online Mendelian IM entry
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MacKenzie's Page
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NORD
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Ped Database
Sagittal Synostosis
Sagittal Synostosis Cranio Support Group
Sagittal Synostosis Homepage
Shprintzen-Goldberg
NORD Search their database, articles are available.

67. Omniseek: Health: /Health /Consumer Support Groups /Facial Differences /Parry-Ro
gt; Facial Differences gt; Parry Rombergs Search only in Parry - Rombergs syndrome Help. ( directory.
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Health /Consumer Support Groups /Facial Differences /Parry-Rombergs Syndrome / The Romberg's Connection
The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. We have come together to offer our strength, courage, support and friendship to one another.
(http://www.geocities.com/HotSprings/1018/) Parry-Rombergs Syndrome Information No Description available (http://www.geocities.com/HotSprings/1018/info.htm) Medical Searches for Rombergs Medical Searches for More Information on Romberg's Syndrome First of all, let us say that we are NOT professional medical researchers. We're not even professional researchers. (http://www.geocities.com/HotSprings/1018/medsearch.htm)

68. WebGuest - Open Directory : Health : Support Groups : Conditions And Diseases :
Sites Parry Romberg syndrome Stories from people affected by ParryRomberg syndrome, support and information. Parry Romberg syndrome
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the entire directory only in Facial_Differences/Parry-Rombergs_Syndrome Top Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome

Sites:
  • Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information.
  • Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
  • The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome.
  • Romberg's Syndrome - General information, contacts, on-line discussion groups and links.
Last update: 6:37 PT, Wednesday, May 23, 2001
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69. Burn Support Groups Database
hotmail.com; Link to the Parry Rombergs syndrome web site in the USA.To the top of this page Return to Home page Return to database.
http://www.burnsupportgroupsdatabase.com/files/south-af.htm
South Africa
Correponder? Est ce qui'l y a quelqu 'un qui veut corresponder en Français par e-mail avec Evelyne en Africe-du-Sud? (Evelyne a 24 ans et elle etait brûler en Gabon)
E-mail: firechildren@icon.co.za Parry-Romberg's Syndrome International Support Group The Parry-Romberg's Syndrome is a degenerative disease thats eats away the tissues, muscles and bones of the face.
The newly founded group's goal is to find people with Romberg's disease all over the world to offer support and friendship. Although the group is still relatively small and very new, they have faith that people will contact them through this database. Anyone out there who would like to join?
Very little is still known about Romberg's ....so right now, all they have is each other. To contact my friend Theresa's group, e-mail or link: To the top of this page Return to Home page Return to database

70. Burns/Disfigurement Etc. Support Group Database
ParryRomberg's syndrome. The Parry-Romberg's syndrome is a degenerativedisease thats eats away the tissues, muscles and bones of the face.
http://www.burnsupportgroupsdatabase.com/files/australi.htm

71. Listings Of The World Health Support Groups Conditions And
Search, Complete Directory. LangerGiedion syndrome Post Review The Universityof Houston Langer Giedion syndrome home page.
http://listingsworld.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Di

72. Health/Consumer_Support_Groups/Facial_Differences
http//www.facescranio.org Crouzon Support Network A network designed to offersupport to individuals and families dealing with Crouzon's syndrome and other
http://www.health-information-resource.com/Health/Consumer_Support_Groups/Facial
Search: Welcome to the health-information-resource.com search portal. Health-information-resource.com is the premiere health and wellness search portal dedicated to providing comprehensive and up-to-date health information. Whether you are a healthcare professional or a healthcare consumer, you are likely to find health, wellness and medical-related information here that is informative and practical. Health-information-resource.com strives to provide the most thorough and reliable health information possible to ensure that every individual and family can better manage their health. Feel free to browse the health-focused directory or conduct a search for your specific wellness-related request. As a healthcare consumer today, you are faced with many important decisions regarding your physical condition. Choosing between hospitals, health care providers, doctors, prescriptions, vitamins, and a variety of other wellness-related choices can be extremely complicated. Finding a single resource that can provide you with all the answers to your health questions may seem like an unbearable task. However, health-information-resource.com can do just that. Our database is updated on a continuous basis with innovative and pertinent content, serving as your guide to reliable health information. Health Facial Differences Apert Syndrome
Cleft Lip and Palate

Craniosynostosis

Langer-Giedion Syndrome
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The Personal Side of Craniofacial Differences

Personal accounts of living with craniofacial conditions and related webrings.

73. Support Groups
www.geocities.com/HotSprings/1018/index.html Our group was formed in June of '97by Theresa Hildebrand and Terry Burau for people with Parry Rombergs syndrome.
http://www.worldcf.org/supportgroups.htm
CRANIOFACIAL TREATMENT CENTERS University of California - Los Angeles
Director: H.K. Kawamoto, Jr. MD, DDS
UCLA School of Medicine
Division of Plastic Surgery
10833 Le Conte Ave.
Los Angeles, CA 90024-1665
Phone: 310.825.5898 Fax: 310.825.2785 University of Southern California
Director: John F. Reinisch, M.D.
Children's Hospital - Los Angeles
Division of Plastic Surgery
4650 Sunset Blvd. Phone: 213.669.4542 Fax: 213.669.4106 Stanford University Director: Stephen A. Schendel, MD, DDS Stanford U. Med. Center Stanford, CA 94305 Phone: 650.723.5824 Fax: 650.725.6605 Tampa Bay Craniofacial Center Director: Mutaz B. Habal, MD 802 W. Buffalo Ave. Tampa, FL 33603-3301 Phone: 813.238.0409 Fax: 813.238.1119 University of Kansas Director: Ned Garrigues, MD University of Kansas Plastic Surgery Sutherland Institute 3901 Rainbow Blvd. Kansas City, KS 66160-7389

74. Katalog :  : Health : Support_Groups : Conditions_and_Diseases : Facial_
Crouzon Support Network A network designed to offer support to individuals andfamilies dealing with Crouzon's syndrome and other craniofacial anomalies.
http://www.netz-tipp.de/kat/Health/Support_Groups/Conditions_and_Diseases/Facial
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Startseite Welt Deutsch Anzeige: Verdienen Sie Geld mit Ihren ungenutzten Domains! Welt English Health ... Conditions and Diseases : Facial Differences
  • Apert Syndrome
  • Cleft Lip and Palate
  • Craniosynostosis
  • Langer-Giedion Syndrome ...
  • AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
  • Acne Support Group - Information and support on acne, including top ten tips, beauty tips and problems.
  • Beneath the Surface - Created for all individuals of facial difference who are looking for support, resources, and a forum to share their stories and read about others.
  • Birthmark Support Group - From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
  • Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.

75. Health Consumer Support Groups Facial Differences Polish Yellow Pages - Polska -
Crouzon Support Network A network designed to offer support to individuals andfamilies dealing with Crouzon's syndrome and other craniofacial anomalies.
http://www.yellowpages.pl/ca/58483/Health/Consumer_Support_Groups/Facial_Differe
>English Version
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    Apert Syndrome, Cleft Lip and Palate, ...
  • AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements. Acne Support Group - Information and support on acne, including top ten tips, beauty tips and problems. Birthmark Support Group - From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups. Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links. Changing Faces - UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.

76. Health Consumer Support Groups Facial Differences Parry-Zombergs Syndrome Polish
Parry Romberg syndrome Stories from people affected by Parry Rombergsyndrome, support and information. Parry Romberg syndrome
http://www.yellowpages.pl/ca/58495/Health/Consumer_Support_Groups/Facial_Differe
>English Version
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  • Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome.
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77. Open Directory & Pay Per Click Search Engine: Health/Support Groups/Conditions A
LINKS Parry Romberg syndrome Stories from people affected by ParryRomberg syndrome, support and information. http//www.cannylink
http://www.searchpixie.com/Health/Support_Groups/Conditions_and_Diseases/Facial_
Need Traffic TrafficGiveAway.com Search the Web Home Toolbar LinkManager bookmark ... Facial Differences : Parry-Rombergs Syndrome LINKS:
  • Parry Romberg Syndrome
    Stories from people affected by Parry Romberg syndrome, support and information.
    http://www.cannylink.com/diseaseparryromberg.htm
  • Parry Romberg Syndrome Information Page
    Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
    http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm
  • Romberg's Syndrome
    General information, contacts, on-line discussion groups and links.
    http://www.familyvillage.wisc.edu/lib_rombs.html
  • The Romberg's Connection
    International support group for families whose lives are affected by Romberg's syndrome. http://www.geocities.com/HotSprings/1018/
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78. Craniofacial Anomalies
syndrome Cranio – Synostosis Crouzon syndrome Goodman syndrome Page 2 Jackson– Weiss Langer – Geidon Parry – Rombergs syndrome Pfeiffer syndrome
http://ibis-birthdefects.org/start/craniofa.htm
Tips for printing Craniofacial Anomalies
Craniostenosis Craniosynostosis
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Join I.B.I.S. ... Etchings Please Explore: Cleft Lip Palate Crouzon S. DiGeorge Pierre Robin S. ... Key Information Sources Topics include Titles and Craniosynostoses Special Resources Craniofacial Anomalies A Selection of Internet Sites [*] Outstanding [P] For Professionals [S] Support Group [Hungarian] [Ukrainian] CRANIOFACIAL ANOMALIES (Nicely illustrated) by Neil Feldstein MD, a pediatric neurosurgeon at Columbia - Presbyterian Medical Center in New York City from Pediatric Neurosurgery Craniofacial Anomalies Extramural Information Center [P] The Journal Of Craniofacial Surgery from The Journal Of Craniofacial Surgery An international journal dedicated to the art and science essential to the practice of craniofacional surgery ... Official ... [P] Society of Craniofacial Genetics from Society of Craniofacial Genetics Founded in 1975 to promote education, research, and communication in normal and abnormal development of the craniofacies ...

79. List Of Illnesses - Friends' Health Connection
Disorder Papillary Carcinoma Paralysis Paralysis (Vocal Cord) Paraplegia ParasitesParkinson's Disease Parotiditos Parry Rombergs syndrome PelizaeusMerzbacher
http://www.friendshealthconnection.org/illnesses.shtml
List of Illnesses Below is a list of the health problems for which we currently have members. New members join daily. Please feel free to fill out a membership application even if your health problem is not listed. As new members join with your health problem we will connect you. A B C D ... W X Y Z A
Abdominal Adhesions
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Adenocarcinoma Addisons Disease Agoraphobia Adrenal Dysfunction Agnogenic Myeloid Metaplasia AIDS Alcoholism (recovering) Allergic Broncho Pulmonary Aspergillosis Allergies (General) Allergies (Bee) Allergies (Food) Allergies (to chemicals) Allergies (to mold) Alloimmunthrombocytopenia Alopecia Areata Alzheimer's Amputations Amyotrophic Lateral Sclerosis (ALS) Anaphylaxis Anemia Anemia (Hemolytic) Anemia (Pernicious) Angina Angiodema Angogenic Metaplasia Ankylosing Spondylitis (see also Arthritis) Anorectal Problems Anorexia Antiphospholipid Antibody Syndrome Anxiety Aorta Pulmonary Window Aortic Valve Replacement Aphasia Apnea (Sleep) Archnoiditis Arnold-Chiari Malformation Arteriovenous Malformation (AVM) Arteritis (Giant Cell Temple) Artheroclerosis Arthralgia Arthritis Arthritis (Adult Onset) Arthritis (Degenerative) Arthritis (Juvenile Rheumatoid) Arthritis (Non-Rheumatoid Inflammatory) Arthritis (Osteo) Arthritis (Zero-negative) Arthrogrypossis Asperger's Syndrome Aspergillosis Asthma Asthmatic Bronchitis Astigmatism

80. Allzone Health/Consumer Support Groups/Facial Differences
Crouzon Support Network A network designed to offer support to individuals andfamilies dealing with Crouzon's syndrome and other craniofacial anomalies.
http://dir.allzone.com/Health/Consumer_Support_Groups/Facial_Differences/

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