61. Post-Polio Syndrome Related Calendar Of Events: Conferences, Seminars, Get-ToGet Calendar of noncommercial events concerning post-polio syndrome. http://www.skally.net/ppsc/event.html

Post-Polio Syndrome Related Calendar of Events: Conferences, Seminars, Get-ToGethers, Reunions, Etc. If you have information on a PPS related even please use the form or email scout@skally.net to submit it. These events will be listed by date, most recent first, and as soon as a date has passed, will be removed, in order to make this page as easy and fast to use as possible. NOTE: we will NOT publicize commercial events ~ PPS EVENTS - PPS EVENTS - PPS EVENTS - PPS EVENTS - PPS EVENTS ~ QUICK REFERENCE BY LOCATION: Ocala, Florida, USA Lansing, Michigan, USA Trenton, New Jersey, USA Greensboro, North Carolina, USA ... Currency Exchange Rates Table April WHERE: Ocala, Florida WHAT: Conference - What Can "I" Do to Make a Difference Conference COST: Unknown SPONSOR: North Central Florida Post-Polio Support Group CONTACT: Carolyn Raville, Carolyn@PostPolioSupport.com ADDITIONAL INFO: SPEAKERS: RICHARD R. OWEN, M.D. - Emeritus Medical Director, Sister Kinney Institute, Minneapolis, Minnisota; BURTON W. MARSH, M.D., P.A - Orthopedics - Orthopedic Surgery, Team Director of the Post-Polio Evaluation Team of North Central Florida , Ocala, Florida HOLLY H. WISE, P.T., PH.D.

62. Medical References: Post-Polio Syndrome surviving a potentially life threatening polio infection, some survivors find themselvesfacing the lingering health problems known as postpolio syndrome. http://www.marchofdimes.com/professionals/681_1284.asp

View All Chapters Find Your Local Chapter March 31, 2003 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Post-Polio Syndrome Post-polio syndrome (PPS) is a disorder of the nervous system that affects many people who had poliomyelitis many years earlier. Polio (short for poliomyelitis, long ago called infantile paralysis) is a viral disease that disabled or killed thousands of people, predominately children and young adults, each year in the United States and countless others worldwide during the first half of this century. Thanks to the Salk vaccine, and soon afterward the Sabin oral vaccine, both developed four decades ago with funding from the March of Dimes, natural polio infections have been eliminated from the Americas for the past two decades. However, many survivors of past polio epidemics are developing new problems. What Are the Symptoms of PPS?

63. Medical References: Post-Polio Syndrome This report summarizes the outcomes of an international conference held in 2000 toreview the causes of postpolio syndrome and the best practices for diagnosis http://www.marchofdimes.com/professionals/681_4006.asp

View All Chapters Find Your Local Chapter March 31, 2003 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Scientific Publications and Reports: Polio Post-Polio Syndrome This report summarizes the outcomes of an international conference held in 2000 to review the causes of post-polio syndrome and the best practices for diagnosis, treatment and management. To view these documents, you will need to have the Adobe Acrobat Reader installed on your computer. To download a pdf version of the report, click here. Also available is a related publication for patients: Guidelines for people who have had polio. Medical References Quick Reference and Fact Sheets Clinical Tools Preconception Checklist Scientific Publications and Reports Prematurity Genetics Nutrition Research ... Public Policy Studies Information specialists at the March of Dimes answer your questions by phone, e-mail and online chat. Home Editorial Policy Link Policy Contact Us

64. Healthtalk.org - : Porphyria. postpolio syndrome. Pregnancy. Rare Disorders. All Links. post-poliosyndrome post New Topic post New Poll SELECT PAGE ( 1 ) 2 3 4 5 6 7 8 9 10. http://www.healthtalk.org/postpoliosyndrome.html

March 31, 2003, 2:51 AM (GMT-7). Please sign in or register for a free account . . . Who's chatting now: Home Chat Cancer Cancer ... Links Recent Links All Links Post-Polio Syndrome SELECT PAGE: Powered by XP.COM Comments are the responsibility of the poster Terms Of Service getUser: user is not obj, assigning default xpBegin: lv=0. xpbegin: found from styleid - styles - style_tid useCache: USING CACHE useCache: tabid already set 1 getNav: tabid = 1 getNav: tabs is not array. No tabs. showDebug: tabid set: 1 sid: 92 post not obj showDebug: 463 healthtalk.org script_name: /postpoliosyndrome.html http_host: www.healthtalk.org Time: 5 secs

65. FAQs About Post-Polio Syndrome OK, polio is licked, isn't it? So what is postpolio syndrome? polio infections contagious.What can I do about pain from post-polio syndrome? Here http://www.geocities.com/HotSprings/4760/pprg_faq.html

Frequently Asked Questions (FAQs) (For even More Frequently Asked Questions click here) I don't know anything about polio. What is it anyhow? "During the first half of the 20th century, the grim terror of crippling polio epidemics regularly, though randomly, swept across the United States and Canada (and most of the industrialized world) with increasing ferocity, suddenly leaving large numbers of otherwise healthy children, and adults, permanently disabled, or dead due to paralysis of their breathing muscles." So writes Dr. Christopher J. Rutty, Ph.D. for Health Heritage Research Services. After you finish here, read his brief, but thorough article for more information. http://www.gene.com/AE/arc/polio.html http://www.healthanswers.com/database/ami/converted/001402.html OK, polio is licked, isn't it? So what is Post-Polio Syndrome? Polio infections may soon end (though there is still some question about possible new epidemics developing from "wild" polio virus loose in the environment if vaccinations are ever abandoned.) Post-Polio Syndrome (PPS) occurs about 25 to 30 years after the original polio illness, when polio survivors experience new symptoms of weakness, pain, pathological fatigue, additional paralysis, and breathing and swallowing problems. These symptoms are caused by a gradual wearing out of already weakened and damaged nerve cells and may appear even in those polio survivors who had apparently made a complete recovery from the original polio and were not left paralyzed. PPS is not caused by an active virus and is not contagious.

66. Esmerel's Polio And Post-Polio Syndrome Resources polio and postpolio syndrome Resources. This page is for disabilityresources that are dedicated to polio and post-polio syndrome. http://www.esmerel.org/specific/polio.htm

Polio and Post-Polio Syndrome Resources (Courtesy of Esmerel: Home of Unicorn Quest : The Kids' Typing Tutor Game for One or Two Hands ) Welcome to another part of Esmerel's Collection of Disability Resources. This page is for disability resources that are dedicated to polio and post-polio syndrome. If you know of any other resources or have suggestions, please email Heather. Easter Seals Colorado Post Polio Information Internet Post-Polio Resources Internet Post-Polio Resources ... Post-Polio Awareness and Support Society It was formed to provide a support network for all polio survivors. Post Polio Network of NSW Inc. Directory Post Polio Resource Group of Southeast Wisconsin Post Polio Ring of Hope Polio Support Groups ... Back to the Disabled Directory This page is maintained by Heather Last updated: December 8, 2000

67. Treatment Of Post-Polio Syndrome With Auricular Acupuncture - By Francis T. H'Do This article describes research of acupuncture or traditional Chinese medicineapplied to Treatment of postpolio syndrome with Auricular Acupuncture. http://acupuncture.com/Research/Auric.htm

Treatment of Post-Polio Syndrome with Auricular Acupuncture by Francis T. H'Doubler, Jr., M.D. Homepage Research Subject Index Nervous System The objective of this study was to evaluate the effectiveness of electrostimulation of auricular accumpuncture points in the treatment of confirmed post-polio syndrome patients. Short and Long term responses in 12 study subjects were measured. Good or excellent results were obtained in all patients; 66.7% reported a return to their pre-existing levels of health. Our experience has shown that this modality can be effective as a permanent, relatively simple and inexpensive form of therapy for this condition. To our knowledge, this is the first effective therapy available for the over 75,000 post-polio syndrome patients in the United States alone. Francis T. H'Doubler, Jr, M.D. 1900 South National Avenue, Suite 2950 Springfield, Missouri 65804 U.S.A.

68. AAPM&R - Post-Polio Syndrome postpolio syndrome. While post-polio syndrome appears in people whohad paralytic polio and a residual loss of motor neurons. After http://www.aapmr.org/condtreat/other/postpolio.htm

What is a Physiatrist? Providing quality care Legislative, Business and Clinical Practice Issues Annual Assembly ... Other Conditions Post-Polio Syndrome While polio has virtually been eradicated in the United States, results from the disease still affect some 60 percent of the 640,000 survivors of paralytic polio. Post-polio syndrome appears in people who had paralytic polio and a residual loss of motor neurons. After a period of recovery, usually 15 years or longer, the patient begins to experience fatigue, muscle weakness, and possibly pain. These symptoms, when not attributable to other diseases, can signal post-polio syndrome. Site Map Contact Us Member Center One IBM Plaza, Suite 2500, Chicago, IL 60611-3604 Search Entire Site Member Center PASSOR Practice Issues (Legislative/Business/Clinical) Annual Assembly Medical Education Industry Opportunities

69. Post-Polio Syndrome: A Guide For Polio Survivors And Their Families postpolio syndrome A Guide for polio Survivors and Their Families Julie K.Silver, MD There is much still to discover about post-polio syndrome. http://www.yale.edu/yup/books/088078.htm

POST-POLIO SYNDROME A Guide for Polio Survivors and Their Families Julie K. Silver, M.D. Foreword by Lauro S. Halstead, M.D. 2001 Health 304 pp. 17 line drawings, 5 1/2 x 8 1/4 Cloth ISBN 0-300-08807-8 Click here to read a sample chapter Advance Praise for Post-Polio Syndrome For more information on Post-Polio Syndrome, visit the International Rehabilitation Center for Polio at Spaulding (IRCPS) at polioclinic.com. Dr. Julie K. Silver, who has both personal and professional experience with post-polio syndrome, begins the book by defining and describing PPS and providing a historical overview of its diagnosis and treatment. Chapters that follow discuss finding good medical care, dealing with symptoms, maintaining proper nutrition and weight, preventing osteoporosis and falls, and sustaining mobility. Dr. Silver reviews the latest in braces, shoes, assistive devices, and wheelchairs and scooters. She also explores issues involving managing pain, surgery, complementary and alternative medicine, safe and comfortable living environments, insurance and disability, and sex and intimacy. "[This book] belongs to that small select group that is stylish, informative, and a pleasure to read. . . . [Its pages] are crammed with up-to-date information and useful anecdotes all designed to help prevent or minimize further disability and improve the quality of . . . lives."

70. Post-Polio Syndrome -- Sample Chapter postpolio syndrome A Guide for polio Survivors and Their Familiesby Julie K. Silver, MD Foreword by Lauro S. Halstead, MD Return http://www.yale.edu/yup/chapters/088078chap.htm

POST-POLIO SYNDROME A Guide for Polio Survivors and Their Families by Julie K. Silver, M.D. Foreword by Lauro S. Halstead, M.D. Return to the book's catalogue page Chapter 2 Post-Polio Syndrome With the advent of the polio vaccines, the country's obsession with the disease ended. The vaccines were effective not only in eliminating the polio but also in erasing its prominence on political and health-care agendas. In an amazingly short time, polio was obliterated as completely as if it had never existed. Polio survivors moved on with their lives, the March of Domes went on to fight birth defects, and politicians promoted other causes. Even medical doctors, if they studied it at all, learned about polio as a historical footnote. Polio was so thoroughly expunged from out national consciousness that it did not seem possible that the nightmares of years gone by could be resurrected. Acute Poliomyelitis and its Relation to Post-Polio Syndrome Polio is caused by a virus and generally presents with fever, sore throat, diarrhea, and vomiting caused by the virus's invasion of the gastrointestinal tract. In fewer than 5 percent of polio cases, the virus actually invades the spinal cord and brain, which may result in paralysis and breathing and swallowing problems. The most severely affected individuals diedgenerally from bulbar polio, which paralyzes the muscles that control breathing and swallowing. Fortunately, the majority of people who had paralytic polio survived the disease and recovered at least partially from the point at which they were sickest.

71. ICan ONLINE - Polio And Post-polio Syndrome: Description And Causes and causes. post-polio syndromeoccurs 30 to 40 years after a person recovers from polio....... polio and postpolio syndrome http://www.ican.com/news/fullpage.cfm/articleid/872B3804-B84D-470E-857733B644680

Health news Stay healthy Supplements Manage depression ... Health FAQ CHANNELS Home Automotive Employment Independence ... Travel RESOURCES Conditions Library Message board Feedback Events ... Search iCan! THE LEADING DISABILITY COMMUNITY AOL KEYWORD: iCan iCan! BUSINESS RESOURCES Corporate Services Buy The Heidi Report Free Services Home ... Conditions library Polio and post-polio syndrome: Description and causes iCan News Service June 4, 2001 Polio is a viral disease that gets into the bloodstream and causes muscle weakness and possibly paralysis. Post-polio syndrome occurs 30 to 40 years after a person recovers from polio. It causes extreme fatigue and pain in the muscles, and can cause problems swallowing or breathing. Alternative names Polio is also called poliomyelitis, and post-polio syndrome is abbreviated PPS. In cases of paralysis, polio is called acute paralytic poliomyelitis, or APP Causes or how it develops Polio is caused by a virus. It's spread when a person comes into contact with an infected person's feces and puts his or her hands to the mouth. Post-polio syndrome occurs generally 30 years after a person recovers from polio. When a person is first infected with the poliovirus, it damages or destroys nerve cells in the spinal column. Some of these nerve cells regrow, allowing normal muscle function. Scientists believe that over time, those newly grown nerve cells begin to fail, causing new muscle weakness.

72. Post-Polio Syndrome He is now 66 years old. What are the signs and symptoms of postpoliosyndrome and/or related syndromes of poliomyelitis? Click Here! http://www.ivillagehealth.com/experts/infectious/qas/0,,169080_174664,00.html

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73. AV Post-Polio Syndrome Support Group postpolio Question by Survivors with Answers from Dr. Bruno. The Truth About TheCause and Treatment of Myalgic Encephalomyelitis and post-polio Sequelae. http://www.avpoliosurvivors.org/

Our Site Contains Post-Polio Syndrome Information AV Polio Survivors Support Group welcomes you to our Web site. Please be careful when going outside and dress appropriately. We welcome all comments about our site. Please send your comments to the Webmaster or any person on our Contact page. This site is best viewed using 800 X 600 screen resolution or above and using Internet Explorer (IE) 5.5 or or above. This site also uses Flash animations. You may need to download the latest Flash viewer from the Macromedia Web site. Feature article : Steps Taken to Ensure New Security Requirements Preserve and Respect the Civil Rights of People with Disabilities Other articles: Protecting Your Arms Will Keep You Moving How to Prevent Further Disability in Polio Survivors Post-Polio Question by Survivors with Answers from Dr. Bruno. Important Announcements: FIRST BRITISH CONFERENCE The Truth About The Cause and Treatment of Myalgic Encephalomyelitis and Post-Polio Sequelae Saturday July12, 2003

74. Orthopaedics - Post-Polio Syndrome These symptoms, known collectively as postpolio syndrome, result from yearsof accumulated strain on muscles already weakened by the polio virus. http://www.einstein.edu/e3front.dll?durki=6497

75. Shepherd Center: Post-polio Syndrome postpolio syndrome, post-polio syndrome stability. People who have post-poliosyndrome have years of experience dealing with polio. At Shepherd http://www.shepherd.org/shepherdhomepage.nsf/933b0df00b8fa08985256942006e7ddb/27

Post-polio Syndrome Post-polio syndrome (PPS) is a condition that strikes some polio survivors from 15 to 40 years after recovery from the initial attack of the poliomyelitis virus. According to the National Institute of Neurological Disorders and Stroke, it is caused by the failure of individual nerve terminals in the motor units that remain after the initial polio attack. Symptoms of PPS include fatigue, slowly progressive muscle weakness, muscle and joint pain, cold intolerance, muscular atrophy and breathing, swallowing and sleeping problems. It is a slowly progressing condition marked by long periods of stability. interdisciplinary team of specialists support patients as they adapt to the physical, emotional and social changes resulting from the disease process. Our treatment program may include medications to relieve pain and muscle fatigue, therapeutic strategies to modify activities and reduce fatigue, modifications to homes and worksites, and assistive devices and equipment such as canes, braces, crutches, scooters and wheelchairs. Physicians who specialize in physical medicine, or physiatrists, are best suited to diagnose and treat PPS, according to The Polio Society. Shepherd Center has

76. Shepherd Center: Post-Polio Syndrome Q & A postpolio syndrome Q A, Q What is post-polio syndrome? A post-poliosyndrome (PPS) is a condition that can strike polio survivors http://www.shepherd.org/shepherdhomepage.nsf/933b0df00b8fa08985256942006e7ddb/68

Q: What is Post-polio syndrome? A: Post-polio syndrome (PPS) is a condition that can strike polio survivors anytime from 10 to 40 years after their recovery from polio. It is caused by the failure of individual nerve terminals in the motor units that remain after the initial polio attack. Q: How many people are diagnosed with PPS? A: There are 650,000 polio survivors in the U.S. It is estimated that from 25 to 40 percent will develop symptoms of post-polio syndrome. Q: What are the early symptoms of PPS? A: Symptoms include fatigue, slowly progressive muscle weakness, muscle and joint pain, and muscular atrophy. The severity of PPS depends upon how seriously the survivors were affected by the first polio attack. Q: What is the prognosis for people with PPS? A: PPS is a very slowly progressing condition that is marked by long periods of stability. Except in people with severe respiratory impairment, PPS is not usually life threatening. Q: What are the treatment options for someone with PPS? A: Doctors recommend that polio survivors follow standard healthful lifestyle practices: consuming a healthful diet, exercising in moderation and visiting a doctor regularly. Treatment may include medications to relieve pain and muscle fatigue, therapeutic strategies to modify activities and reduce fatigue, modifications to homes and work sites, and assistive devices such as canes, braces, crutches, scooters and wheelchairs.

77. Post-polio Syndrome Not recognized until recently, postpolio syndrome can develop twoto three decades after the initial attack of paralytic polio. http://ucneurology.uchicago.edu/Neurological_Disorders/NeuroMuscular/Postpolio_s

Not recognized until recently, post-polio syndrome can develop two to three decades after the initial attack of paralytic polio. University of Chicago investigators have played an important role in defining this syndrome and identifying helpful treatments. Symptoms People who had experienced polio years before may develop new weaknesses, joint problems, fatigue and muscle atrophy. These problems may be severe enough to interfere with normal daily activities. Diagnosis Physicians conduct a thorough physical examination to rule out other disorders that can cause similar symptoms. Patients may have an electromyogram/nerve conduction test, imaging studies and various blood tests. Treatment Patients with post-polio syndrome receive treatment in the University of Chicago Hospitals' ALS/MDA clinic, which is one of the oldest, most experienced programs of this type in the country. Some of the treatments involve counseling for lifestyle adjustments or drugs for symptomatic improvement in pain and fatigue. Patients benefit from the resources of a multidisciplinary team that includes neurologists, orthopaedic surgeons, specialists in orthotics, physical therapists, social workers and others. U of C Research in Post-Polio Syndrome Physicians here are involved in research aimed at finding new ways to treat post-polio syndrome.

78. The DRM WebWatcher: Polio And Post-Polio Syndrome A Disability Resources Monthly guide to the best online resourcesabout polio and postpolio syndrome. http://www.disabilityresources.org/POLIO.html

Home Subjects States Librarians ... Contact Us The DRM WebWatcher Polio and Post-Polio Syndrome Updated 3/9/2001 A B C D ... About/Hint/Link Many people who had polio years ago are now experiencing debilitating late-onset effects. Check these sites for information, resources and support. Gazette International Networking Institute (GINI) GINI coordinates the International Polio Network, which provides information to polio survivors, their families, and the health care community and promotes networking among the post-polio community; the Post-Polio Task Force, which includes clinicians and researchers who specialize in diagnosing and treating polio survivors with symptoms of post-polio syndrome; and the International Ventilator Users Network. Its website (which is a bit difficult to navigate - be sure to check all the groups) includes news, an extensive directory of self-identified clinics, health professionals and support groups, frequently asked questions, membership and publication information, and more. Lincolnshire Post-Polio Network This website offers an extensive, cataloged library of full-text articles on polio and post-polio, as well as general information, short news items, networking opportunities, and links.

79. NIH Guide: POST-POLIO SYNDROME postpolio syndrome NIH GUIDE, Volume 21, Number 5, February 7, 1992 PA NUMBERPA-92-40 PT 34 Keywords Infectious Diseases/Agents Epidemiology http://grants.nih.gov/grants/guide/pa-files/PA-92-040.html

Return to 1992 Index Return to NIH Guide Main Index Department of Health and Human Services National Institutes of Health (NIH) 9000 Rockville Pike Bethesda, Maryland 20892

80. Ontario March Of Dimes - Post Polio Services You are here Programs and Services. postpolio syndrome polio. Thevery mention post-polio syndrome - What is it? post-polio syndrome http://www.dimes.on.ca/Programs/postpolio/postpoliosyndrome.html

Programs and Services POST-POLIO SYNDROME Polio. The very mention of the word struck fear in the hearts of Canadians during the 1930’s, 40’s, and 50’s. In the first half of the last century, poliomyelitis ravaged North America. Most of those who fell ill were children. The polio virus attacked the nervous system, causing paralysis and leaving some unable to breathe on their own. Over the course of the epidemics, thousands of people died and tens of thousands more were left paralyzed or with disabilities. March of Dimes was created to raise funds for research and end the threat of polio and to provide rehabilitation, financial assistance and assistive devices to polio survivors. With the discovery of the Salk vaccine in 1955 and the subsequent vaccination program, March of Dimes extended its mandate to include all adults with physical disabilities regardless of cause. In the early 1980's, as polio survivors became aware of new unexplained symptoms, Ontario March of Dimes responded with the Post-Polio Program. Post-Polio Syndrome - What is it?

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