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  1. The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10
  2. Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

61. Privattandvård I Örebro, Tandläkaren Michel Deaibes, Sjukdomslista På Engels
Panic. Parasitic Infections. Paresthesia. Parkinson's Disease. Parryrombergs syndrome.Patellofemoral Disorder. Pathological Gambling. Pectus Excavatum. Pediculosis.
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62. Friendly Faces -- External Links
Incorporated (NFI) NEVUS Nevus Outreach ORAL FACIAL DIGITAL SYNDROME NORD Entryfor Oral Facial Digital Syndrome PARRYrombergs syndrome The Romberg's
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The American Cleft Palate-Craniofacial Association

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APERT SYNDROME
apert.org (Teeter's page)

ATRESIA/MICROTIA
Reconstructive Ear Surgery for Microtia

Microtia Resource Guide

The Microtia And Aural Atresia Division
BECKWITH-WIEDEMANN SYNDROME The Beckwith-Wiedemann Support Network Beckwith-Wiedemann Syndrome Website NORD Entry for Beckwith-Wiedemann Syndrome BELL'S PALSY National Institute of Neurological Disorders and Stroke (NINDS) Entry Trigeminal Neuralgia Association BURNS The Phoenix Society for Burn Survivors Inc. CANCER National Cancer Institute Cancer Resources Guide The Oral Cancer Information Center Support for People with Oral and Head and Neck Cancer ... National Coalition for Cancer Survivorship (NCCS) CHARGE SYNDROME/ASSOCIATION CHARGE Syndrome Foundation NORD Entry for CHARGE Syndrome The American Cleft Palate-Craniofacial Association Cleft Palate Foundation ... Cleft Notes CRANIOSYNOSTOSIS Craniosynostosis and Parents Support, Inc.

63. Parry-Rombergs Syndrome
All Format Long Search Words Top Health Consumer Support Groups FacialDifferences Parryrombergs syndrome The Romberg's
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    The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.

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64. Open Classes's $p->page_title
Open Directory Health Support Groups Conditions and DiseasesFacial Differences Parry-rombergs syndrome Previous Catagory.
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  • Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information.
  • Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
  • The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome.
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65. You're Not Alone If You're Online - Support Groups
The Rombergs Connection is an international support group made up of over 100individuals and families whose lives are affected by rombergs syndrome.
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66. Romberg's Syndrome
one click … For Medical Professionals only. Romberg's syndrome,,Print this article, (Moritz Romberg, 1795–1873, German neurologist
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*For Medical Professionals only, registration required Romberg's syndrome, (Moritz Romberg, 1795–1873, German neurologist), wasting of the soft tissues on one side of the face with a sharp delineation. It may be associated with alopecia and neurological disorders such as trigeminal neuralgia, Horner's syndrome and epilepsy. Radiologically, there may be bone atrophy corresponding to the site of the soft tissue atrophy.
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67. Links SQL Health/Support Groups/Conditions And Diseases/Facial
Cleft Lip and Palate (0). Craniosynostosis (0). LangerGiedion Syndrome (0).Parry-rombergs syndrome (0). Sagittal Synostosis (0). Stickler's Syndrome (0).
http://www.4allwebmasters.com/Health/Support_Groups/Conditions_and_Diseases/Faci

68. 1Up Health > Health Links Directory > Support Groups: Conditions And Diseases: F
Support Groups Conditions and Diseases Facial Differences ParryRombergsSyndrome . Uncover resources and links to Web sites
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Stories from people affected by Parry Romberg syndrome, support and information.
Parry Romberg Syndrome Information Page
Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome General information, contacts, on-line discussion groups and links. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Parts of the directory made available on 1UpHealth have been modified. External Web site links provided on this site are meant for convenience and for informational purposes only; they do not constitute an endorsement. Search: The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only they do not constitute endorsements of those other sites.

69. Page 2
JacksonWeiss, Langer-Geidon, Parry-rombergs, Pfeiffer, Pierre-Robin, Russell LangerGiedion Langer-Giedion syndrome Association National Organization of Rare
http://members.tripod.com/~Craniofacial/page2.htm
J - Z
The Craniofacial Disorders indexed on this page are: Jackson-Weiss, Langer-Geidon, Parry-Rombergs, Pfeiffer, Pierre-Robin, Russell-Silver, Saethre-Chotzen, Sagittal Synostosis, Shprintzen-Goldberg, Stickler, and Treacher-Collins. Page 1 includes Antley-Bixler, Apert, Arhinia, Baller-Gerold, Carpenter, Craniosynostosis, Crouzon and Goodman.
Jackson-Weiss
National Organization of Rare Disorders
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Langer-Giedion Syndrome Association
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70. Rombergs Connection
rombergs Connection httphttp//www.geocities.com/HotSprings/1018/ Our primary purposeis to locate other people with Romberg's syndrome, (also known as Parry
http://www.pslgroup.com/dg/3d7b2.htm

71. Health Library - Parry Romberg Syndrome
In most cases, ParryRomberg syndrome appears to occur randomly for unknown reasons 550First Avenue New York, NY 10016 Tel (212)340-5400 rombergs Connection c
http://health_info.nmh.org/Library/HealthGuide/IllnessConditions/topic.asp?hwid=

72. Facial Neuralgia Resources: Template Conditions
ParryRomberg syndrome appears to occur randomly for unknown reasons (sporadically).Online Resources Contact T. Hildebrand c/o The rombergs Connection 4106
http://facial-neuralgia.org/conditions/romberg.html
Facial Neuralgia
Resources
Together, we can make a difference facial-neuralgia.org
Last Updated TABLE OF CONTENTS HOME CONDITIONS Facial Neuralgias Other Cranial Neuralgias ... SITE MAP PARRY-ROMBERG SYNDROME
Related Disorders DESCRIPTION CAUSES SYMPTOMS ONLINE RESOURCES The names Progressive Facial Hemiatrophy, Progressive Hemifacial Atrophy, Romberg Syndrome, PRS, HFA are synonyms for this disorder TAKE A CLOSER LOOK READ ABOUT KELLEY , an extraordinary little girl who suffers from Parry-Romberg Syndrome, in an article published in the Rocky Mountain News. Don't miss reading the MANY MESSAGES sent to her from people all over the world. The following information is excerpted from the National Organization for Rare Disorders, Inc.database on rare disorders and is posted in compliance with the FAIR USE DOCTRINE and is for educational purposes only and not for commercial use. Description
Parry-Romberg Syndrome is a rare disorder characterized by slowly progressive wasting (atrophy) of the soft tissues of half of the face (Hemifacial atrophy.) It was described in the last century by Parry (1825) and Henoch and Romberg (1846).

73. NORD - National Organization For Rare Disorders, Inc.
Organizations related to Parry Romberg syndrome Epilepsy Foundation 4351 GardenCity Drive rombergs Connection c/o T. Hildebrand Chicago IL 60415 Phone N/A
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Parry Romberg

74. NORD - National Organization For Rare Disorders, Inc.
Polychondritis Educational Society Progressive Supranuclear Palsy (PSP Europe)Association rombergs Connection RothmundThomson syndrome Pages Sarcoidosis
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75. Neuro
of Chronic Illness Ramsey Hunt syndrome Reflex Sympathetic Dystrophy Repetitive StrainInjury Reye syndrome Reye syndrome rombergs Disorder Sensation Disorders
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76. Canadian Directory Of Genetic Support Groups
Restless Legs syndrome, Nocturnal Myoclonus) Retinoblastoma Family Association (Retinoblastoma)rombergs Connection (Parry Romberg syndrome) (Romberg syndrome
http://www.lhsc.on.ca/programs/medgenet/r_sup.htm

Index by
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77. Parry Romberg Syndrome; Treatment, Prevention, Cure
Judy's ParryRomberg Story. The rombergs Connection is definitely a God-send . Isuffer from Romberg's syndrome, otherwise known as facial hemiatrophy
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Spina Bifida is a rare birth disorder, affecting approximately 1 in 12-1400 live births. Click here to learn more Craniosynostosis: Sagittal Synostosis...males are affected about three times as often as females. Click here to learn more Spinal Cord Injury: Acts of violence have now overtaken falls as the second most common source of spinal cord injury.

78. Parry Romberg Syndrome; Treatment, Prevention, Cure
I was diagnosed with Parry Romberg syndrome when I was 6 years old. Chantele's Story I was diagnosed with rombergs Hemifacial Atrophy just before Christmas of
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Become a Featured Site? I first noticed my face was becoming asymmetrical when I was 16 years of age Romberg's has not been an easy disease to live with. As Kermit the Frog said, "It ain't easy being green."
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79. Parry Romberg Syndrome
The rombergs Connection Site provides information, FAQs, support, chat/messageboard article about a young girl with Parry Romberg syndromeinformative and
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Parry Romberg Syndrome
Guide picks A disorder characterized by slowly progressive wasting of the soft tissues of the face, seizures, and severe face pain.
Feature article
Feature article describes the disorder, its treatment, and research. From the About.com Guide to Rare/Orphan Diseases. The Rombergs Connection Site provides information, FAQs, support, chat/message board, news, and photo album. Kelly's Story: Beyond the Mirror Rocky Mountain News article about a young girl with Parry Romberg syndromeinformative and insightful. NINDS: Parry Romberg Syndrome Fact sheet on the disorder from the National Institute for Neurological Disorders and Stroke (U.S.). NORD: Parry Romberg Syndrome Definition of the disorder, from the National Organization for Rare Disorders (U.S.).

80. WebGuest - Open Directory : Health : Support Groups : Conditions And Diseases :
Sites Parry Romberg syndrome Stories from people affected by ParryRomberg syndrome, support and information. Parry Romberg syndrome
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the entire directory only in Facial_Differences/Parry-Rombergs_Syndrome Top Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome

Sites:
  • Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information.
  • Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
  • The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome.
  • Romberg's Syndrome - General information, contacts, on-line discussion groups and links.
Last update: 6:37 PT, Wednesday, May 23, 2001
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