61. Spina Bifida Association Of Western PA The spina bifida Association of Western Pennsylvania (SBAWP) is a charitable, nonprofitorganization committed to improving the quality of life for people http://www.sbawp.org/

Read the Fall Newsletter - CONNECTIONS MISSION: ABOUT SPINA BIFIDA: HISTORY: The Spina Bifida Association of Western Pennsylvania (SBAWP) is a charitable, non-profit organization committed to improving the quality of life for people with disabilities, especially those with spina bifida and their families, by providing a continuum of direct service, education and advocacy. Spina bifida is one of the most devastating of all birth defects affecting nearly one out of every 1,000 newborns in the U.S. It results from the failure of the spine to close properly during the first month of pregnancy exposing the nerves to damage or infection. At birth, the most obvious signs of spina bifida are either a cyst or indentation on the baby's spine. Surgery will close any opening, however, damaged nerves cannot be repaired. Individuals with this disability often suffer from loss of sensation in the lower extremities; bowel and bladder incontinence; leg and foot deformities and learning disabilities. Since 1969, the SBAWP has evolved from a parent support group to become a nationally recognized provider of direct services to individuals with spina bifida. The organization serves nearly 1000 children, teens and adults living in 28 counties within Western Pennsylvania and portions of New York, Ohio, and West Virginia.

62. Ability Camp Inc. Conductive Education And Hyperbaric Oxygen Therapy, HBOT Year round facility that provides five week intensive therapeutic sessions for children with motor disorders such as Cerebral Palsy, Hydro Cephallus, spina bifida, Brain Injury etc. http://www.abilitycamp.com/

Conductive Education and Hyperbaric Oxygen Therapy Special Prices Also free accomodations provided. Limited spaces available! HBOT $25US/hr. When taking Conductive Education and Hyperbarics combined during February 10th to March 14th 2003. HBOT $35US/hr. When taking Hyperbarics only during Feb. 17th to Mar. 8th, Mar. 10th to March 29th, and Mar. 31 to April 19th 2003 Ability Camp, established in 1995, is a year round facility that provides Conductive Education as a Cerebral Palsy treatment also for children with other motor disorders such as, Hydrocephalus, Brain Injury, Spina Bifida etc. Our five week sessions provide 120 - 145 hrs. that are designed to help teach and motivate children to become more mobile and independent. These intensive sessions provide time for children to learn new skills, repeat, and reinforce these skills on a daily basis. Hyperbaric medicine was originally used for the hyperbaric oxygen treatment of injured divers. Hyperbaric Oxygen Therapy is being offered as an adjunctive therapy for Cerebral Palsy, as a stand alone program with 40, 1hr sessions over a three week period or it can be taken in combination with our Conductive Education programs. Conductive Education Testimonials Hyperbaric Oxygen Therapy Email Sandy@abilitycamp.com

63. Medical References: Spina Bifida spina bifida is the most common of a group of birth defects calledneural tube defects (NTDs). The neural tube is the embryonic http://www.marchofdimes.com/pnhec/681_1224.asp

View All Chapters Find Your Local Chapter March 31, 2003 Select one Folic Acid Pregnancy Prenatal Screening Infections/Diseases Loss Concerns Newborn Information Birth Defects Polio Genetics Research Funding Perinatal Statistics Medical References Continuing Education ... Prematurity Quick Reference and Fact Sheets Spina Bifida Spina bifida is the most common of a group of birth defects called neural tube defects (NTDs). The neural tube is the embryonic structure that develops into the brain and spinal cord. Often called open spine, spina bifida affects the backbone and, sometimes, the spinal cord. It is among the most common severe birth defects in the United States, affecting 1,500 to 2,000 babies (one in every 2,000 live births) each year. Spina bifida and other NTDs occur more frequently among Hispanics and whites of European extraction and, less commonly, among Ashkenazi Jews, most Asian ethnic groups and African-Americans. How Does Spina Bifida Affect a Child? In the embryo, there is a tiny ribbon of tissue that folds inward to form a tube. This structure, called the neural tube, forms by the 28th day after conception. When this process goes awry and the neural tube does not close completely, defects in the spinal cord and in the vertebrae (small bones of the spine) can result. There are three forms of spina bifida: Occulta.

64. Hydrocephalus Overview of condition and information on cerebrospinal fluid flow. Symptoms list of malfunctioning shunts. http://www.spinabifida.org/hydrocephalus.htm

HYDROCEPHALUS A clear, saltwater-like liquid called cerebrospinal fluid surrounds the brain. This fluid protects and nourishes the brain, carries away wastes from brain cells and contains important chemicals and nutrients. Each day the brain produces about a pint of cerebrospinal fluid (CSF) which flows in a continuous circuit through the brain cavities (ventricles) and over the surface of the brain and spinal cord until it is absorbed by the body. In approximately 90 percent of people with spina bifida, the flow of cerebrospinal fluid is obstructed. A blockage at the base of the brain results in a build up of fluid in the ventricles of the brain, which then expand and push against brain tissue and the bones of the skull. In an infant the plates of the skull are not yet fused together. This enables the plates to shift and accommodate the excess cerebrospinal fluid and thus lessen the amount of damage to the brain. In some babies born with hydrocephalus the condition is arrested if the blocked passage opens or the fluid is channelled elsewhere. If it continues to develop there is continuing pressure on the brain, which if untreated will cause brain damage. Hydrocephalus is usually treated by insertion of a shunt. A shunt is a device which is designed to drain excess cerebrospinal fluid from the brain and carry it to other parts of the body. A one-way valve is used, which usually sits outside the skull, but beneath the skin, somewhere behind the ear. (

65. Spina Bifida Association Of WA (Inc) Information about an organization with the main aim is to provide support for individuals with spina Category Health Conditions and Diseases Organizations......spina bifida Association of WA (Inc.). Established in 1970, it's main aim isto provide support for individuals with spina bifida and their families. http://www.sbawa.asn.au/

The Spina Bifida Association of WA Inc. ) was established in 1970. The main aim of the Association is to provide support for individuals with spina bifida and their families. Please use the links found at the left of the page to learn more about spina bifida and the services that we are able to provide. For further information, please contact: The Spina Bifida Association of WA Inc. Centre for Neurological Support - The Niche Suite B, 11 Aberdare Road Nedlands WESTERN AUSTRALIA 6009 Tel : (08) 9346 7520 or +61 8 9346 7520 (international) Fax: (08) 9346 7519 or +61 8 9346 7519 (international) E-mail: info@sbawa.asn.au Site best viewed with a screen size of 800x600 or above

66. Spina Bifida Association Of Greater New Orleans; Home Page Includes newsletter, camp info, and other assorted items of interest.Category Health Conditions and Diseases Organizations......spina bifida Association. of Greater New Orleans. http://www.sbagno.org/

Spina Bifida Association of Greater New Orleans Home Newsletter Definition Causes ... Links Last Updated: August 20, 2002 Webmaster: Brent W. Smith Post Office Box 1346 Kenner, LA 70063 Voice:    (504) 737-5181 Fax:       (504) 349-7931 E-mail:   sbagno@sbagno.org T he Spina Bifida Association of Greater New Orleans , associated with the Spina Bifida Association of America ( http:www.sbaa.org ), is a tax exempt, non-profit organization made up of parents, family members, adults with Spina Bifida, and professionals who work together to assist those persons of the New Orleans area born with Spina Bifida and their families. The group is led by a dedicated Board of Directors who see to the day-to-day activities of the organization, and work diligently to aid its members. The SBAGNO is strictly a volunteer organization with no paid staff. Operating expenses are held to a minimum in order to provide quality services on a regular basis. Some of the services provided by the SBAGNO are as follows: Newsletter Annual Summer Camp for children 24 hour telephone answering service Meetings where knowledge of medical, educational, and social programs are shared

67. Developmental Disabilities Program Information and links for those with mental retardation, autism, cerebral palsy, spina bifida, and PraderWilli syndrome. http://www5.myflorida.com/cf_web/myflorida2/healthhuman/ddp/

directory contact us newsletters first time user ... Veterans' Affairs Developmental Disabilities Program IMPORTANT System Redesign (AHCA/DCF) Meeting schedules, minutes and products related to the transformation of the Developmental Services Home and Community Based Services Waiver (med waiver) being undertaken by the Agency for Health Care Administration (AHCA) and the Department of Children and Families (DCF). About Us An overview of this program. Contact Information The addresses and phone numbers for district/regional staff. Provider Information Information about services and equipment providers in Florida. Reports, Forms, Publications, and Presentations Documents published by the department that includes Choice Counseling materials, Newsletters, as well as the forms and manuals related to the Home and Community Based Services Waiver. Information about Quality Assurance and Improvements for supports and services recieved through the Developmental Disabilities Program. E-Bulletins The online list serv providing a bi-weekly update of the happenings of the Developmental Disabilities Program. Most of the information is provided in PDF format and requires the Adobe Acrobat Reader (version 3.0 or higher) which is available from

68. Colorado Spina Bifida Association http://www.coloradospinabifida.org/

69. Spina Bifida Index, Wake Forest Neurosurgery Internet links on spina bifida, myelodysplasia, tethered spinal cord, and spinallipomas from the Department of Neurosurgery, Wake Forest University, Winston http://www.wfubmc.edu/surg-sci/ns/sb.html

Spina Bifida / Myelodysplasia Index Department of Neurosurgery Wake Forest University School of Medicine Neurosurgeons/Referrals Neurosurgery Home Schedule an Appointment Links to information about spina bifida, myelodysplasia, tethered spinal cord, spinal lipomas, myeloschisis, split cord malformation, and diastematomyelia. Children with Spina Bifida A Resource Guide for Parents (Highly Recommended) SB-Parents e-mail list server primarily for parents To join the list send a e-mail message to: listserv@onelist.com In the body of the message type: Subscribe SB-Parents Yourfirstname Yourlastname To send messages (after joining) send an email message to: SB-Parents@onelist.com BIFIDA-L e-mail list server for anyone interested in spina bifida/myelodysplasia To join , send a message to: listserv@mercury.dsu.edu In the body of the message type: Subscribe BIFIDA-L Yourfirstname Yourlastname To send messages (after joining) send an email message to: BIFIDA-L@mercury.dsu.edu The Spina Bifida Web Forum BBS (Enter and select Spina Bifida) Spina Bifida Live Discussion (Select Spina Bifida Chat Room) The Usenet Newsgroup alt.support.spina-bifida

70. Standing Frames, Standers, Assistive Technology Made By Altimate Medical Standers and mobility aids for persons with cerebral palsy, muscular dystrophy, spina bifida, and multiple sclerosis. http://www.easystand.com

At Altimate Medical, we make standing frames and mobility aids EasyStand Magician "We have been using the EasyStand Magician for four years. After using prone & supine standers for a long time we have found that the Magician is more versatile & flexible. Our kids stand for two hours a day & often need a break. WIth the Magician, they can sit down & do activities on the adjustable tray. Then they are ready to stand again!" Laura Kreuger, Physical Therapist Sunrise Middle School White Bear Lake, Minnesota, USA Products Case Studies Press Room Funding ... Warranty Registration P.O. Box 180 262 West 1st Street Morton, MN 56270 Phones: 800.342.8968 or 507.697.6393 Fax: 877.342.8968 or 507.697.6900 Privacy Statement

71. The Contact A Family Directory - SPINA BIFIDA printer friendly, spina bifida, Group details last updated April 2002.SCOTTISH spina bifida ASSOCIATION. Scottish spina bifida Association http://www.cafamily.org.uk/Direct/s42.html

printer friendly SPINA BIFIDA home more about us in your area conditions information ... how you can help search this site Spina bifida is a neural tube defect and is a developmental anomaly which occurs very early in pregnancy. The neural tube develops to form the spinal cord, brain and spine. When Spina Bifida occurs, the tube is split and one or more vertebrae (small bones of the back) fail to form properly, thus leaving a gap. There are three main types of spina bifida. Spina bifida occulta where the only sign of the malformation is a dimple or hair at the site of the defect on the skin of the back. This condition is very mild and is usually symptomless although occasionally there may be continence problems and difficulties with mobility. In Spina bifida cystica a sac or cyst is visible on the back covered by a thin layer of skin. There are two forms: a meningocele and a myelomeningocele. In a meningocele the sac contains tissues which cover the spinal cord and cerebro-spinal fluid. The nerves are not normally badly damaged and there is little or no malfunction. This is the least common form of spina bifida. Myelomeningocele is the most common and severest form and is characterised by the inclusion in the sac of nerves and part of the spinal cord as well as tissue and cerebral-spinal fluid. Some degree of paralysis and loss of sensation occur below the site of the defect. The extent of the disability is dependent upon the extent of nerve damage.

72. Spina Bifida SBH Translate this page Willkommen Schweizerische Vereinigung spina bifidaund Hydrocephalus (SBH). www.sbh-ch.ch. http://www.sbh-ch.ch/

Willkommen Schweizerische Vereinigung Spina bifida und Hydrocephalus (SBH) www.sbh-ch.ch Weitere Seiten more pages Design by webmaster www.sbh-ch.ch

73. Spina Bifida Association Of Texas Promoting prevention, educating individuals, and by providing support and encouragement to families Category Health Conditions and Diseases Organizations...... http://www.sbatx.org/

74. Page D'accueil FFASB. Repr©sentante officielle des spina bifida fran§ais aupr¨s des instances fran§aises, europ©ennes et mondiales. http://ffasb.tripod.com/

Dernière mise à jour le Monday 30 December 2002 Bienvenue sur le site officiel de de la Fédération Française des Associations du Spina Bifida Tous nos vœux de bonheur pour 2003 !!!! Translate this page automatically. Appel urgent!!! MOBILISONS NOUS! (cliquez sur la photo SVP !!!) Dernières nouveautés sur le site: Un dossier spécial "acide folique" Une bibliographie (mise à jour) !!! Une cyber-boutique !!!!! La recommandation officielle du Ministère de la Santé Français en matière de supplémentation en acide folique ... Nouveau site de la Fédération Internationale !!! Mise à jour de l'agenda au 09 Jan 2003 Cliquez sur l'image pour entrer SVP! Site optimisé pour IE 5 1024*768 plein écran Vous êtes le ième visiteur à venir nous rendre visite !!!!!! MERCI !!!! S'inscrire à FFASB Adresse du service : fr.groups.yahoo.com

75. Spina Bifida spina bifida Guide picks. Information and resources on spina bifida. Childrenwith spina bifida Promotes information sharing among parents. http://backandneck.about.com/cs/spinabifida/

zfp=-1 About Back and Neck Injury/Chronic Pain Search in this topic on About on the Web in Products Web Hosting Back and Neck Injury/Chronic Pain with Apply Now Your Guide to one of hundreds of sites Home Articles Forums ... Help zmhp('style="color:#fff"') Subjects ESSENTIALS Sports Safety Depression and Pain How to make life better ... All articles on this topic Stay up-to-date! Subscribe to our newsletter. Advertising Free Credit Report Free Psychics Advertisement Spina Bifida Guide picks Information and resources on spina bifida. Chris Reeve, President Bush, and Stem Cell Research Christopher Reeve Paralysis Foundation press release on stem cell research and Bush's on-the-fence position embryos cancer pain spinal cord injury diabetes thryroid fibromyalgia arthritis infertility sexual function pro life Children with Spina Bifida Promotes information sharing among parents. Folic Acid The role folic acid plays in spina bifida. Preventing Spina Bifida Information on what prospective parents can do to minimize or prevent the disease. Spina Bifida Association of America The mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. Spina Bifida Defined Offers general information about spina bifida, how to live with it, how it's being treated.

76. Faisbipage La federazione delle associazioni italiane spina bifida ed idrocefalo opera a favore dei bambini per promuovere ed incoraggiare iniziative di prevenzione e di riabilitazione, oltre che curare l'inserimento sociale e lavorativo dei pazienti. Elenco ed indirizzi delle associazioni aderenti. http://www.telpress.it/FAISBI/

FEDERAZIONE ASSOCIAZIONI ITALIANE SPINA BIFIDA E IDROCEFALO Milano: c/o Croce Verde A.P.M. - Via San Vincenzo 25 - Tel. 02/63604574 Roma: Casella postale 12156 Roma Belsito - 00135 Roma - Tel. 06/87138267 Ascolta il messaggio di Tullio Solenghi (222 KB - File WAV) La F.A.I.S.B.I - Federazione delle Associazioni Italiane Spina Bifida e Idrocefalo, sorta nel novembre del 1990, opera a favore dei bambini affetti da SPINA BIFIDA e IDROCEFALO, con lo scopo di "sensibilizzare l'opinione pubblica e le Istituzioni, promuovere ed incoraggiare ogni iniziativa tendente alla prevenzione, la cura e la riabilitazione di questa grave patologia, curare l'inserimento sociale e lavorativo dei pazienti". Con l'intento di promuovere la prevenzione, la cura e la riabilitazione di questa grave patologia la F.A.I.S.B.I. ha aderito alla U.E.A.S.B.H. ENTE EUROPEO che riunisce le FEDERAZIONI NAZIONALI SPINA BIFIDA ed IDROCEFALO. Ha promosso inoltre alcuni dibattiti medico-scientifici ed organizzato "INCONTRI" per le famiglie e portatori di Spina Bifida. Tra l'altro, la F.A.I.S.B.I. : coordina, nel rispetto delle autonomie, le attività delle

77. Index Of / poems of the journey through spina bifida and how a family survived it, by Sammer Ghouleh. http://www.sammer-ghouleh.com

Index of / Name Last modified Size Description ... Parent Directory 31-Mar-2003 03:12 - stats/ 07-Mar-2003 03:10 -

78. John's Spina Bifida Page. John's spina bifida Page. Agent Orange Benefits Act of 1996. VA SpinaBifida Healthcare Program. spina bifida Chat areas. Mass. http://www.sapyta.com/jsbp.html

John's Spina Bifida Page. Agent Orange Benefits Act of 1996 VA Spina Bifida Healthcare Program Spina Bifida Chat areas. Mass. General Hospital's Spina Bifida chat room. Yahoo's Spina Bifida Chat Central. Disabilities-R-Us Spina Bifida mailing lists and Usenet group SB-Parents mailing list subscribe: SB-parents with your E-mail address SB-General mailing list To unsubscribe: Bifida-l-unsubscribe@onelist.com SB-Teen Mailing list alt.support.Spina-bifida Wheelchair Products. Quickie Wheelchairs Rock N' Roll Cycles Colours by Permobil Levo AG ... Roho People of Spina Bifida Patti Hamilton Carolee Laird Sarah Williams David M. Rushton ... Mary Dufton Dot McFarlane Keith Jones Spina Bifida Chapters online. Spina Bifida Association of America. Arizona Spina Bifida Association Spina Bifida Association of Jacksonville FL. Spina Bifida Association of the Tri-State Region ... SBHANS Disability Magazine's Online. New Mobility Magazine Reach Out Magazine Spina Bifida Search Engine Results.

79. Iviewresearch.com Information about fetal surgery for the repair of spina bifida or myelomeningocele. Includes news, research, statistics, discussion, links and patient tips. http://www.fetalsurgeons.com

80. Book Written by Louisa, born with spina bifida, offering inspiration for others with the condition. http://www.geocities.com/louisajulianne/Book

Welcome to My World Email. Welcome To My World My School Days My Times in Hospital Miracle of Life Entertainers I Have Met The Day I Moved Out Of Home My Experiences with Anorexia Achievements The Journey Continues I hope after you have purchased and read my book that you will find the Inspiration to go on with your lives no matter what Challenge you are faced with. Hobbies

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