1. Primary Progressive Aphasia Informational resources and a description of services offered by the PPA Program of Northwestern Universi Category Health Conditions and Diseases Aphasia......primary progressive aphasia and Related Disorders Join our newslettermailing list. Connect to primary progressive aphasia Databases. http://www.brain.nwu.edu/core/ppa.htm

2. Understanding Primary Progressive Aphasia An article with a description, assistance available and where to obtain additional information. http://www.aphasia.org/NAAppa.html

Printed Date: Spring 1997 Updated: January 17, 2001 PRIMARY PROGRESSIVE APHASIA is a rare neurological syndrome in which language capabilities become slowly and progressively impaired. This information sheet was prepared by the National Aphasia Association to help explain the condition of Primary Progressive Aphasia to the general public. What is aphasia? Aphasia is an acquired disorder caused by brain damage which affects a person's ability to communicate. The principal signs of aphasia are impairments in the ability to express oneself when speaking, trouble understanding speech, and difficulty with reading and writing. Aphasia is most often the result of stroke or head injury, but can also occur in other neurological disorders, such as brain tumor or Alzheimer's disease. The effects of aphasia differ from person to person, and can sometimes benefit from speech therapy. Strategies to communicate non-verbally (without words) may also be helpful to the person with aphasia. What is primary progressive aphasia?

3. Understanding Primary Progressive Aphasia NAA's State Representatives The National Aphasia Association is fortunate to havea national network of health professionals who volunteer to respond to http://www.aphasia.org/NAAspeech.html

Special Request Information Summary: How to Find a Speech-Language Pathologist NAA's State Representatives The National Aphasia Association is fortunate to have a national network of health professionals who volunteer to respond to questions from families. Called "NAA State Representatives", these health professionals are experienced clinicians and researchers in the area of speech-language pathology who can advise families about the resources available in their area. The roster of their names, professional affiliations and phone and e-mail listings are available by: calling the NAA toll-free number (800-922-4622) and requesting that the listing be mailed to your home; or accessing the listing on NAA's website under the "People Helping People" icon on the homepage of www.aphasia.org American Speech-Language and Hearing Association (ASHA) ASHA is the national certifying body for speech-language pathologists. The initials CCC after a speech-language pathologist's name indicate "Certificate of Clinical Competence". To earn this designation, a speech-language pathologist must complete specified course work (master's level coursework is the entry level for speech-language pathologists, and some choose to complete doctoral level coursework)

4. References: Primary Progressive Aphasia & AAC References primary progressive aphasia AAC Compiled by Margaret A. Rogers, Julia M. King Nancy B. Alarcon from a chapter to appear (July of 2000) in the following volume http://aac.unl.edu/reference/PPA_AAC.html

from a chapter to appear (July of 2000) in the following volume: Augmentative Communication for Adults with Neurologic and Neuromuscular Disabilities Edited by: David R. Beukelman, Kathryn Yorkston, and Joe Reichle Paul H. Brookes Publishing Co., Inc. Aphasiology,11(12) Comptes Rendus des Seances de laSociete de Biologie (Paris), 49 Aphasiology Archives of Physical Medicine and Rehabilitation, 77 Annals of Neurology Augmentative communication in the medical setting (pp. 245-338). Tucson, AZ: Communication Skill Builders. Neurology Neurology Neurology Aphasiology Journal of the InternationalNeuropsychological Society Archives of Neurolology Journal of Neurology, Neurosurgery, and Psychiatry Archives of Neurology, Journal ofCommunication Disorders Light, J. C. (1988). Interaction involving individuals using augmentative and alternative communication systems: State of the art and future directions. Augmentative and Alternative Communication, 4, Building communicative competence with individuals who use augmentative and alternative communication. Baltimore: Paul H. Brookes Publishing.

5. Primary Progressive Aphasia Alzheimers Disease Center. primary progressive aphasia (PPA) Program. primary progressive aphasia (PPA) is http://www.brain.northwestern.edu/core/ppa.htm

6. Issue 3 primary progressive aphasia Newsletter August 1997. This month marks theoneyear anniversary of our primary progressive aphasia news group. http://www.brain.nwu.edu/core/ppa3.htm

7. Issue 1 Quick Link. primary progressive aphasia Newsletter. July 1996 http://www.brain.northwestern.edu/core/ppa1.htm

8. Pick's Disease Support Group - Primary Progressive Aphasia, Pick's Disease Suppo Factsheets (CANDID). primary progressive aphasia Extract from the PPAnewsletter issued by Dr. Nancy Johnson, Northwestern University http://www.pdsg.org.uk/Factsheets/PPAphasia.htm

PDSG Newsletters Latest Archive Information Communication Factsheets General Internet Forum Messages Join YahooGroups Events Meetings Roadshow Contacts Email Directory PDSG Phone Directory Articles Caregivers Home Alone Poetry Factsheets (C.A.N.D.I.D.) Primary Progressive Aphasia Extract from the PPA newsletter issued by Dr. Nancy Johnson, Northwestern University Medical School, The Cognitive Neurology and Alzheimer Center, Chicago. Primary Progressive Aphasia (PPA) is a disorder caused by degenerative diseases of the brain, in which speech and language functions deteriorate gradually over a period of years, while memory and other abilities remain relatively preserved. This form of dementia tends to occur more often in men than in women. SYMPTOMS: Symptoms can begin as early as the 40's, but can appear any time afterwards. Initially, the symptoms of PPA are confined exclusively to the area of language functions. The types of language difficulties that occur differ between patients, but generally involve things such as the following: Increased difficulty thinking of words substituting the wrong word (e.g. "school" for "work")

9. Pick's Disease Support Group - Caregiver Stories, Pick's Disease Support Group - and because its symptoms are so easy to confuse with something else often Alzheimer'sdisease in the case of the primary progressive aphasia patients, or http://www.pdsg.org.uk/articles/JDFC-2.htm

PDSG Newsletters Latest Archive Information Communication Factsheets General Internet Forum Messages Join YahooGroups Events Meetings Roadshow Contacts Email Directory PDSG Phone Directory Articles Caregivers Home Alone Poetry The following article is reproduced by kind permission of the John Douglas French Center for Alzheimer's Disease and appeared in Volume X of their Journal Page 1 Page 3 Page 4 It's only been in the last two years that autopsy findings have confirmed the existence of a degenerative disease called frontotemporal dementia, distinct from Alzheimer's disease. As the name suggests, FTD affects the brain's frontal and temporal lobes (in marked contrast to Alzheimer's, which tends to originate in the back of the brain before spreading forward). In some cases, Pick bodies can be found in the brains of frontotemporal dementia patients, but Pick's is now thought to be only one of several subtypes of a disease that is probably more common than was previously believed, representing as much as 20 percent of all dementias. FTD is considered a pre-senile dementia, typically becoming symptomatic when patients are in their 50s and 60s. Its progression is thought to be slow; in fact, some experts suspect that the process may begin decades before symptoms become apparent.

10. Primary Progressive Aphasia My mother has been diagnosed with primary progressive aphasia. Her memory and speech are affected. http://neuro-www.mgh.harvard.edu/neurowebforum/StrokeArticles/PrimaryProgressive

Primary Progressive Aphasia This response submitted by Ann Allan on 5/21/96. Author's Email: Allan_ann@prc.com My mother has been diagnosed with primary progressive aphasia. Her memory and speech are affected. She has had this for about 1.5 years and is getting noticeably worse. If you know anyone that has any research or know if any medical facility is doing research or developing medicine for this I would appreciate you contacting me via e-mail. She has gone to Duke University and has had some tests done. Her Dr. there is Dr. Burke. He indicates that there are only about 1,000 people known to have this and that he doesn't know of anyone doing research. We need help if it's out there. You can contact me via e-mail address: Allan_ann@prc.com or home address is 46881 Ducksprings Way, Sterling, VA 20164. Thanks for your help! Next Article Previous Article Return to Main Article Article complete. Click HERE to return to the Neurology Web-Forum Menu.

11. AAC-Medicare Resources diseases. primary progressive aphasia. AACMedicare WWW Site. For QuestionsBooks Dealing with primary progressive aphasia and AAC. Beukelman http://aac.unl.edu/AACMedicare.html

AAC-Medicare Resources Amyotrophic Lateral Sclerosis Also known as ALS and Lou Gehrig disease AAC-Medicare WWW site For information about Medicare Policy, Procedures, Sample Assessment Reports, and Frequently Asked Questions Books with Chapters Dealing with AAC Interventions for Persons with ALS Augmentative and alternative communication: Management of severe communication disorders in children and adults (Second Edition). Baltimore: Paul H. Brookes Publishing Co. Augmentative and alternative communication for adults with acquired neurologic disorders. Baltimore, MD: Paul H. Brookes Publishing Co. Speaking up and spelling out: Personal essays on augmentative and alternative communication. Baltimore, MD: Paul H. Brookes Publishing Co. Management of speech and swallowing disorders in degenerative disease. Austin, TX: Pro-ed. Reference List AAC for Persons with ALS WWW Sites of Interest PALS American ALS Society Amyotrophic lateral sclerosis Neurological diseases Non-Progressive Aphasia and Apraxia AAC-Medicare WWW site For information about Medicare Policy, Procedures, Sample Assessment Reports, and Frequently Asked Questions Books Dealing with AAC and Non-progressive Aphasia and Apraxia Augmentative and alternative communication: Management of severe communication disorders in children and adults (Second Edition). Baltimore, MD:

12. Primary Progressive Aphasia A Network Model For Neurodegenerative Grand Rounds on the Internet. primary progressive aphasia A Network Model for Neurodegenerative Dementia http://www.psychiatry.uchicago.edu/grounds/020325

13. Primary Progressive Aphasia Question Answer Archive. primary progressive aphasia. But primary progressive aphasia(PPA), which I don't know a lot about has been in the back of my mind. http://www.brain.northwestern.edu/core/Q&A/Q&A-ppa.htm

14. DIRECTORY.TERADEX.COM - Health/Fitness/Diseases/Neurological Disorders/Dementia/ primary progressive aphasia A description of what this is, the symptoms and its course. http://directory.teradex.com/Health_Fitness/Diseases/Neurological_Disorders/Deme

preloadImages('as_free_x-mail_s','as_anonymous','as_ad-space'); Add your Web Site Add Search to your Site Search for: Search through: Entire site Primary Progressive Aphasia DIRECTORY Health/Fitness Diseases Neurological Disorders ... Understanding Primary Progressive Aphasia - An article with a description, assistance available and where to obtain additional information. WebMD Live Chat Transcript: - Living with aphasia with Martha Taylor Sarno, MD. Submit Premium Listing! $10 for two years Sign Up User Name: Password: Edit in Real Time, Banner Placement Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor This site is presented in modified Open Directory form E-Mail: webmaster@teradex.com Aaex Corp.

15. Primary Progressive Aphasia A Case Report primary progressive aphasia has been clinically defined as progressive language deficit leading to the dissolution of http://www.pedtoraks.kongresi.net/~norolbil/2000/2000_1_10.htm

16. Student Resources Lecture 3 primary progressive aphasia. Lecture 4 - Dyspraxia and Psychosocialissues of Aphasia (Word version). Lecture 3 - primary progressive aphasia. http://www.city.ac.uk/lcs/stud_resource.htm

Text Version Prospective Students Current Students Staff ... Help General Resources How to take online quizzes using WebCT (Shawn Mayall) How to make a poster (Bencie Woll) - Details Sample Presentation (Powerpoint Version) Sample Presentation (Word Version) Examination Resources Topic guide for Communication Disabilities 1 paper Topic guide for Communication Disabilities 2 paper Topic guide for Communication Disabilities 3a paper Topic guide for Communication Disabilities 3b paper Lecture Resources The following lecture notes have been provided: BSc Year One - Muscle Lecture Powerpoint Presentation (Gary Baker) STUDY SKILLS (Frances Elton/Ros Herman) BSc Year Two COMMUNICATION DISABILITIES - Dysphagia (Trudi Minns) Lecture 17th January 2003 Lecture 24th January 2003 DISORDERS OF FLUENCY - Course Notes (Roberta Williams) DISORDERS OF FLUENCY - Booklist (Roberta Williams) DEVELOPMENTAL STUDIES - Speech Development Powerpoint Slides ( Speech Perception Oral/Speech Motor Development Speech Vocal Development ... ENT - Anatomy Lecture (Nick Saunders) MEDICAL ASPECTS - NEUROLOGY I - Embryology lecture (Martha Tyrone) MEDICAL ASPECTS - NEUROLOGY I - Guide to Brainstorm (Martha Tyrone) MOTOR SPEECH DISORDERS (Trudi Minns) Lecture 1 (Word) - Lecture 1 Handout Lecture 2 - Assessment of Dysarthria Lecture 3 - Dysarthria Management Lecture 4 - Dysarthria Management BSc Year Three INTERVENTION - Assessment (James Law) COMMUNICATION DISABILITIES - Developmental Language Impairment Introduction (James Law)

17. Primary Progressive Aphasia: A Network Model For Neurodegenerative Dementia Grand Rounds on the Internet. primary progressive aphasia A Network Modelfor Neurodegenerative Dementia. Sandra Weintraub, PhD Professor http://psychiatry.uchicago.edu/grounds/020325/

Psychiatry Home Directory Research Treatment ... Grand Rounds Grand Rounds on the Internet Primary Progressive Aphasia: A Network Model for Neurodegenerative Dementia Sandra Weintraub, PhD Northwestern University Chicago, IL 3 pm March 25, 2002 (click on picture to start presentation) Version 5 of QuickTime is required and free. If you don't already have it, just go to the download page , fill in the form, and click "Download QuickTime". If this still doesn't work, please first check your installation of QuickTime. If this *still* doesn't work, let me know. Sorry, but we're not able to offer HTTP streaming (at least not yet). Psychiatry Home Directory Research Treatment ... Hospitals University of Chicago Department of Psychiatry 5841 South Maryland Avenue, MC 3077, Chicago, Illinois 60637 Revised: April 12, 2002 Developed by: Robert Hsiung, MD, dr-bob@uchicago.edu URL: http://psychiatry.uchicago.edu/grounds/020325

18. Curriculum Vitae Montreal, Quebec, Canada Ph.D. (Clinical Psychology) Thesis title A VariationOf Forms The Cognitive Neuropsychology Of primary progressive aphasia. http://www.ualberta.ca/~chrisw/CFWCV.html

Curriculum Vitae Name: Chris F. Westbury Work Address: Department Of Psychology P217 Biological Sciences Bldg. University Of Alberta Edmonton, Alberta T6G 2E1 Canada Telephone: (780) 492-5275 E-mail: chrisw@ualberta.ca Education: - 1988- 1995: McGill University, Montreal, Quebec, Canada Ph.D. (Clinical Psychology) Thesis title: A Variation Of Forms: The Cognitive Neuropsychology Of Primary Progressive Aphasia September, 1992- 1993- Clinical Internship (Cognitive Therapy) Allan Memorial Institute, Montreal, Quebec, Canada September, 1991- 1992- Clinical Internship (Neuropsychology) Montreal Neurological Institute, , Montreal, Quebec, Canada - 1986-1988: McGill University, Montreal, Quebec, Canada B.A., Psychology Major - 1981-1982, 1983-1986: McGill University, Montreal, Quebec, Canada B.A., Philosophy Major; Computer Science Minor - 1982-1983: American College In Paris, Paris, France Publications: A.) Peer-reviewed publications

19. NCNCD Site: TELEROUNDS 33 primary progressive aphasia Presenter Andrew Kertesz, MD, FRCPC. Primary progressiveaphasia (PPA) is a relatively common syndrome of degenerative dementia. http://cnet.shs.arizona.edu/telerounds/past/33.html

Home Continuing Education TELEROUNDS Past TELEROUNDS (All) March 31, 2003 Search NCNCD Advanced Site Map Quick Links CenterNet Site Survey InfoNet PhotoMural ... TELEROUNDS "Primary Progressive Aphasia" Presenter: Andrew Kertesz, M.D., FRCPC Primary progressive aphasia (PPA) is a relatively common syndrome of degenerative dementia. It is defined as a slowly progressive language disturbance that is relatively isolated from other cognitive deficits for at least two years. In the end-stage, mutism often develops, frontal behavioral changes, extra-pyramidal deficits, and occasionally amyotrophic lateral sclerosis, may be superimposed. The pathology is often Pick's disease or related non-Alzheimer's pathology described as "Pick complex." Most PPAs begin with anomia but eventually become nonfluent. Occasionally a fluent type of aphasia develops with "semantic dementia." Related Sections Video Tape Order Form TELEROUNDS Listserv National Center for Neurogenic Communication Disorders The University of Arizona P.O. Box 210071 Tucson, AZ. 85721-0071

20. A GUIDE FOR ALZHEIMER'S CARERS -Primary Progressive Aphasia SEEKING A DIAGNOSIS primary progressive aphasia. Primary ProgressiveAphasia (PPA) is a disorder caused by degenerative diseases http://www.caringforcarers.net/diagnosis/dic3.html

SEEKING A DIAGNOSIS PRIMARY PROGRESSIVE APHASIA Primary Progressive Aphasia (PPA) is a disorder caused by degenerative diseases of the brain, in which speech and language functions deteriorate gradually over a period of years, while memory and other abilities remain relatively preserved. Symptoms can begin as early as the 40's, but can appear any time afterwards. Initially, the symptoms of PPA are confined exclusively to the area of language functions. This can involve things such as increased difficulty thinking of words, problems reading or writing and reduced ability to understand speech. Sufferers may also lose ability to perform even simple mathematical operations and thus are no longer able to handle money. However, as the disease progresses, eventually other abilities such as memory, attention, personality and behaviour, diminish as well. Patients with PPA can give the impression that they can't remember because they usually can't express themselves well. However, the fact that their memory system is working relatively well is apparent from their actions: they are able to perform activities of daily living independently. They do not get lost. They continue to perform daily chores and routines. This form of dementia tends to occur more often in men than in women.

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