1. ClinicalTrials.gov - Linking Patients To Medical Research: Study Details Official Title Evaluation of Antibody Production in primary immune disordersFurther Study Details The purpose of this study is to evaluate antibody http://www.clinicaltrials.gov/ct/gui/show/NCT00023504?order=2

2. Buy The Research Report "Primary Immune Deficiencies - An Overview" Buy The Rese All about DISEASE primary immune disorders from SmartEngine.com Search For . DISEASE primary immune disorders. Featured Web Pages http://redirect-west.inktomi.com/click?u=http://www.findmarketresearch.com/marke

3. Proteus_Syndrome primary immune disorders KIDS Foundation of New Zealand Offer supportto children and adults with primary immune deficiencies. http://www.ability.org.uk/Primary_Immune.html

"see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Primary Immune Disorders KIDS Foundation of New Zealand - Offer support to children and adults with primary immune deficiencies. Primary Immunodeficiency Association Web Site - British information and support group. A B C D ... Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments

4. Institute: National Human Genome Research Institute (NHGRI) Study. 01HG-0232 PET Scanning in Parkinson's Disease. 01-HG-0226Evaluation of Antibody Production in primary immune disorders. 01 http://clinicalstudies.info.nih.gov/cgi/protinstitute.cgi?NHGRI.0.html

5. Planetamber Search Results IMMUNODEFICIENCY primary immune disorders - Ability Links UK link status goodAbility.org see the ability, not the disability Charitable Company number http://www.planetamber.com/scripts/search?type=C&condition=99

6. Primary Immune Deficiency, NIAID Fact Sheet with a faulty immune system, they are said to have a primary immune deficiency or immunodeficiency. of the mouth and diaper area, chronic hepatitis, diarrhea, and blood disorders. http://www.niaid.nih.gov/factsheets/pid.htm

March 2003 Primary Immune Deficiency Contents What is Primary Immune Deficiency? Selective IgA Deficiency Common Variable Immunodeficiency (CVI) X-Linked Agammaglobulinemia (XLA) ... More Information WHAT IS PRIMARY IMMUNE DEFICIENCY? When people are born with a faulty immune system, they are said to have a primary immune deficiency or immunodeficiency. Unlike people with AIDS, caused by the human immunodeficiency virus or HIV, people with primary immunodeficiency (PI) diseases have inherited abnormal changes in the cells of their immune systems . Between 25,000 and 50,000 people suffer from the most serious forms of PI diseases in the United States, but experts believe that many more have milder disease that is not yet diagnosed. Each type of immune system cell has its own special function and must work together with other types to fight disease effectively. Because there are many different types of cells that make up the immune system, an error in any one of them can disrupt our immune defenses. Depending on the cell and the type of error that occurs, more than 80 different forms of PI diseases are possible. Some are severe, while others cause few or no symptoms. Having any of them makes it easier to get infections and other medical conditions. More boys than girls have PI, and first symptoms often begin in infancy or later in childhood. Primary care doctors who suspect a patient has a problem with the immune system will run screening tests. If those tests indicate the person's immune system is not functioning normally, the doctor will consult with a special kind of doctor called a clinical immunologist. The immunologist can run special blood tests to find out the exact type of PI disease and how best to treat it. Other experts the doctor may consult include pulmonologists, rheumatologists, gastroenterologists, and hematologists.

7. Primary Immunodeficiency Association British information and support group for primary immunodeficiencies and other disorders of the immune system. http://www.pia.org.uk/

Home Publications Services Events ... Helpline WELCOME to our website, designed so that you can access even more information that until now has only been available to members of the PiA. All we ask is that you let us have your name and address so that we can send you further details of PiA membership. If you are from outside the UK we will forward your details to the relevant patient organisation for your country. We hope you enjoy visiting our site. Please let us have feed back through our Guestbook so that we can continue to improve our service to the community of people with primary immunodeficiency throughout the UK – and the rest of the world through our international umbrella organisation – The International Patient Organisation for Primary Immunodeficiency (IPOPI). Visit IPOPI at www.ipopi.org and learn more of what is available to you! Fundraising for the PiA on Snowdon last year Can you help?

8. KIDS Foundation Of New Zealand Inc Offer support to children and adults with primary immune deficiencies, immune defects and related blood disorders. http://www.pidsnz.co.nz/home.htm

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9. IPOPI - International Patient Organisation For Primary Immunodeficiencies The primary NIH organization for research on immune System and disorders is the National Institute of Allergy and http://www.ipopi.org/

10. MEDLINEplus: Immune System And Disorders National Institute of Allergy and Infectious Diseases The primary NIH organizationfor research on immune System and disorders is the National Institute of http://www.nlm.nih.gov/medlineplus/immunesystemanddisorders.html

Skip navigation Other health topics: A B C D ... List of All Topics Immune System and Disorders Contents of this page: News From the NIH General/Overviews Anatomy/Physiology ... Women Search MEDLINE for recent research articles on Immune System and Disorders: Immune system Immunologic disorders You may also be interested in these MEDLINEplus related pages: Autoimmune Diseases (General) Immunization/Vaccination Immune System/AIDS Latest News Key Trigger Of Inflammation Uncovered (03/07/2003, United Press International) Immune System Could Fight Brain Cancer (03/03/2003, United Press International) Powerful Technologies Probe Innate Immunity (01/08/2003, National Institute of Allergy and Infectious Diseases) From the National Institutes of Health Primary Immune Deficiency (National Institute of Allergy and Infectious Diseases) When the Body's Defenses are Missing: Primary Immunodeficiency (National Institute of Child Health and Human Development) General/Overviews IDF Patient/Family Handbook for Primary Immune Deficiency Diseases (Immune Deficiency Foundation) Severe Combined Immunodeficiency (Jeffrey Modell Foundation) Understanding Primary Immunodeficiency (Jeffrey Modell Foundation) Anatomy/Physiology Get to Know the Immune System (American Academy of Allergy, Asthma, and Immunology)

11. Immune Disorders Library I J. immune disorders. Learn More About It. Living with primary immuneDeficiency. Information about PID. Severe Combined Immunodeficiency Disease. http://www.familyvillage.wisc.edu/lib_immu.htm

Immune Disorders Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search AltaVista for "Immune Deficiency" Who to Contact Immune Deficiency Foundation (IDF) 25 W Chesapeake Ave., Suite 206 Towson, Maryland, USA 21204 Fax: (410) 321-9165 The Immune Deficiency Foundation's mission is to directly help children and adults with Immune Deficiency, fund medical research, provide information, support, and education to the parents of children with IDF, patients, and health care professionals. The Foundation has local support groups with a directory available through their newsletter. They provide assistance to individuals who wish to start a support group in their locality. They provide parent-to-parent matching through their local chapters. IDF publishes a quarterly newsletter, IDF National Newsletter , at no cost to members, and have brochures that contain general information about the condition and the organization. They also have a patient sample packet that they send to new parents and others who have an interest in the condition. The Foundation has a bibliography of books and articles that are free to members, and books, videos and slide sets that are available for purchase. Included in these are a video

12. Primary Immune Deficiency Disorders Stiehm ER (ed) Immunologic disorders in Infants and Children, 4th ed. WB Saunders, 1996. Side Effects of Therapy. primary immune DEFICIENCY DISEASES http://www.pedid.chkd.org/098.htm

Chapter 98 Anthony J. Infante Reviews Hong R: Update on the immunodeficiency diseases. Am J Dis Child Ochs H, Smith CE, Puck JM: Primary Immunodeficiency diseases: A Molecular and Genetic Approach . New York, NY: Oxford University Press, 1998. Rosen FS, Cooper MD, Wedgwood RJ: The primary immunodeficiencies. N Engl J Med Shyur SD, Hill HR: Immunodeficiency in the 1990s. Pediatr Infect Dis J Stiehm ER (ed): Immunologic Disorders in Infants and Children , 4th ed. WB Saunders, 1996. World Health Organization Scientific Group. Primary immunodeficiency diseases: Report of a WHO scientific group. Clin Exp Immunol 1997;109(Suppl 1):1-28 References by Chapter Heading NONSPECIFIC CAUSES OF INCREASED SUSCEPTIBILITY TO INFECTION Anatomic Causes Metabolic Factors Environmental Influences Side Effects of Therapy PRIMARY IMMUNE DEFICIENCY DISEASES Shyur S-D, Hill HR: Recent advances in the genetics of primary immunodeficiency syndromes. J Pediatr Classification World Health Organization Scientific Group. Primary immunodeficiency diseases: Report of a WHO scientific group.

13. Immunologic Diseases -- Immune Deficiency Diseases developing new treatments for children with primary immunodeficiency diseases clinicalresearch to understand and treat immune deficiency disorders. http://www.niaid.nih.gov/final/immds/immdef.htm

50 YEARS NIAID HOMEPAGE INFECTIOUS DISEASES IMMUNOLOGIC DISEASES AIDS ... NIH HOMEPAGE Part of the Immune System is Missing W hen one or more parts of the immune system are missing, the result is an immune deficiency disease. These diseases can be inherited, acquired through infections or other illness, or induced as a side effect of drug treatment. The acquired immunodeficiency disease (AIDS) is well-known. Many so-called primary immunodeficiency diseases, which are inherited, are less common. Doctors are developing new treatments for children with primary immunodeficiency diseases. Bone marrow transplants In the 1960s, NIAID grantees conducted pioneering basic and clinical research to understand and treat immune deficiency disorders. They discovered that our bodies have two major types of immunityantibody-mediated and cell-mediated immunity. Pathways to both types originate in stem cells produced in the bone marrow. One pathway generates B cells in the lymph nodes and spleen, producing different antibodies keyed to specific invaders. The second, centered in the thymus gland, generates T cells that directly attack their targets.

14. DIRECTORY.TERADEX.COM - Health/Fitness/Diseases/Immune Disorders/Immune Deficien British information and support group for primary immunodeficiencies and other disorders of the immune system. http://directory.teradex.com/Health_Fitness/Diseases/Immune_Disorders/Immune_Def

preloadImages('as_free_x-mail_s','as_anonymous','as_ad-space'); Add your Web Site Add Search to your Site Search for: Search through: Entire site Immune Deficiency AIDS Severe Combined Immunodeficiency DIRECTORY Health/Fitness ... CGD Home Page - Chronic granulomatous disease website. CGD is an immune system disorder which affects the phagocytes. The website has information and a message board. CIPO Home Page - Canadian Immunodeficiencies Patient Organization Home Page. Information in English and French. Cd5 - Cd19 PID - Cd5 - Cd19 PID, involves a complete and total lack of response to polysaccharide antibodies and an extremely high expression of Cd5+ B-cells. How Stuff Works: Immune System - Describes the immune system and discusses related topics such as allergies and AIDS. Hyper IgM Homepage - Description of the disease Hyper IgM Immunodeficiency, AKA CD40Ligand Deficiency. Useful links and an associated support listserv. IPOPI - Official site of the International Patient Association for Primary Immunodeficiencies. Immune Deficiency Foundation - National, non-profit organization to improve the diagnosis and treatment of patients with primary immunodeficiency diseases through research and education.

15. Immune Deficiency Foundation - Clinical Presentation Of The Primary Immune Defic classifying the primary immunodeficiency diseases is according t which functionalcompartment of the immune system is impaired. Thus, there are disorders that http://www.primaryimmune.org/library/physician/page1.htm

THE CLINICAL PRESENTATION OF THE PRIMARY IMMUNODEFICIENCY DISEASES A PRIMER FOR PHYSICIANS INTRODUCTION THE PRIMARY IMMUNODEFICIENCY DISEASES The primary immunodeficiency diseases are a group of disorders in which the primary defect appears to be intrinsic to one or more components of the immune system. The immune system is conveniently divided into four functional compartments: The B-lymphocyte system The T-lymphocyte system the Phagocytic system The Complement system Each of these functional compartments of the immune system plays a critical role in host defense against infection and inflammation. Although they each have specific roles in the normal function of the immune system, each works best when functioning in concert with the others. Some of the more common primary immunodeficiency diseases are listed in the table. One of the most useful ways of classifying the primary immunodeficiency diseases is according t which functional compartment of the immune system is impaired. Thus, there are disorders that affect the B-lymphocyte system, disorders that affect the T-lymphocyte system, disorders that affect both the B- lymphocyte and T-lymphocyte systems, disorders that affect the phagocytic system, and disorders that affect the complement system. Table of Contents Next Page Readers may redistribute this article to other individuals for noncommercial use, provided that the text, html codes, and this notice remain intact and unaltered in any way, The Clinical Presentation of the Primary Immune Deficiencies may not be resold, reprinted or redistributed for compensation of any kind without prior written permission from The Immune Deficiency Foundation. If you have any questions about permission, please contact: The Immune Deficiency Foundation, 25 West Chesapeake Avenue, Suite 206, Towson, MD 21204, or by telephone: 1-800-296-4433 or by e-mail

16. Google Directory - Health > Conditions And Diseases > Immune Disorders > Immune British information and support group for primary immunodeficiencies and other disorders of the immune system. http://directory.google.ch/Top/Health/Conditions_and_Diseases/Immune_Disorders/I

Directory Help Search only in Immune Deficiency Search the Web Immune Deficiency Health Conditions and Diseases Immune Disorders Go to Directory Home Categories AIDS Severe Combined Immunodeficiency Related Category: Web Pages Viewing in Google PageRank order View in alphabetical order NORD-National Organization For Rare Disorders http://www.rarediseases.org/ Offering discussions, resources, links, and synonyms for many immune deficiencies. Immune Deficiency Foundation http://www.primaryimmune.org/ National, non-profit organization to improve the diagnosis and treatment of patients with primary immunodeficiency diseases through research and education. ImmuneDisease.com http://www.immunedisease.com In-depth information for consumers and healthcare professionals on immunology, primary immune deficiency diseases, and treatment with intravenous immune globulin. Primary Immunodeficiency Association http://www.pia.org.uk/ British information and support group for primary immunodeficiencies and other disorders of the immune system. IPOPI http://www.ipopi.org/

17. NIH Guide: GENE TRANSFER FOR PRIMARY IMMUNE DEFICIENCY primary immune DEFICIENCY NIH GUIDE, Volume 24, Number 10, March 17, 1995 PA NUMBER PA95-039 P.T. 34 Keywords Gene Therapy+ immune System disorders http://grants1.nih.gov/grants/guide/pa-files/PA-95-039.html

Return to PA Index Return to NIH Guide Main Index Department of Health and Human Services National Institutes of Health (NIH) 9000 Rockville Pike Bethesda, Maryland 20892

18. The Health Library — Immune System Diseases and disorders immune System. Syndrome (AIDS) Allergies AutoimmuneDiseases General immune System primary immune Deficiency Diseases http://healthlibrary.stanford.edu/resources/internet/bodysystems/immune.html

Diseases and Disorders Use these links to jump directly to your topic of interest: Acquired Immune Deficiency Syndrome (AIDS) Allergies Autoimmune Diseases General Immune System ... Transplantation Immunology Immune System: Page 1 Page 2 Page 3 General Immune System The Immune System:National Institute of Allergies and Infectious Diseases (NIAID) Understanding the Immune System:National Cancer Institute Body Guide: Immune System:Wake Forest Medical Center Genes and Disease: The Immune System:National Center for Biotechnology Information ... Immune System and Disorders:MEDLINEplus Transplantation Immunology Graft-versus-Host Disease (GVHD):Johns Hopkins Cancer Center Graft-vs.-Host disease:Hendrick Health System Immunobiology of Rejection:Merck Manual Acquired Immune Deficiency Syndrome (AIDS) General Information AIDS:MEDLINEplus HIV Infection and AIDS: An Overview:NIAID HIV InSite:University of California, San Francisco HIV InSite Knowledge Base:University of California, San Francisco and San Francisco General Hospital ... Encyclopedia of AIDS : A Social, Political, Cultural, and Scientific Record of the HIV Epidemic:netLibrary AIDS and Infections AIDS and Infections:MEDLINEplus Opportunistic Infections:New Mexico AIDS InfoNet Infections Associated With HIV:HIV InSite Opportunistic Infections and Conditions (Index):Project Inform HIV/AIDS Treatment Treatment of HIV Infection:NIAID Anti-HIV Treatments (Index):Project Inform Immune-Based Therapies:Project Inform Overview of Antiretroviral Drugs:HIV InSite ... Treatment Guidelines:HIV InSite See also

19. The Health Library — Nervous System And Brain disorders Peripheral Nervous System Diseases Sleep disorders Spinal Cord AtaxiaTelangiectasia, see immune System, primary immune Deficiency Diseases. http://healthlibrary.stanford.edu/resources/internet/bodysystems/nervoussystem2.

Diseases and Disorders Use these links to jump directly to your topic of interest: Anatomy Autoimmune Nervous System Diseases Brain Diseases Brain Injury ... Transplantation Nervous System and Brain: Page 1 Page 3 Page 4 Page 5 ... Page 9 Dementias General Information Dementia:MEDLINEplus Forgetfulness:It's Not Always What You Think: National Institute on Aging (NIA) Dementia:Family Caregiver Alliance Mild Cognitive Impairment (NIA Memory Impairment Study):NIA ... Tauopathies: New Discoveries, New Knowledge:NIA Alzheimer's Disease Alzheimer's Disease:MEDLINEplus Alzheimer's Disease:National Institute of Mental Health (NIMH) About Alzheimer's Disease:NIA Alzheimer's Disease,Unraveling the Mystery: NIA ... Let's Talk About When Someone You Love Has Alzheimer's Disease:netLibrary [for Kids] Speaking Our Minds : Personal Reflections From Individuals With Alzheimer's:netLibrary Early-Stage Alzheimer's Disease:Family Caregiver Alliance Alzheimer's Disease and Plaques:Society for Neuroscience Interpreting Alzheimer's Abnormalities:Society for Neuroscience ... Early-Onset Familial Alzheimer Disease:GeneReviews, University of Washington See also Senior Health, Alzheimer's Care

20. IPOPI - International Patient Organisation For Primary Immunodeficiencies primary immune DEFICIENCY or primary IMMUNODEFICIENCY disorders often go undetectedbecause many doctors are unfamiliar with them and only treat the symptoms http://www.ipopi.org/publications/living_with_pid/

A helpful guide for patients and caregivers By Sara J. LeBien CONTENTS: Section One WHAT HAPPENS AFTER THE DIAGNOSIS Section Two WHAT TO EXPECT AS YOUR CHILD GROWS OLDER Section Three ADULT ONSET Section Four IMPORTANT ELEMENTS FOR SUCCESSFUL COPING ... Section Eight HELPFUL PUBLICATIONS PREFACE This booklet is written by an American mother of an adult son with a primary immune deficiency disorder; common variable immune deficiency and chronic malabsorption. It represents her family's experiences of living with chronic illness over a period of thirty seven years, and her interaction with other parents of children with primary immune deficiency as well as adult patients. She addresses the emotional side effects of this disorder, and includes experiences of other parents of pediatric primary immune deficiency patients and adult patients who kindly offered suggestions from their personal experiences. In addition, there are quotes from other publications that focus on living with chronic illness. It is our hope that this booklet will help you be better prepared for what you may encounter, and that it offers practical suggestions for coping with typical daily challenges. In addition, it may help you maintain a more stable management of your loved one's health, as well as maintain your family's stability while living with chronic illness. It is encouraging to know that cures are being found for some of these disorders.

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