41. Post Polio Syndrome post polio syndrome. post polio syndrome (PPS). An Introduction to post polio syndromeBy Jack Trombadore. LCarnitine and Post-polio Syndrome - MJ Matheson, MD. http://dspace.dial.pipex.com/comcare/pps.html

Post Polio Syndrome Post Polio Syndrome (PPS) An Introduction to Post Polio Syndrome By Jack Trombadore Post-Polio Symptoms and Effects: A Brief Guide Poliomyelitis Fact Sheet An Overview of Polio and Its Late Effects Information On Post-Polio Muscle Atrophy - What is Post-Polio Muscle Atrophy? ... A Shot in the Dark - By Pat Wechsler Moriarty, T.J. [interview with Dr. Ben Sweet] The Polio Vaccine And Simian Virus 40

42. Post-Polio Syndrome: Resources Web Sites post polio syndrome Fact Sheet From the National Institute of NeurologicalDisorders and Stroke. Medline search and resources on post polio syndrome. http://www.vhct.org/case399/resources.shtml

RESOURCES Web Sites Post Polio Syndrome Fact Sheet From the National Institute of Neurological Disorders and Stroke. Lincolnshire Post Polio Network Full text articles, links, explanations. Post-Polio Task Force Information Center Medline search and resources on post polio syndrome Post polio information and links From the National Women's Health Information Center Organizations International Polio Network 4207 Lindell Blvd. #110 St. Louis, MO 63108-2905 Phone: 314-534-0475 email: Gini_intl@MSN.com Easter Seal Society of Washington 521 Second Ave. Seattle, Washington 98119 References Caverly NL, Simon RE, Headley JL. Post polio syndrome: an old adversary revisited. Presentation at American Occupational Therapy Conference; Chicago, April 23, 1996. Casper MM. Post-polio sequelae: a general overview and a personal encounter. Occupational Therapy Forum 1985; 1(7): 11-2, 1(8): 11-3. Reed KL. Quick reference to occupational therapy. Gaithersburg (MD): Aspen Publishers; 1991. Young GR. Occupational therapy and the post polio syndrome. Am J Occup Ther 1989; 43(2): 97-103. Back: CEU exam Next: Evaluation form Revised January 28, 2002

43. Report On Post-Polio Syndrome In Australia, Canada, France, Germany, Japan, UK & The Japanese government has not yet recognized post polio syndrome as a conditionthat merits special attention. Polio epidemics ended in Japan by 1963. http://www.disabilityworld.org/05-06_01/news/ppsreport.shtml

table of contents home page text-only home page Few Doctors Recognize Little-Known Condition Up to 20 million polio survivors around the world face the threat of new disabilities 15 to 40 years after their original illness, which could leave them using wheelchairs or ventilators for the rest of their lives, says a new report from the March of Dimes. A major problem confronting millions of polio survivors is that too few doctors, in both industrial and developing countries, recognize this slow moving and little understood secondary illness, called post-polio syndrome (PPS). The main symptoms of PPS are new progressive muscle weakness that gradually worsens, together with severe fatigue and pain in muscles and joints. It is often accompanied by decreased muscle endurance during activities. No cure exists for PPS. Doctors advise patients to curtail physical activities and take rest periods during the day, including during working hours. Many doctors also advise more severely affected patients to use wheelchairs part-time or fulltime, even if they can walk without them. As many as 40 percent of polio survivors may get PPS, according to some estimates. The March of Dimes, a nonprofit agency founded by U.S. President Franklin D. Roosevelt, who was a polio survivor, now is alerting medical systems around the world to PPS with its new report

44. Tracking Post Polio Syndrome Tracking PostPolio Syndrome by Warren Froelich. from the Salk Institute Signals/ Fall 1999. Until recently, post-polio syndrome seemed to defy explanation. http://sandiego_polio.tripod.com/TrackingPPS.htm

Tracking Post-Polio Syndrome by Warren Froelich from the Salk Institute Signals / Fall 1999 In a lab once occupied by polio vaccine pioneer Jonas Salk, researchers are now tackling some unfinished business: Post-polio syndrome. “This syndrome’s difficult to ignore, and it shouldn’t be ignored,” said Assistant Professor Samuel L. Pfaff, a developmental neurobiologist at The Salk Institute who directs the lab located on the 5 th floor of the Institute’s West Building. “It’s going to affect such a large number of people in our population,” he added. According to the best estimates, roughly 40 percent of the 600,000 polio survivors in this country, or about a quarter million people, currently suffer with post-polio syndrome. Generally striking decades after recovering from paralytic polio, symptoms usually begin with progressive muscle weakness, followed by debilitating fatigue, loss of function and pain, especially in the muscles and joints, swallowing becomes difficult, and breathing turns labored. Until recently, post-polio syndrome seemed to defy explanation. But during the past half dozen years or so, scientists like Pfaff have begun to unravel some of the genetic mechanisms that may one day provide new tools to treat post-polio syndrome and other similar neurological disorders including Lou Gehrig’s disease.

45. Post Polio Syndrome- New Problems From An Old Disease doing. She hadn't yet heard of postpolio syndrome, so it never occurredto her that she might experience problems in the future. http://www.mipolio.org/newsltr/fall2001/familyaffair.html

A Family Affair: The Impact of Post-Polio on Family Relationships (Excerpts from the Ontario March of Dimes Solutions for the Future Conference Proceedings, publication pending) One of the difficulties of being in a relationship with a person who has a chronic illness is the belief that we are alone. Everything is directed toward the person with the chronic illness and while that is fair enough, it is important to remember that the partner is also having to make adjustments to the illness. In today's discussion I am going to outline my situation when my partner, Dr. Mavis Matheson, began having problems with post-polio, and how we managed our relationship as her post-polio progressed. Mavis and I met in Regina as interns in 1985. Early in our relationship she mentioned she had had polio and had recovered. She led an active life, had swum competitively and enjoyed hiking and skiing - all the things that I enjoy doing. She hadn't yet heard of post-polio syndrome, so it never occurred to her that she might experience problems in the future. We had two children and worked together at the same clinic for five years. We were traveling and enjoying life together - things were working pretty well. She was one of those active, Type A people - always doing five things at the same time.

46. Post-Polio Syndrome Information And More Sylvia and Marilyn's page on several disability topics and other interests. http://www.fortunecity.com/meltingpot/eagle/1135

var TlxPgNm='index'; Post-Polio Syndrome Information and More INDEX Have you ever simply wanted to lay in the sun and veg all day? Perhaps it's too difficult to reach the backyard, or the front yard. We all need time to "play," to let the child within come forth and when the sun is warm and calling our name, if we can't get to the door or through the door, some of that desire to play, some of that child within, is going to give up, and we would then find ourselves a prisoner in our own home. Some of us are bedridden, and for those who are, these pages will help to bring the sunshine to you, with lots of jokes and laughter, stories of our adventures and the crazy antics of the animals that are willing to let us share the house with them. Also some ideas of how to make doorways/step-downs, more accessible for those in wheelchairs or scooters. The late effects of Polio, called Post-Polio, or PPS, will be covered as well as, CFS, and the effects of anesthesia on Polio survivors. Links to other PPS sites, Crohns and Scoliosis sites, heart attack information, with an article on knowing what to do to survive a heart attack if you are alone; baby-boomers and possible links to their having CFS (Chronic Fatigue Syndrome); magnets that work; memory loss in Polio survivors and more are in these pages.

47. Polio Offers information, inspiration, ideas and resources to help you understand polio and postpolio syndrome, and to confidently manage life with it. http://www.polionet.org/

p olio e xperience n etwork About Post-Polio Syndrome For Students! Resources for your research paper Our Own Stories (some funny, some inspirational - all about living with polio and PPS) "P.E.N i n k' ... " newsletter (a wide variety of post-polio resources) Make a Donation Futures Unlimited, Inc. - "Offering hope for improvement - a treatment that works ." Where Can I Find a Support Group? Meeting s for your support group Resource Links: Polio Places, People and Forums on the Internet ... Your comments Post-polio syndrome - the new challenge of an old disease. Polio Experience Network offers information, inspiration, ideas and resources to help you understand polio and post-polio syndrome, and to confidently manage life with it. Or to help a loved one cope with the effects of polio. We also offer resources for students doing research on the disease. We even have some links about disability in general. Browse - we should have something to help. Search Our Website: Search polionet.org

48. Post-Polio Syndrome, Recently Published Medical Articles Recently Published Medical Articles This is a list of medical articles on postpolio syndrome published from 1990 to 12/01/2002. The list is representative though not necessarily exhaustive. http://www.execpc.com/~epwoll/medindx.html

Post-Polio Syndrome Recently Published Medical Articles Updated 12/01/2002 This is a list of medical articles on Post-Polio Syndrome published from 1990 to 12/01/2002. The list is representative though not necessarily exhaustive. I've accumulated the list over the last few years through accesses to Medline via Grateful Med and PubMed . I was advised that it would be acceptable to repost this information as long as I deleted the article abstracts, which I have done. Abstracts are available for most articles by following the article number links back to PubMed. The intent is simply to provide information on PPS to those who need it. As far as the list itself is concerned the abbreviations are: TI - Title of article. AU - Author(s) of article. RF - Indicates a Review Article that contains many other References. AD - Address of author(s) or where research was done. URLS- Links to online versions of the articles. SO - Journal where published. UI or PMID - The Medline or PubMed number of the article (linked back to PubMed abstract) The articles themselves are not on this site. They are available in the specific journals listed in the SO entry line, and should be available in most medical libraries. Full text for some of the articles is available by following the URL links, or via additional links available with the abstract at PubMed. Most of the articles are also available by mail through the

49. Post-Polio Syndrome, Recently Published Medical Articles postpolio syndrome Recently Published Medical Articles. This is a list of medicalarticles on post-polio syndrome published from 1990 to 12/01/2002. http://my.execpc.com/~epwoll/medindx.html

Post-Polio Syndrome Recently Published Medical Articles Updated 12/01/2002 This is a list of medical articles on Post-Polio Syndrome published from 1990 to 12/01/2002. The list is representative though not necessarily exhaustive. I've accumulated the list over the last few years through accesses to Medline via Grateful Med and PubMed . I was advised that it would be acceptable to repost this information as long as I deleted the article abstracts, which I have done. Abstracts are available for most articles by following the article number links back to PubMed. The intent is simply to provide information on PPS to those who need it. As far as the list itself is concerned the abbreviations are: TI - Title of article. AU - Author(s) of article. RF - Indicates a Review Article that contains many other References. AD - Address of author(s) or where research was done. URLS- Links to online versions of the articles. SO - Journal where published. UI or PMID - The Medline or PubMed number of the article (linked back to PubMed abstract) The articles themselves are not on this site. They are available in the specific journals listed in the SO entry line, and should be available in most medical libraries. Full text for some of the articles is available by following the URL links, or via additional links available with the abstract at PubMed. Most of the articles are also available by mail through the

50. Who Has A Disability? postpolio syndrome, CFS, progressive long term disabilities, helpful hints and links, information on SS Guidelines, equipment options, accessibility solutions, handicap lifestyle changes, family awareness and support. http://www.fortunecity.com/meltingpot/grove/1105

var TlxPgNm='index'; Come in, Relax,... Let's talk....... Who has a Disability? Index This trailor was our original solution to getting around with two scooters. We have since then bought a Ford F150 and replaced the tailgate with a commercial quality electric lift usually used by agencies like the Sheriff's Department. We will supply a picture as soon as we can borrow a camera. We had many reason's for making this our choice after looking into all the other ramps, vans, lifts available on the market. If you have any questions, please do not hesitate to drop us a note. Welcome to the Who has a Disability? web site. Let us explore the question "Who has a Disability" with an open mind and heart. Is someone disabled only if you can see that they have a physical limitation? Is someone disabled by something you can not readily see or perceive? If you take a very broad brush and label anyone who has a limitation of any kind, either mentally, physically or emotionally, then everyone is disabled on some level. Why do some people feel uncomfortable if they see someone using a "tool" to help them walk or get from point A to point B? Everyone uses tools to get a job done, don't they? If someone has a physical limitation, does that automatically mean they have a less than average mental capacity? Who and what defines an individual's worth to society? We hope to explore these questions and many more with you and will look forward to hearing your thoughts on the subjects as time goes on.

51. SAPP Online Information on polio, postpolio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled. http://freenet.sfn.saskatoon.sk.ca/health/polio/

Saskatchewan Awareness of Post Polio Society Inc. Thanks for visiting our site. We have moved to a new home. Click on the link below to enter the website. While you are there, be sure to update your bookmark or link with our new location. Click this icon to go to the new Sapp Online!!!

52. Post-Polio Syndrome Fact Sheet postpolio syndrome (PPS) fact sheet compiled by the National Institute ofNeurological Disorders and Stroke (NINDS). What is post-polio syndrome? http://www.ninds.nih.gov/health_and_medical/pubs/post-polio.htm

National Institute of Neurological Disorders and Stroke Accessible version Science for the Brain The nation's leading supporter of biomedical research on disorders of the brain and nervous system Browse all disorders Browse all health organizations More about a disorder Studies with patients Research literature Press releases Search NINDS... (help) Contact us My privacy NINDS is part of the National Institutes of Health Post-Polio Syndrome Fact Sheet Get Web page suited for printing Email this to a friend or colleague Request free mailed brochure Table of Contents What is post-polio syndrome? What causes PPS? How is PPS diagnosed? How is PPS treated? ... Where can I go for more information? What is post-polio syndrome? Post-polio syndrome (PPS) is a condition that affects polio survivors anywhere from 10 to 40 years after recovery from an initial paralytic attack of the poliomyelitis virus. PPS is characterized by a further weakening of muscles that were previously affected by the polio infection. Symptoms include fatigue, slowly progressive muscle weakness and, at times, muscular atrophy. Joint pain and increasing skeletal deformities such as scoliosis are common. Some patients experience only minor symptoms, while others develop spinal muscular atrophy, and very rarely, what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. PPS is rarely life-threatening. The extent to which polio survivors will suffer from PPS depends on how seriously they were affected by the original polio attack. Patients who had only minimal symptoms from the original attack and subsequently develop PPS will most likely experience only mild PPS symptoms. People originally hit hard by the polio virus, who were left with severe residual weakness, may develop a more severe case of PPS with a greater loss of muscle function, difficulty in swallowing, and more periods of fatigue.

53. MEDLINEplus: Polio And Post-Polio Syndrome polio and postpolio syndrome. Search MEDLINE for recent research articleson polio and post-polio syndrome • polio • postpolio syndrome. http://www.nlm.nih.gov/medlineplus/polioandpostpoliosyndrome.html

Skip navigation Other health topics: A B C D ... List of All Topics Polio and Post-Polio Syndrome Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Prevention/Screening ... Children Search MEDLINE for recent research articles on Polio and Post-Polio Syndrome: Polio Postpolio Syndrome You may also be interested in these MEDLINEplus related pages: Paralysis Bones, Joints and Muscles Brain and Nervous System Infections From the National Institutes of Health Post-Polio Syndrome (National Institute of Neurological Disorders and Stroke) Also available in: Spanish General/Overviews Polio and Post-Polio Fact Sheet (Gazette International Networking Institute) Polio: The Disease and Virus (World Health Organization) Poliomyelitis (Polio) (University of Utah, Health Sciences Center) Also available in: Spanish Clinical Trials ClinicalTrials.gov: Poliomyelitis (National Institutes of Health) ClinicalTrials.gov: Postpoliomyelitis Syndrome (National Institutes of Health) Diagnosis/Symptoms Late Effects of Polio: An Overview (Gazette International Networking Institute) Prevention/Screening Polio Vaccines: What You Need to Know (Centers for Disease Control and Prevention) Polio: Risk Factors for Infection (World Health Organization) Specific Conditions/Aspects Oral Polio Vaccine and HIV / AIDS (National Immunization Program) Simian Virus 40 (SV40), Polio Vaccine, and Cancer

54. Post-Polio Syndrome postpolio syndrome (PPS) is a condition that can strike polio survivors anywherefrom 10 to 40 years after recovery from an initial attack of the http://healthlink.mcw.edu/article/922570549.html

Search Articles: search tips Please Take the HealthLink Survey Email this article Print this article Find related articles: By topic: By keywords: Receive Health Link via email! Subscribe now >> Post-Polio Syndrome Post-polio syndrome (PPS) is a condition that can strike polio survivors anywhere from 10 to 40 years after recovery from an initial attack of the poliomyelitis virus. PPS is characterized by a further weakening of muscles that were previously injured by polio infection. Symptoms include fatigue, slowly progressive muscle weakness, muscle and joint pain, and muscular atrophy. Some patients experience only minor symptoms, while others develop spinal muscular atrophy or what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. PPS is rarely life-threatening. The extent to which polio survivors will suffer from PPS depends on how seriously they were affected by the first polio attack. Patients who had only minimal symptoms from the original attack and subsequently develop PPS will most likely experience only mild PPS symptoms. People originally hit hard by the polio virus may develop a more severe case of PPS with a greater loss of muscle function, difficulty in swallowing, and more periods of fatigue. More than 300,000 polio survivors in the United States may be at risk for PPS. Doctors are unable to establish a firm incidence rate, but they estimate that the condition affects 25 percent of these survivors.

55. Lincolnshire Post-Polio Network - Main Gate To Polio And Post-Polio Information Short news items, with a postpolio element, gleaned from 'here, thereand everywhere', A brief but concise overview of post-polio syndrome. http://www.ott.zynet.co.uk/polio/lincolnshire/

The core of this site is an online library of well over one hundred full text articles on Post-Polio conditions, many from peer reviewed medical journals. The library is catalogued to assist reading order and new articles are added typically every few weeks. A categorised directory of Polio resources is also provided with every entry having a description. The regularly updated NewsBites section includes Polio related news items from around the world and all the bi-monthly LincPIN Post-Polio information newsletters are available in the Networking section. Information Helpline (Phone) If busy or unattended, automatically switches to voicemail where you can leave your message and contact details. Reception Detailed Site Guide Information Helpline (Email) info@lincolnshirepostpolio.org.uk Networking The Library The Directory Information about us including online copies of all our Newsletters, our World-Wide Conference and Seminar Diary and how to become a member. Over one hundred Polio and Post-Polio articles online. Fully catalogued. All articles are full text versions, not abstracts.

56. Welcome To The Post-Polio Resource Group Formed by polio survivors to provide information and support to polio survivors and their families and to educate the medical community and the general public about postpolio syndrome (PPS). http://www.geocities.com/HotSprings/4760/

polio post-polio disability pain weakness polio post-polio disability pain weakness polio post-polio disability pain weakness polio post-polio disability pain weakness Welcome! Since the Post-Polio Resource Group was founded in 1985, our mission has been to inform and transform the lives of polio survivors with regard to our medical, emotional, social, spiritual, and other life needs - especially as we experience the new and debilitating symptoms of Post-Polio Syndrome. Enter PPRG Home Page Click on the headline below to read a current news article that mentions polio. Don't forget to bookmark this page first (add to you favorites) so you can return to the PPRG web site. Please let other polio survivors and their loved ones know about us. We're all in this together. PPRG web site has been online since May 1, 1997 The pop-up advertisements were placed there by our web site host, Yahoo! GeoCities, to help pay for the cost of providing a home for our web site. Their presence on our web pages does not mean the PPRG endorses any advertised product or service. This page hosted by Yahoo! GeoCities. Get your own

57. Lincolnshire Post-Polio Library [Post-Polio Syndrome] Lincolnshire postpolio Library post-polio syndrome Decades after recoveringmuch of their muscular strength, survivors of paralytic polio are reporting http://www.ott.zynet.co.uk/polio/lincolnshire/library/halstead/sciampps.html

Post-Polio Syndrome Lauro S. Halstead Scientific American April 1998 Vol 278 Number 4:36-41 Lincolnshire Post-Polio Library copy by kind permission of Dr. Halstead and Scientific American http://www.sciam.com/ Decades after recovering much of their muscular strength, survivors of paralytic polio are reporting unexpected fatigue, pain and weakness. The cause appears to be degeneration of motor neurons. In the first half of the 20th century, the scourge of paralytic poliomyelitis seemed unstoppable. A major polio epidemic hit the New York area in 1916, and in the following decades the epidemics grew in size and became more deadly. The epidemic of 1952, for instance, affected more than 50,000 Americans and had a mortality rate of about 12 percent. It is difficult to realize today the extent of the fear and panic that gripped the public. Polio haunted everyone: families stayed at home; swimming pools were closed; public events were canceled. Children in particular were at risk. With the introduction of Jonas E. Salk's injected killed-virus polio vaccine in 1955 and Albert B. Sabin's oral live-virus vaccine six years later, the epidemics were brought to an end. By the mid-1960s the number of new polio cases dropped to an average of 20 a year. Polio had been vanquished. Or so it seemed. For the average American, polio no longer meant a disease but a vaccine. Medically, polio came to be regarded as a static, nonprogressive neurological disorder. It was believed that after rehabilitation and reeducation most survivors could reach a plateau of neurological and functional stability that would last more or less indefinitelyand that is where our understanding of polio as a chronic disease remained until fairly recently.

58. Post-Polio About postpolio syndrome. Did you have polio? Are Back to menu. FrequentlyAsked Questions about post-polio syndrome by Dave Graham. 1 http://www.polionet.org/PPS.htm

About post-polio syndrome Did you have polio? Are you a friend or relative of someone who had polio? Are you wanting to know about immunizing your child? Then there are some things you need to know Menu PPS in under 2 minutes About Polio: A Specialist's Note FAQ about PPS Immunization ... Other sources of information P.P.S. in under two minutes by David Graham, revised by Elinor Young Have you tried to explain post-polio syndrome to a friend, then half way through you notice them nodding off? Try this two minute drill. Our brain communicates with our muscles through the nerves. Polio destroys these nerve cells causing our muscles to die. The beautiful thing about nerves is that they help each other. When one goes down others help out, so a person can lose many nerve cells and not experience much dysfunction. Most polio survivors have been living in this state of fewer cells for years. If they were very young when they contracted polio they may have grown up thinking this was normal. All people's nerve cells die off with age. For the normal person, having many nerve cells, this is not a problem. For those of us that have been living with a reduced number of nerve cells, this can result in a variety of symptoms including weakness, fatigue and pain. Back to menu About Polio: A Specialist's Note Jacqueline Perry, MD

59. North Central Florida Post-Polio Support Group Educates and informs polio survivors, healthcare professionals and family about polio, postpolio syndrome and care in polio vaccination. http://www.postpoliosupport.com

the online voice of the North Central Florida Post-Polio Support Group PostPolioSupport com Conference Update Ocala, Florida, April 5, 2003 Enter Polio Post News April-May, 2003 Home Archive ... Polio Vaccination Information PostPolioSupport.com Best viewed with Internet Explorer Adobe Acrobat Reader latest version now available e-mail Web Administrator Reproduction whole or in part without permission is prohibited Last modified: March 30, 2003

60. Post-Polio Syndrome - A Definition DEFINITION OF postpolio syndrome By Tom Walter. What is PPS? post-poliosyndrome, or PPS, is a name that has been adopted to indicate http://www.christring.org/helms/ppsdefinition.htm

The Gideons International TRUE PEACE The Jesus Film The Ten Commandments The Declaration of Independence ... Email Us Best Viewed With IE 4+ Last Updated March 3, 2001 DEFINITION OF POST-POLIO SYNDROME By Tom Walter What is PPS? Post-Polio Syndrome, or PPS, is a name that has been adopted to indicate a constellation of NEW symptoms that occur an average of 31 years generally ranging from 20 to 40 years after the onset of the initial polio infection and after a period of "recovery" of at least 10 years. These symptoms often include NEW weakness, pain, breathing and/or swallowing difficulties, a variety of sleep disorders, muscle twitching (known as "fasiculations"), gastrointestinal problems, muscle fatigue and/or "central" fatigue. And these symptoms can occur in previously-affected muscles and/or in what were previously thought to be muscles that were not affected at onset. Complications often include neuropathies, nerve entrapments, arthritis, scoliosis, osteoporosis and, sometimes, additional atrophy known as Post-Polio Muscular Atrophy (PPMA). There are no definitive tests to determine a diagnosis of PPS so it is done by history and ruling out other possible causes that mimic these symptoms. Those who were most affected by the virus at initial onset AND who made the best recovery seem to have the worst PPS symptoms later on.

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