41. Sarcoidosis This page contains information on sarcoidosis I gathered from the Web. Taken fromnumerous sites and 'boiled down' to eliminate repitition. sarcoidosis http://members.aol.com/_ht_a/mikespages/sarcoid.html

This page is broken down into sections made up of a series of frequently asked questions and the facts which most accurately answer them, according to all the information I could find. Just scroll down the page or use the links below to jump to the section you wish to read. In the event that this information does not answer your questions about sarcoidosis, try checking out the links at the bottom of the page. It is highly unlikely that I would be able to answer any of your questions in any way other than relating my experiences with the illness and its continuing treatment. For specific medical questions, always ask your physician! Several of the links below either are to support groups or are to sites which contain information about where to find support groups. Sarcoidosis: A Medical Mystery, Diagnosis by Elimination What is Sarcoidosis? What causes Sarcoidosis? Who gets Sarcoidosis? What are the syptoms of Sarcoidosis? ... Works consulted. What is Sarcoidosis? sarcoidosis sark oid Sarcoidosis (also known as sarcoid Granulomatous Disorders Title Top What causes Sarcoidosis?

42. Neurosarcoidosis A detailed guide to this rare manifestation of sarcoidosis. Includes forum, support group, links, tests, medications and detailed information on this rare disease. http://www.elderwyn.com/neurosarcoidosis

Neurosarcoidosis by Aisha Elderwyn Last Modified Wed Oct 16, 2002 printer-friendly version 1. The information in this document is only recommended for the use of those who have been diagnosed previously as having neurological involvement from sarcoidosis, or of those looking for further information regarding sarcoidosis. 2. Nothing on the Internet can replace the advice of a qualified medical professional. Please contact your doctor if you have any questions regarding your illness. 3. This information is taken from the sources indicated, my own searches amongst unlisted sources and my own experience. It is in no way meant to replace the advice given to you by your own doctors. 4. This is not written by a medical professional but has been reviewed by qualified physicians in the fields of neurology and immunology. 5. This information should not be used for self-diagnosis. Neurosarcoidosis by Aisha Elderwyn Neurosarcoidosis is also known as Sarcoidosis of the Brain or CNS Sarcoidosis (CNS = Central Nervous System). Background Sarcoidosis is a systemic illness. This means it can be present in any part of the body. Sarcoidosis is also a chronic illness. This means that it appears and progresses over a long time. Although its manifestations can disappear spontaneously, it will remain in a patient's body for the rest of their life. Many patients get few symptoms while others may get many. It is impossible to know how the disease will progress.

43. Sarcoidosis Hub A brief definition of sarcoidosis, followed by links to research programs, clinical trials, images and case reports. http://www.healthubs.com/sarcoidosis

Sarcoidosis is a multisystem granulomatous disorder due to inflammation. Sarcoidosis was first identified over 100 years ago by Dr. J. Hutchinson (England) and Dr. C. Boeck (Norway). On this hub site, you will find reviewed and categorized links about sarcoidosis. Acne Allergy Antibiotics Antioxidants ... Wedding Overviews Pulmonary Sarcoidosis - by the University of Maryland Medicine. Sarcoidosis by National Heart, Lung, and Blood Institute Sarcoidosis by American Lung Association Sarcoidosis from National Jewish Medical and Research Center Sarcoidosis from the Canadian Lung Association ... Sarcoidosis Facts and Information - by Jason R. Abbott Department of Radiology, Northern Kentucky University. Sarcoidosis by John A. Moran Eye Center, University of Utah A Disease Wrapped in Mystery - by Sarcoidosis Research Institute. Sarcoidosis from the American Liver Foundation Medical University of South Carolina Sarcoidosis Center Sarcoidosis by Janice Phillips Dutcher, M.D., Professor of Medicine, Albert Einstein College of Medicine Treatment of Pulmonary Sarcoidosis with Pentoxifylline - a clinical study by NIH. Ocular Sarcoidosis Sarcoidosis: A Primary Care Review - by Mark H. Belfer, D.O., and R. Wayne Stevens, M.D. St. Elizabeth Health Center Family Practice Residency, Youngstown, Ohio.

44. Virtual Hospital: ElectricDiffuseLung: The Diagnosis Of Diffuse Lung Disease: Sa ElectricDiffuseLung The Diagnosis of Diffuse Lung Disease. sarcoidosis.Jeffrey Mosby sarcoidosis is a disease of unknown etiology. http://www.vh.org/adult/provider/radiology/DiffuseLung/Text/Sarcoidosis.html

For Providers ElectricDiffuseLung: The Diagnosis of Diffuse Lung Disease Sarcoidosis Jeffrey R. Galvin, M.D. and Michael P. D'Alessandro, M.D. Peer Review Status: Externally Peer Reviewed by Mosby Sarcoidosis is a disease of unknown etiology. [76, 77] As a consequence, the diagnosis of this syndrome is defined by the presence of characteristic clinical and radiographic data along with histologic evidence of noncaseating granuloma from biopsy material . The New York Academy of Science proposed the following definition in 1976 [78]: "Sarcoidosis is a multisystem granulomatous disorder of unknown etiology most commonly affecting young adults and presenting most frequently with bilateral lymphadenopathy, pulmonary infiltration, and skin or eye lesions. The diagnosis is established most securely when clinicoradiographic findings are supported by histologic evidence of widespread noncaseating epithelioid cell granulomas in more than one organ..." It is important to recognize, however, that noncaseating granuloma are not diagnostic by themselves and may be seen with hypersensitivity pneumonitis, tuberculosis, fungal infections, and beryllium exposure. They may also be present in lymph nodes and fibrotic areas surrounding a malignancy. Sarcoidosis is a disease of young adults with the majority of cases presenting during the second to the fourth decade of life. [79] Patients who present after the age of 60 are rare (4%). Although the disease has a worldwide distribution, there is marked variation from one country to another. The highest apparent rates are in Scandinavia (64 per 100,000), whereas the disease is almost unheard of in Taiwan. [80] The prevalence in the United States is approximately 10 per 100,000. This estimate is probably low since a large percentage of those with sarcoidosis are asymptomatic and are only diagnosed on "screening" chest x-rays.

45. Sarcoidosis - Suite101.com Offers information to assist to better manage your sarcoidosis. http://www.suite101.com/welcome.cfm/sarcoidosis

Topics Articles Links BEST OF WEB ONLINE COURSES COMMUNITIES BOOK CIRCLE ... MY SUITE Search Within: Sarcoidosis Health Suite101.com Member Central Join Our Community! Login Member Update What's New ... TravelSuite Suite University About Suite University Visit the University Course Listing New Courses ... Featured Courses New Topics Teaching Creative Writing to Children Maine People Organic Vegetable Gardening African-American Home Schooling ... More... Suite Events My Favorite Place War and Peace Spring Into Health! Earth Day 2003 More about Suite101 About Suite101.com - Select a related topic - Aerobics Agoraphobia Alexander Technique Alzheimer's Disease Anxiety/Panic Disorder Aromatherapy Birth Control BodyWork Techniques Breast Cancer Celebrating Life Child Sexual Abuse Chiropractic Health Care Clinical Nutrition Depression Disability Advocacy Dissociative Identity Dis Eating Disorders Fibromyalgia Friends Fitness Fluoridation Follow Your Passion Graves' Disease Habits Handwriting Analysis Heart Disease Hepatitis Herbal Healing Hypochondria I May Be Older, But I'm N Improving Relationships T Infertility Inner Child/Codependency Inspiration/Motivation Jungian Psychology Life and Molecular Medici Living and Loving Living With a Chronic Ill Lupus Manifest Way Maternal-Fetal Relationsh Multiple Sclerosis and it Narcissistic Personality Natural Health New Cancer Treatments Our Beautiful Bodies Personal Power for Person Physical Wellness Preconception: Trying to Recovery and Spirituality Reiki Shamanic Healing Success in Weight Loss To Age or Not to Age Vegetarianism

46. Virtual Hospital: University Of Iowa Family Practice Handbook, Fourth Edition: P Pulmonary Medicine sarcoidosis. The lungs are the primary site of involvement withchest radiograph findings in 95% of those with sarcoidosis. Clinically. http://www.vh.org/adult/provider/familymedicine/FPHandbook/Chapter04/12-4.html

For Providers University of Iowa Family Practice Handbook, Fourth Edition, Chapter 4 Pulmonary Medicine: Sarcoidosis Kevin C. Doerschug, MD Division of Pulmonology, Department of Internal Medicine University of Iowa College of Medicine Peer Review Status: Externally Peer Reviewed by Mosby General . A diffuse inflammatory process of unknown cause leading to the formation of noncaseating granulomas, which may form in any organ. The lungs are the primary site of involvement with chest radiograph findings in 95% of those with sarcoidosis. Clinically Affects those 20 to 40 years of age but may occur at any age. Much more common in African-Americans and tends to be more severe in this group. Must differentiate from tuberculosis and fungal illnesses (histoplasmosis etc.), which may have a similar clinical appearance. Also must exclude carcinoma and lymphoma. Symptoms and signs are related to organ involved. Pulmonary manifestations include bilateral hilar adenopathy, dyspnea, reduced vital capacity, cough, pleural effusion and reduced diffusion capacity. Systemic manifestations include fever, erythema nodosum, infiltrative skin lesions, ocular involvement with uveitis (causes about 4% of uveitis).

47. My Life With Sarcoidosis This patient describes what it's like and what she had to go through to get a diagnosis. Links to other sarcoidosis sites as well as information on tests needed to diagnose this disease. http://www.geocities.com/HotSprings/Oasis/6981/

I have been diagnosed with a rare disease called: Sarcoidosis. It is thought to be an auto-immune system disorder. Others believe it is a virus like Lyme Disease. It causes nodules or granulomas to grow in any organ of the body. Heart, brain, lungs, lymph nodes, kidney,spleen, joints, skin, bone and nervesanyplace. The granulomas develop in the organ causing inflammation and pain. They leave behind permanent scarring. Too much scarring impairs that organ. It has no known cause or cure. It can appear suddenly then disappear or go on to develop symptoms that wax and wane sometimes for a lifetime. For some, it is fatal. There is treatment with the hopes of going into remission. No one is sure which date I really got sick. One doctor thinks it was in August of 96 and another thinks it was June of 98. Here is what happened on those two dates that took me to the Doctor. August 96 June of 98 We went to San Diego for vacation. While there, we visited my brother-in-law's workplace. We were inside the building behind closed glass doors watching a video explaining one of the companies products.Everything was fine until we went back outside. They were doing construction at the site and were digging a huge hole. As soon as the doors opened, I began to cough hard and had to use my inhaler which helped it. From that point on, I got sicker and sicker. For the next week I felt like I had the flu. I would cough up a lot of yellow phlegm. I went back to the doctor who suggested Bronchitis or Sinusitis. I was on a few rounds of antibiotics, each one helped but it would come right back. Months went by like this. Finally in January of 99 (yes, 6 whole months later) I said I could no longer deal with the problems. The doctor had me get another chest xrayand things changed from that moment on.

48. Sarcoidosis.us http://www.sarcoidosis.us/

49. Laurie's Sarcoidosis Page Includes a personal account of living with sarcoidosis, a poem, links and updates on her progress. http://www.geocities.com/Heartland/Flats/4877/index2.html

****Welcome To My Page All About Sarcoidosis**** I Will Survive To turn music on click on arrow To turn music off click on black square I HAVE SARCOIDOSIS I have Sarcoidosis the mystery disease It's symptoms are no mystery to get through them no breeze I have swollen glands, swollen feet, swollen hands every joint in my body aches there's no cure that's the breaks I have a bad cough, nothing comes up it's dry how'd I get this disease? no one knows why I get short of breath can't get enough rest for I'm fatigued all the time and sometimes do whine The Prednisone made me very depressed I had to see a shrink and I'm very distressed I got the ol' moon face and widows hump 40 pound weight gain and the skin bumps There is one more thing I'd like to say A cure is what I ask from God each day when I pray By: Laurie McGee WHAT IS SARCOIDOSIS? Sarcoidosis is a multi-system granulomatous disease the affects Lungs (95%), System (1-15%)other organs (1-15%). There is no known cause or no known cure.

50. My Story Living With Sarcoidosis Her story of life with this illness, a good list of links, and additional pages for loved ones, family and friends, a message board, poetry and songs. http://www.geocities.com/Wellesley/Atrium/1310/

51. The Sarcoidosis Awareness Network The sarcoidosis Awareness Network's mission is to heighten public awareness of sarcoidosis,to enhance the quality of life of sarcoidosis survivors, their http://www.sarcoidosisawareness.org/

Message Board Committed to Giving Sarcoidosis a Voice Features: Be an Advocate! Support the National Health Tracking Network Pulmonary Sarcoidosis Patients Needed for new study in the Washington DC Area The SAGA Study - Your help is needed! Find out more Stay informed with the Sarcoidosis Hotline! To subscribe, send a message to Hotline@SarcoidosisAwareness.org Give to The Sarcoidosis Awareness Network at iGive.com WHAT IS SARCOIDOSIS? YOU ARE NOT ALONE RESOURCES ... MESSAGE BOARD WEB SITE DESIGN BY TriceNet Unique Internet Environments

52. DonnaG Donna's story of what she has had to endure with friends, family and her struggle with sarcoidosis. Also includes brief description of the illness. http://lifewithsarcoidosis.homestead.com/DonnaG.html

Javascript is either disabled or not supported by this browser. This page may not appear properly. http://servants2001.homestead.com/HoldMyHand~ie4.html Gifts From: GYPSYROSE/ SHARON ROSE http://onward.to/gypsysfavorites http://way.to/gypsysindex http://gypsyrose100.homestead.com/hello.html http://gypsyrose3.homestead.com/happyvalentine.html ... http://gypsyrose111.homestead.com/xoxo.html World Sarcoidosis Society http://worldsarcsociety.com/pe rsonal.html Don't ever be reluctant to show your feelings when you're happy, give in to it. When you're not, live with it. Don't ever be afraid to try to make things better you might be surprised at the results. Don't ever take the weight of the world on your shoulders. Don't ever feel threatened by the future, take life one day at a time. Don't ever feel guilty about the past what's done is done. Learn from any mistakes you might have made. Don't ever feel that you are alone there is always somebody there for you to reach out to. Don't ever forget that you can achieve so many of the things you can imagine. ... It's not as hard as it seems.

53. What Is Sarcoidosis? The sarcoidosis Awareness Network. as a multisystem disorder. To date,there is no known evidence that sarcoidosis is contagious. http://www.sarcoidosisawareness.org/about.htm

Message Board The word "sarcoidosis" derives from the Greek words "sarko" and "oid" which means "flesh-like." So, instead of calling it the flesh-like disease, it was named SARCOIDOSIS (pronounced SAR-COY-DO-SIS). The first description of sarcoidosis (as skin lesions) was reported in 1878 by dermatologists, Jonathan Hutchinson, M.D. and Caesar Boeck, M.D. From 1899-1938, sarcoidosis was reported to affect various systems in the body classifying it as a multi-system disorder. To date, there is no known evidence that sarcoidosis is contagious. Medical researchers speculate several causes for this disease: 1) a viral or bacterial infection; 2) a defect in the body's immune system; 3) exposure to a toxic substance; 4) an unknown environmental cause; and 5) an inherited or genetic cause. The most common manifestations of sarcoidosis are found in the lungs, skin, joints, eyes, central nervous system, heart, liver, kidneys, lymph glands, and other soft tissue organs. To the medical community, it is known as the “great masquerader” because it mimics other diseases and conditions making it difficult for doctors to diagnose and treat. Definite diagnosis is further hindered because it can dwell in the body in an asymptomatic state (no symptoms). It is further characterized as persistent inflammation in the form of lymphocytes (a type of overactive blood cell) which causes the formation of what is called “granulomas.” The granulomas appear as lumps or nodules (singular or as clusters) in the body ranging in size from a pea to a fist. As sarcoidosis maneuvers throughout the body, the inflammed granulomas create scar tissue and block the function of vital organs which can cause permanent organ and tissue damage at the rate of 20 to 30 percent of all diagnosed cases.

54. Sarcoidosis sarcoidosis. noncaseating granulomatous disease unknown etiology;young adults, blacks whites; prognosis usually good. may affect http://chorus.rad.mcw.edu/doc/00360.html

CHORUS Collaborative Hypertext of Radiology Multisystem entities Feedback Search sarcoidosis non-caseating granulomatous disease unknown etiology young adults, blacks > whites prognosis usually good may affect any organ chest most often involved diffuse pulmonary infiltrate, may resolve or progress to fibrosis HRCT: mediastinal adenopathy early = septal thickening, peribronchovascular nodules, alveolitis, ground-glass opacity late = traction bronchiectasis, fibrosis, honeycombing skeleton involved in 10% Dx: bronchial/transbronchial biopsy (60-95% diagnostic), liver or scalene bx, Kveim test Charles E. Kahn, Jr., MD - 2 February 1995 Last updated 14 March 2001 Medical College of Wisconsin

55. Bert's Place A brief description of a personal experience with sarcoidosis and a few links. http://members.aol.com/bertk523/

WELCOME !! My name is Roberta Kallay. I have Sarcoidosis and am interested in information about this disease. I also enjoy sharing what I know about this disease. I have Sarcoidosis. This is a chronic auto-immune disease. It can affect any organ or tissue in the body. I am always happy to hear from anyone who has this disease, or anyone who has a friend or relative who has this disease. There is a lot of information available on the WEB. If you have any questions would like to share your experience, please E-Mail me. bertk523@aol.com My symptoms include facial paralysis, uveitis (eye inflammations), hair loss, weight loss, hearing loss, sinus problems, diabetes, parotid glands (spit glands in the back of the mouth), balance problems, peroneal paralysis (nerve in the leg). I have recovered from many of these symptoms. I credit my recovery to: great doctors and medicine; my own efforts in exersize and therapy; and my faith - my prayers and the prayers of friends and family - God is mighty! I am a mother, daughter, and wife as well as being employed full time. I will answer all E-Mails, but please be patient.

56. Pulmonary Sarcoidosis pulmonary sarcoidosis. Classification I hilar/mediastinal lymph nodes (43%)II nodes + lung dz (41%) III lung dz only (16%) See sarcoidosis http://chorus.rad.mcw.edu/doc/00624.html

CHORUS Collaborative Hypertext of Radiology Respiratory system Feedback Search pulmonary sarcoidosis Classification I hilar/mediastinal lymph nodes (43%) II nodes + lung dz (41%) III lung dz only (16%) mid and upper lobe predominance frequently associated with TB rare superinfection w/ Aspergillus HRCT: hilar adenopathy early = septal thickening, peribronchovascular nodules, alveolitis, ground-glass opacity late = traction bronchiectasis, fibrosis, honeycombing See: sarcoidosis Charles E. Kahn, Jr., MD - 10 March 1995 Last updated 14 March 2001 Medical College of Wisconsin

57. Kipy's Place Extensive list of links and Kipy's personal experience of sarcoidosis. Kipy also hosts a weekly chat support group in the SarcoidBuddies Chat Room on Wednesday nights 10pm to 11pm (EST USA). http://community-1.webtv.net/Kipy1/KipysPlace/

Kipy's Place Hi I'm Kipy ! Love and Hugz to all of my Sarc Buds Kipy PS. If you have a friend or a loved one with this disease, please offer them the love and understanding that they need so badly. I am the Manager and Chat Hostess for the SarcoidBuddies Chat Room at MSN Chat. I started it in April of 1999. Those of you who have loved ones with Sarcoidosis are welcome to join us too. We have a wonderful group of people and we meet Every Wednesday Night at 10 p.m (est.) untill 11 p.m (est.) SarcoidBuddies is a general chat where we talk about whatever you feel like discussing. We have a good time there and we hope you can join us. I will be looking for you. Click on SarcoidBuddies Chat Room below to enter the chat room. SarcoidBuddies Chat Room Click here to see Pictures of Our Friends from The SarcoidBuddies Chat Room (Special thanks to Ruth and Fred Merrill for creating this wonderful web site so we can put faces with the names of our Sarc Buds) Sarcoid Buddies Web Site Read my Dreambook! Sign my Dreambook!

58. THE MERCK MANUAL, Sec. 21, Ch. 288, Sarcoidosis Chapter 288. sarcoidosis. Topics. General. sarcoidosis occurs mainly in personsaged 20 to 40 yr and is most common in Northern Europeans and American blacks. http://www.merck.com/pubs/mmanual/section21/chapter288/288a.htm

This Publication Is Searchable The Merck Manual of Diagnosis and Therapy Section 21. Special Subjects Chapter 288. Sarcoidosis Topics [General] [General] Sarcoidosis: A multisystem granulomatous disorder of unknown etiology, characterized histologically by noncaseating epithelioid granulomas involving various organs or tissues, with symptoms dependent on the site and degree of involvement. Sarcoidosis occurs mainly in persons aged 20 to 40 yr and is most common in Northern Europeans and American blacks. The lifetime risk of developing sarcoidosis is particularly high among Swedish men (1.15%), Swedish women (1.6%), and American blacks (2.4%). A single provoking agent or disordered defense reactions triggered by various insults may be responsible, and genetic factors may be important. The characteristic histopathologic findings are multiple noncaseating epithelioid granulomas, with little or no necrosis, occurring commonly in mediastinal and peripheral lymph nodes, lungs, liver, eyes, and skin and less often in the spleen, bones, joints, skeletal muscle, heart, and CNS. These granulomas may resolve completely or proceed to fibrosis. Although similar granulomas can occur in various infections, hypersensitivity reactions, pneumonia, and foreign body reactions, characteristic patterns of involvement indicate sarcoidosis. Symptoms and Signs Symptoms depend on the site of involvement and may be absent, slight, or severe. Fever, weight loss, and arthralgias may occur initially. Persistent fever is common with liver involvement. Peripheral lymphadenopathy is common and usually asymptomatic; even insignificant nodes may contain granulomas. Organ function may be impaired by the active granulomatous disease or by secondary fibrosis. Cough and dyspnea may be minimal or absent.

59. Sarcoidosis In the Spotlight. June 27, 2000. So, What's sarcoidosis? What Is sarcoidosis?sarcoidosis is a multiorgan system disease with no known cause. http://www.personalmd.com/news/sarcoidosis_062700.shtml

Home Noticias de Salud Family Centers Health Centers ... My Health Manager Search PersonalMD Services Family Health Women's Health Children's Health ... Health Encyclopedia In the Spotlight June 27, 2000 So, What's Sarcoidosis? By Nick Shah, MD Kenneth Song, MD Personal MD.com Medical Contributors What Is Sarcoidosis? Sarcoidosis is a multi-organ system disease with no known cause. It commonly affects the lungs, skin, eye and lymph nodes where the abnormal tissue development is seen in multiple areas. In U.S., the disease is commonly seen in the African- American women and between the ages of 20 and 40. There have also been cases affecting the elderly and children as well. The number of cases in the U.S. is estimated to be 10 to 40 per 100,000 people. How Does It Occur? Although the triggers for sarcoidosis are not yet known, scientists have figured out that the disease process is a result of abnormal white blood cell activation leading to a formation of granulomas in the tissues. Granulomas are mostly collections of white blood cells and epithelial cells (cells that cover organ surfaces). When enough granulomas are formed within an organ, they may alter the normal architecture of the organ, causing the organ to function improperly. What Are The Symptoms?

60. PinPoint Search Results For '$query' The Award Winning sarcoidosis Source on the Internet. A Wealth of Information onsarcoidosis™. Happy New Year! Tour this Web Ring for more sarcoidosis Websites, http://www.sarcoidosis.netfirms.com/

This site is hosted by Netfirms Web Hosting Remodeling Begins in 2003! The Award Winning Sarcoidosis Source on the Internet A Wealth of Information on Sarcoidosis™ Happy New Year! Within this website: About the Foundation with FREE NEWS HEADLINES! Foundation Forum Tell others your story with SARCOIDOSIS or read what others have to say! Information Page SARCOIDOSIS INFORMATION and FREE EMAIL SERVICE! Karen Duffy Page Includes FILM CREDITS, PICTURES and INFORMATION on her new book, MODEL PATIENT! This MODEL/ACTRESS suffers from Sarcoidosis! Help Page offers MEDICAL HELP and major SEARCH ENGINE links! Major Health Care News Page Articles on current HEALTH CARE ISSUES in the news! Amazon.com Page Online store that offers BOOKS, MOVIES, SOFTWARE and more! Links Page Find even more information on SARCOIDOSIS from other websites as well as information on SARCOIDOSIS CLINICAL TRIALS! United States Government Links Page Links to U.S. Govt. websites. Some general links and some healthcare-related sites. Also a great source for the latest on the anthrax attacks and the September 11th attack. Pain Management Page Information related to PAIN MANAGEMENT for Sarcoidosis patients who suffer from pain associated with side effects of the disease.

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