41. SCLERODERMA (SCL) FOUNDATION Of VICTORIA THE scleroderma (SCL) FOUNDATION OF VICTORIA. WHAT IS scleroderma ( SCL) WHAT IS THE scleroderma (SCL) FOUNDATION OF VICTORIA ALL ABOUT http://home.vicnet.net.au/~sclerofv/

You are visitor number Powered by counter.bloke.com to the best Scleroderma Web Site on the Internet!! THE SCLERODERMA (SCL) FOUNDATION OF VICTORIA WHAT IS SCLERODERMA ( SCL ) S c leroderma ( systemic sclerosis ) is a systemic connective tissue disease. One of the hallmarks is thickening or hardening of the skin. This is literally what the word scleroderma means in Greek - ( sclero=hard, derma=skin ). However, the term systemic sclerosis is probably a better name as it tells us more about the condition. This name indicates that (a) it is a systemic disease, that is, it may affect many parts of the body, and (b) sclerosis is the medical term for thickening or hardening of the tissues which is a major feature of this condition. WHAT IS THE SCLERODERMA (SCL) FOUNDATION OF VICTORIA ALL ABOUT T he Foundation is a self-help group for Scleroderma (SCL) sufferers. Membership is open to anyone who has Scleroderma and to their supporters. The AIMS of the Foundation are To share information about Scleroderma and to promote public knowledge and understanding of it. To provide support for sufferers in coping with Scleroderma.

42. Scleroderma WELCOME TO MY PAGE OF scleroderma LINKS HOME PAGE Celebrity Health Watch Bob Saget promotes scleroderma awareness. INTELIHEALTH-scleroderma http://www.enetis.net/~rbreske/scleroderma.htm

WELCOME TO MY PAGE OF SCLERODERMA LINKS... HOME PAGE 1-MEDICAL LINKS PAGE 2-MEDICAL LINKS RESEARCH LINKS ... MICK'S STORIES BELOW ARE A LIST OF SCLERODERMA LINKS, MOST OF WHICH OFFER ONE OR MORE OF THE CATEGORIES LISTED BELOW. SO SURF THE SITES AS EACH OF THE LINKS PROVIDED ARE WELL WORTH CHECKING INTO. Celebrity Health Watch - Bob Saget promotes scleroderma awareness INTELIHEALTH-Scleroderma Research Receives A Boost From Multiple NIH Grants SUPPORT ... MEDICATIONS INFORMATION: ACR SD World Inteli Health Medicine Net.Com ... The Scleroderma Center at Boston University School of Medicine WAYS TO COPE: Wristies NEW Warm Skin All Weather Guard WarmSkin All Weather Guard Coping With Chronic Rheumatic Diseases-The 4 Fs ORGANIZATIONS/SUPPORT I have Scleroderma Jean Sansom's story Scleroderma Foundation The Bluebonnet Chapter ... United Scleroderma Foundation - The New Mexico State Chapter PICTURES Scleroderma Morphea, Linear (many pictures)

43. HJD | Department Of Rheumatology The Department of Rheumatology at the Hospital for Joint Diseases is dedicated to the diagnosis and treatment of all patients with diseases of the joints such as Arthritis; bone diseases such as Osteoporosis; soft tissue diseases such as Tendonitis; and autoimmune diseases such Lupus and scleroderma. http://hjd-www.med.nyu.edu/Rheumatology/

The Department of Rheumatology at the Hospital for Joint Diseases is dedicated to the diagnosis and treatment of all patients with diseases of the joints such as Arthritis ; bone diseases such as Osteoporosis ; soft tissue diseases such as Tendonitis ; and autoimmune diseases such Lupus and Scleroderma This is accomplished through a balance of education, research, and clinical care of patients with various rheumatic disorders.

44. Handout On Health: Scleroderma Health Topics Publication Date July 2001. Handout on Health scleroderma.This booklet is for people who have scleroderma, as well http://www.niams.nih.gov/hi/topics/scleroderma/scleroderma.htm

Health Information Health Topics Order Publications Studies with Patients Patient Research Registries ... NIAMS Coalition Members Search NIAMS Health Topics Publication Date: July 2001 Handout on Health: Scleroderma This booklet is for people who have scleroderma, as well as for their family members, friends, and others who want to find out more about the disease. This booklet describes the different forms of scleroderma and provides information on their symptoms, diagnosis, and treatment, including what patients can do to help manage their disease and the problems associated with it. It also highlights current research efforts into the understanding and treatment of scleroderma, many of which are supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) and other components of the National Institutes of Health (NIH). If you have further questions after reading this booklet, you may wish to discuss them with your doctor. What Is Scleroderma?

45. Scleroderma Society Of Canada A nonprofit society raising awareness of and funding for research and a cure. Good factual information about this disease. http://scleroderma.ca

46. Scleroderma News, information, and support for patients with this disorder. Links to other sites. http://arthritis.about.com/cs/sclero/index.htm

zfp=-1 About Arthritis Search in this topic on About on the Web in Products Web Hosting Arthritis with Carol Eustice Your Guide to one of hundreds of sites Home Articles Forums ... Help zmhp('style="color:#fff"') Subjects BUYER'S GUIDE Before You Buy Top Picks Moist/Dry Heating Pads ... All articles on this topic Stay up-to-date! Subscribe to our newsletter. Advertising Free Credit Report Free Psychics Advertisement Scleroderma Guide picks Scleroderma is an autoimmune disease whose name means "hard skin", indicative of the thickening of the skin which occurs from increased deposits of collagen. Two types of scleroderma exist, localized and systemic. Scleroderma Webmaster's Association Scleroderma sites to surf! A webring for scleroderma information and support. First Specialized Center Of Research In Scleroderma The first specialized center of research in scleroderma has been established at the University of Texas Health Science Center in Houston, from NIH. Halofuginone Receives FDA Orphan Drug Status For Scleroderma Halofuginone, a specific inhibitor of collagen type I synthesis, has been given FDA orphan drug designation, from P/S/L Group. I Have Scleroderma A site by people with scleroderma for people with scleroderma including personal stories, creative expression, and links to personal pages.

47. Scleroderma scleroderma. scleroderma (sclairerow-DER-ma) is a disease that can cause thickening,hardening, or tightening of the skin, blood vessels and internal organs. http://www.arthritis.org/conditions/DiseaseCenter/scleroderma.asp

Welcome! Log In Create Profile advanced search Español ... 51 Ways to Be Good to Your Joints Scleroderma If your question is not answered here, please contact one of our information specialists. What Is It? What Are the Symptoms? What Causes It? How Is It Diagnosed? ... Resources and Suggestions What Is It? Scleroderma (sclaire-row-DER-ma) is a disease that can cause thickening, hardening, or tightening of the skin, blood vessels and internal organs. Scleroderma is chronic, which means it can last a long time. There are two types of scleroderma: Localized scleroderma mainly affects the skin. There are two types of localized scleroderma: Morphia (hard, oval shaped patches on the skin. The patches usually are whitish with a purplish ring around them.) Linear (lines or streaks of thickened skin in areas such as the arms, legs or forehead.) Generalized scleroderma may affect many parts of the body. There are two types of generalized scleroderma: Limited scleroderma occurs gradually and affects the skin and later may affect internal organs, such as esophagus, lungs or intestines.

48. Juvenile Scleroderma & Related Diseases...page 1 A parent to parent resource network. Covers exercise, online support, recommended books and personal stories. http://expage.com/jsdresources

A Parent - to - Parent Resource Network MAY 1 - 7 JUVENILE SCLERODERMA AWARENESS WEEK! RESOURCES ON THE WWW ACR - Find A Pediatric Rheumatologist Pediatric Rheumatology Page - Thomas J.A. Lehman, M.D. For Kids Now - Low Cost Insurance Social Security For Children American Academy of Dermatology - Kids' Connection American Academy of Pediatrics/Rheumatology Shriner's Hospitals for Children Journal of Rheumatology Pediatric Pain Psychosocial Risk Children With A Chronic Illness NIAMS - Pediatric Rheumatology Clinic Family Registry for Scleroderma Rheumatic Diseases New Core Center Kids with Arthritis Children's Health Research Clinical Trials IDEA 97 State Resource Sheets TRAVEL Angel Flight West Ronald MacDonald House Patient Travel.Org National Association of Hospital Hospitality Houses, Inc. ONLINE SUPPORT Juvenile Rheumatic Diseases Website WEBRINGS Juvenile Arthritis Kids Juvenile Rheumatic Diseases Children's Autoimmune Diseases Families with Chronic Illness Children Childhood Depression ORGANIZATIONS: JUVENILE RHEUMATIC DISEASES Juvenile Scleroderma Network, Inc

49. Scleroderma Discussion Board @ Www.ezboard.com A message board where people living with scleroderma can come to discuss issue thatwe deal with on a daily basis. scleroderma Discussion Board. Invite Friends! http://pub59.ezboard.com/bsclerodermadiscussionboard

"); else document.write(""); // > Scleroderma Discussion Board Invite Friends! 47 registered members Login Register Your Free Account Search Help ... Need help logging in? Make a Contribution :: Direct Payment -or- Accept Offer View Contributors We currently have $0.00 in our chest. 1 visitor in the last 15 minutes: Members - 1 Guest - Anonymous Forum # Posts Last Comment Moderators All Scleroderma 3/27/03 5:37:55 pm ezboard Ring: ezboard.com Support Forums Contact Administrator Home Find Other ezboards Powered By ezboard® Ver. 7.230

50. Bay Area Scleroderma Support Group Includes information about meetings and events. http://www.bayareasclero.org/

Welcome to the website for the Bay Area Scleroderma Support Group! The Bay Area Scleroderma Support Group is a group of Scleroderma patients and caregivers that meets monthly at the Fremont library, 2400 Stevenson Blvd, Fremont, CA 94538. (See Calendar of Events for specific dates and times.) Our meetings are typically attended by 20-30 individuals with a diversity of experiences and symptoms of the disease. We have both male and female patients including children and teenagers. Our meetings usually include times of fellowship and sharing, comparing of common experiences, and presentations on specific topics of common interest to the group. Whether you are newly diagnosed, have experienced the disease for some period of time, or are a concerned caregiver; you are encouraged and welcomed to attend and participate in our meeting. Click here to go to the main menu Visits since 2/25/03

51. SCLERODERMA (SCL) FOUNDATION Of VICTORIA Raises awareness of this disorder and offers the aims of the support group. http://www.vicnet.net.au/~sclerofv/

You are visitor number Powered by counter.bloke.com to the best Scleroderma Web Site on the Internet!! THE SCLERODERMA (SCL) FOUNDATION OF VICTORIA WHAT IS SCLERODERMA ( SCL ) S c leroderma ( systemic sclerosis ) is a systemic connective tissue disease. One of the hallmarks is thickening or hardening of the skin. This is literally what the word scleroderma means in Greek - ( sclero=hard, derma=skin ). However, the term systemic sclerosis is probably a better name as it tells us more about the condition. This name indicates that (a) it is a systemic disease, that is, it may affect many parts of the body, and (b) sclerosis is the medical term for thickening or hardening of the tissues which is a major feature of this condition. WHAT IS THE SCLERODERMA (SCL) FOUNDATION OF VICTORIA ALL ABOUT T he Foundation is a self-help group for Scleroderma (SCL) sufferers. Membership is open to anyone who has Scleroderma and to their supporters. The AIMS of the Foundation are To share information about Scleroderma and to promote public knowledge and understanding of it. To provide support for sufferers in coping with Scleroderma.

52. Sclero scleroderma. This information is provided as a public service. Beingtold that your child has scleroderma is a very scary experience. http://www.goldscout.com/sclero.html

53. What Is Scleroderma What is scleroderma? (far left) Lauren's scleroderma resulted in the right sideof her face growing normally, but not the left. The scleroderma Video Series http://www.starlight-productions.com/what_is_scleroderma.htm

Home Scleroderma Video Series What is Scleroderma? (far left) Lauren's Scleroderma resulted in the right side of her face growing normally, but not the left. (Center) Constrictions in tendons (contractures) caused by over production of collagen have left Jill's fingers curled and swollen. (Right) Fran's Scleroderma left her near death in 1982. Stable now, despite loss of a finger, Fran has helped others by serving as a Chapter President in the Scleroderma Foundation, and starting a support group in New York. Links to Scleroderma sites are listed below. Scleroderma is an autoimmune disease of the connective tissue. Although it primarily afflicts women in their child bearing years, the ranks of Scleroderma patients do include both males and children. The two major forms of the disease include limited (CREST) and systemic . The latter has also been referred to as Systemic Sclerosis. Scleroderma is an over-production of collagen, and for this reason, one of the symptoms of Scleroderma is hard skin. Scleroderma taken literally means "hard skin", and this title has probably hurt efforts to publicize this disease. A disease that causes skin to harden doesn't sound nearly as ominous as AIDS, Cancer, Multiple Sclerosis etc. Unfortunately, Scleroderma causes much more than cosmetic problems. In addition to the hardening of the skin, Scleroderma can affect internal organs including the lungs and kidneys, and can cause these organs to fail with potentially fatal consequences.

54. Scleroderma World Email list dedicated to scleroderma and other auto-immune problems. http://www.sdworld.org/

SD World is a list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information. We also offer a section of links for scleroderma medical, support, health or fun information. Email List SD World is an email list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information. Click to subscribe SD Round the World SD Round the World These pages Links, Links, Links Links, Links, Links . Are you interested in more information? The internet is a really wonderful source. Here are some links to a few excellent medical and/or informational sites.

55. Untitled This site provides general information about scleroderma, treatments,stories, links to other sites, membership form. http://www.scleroderma.ca/

56. WebRing: Hub Information about joining and open to anyone owning or running a webpage that deals with this disease. http://l.webring.com/hub?ring=juvenilesclerode

57. Surviving Scleroderma - The Scleroderma And Autoimmune Digest Email Support Grou Website dedicated to people suffering from scleroderma. http://sclerodermasupport.com/support/digest

Site Search SD Facts SD Symptoms SD Involvement SD Medical News ... Our Store About Us: Site Cop yright Finance Issues ... Contact Info by Sherry Messick Read Site Go To Top Return Home Scleroderma Support The Scleroderma and Autoimmune Digest Email Support Group Click Here To Subscribe We are all very different individuals that have become connected through cyber space. We have become like family, a strong family of support for one another. The purpose of this list is for people with Scleroderma, Lupus, Fibromyalgia and associated disorders to feel safe among others who truly understand... to obtain information and support, as well as cope with emotions without fear of judgment. Please come and join our family! You will find a supportive and inspirational haven within to share comments or ask questions. We all understand and are here for you. Subscription information is below. Adopt-A-Page Honorary Care Bear For The Digest List Subscription Information Once you subscribe below you can receive the posts sent to this list in one of the following two formats.

58. Associated Conditions - Irish Raynaud's Scleroderma Society The Irish Raynaud's and scleroderma Society was founded to promote a greaterunderstanding of Raynaud's Disease and related conditions. http://www.mdimedia.com/irss/schlero.asp

59. United States Scleroderma Support Groups Worldwide support group listings and online support resources. http://www.sclero.org/support/swa/listings/support-united-states.html

Int'l Scleroderma Network Scleroderma from A to Z Search This Site The Web Scleroderma Webmaster's Association: Sites to Surf! Special Thanks to Judy Tarro of SD World for SWA site design assistance and to Judy, Lynn and Syl for moderating SWAlist for webmasters. EMAIL We're dedicated to helping you find the comfort and/or information you need for dealing with scleroderma or related illnesses. Please feel free to email me at any time. Shelley Ensz, Webmaster Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups Scleroderma Sites to Surf! We make it easy to find scleroderma information worldwide. All our services are free, to members and visitors alike. Worldwide Support Free Web Page for Groups - Arabia (United Arab Emirates) - Africa - Australia - Belgium (Belgique) - Canada (Main Page) - China (Chinese) - Denmark - Deutsch (German) - Francais) (French) - Germany (Deutsch) - Greece (Greek) - Hungary (Magyarul) - India - Ireland - Israel (Hebrew) - Italy (Italiano) - Japan (Japanese) - Kannada (India) - Kenya (Africa) - Kiswahili (Kenya, Africa)

60. Home Page For Www.sclerofed.org - Courtesy Of Www.eNom.com Minnesota based organization offering patients and care givers support, education, and research funding. http://www.sclerofed.org

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