21. Our Introduction & Brief Outline... throughout the world, who have devastatingly, experienced/are going through theheartbreaking 'loss' of a baby, especially in the case of 'potters syndrome'. http://fp.angeljack.plus.com/page105.htm

Song Playing: Titanic Our Introduction Written September 12th 2002 Welcome! Here is just a brief introduction of ourselves so you can maybe get to 'know' us just a little before you embark on our most tragic and heartbreaking journey that we have been traveling through since the summer of 2000. Sophie is now approaching 12 years old, our Ben, just 4... Our Angel Jack would have been celebrating his 2nd Birthday this November 27th 2002, and our newest Angel Samuel, he would have now been just over 6 months old... We sincerely hope that through our babies website, for anyone having or has gone through the heartbreaking 'loss' of a baby/child, that some comfort may be found... The online Potters Forum Support Group has been an immense part of my own healing process these past 2 years... Being part of an online support group, with members who actually 'know' what you are going through, is an immediate comfort in itself, although sadly, since I have been a member of this group, it has slowly grown larger and larger, which is the most saddest part... For every new member that we welcome on the Forum, it means another precious unborn child has been either diagnosed with/possibility of, or that their baby has actually been born and 'lost' to Potters Syndrome'!

22. Surgery Door Support Groups POLYARTERITIS (VASCULITIS) CONTACT LIST. potters syndrome SUPPORT GROUP (UK).potters syndrome SUPPORT GROUP (UK). PRADER WILLI SYNDROME ASSOCIATION (UK). http://www.surgerydoor.co.uk/sg/detailtest.asp?keyword=RARE SYNDROME

23. Surgery Door Support Groups NEPHROTIC SYNDROME SUPPORT GROUP. potters syndrome SUPPORT GROUP (UK).potters syndrome SUPPORT GROUP (UK). UK TRANSPLANT. UK TRANSPLANT. http://www.surgerydoor.co.uk/tiscali/sg/detail1.asp?keyword=KIDNEY

24. Welcome To 'Angel Makayla's Website'... potters syndrome Support Group'. To find out more about this 'devastatingdisease' that our Precious Makayla had, please click on http://www.angelmakayla.dabsol.co.uk/

Song Playing is:~ I Will Always Love You Angel Makayla Zayne Hogue Makayla was born on:~ February 17th 1996 Time:~ 10.30am Weight:~ 4lbs 14 1/2oz Length:~ 17 1/2 ins long Heartbreakingly, Makayla left 'Earth for Heaven' just the very next day ~ 'February 18th 1996' at 7.06pm Throughout these pages that I dedicate to My Precious Little Angel Grand~Daughter, 'Makayla Zayne', I will include many 'Photographs' of our sweet angel, 'Our Story' and many of my 'Thoughts and Feelings' since our little angel left Earth for Heaven... Please click on the following links to take you through 'Makayla's Treasured Memories'... "Grandma Loves You ~ Makayla Zayne" Our Story Makayla's Portrait Family Photographs Our Prayers ~ Poems ... Makayla's Angel Photo UPDATES Christmas 2002 Makayla's 'Online' Quilt Makayla's 7th Heavenly Birthday (February 17th 2003) Potters Syndrome Support Group To find out more about this 'devastating disease' that our Precious Makayla had, please click on the following link which will take you to 'The Potters Syndrome Support Forum' where you will find useful information regarding this 'syndrome' and also an online 'Support Group' for families worldwide...

25. Error 404: File Not Found 2002 (0) choroid plexus cyst found after subsequent potters syndromepregnancy Stacy Mabie 182834 10/24/2002 (4) Re choroid http://www.choroidplexuscyst.org/cpc13.html

Error 404 - File Not Found The file you requested could not be found. Many of the older files have been moved to the archive directory. You may use the search form below to search the archive directory. Please note that there are quite a few files to be searched, so the search may take some time to complete. Please be patient when searching. You may use the form below to do a keyword search of the messages on this message board. Perform a case-insensitive case-sensitive Scripts and WWWBoard created by Matt Wright and can be found at Matt's Script Archive

26. Re: Choroid Plexus Cyst Found After Subsequent Potters Syndrome Pregnancy In Reply to choroid plexus cyst found after subsequent potters syndromepregnancy posted by Stacy Mabie on October 24, 192002 at 182834 http://www.choroidplexuscyst.org/messages/2863.html

Search Messages By Keyword: Please help support the CPC web site by ordering all of your books through our amazon.com associate site. Search For Any Book In The Entire amazon.com Collection! Follow Ups Post Followup Choroid Plexus Cyst Message Board Posted by michelle from IP 198.184.0.254 on October 25, 192002 at 05:45:33: In Reply to: choroid plexus cyst found after subsequent potters syndrome pregnancy posted by Stacy Mabie on October 24, 192002 at 18:28:34: : We had a level 2 ultrasound today and it was discovered that our little girl had a choroid plexus cyst we were told we could have an amnio done but we feel the risk to our baby is not worth it. We lost a baby in March to potters syndrome also. :: I'm very sorry for your previous loss. May I ask what potters syndrome is? Did the doctor mention if that puts you at risk with your next child? If everything else looks fine, it's very likely that your baby is too. As you'll read in older posts, the cpcs alone don't change your risk that much. Best wishes! Follow Ups: Re: choroid plexus cyst found after subsequent potters syndrome pregnancy Stacy Mabie Re: choroid plexus cyst found after subsequent potters syndrome pregnancy michelle Re: choroid plexus cyst found after subsequent potters syndrome pregnancy Stacy Mabie Post a Followup Name: E-Mail: Subject: Comments: : : We had a level 2 ultrasound today and it was discovered that our little girl had a choroid plexus cyst we were told we could have an amnio done but we feel the risk to our baby is not worth it. We lost a baby in March to potters syndrome also. : :: I'm very sorry for your previous loss. May I ask what potters syndrome is? Did the doctor mention if that puts you at risk with your next child? If everything else looks fine, it's very likely that your baby is too. As you'll read in older posts, the cpcs alone don't change your risk that much. Best wishes!

27. Irish Medical Journal identified antenatally (Table 1). Six fetuses had major structural abnormalitiesdiagnosed sonographically, namely potters syndrome, multicystic dysplastic http://www.imj.ie/news_detail.php?nNewsId=2088&nVolId=69

28. Irish Medical Journal hypoxia, retroplacental haemorrhage and fetomaternal haemorrhage respectivelyand the fourth was a neonatal death at six hours from potters syndrome. http://www.imj.ie/news_detail.php?nNewsId=2296&nVolId=89

29. Kidney Disorders Information, Support And Other Resources For UK Patients 01388 665004; potters syndrome Support Group, 46 Borfa Green, Welshpool,Powys SY21 7QF Tel 01938 553755; Transplant Support Network http://www.equip.nhs.uk/topics/renal.html

Kidney Disorders Home Information Topics Further information General Health ... Other information What are kidney disorders? The following links take you straight to pages of information about kidney disorders. This information has been checked by doctors to ensure it is correct and appropriate for UK patients. Cancer BACUP - has very detailed information on all aspects of kidney cancer including symptoms, treatment and follow-up Edinburgh Renal Unit - has detailed information at different levels of technicality on many kidney disorders and a dictionary of words related to kidney disorders Kidney Patients Library National Kidney Federation Renal transplant - Addenbrooke's Hospital in Cambridge provides information on renal transplant and how to cope at home afterwards Back to the top of this page Links to useful websites: The following links contain information about kidney disorders. The information on these websites has not been checked by our doctors, but they are rated as good quality sites. Kidney Patient Guide - a UK guide to living with a kidney disorder The National Kidney Research Fund - research findings and news Polycystic Kidney Disease Charity - a UK charity site with very detailed information on PKD Back to the top of this page Support groups: Addison's Disease Self Help Group , 21 George Road, Guildford GU1 4NP Tel: 01483 830673

30. Reflections in march we went for a ultrasound this past thursday and found out that the fluidis low so we went to uic and was told our son has potters syndrome and is http://virtual-memorials.com/servlet/Reflections?memid=42

31. Birth Defects Research For Children Pierre Robin Syndrome, Add to Shopping Cart. potters syndrome (Renal Agenesis),Add to Shopping Cart. Poland's Syndrome, Add to Shopping Cart. http://www.birthdefects.org/ilmnop.htm

Fact Sheet Catalog (I-P) This page is a listing of Current Fact Sheets available for download, click the Add to Shopping Cart link to include the fact sheet in your order. Immune Deficiency Add to Shopping Cart Learning Disabilities Add to Shopping Cart Limb Reduction Defects Add to Shopping Cart Microcephaly Add to Shopping Cart Moebius Syndrome Add to Shopping Cart Neural Tube Defect (NTD) Add to Shopping Cart Neurogenic Bladder Add to Shopping Cart Obsessive Compulsive Disorder Add to Shopping Cart Omphalocele Add to Shopping Cart Pectus Excavatum Add to Shopping Cart Pierre Robin Syndrome Add to Shopping Cart Potters Syndrome (Renal Agenesis) Add to Shopping Cart Poland's Syndrome Add to Shopping Cart Polycystic Kidney Disease Add to Shopping Cart Porencephaly Add to Shopping Cart PPD Add to Shopping Cart Premature Births Add to Shopping Cart Pyloric Stenosis Add to Shopping Cart

32. Gone Too Soon Angels Remember Me Page 19/99, Abigail Chrystal Kuzel, Became an angel because of potters syndromeon 3/30/02 at 1 hour 19 minutes, April Angels. Cameron Andrew http://www.angelfire.com/al3/sweetlittleones/rememberme.html

var Loaded=false;var Flag=false; Welcome To Gone Too Soon Angels Candle Lighting, Remember Me Roses, and Birth Stones Angels! January Angels Thomas A Ward Became an angel because of no real reason on 1/1/97 at 8 months gestation Donald Farrell Became an angel because of domestic voilence on 1/24/95 at 24 weeks gestation February Angels Jose Praxediz Juarez Became an angel because of car accident on 2/13/99 at 20 years old March Angels Zakary Wyatt Mitchell Became an angel because of car accident on 3/12/96 at 15 months old Otto Hunter Mitchell Became an angel because of car accident on 3/12/96 at 15 months old Courtney Rae Finn Became an angel because of stillborn on 3/19/99 Abigail Chrystal Kuzel Became an angel because of potters syndrome on 3/30/02 at 1 hour 19 minutes April Angels Cameron Andrew Pauley Became an angel because of placental abruption on 4/1/00 at birth Tyler Maxwell Tharpe Became an angel because of drowning on 4/8/00 at 20 weeks gestation Dalton Tyler Became an angel because of prematurity on 4/10/96 at 3 hours old Joshua Ray Spivey Became an angel because of stillborn on 4/18/00 at 39 weeks gestation May Angels Stephen Ray Farrell Became an angel because of M/C on 5/6/95 at 6 weeks gestation Jack Ray Farrell Became an angel because of M/C on 5/6/95 at 6 weeks gestation Mommy's Little Angel Became an angel because of no real reason on 5/8/02 at 11 weeks gestation Dakota Farrell Became an angel because of

33. A Heartbreaking Choice Internet Support Sites. Very special websites by very special MomsOne More Angel; For the Love of Jesse; potters syndrome Support Site; http://www.aheartbreakingchoice.com/support.html

34. A Heartbreaking Choice Garden 2001 Joanne Savage 16 March, 1985 potters syndrome My little angel, Jesus took youfrom me as I now understand to play in his garden and hold his hand. http://www.aheartbreakingchoice.com/garden94.htm

35. Baby Jessica We were told that the baby had potters syndrome and that she was notgoing to make it through the night. potters syndrome is very rare. http://sids-network.org/fp/jana.htm

Help ensure that the Global Internet services of the SIDS Network continue to grow! Donate directly to the SIDS Network securely with a major credit card Donate your used car, truck, boat or RV to the SIDS Network, Inc. and receive a tax deduction Other ways to help can be found here Baby Jessica by Jana Date: Sun, 31 Jan 1999 As I sit here and read all these heart breaking stories feeling terrible for all these people, I felt is was about time for me to open up and share my story with you. We were so excited. When the day came me, my husband, and my dad made the drive to the hospital. At that time I was given my last ultrasound to see the position of the baby. She was still breach. Also at that time I was told that her lungs looked a little under developed; that at worst she would have to stay in the hospital for an extra 2-3 weeks. But once again, "not to worry." We went into delivery all excited. All I can remember was seeing all the doctors and nurses faces. For awhile I didn't hear her cry. It seems like forever but she did. I asked if everything was ok. They said yes. She had a hard time breathing but everything would be fine. They wouldn't let me see her. She needed to be cleaned and put on oxygen. We started to get very upset but we did remember what the doctor did say about her lungs. I was put in recovery when a doctor came in to tell me that the baby's heart was in distress. HER HEART!

36. Guestbook 0007 Name Jency Website Referred by Net Search From Time 200007-25 172213Comments My baby girl Rose died April 10 2000 of potters syndrome. http://sids-network.org/_gb/gb0007.htm

Help ensure that the Global Internet services of the SIDS Network continue to grow! Donate directly to the SIDS Network securely with a major credit card Donate your used car, truck, boat or RV to the SIDS Network, Inc. and receive a tax deduction Other ways to help can be found here Support the SIDS Network: Many books, videos, and other media can be ordered directly through Amazon.com, the leading Internet source of books. You can also order from The ChildSecure Catalog - The web's first and finest baby care and child safety catalog. A portion of your sales will directly benefit the SIDS Network. Selected books, videos, etc. are listed here. Name Karen Perreuxxx Website Referred by : Just Surfed On In From : Great Neck, New York Time Comments : I am a sids mother. My baby Stefan was born Nov. 19th 1992 and died 1 day short of 5 months on April 18th 1993 Name LAURA Website doctors visit Referred by : Just Surfed On In From : mexico Time Comments : I NEED ANYONE THAT CAN HELP ME OUT ON THIS. I JUST LOST A 9WKS BABY AND I HAVE SO MANY QUESTIONS TO ASK. PLEASE HELP ME....

37. Potter's Syndrome only. Potter's syndrome,, Print this article, (Edith Potter, born 1901,American pathologist) (also called Potter's sequence). Clinical http://www.amershamhealth.com/medcyclopaedia/Volume VII/Potters syndrome.html

Medcyclopaedia About Medcyclopaedia Amersham Health Search for: Type a word or a phrase. All forms of the word are searchable. Advanced search Browse entry words starting with: A B C D ... Other characters Try our Medcyclopaedia Premium Edition with added tools and functionality tailored to make your working day easier. The following tools are presently available: Expanded search *For Medical Professionals only, registration required Potter's syndrome, (Edith Potter, born 1901, American pathologist) (also called Potter's sequence). Clinical manifestations are those of an infant with a dysmorphic facies: a flat face, widely spaced eyes, low ears, micrognathia; with fetal growth retardation, limb anomalies such as rocker bottom feet and severe oligohydramnios secondary to renal agenesis or dysplasia. The renal disease leads to pulmonary hypoplasia and the children may present with pneumothorax and pneumomediastinum. HC The Encyclopaedia of Medical Imaging Volume VII Welcome to Medcyclopaedia. This site is open to a public audience, still we want to know a little more about our visitors. Please tick off the boxes that match your profile. Do you live in Europe?

38. Agenesis, Renal of the condition. Babies born with this condition usually have typicalPotter facies (see potters syndrome). Unilateral renal agenesis http://www.amershamhealth.com/medcyclopaedia/Volume VII/AGENESIS RENAL.asp

Medcyclopaedia About Medcyclopaedia Amersham Health Search for: Type a word or a phrase. All forms of the word are searchable. Advanced search Browse entry words starting with: A B C D ... Other characters Try our Medcyclopaedia Premium Edition with added tools and functionality tailored to make your working day easier. The following tools are presently available: Expanded search *For Medical Professionals only, registration required Agenesis, renal, absence of the kidney. Bilateral renal agenesis is not compatible with life. The diagnosis is often made antenatally either at routine second trimester ultrasound when reduction or complete absence of liquor will be demonstrated. The kidneys are not seen and enlarged adrenal glands fill the renal fossae. In later pregnancy failure of enlargement of the uterus appropriate for the gestational age, and oligohydramnios are the usual ultrasound findings of the condition. Babies born with this condition usually have typical Potter facies (see Potters syndrome Unilateral renal agenesis is usually asymptomatic the absence of one kidney being diagnosed incidentally. Some cases of unilateral renal agenesis are diagnosed in the antenatal period on routine midtrimester scanning when no kidney is demonstrated on one side of the abdomen. Care must be taken to check all possible sites for the apparently absent kidney including the pelvis and to consider the possibility of a thoracic kidney or crossed fused ectopia. The contralateral kidney in situations of renal agenesis is usually hypertrophied but otherwise normal. Associated renal abnormalities are common.

39. Brianna S. Toomey kidneys. This birth defect is also known as potters syndrome, and isvery rare, as it occurs in only 1 in 4,000 births. Usually, when http://www.towntimes.com/News/2000/1221/Obituaries/76.html

40. Ask Dr Stoll - Pregnancy And Infants' Illness Post Archive There have been a few posts to the Ask Dr Stoll Bulletin Board (BB) regardingPregnancy and Infants' Illnesses, including potters syndrome. http://askwaltstollmd.com/archives/preg.html

Dr Stoll Home Dr Stoll BB Pregnancy and Infants' Illness Posts to Ask Dr Stoll BB regarding Pregnancy and Infants' Illness There have been a few posts to the Ask Dr Stoll Bulletin Board (BB) regarding Pregnancy and Infants' Illnesses, including Potters Syndrome. Many of them have been archived here. The archive is roughly chronological. I hope you find it useful. The archive also includes some posts on methods of contraception. Choose an archive: Jun Jul Aug Choose a thread of archived posts: December 26, 2002 - pregnancy December 04, 2002 - Dreams and pregnancy November 26, 2002 - varicose veins October 28, 2002 - Childbirth and Me October 04, 2002 - Missing period after baby-long sorry September 09, 2002 - surgery TESTIMONIAL August 28, 2002 - pregnancy and grave's disease June 20, 2002 - A scientific discussion? June 10, 2002 - shingles May 31, 2002 - Baby first solid food? May 18, 2002 - Large ovarian cyst during pregnancy May 03, 2002 - Omega-3 fats for preventing preeclampsia May 03, 2002 - Metagenics April 09, 2002 - breastfeeding and depression March 26, 2002 -

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