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         Sturge-weber Syndrome:     more detail
  1. The Official Parent's Sourcebook on Sturge-Weber Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-09-17
  2. Sturge-Weber Syndrome: The Resource Guide for a Reason, a Season, and a Lifetime
  3. Sturge-Weber Syndrome
  4. Sturge-Weber Syndrome
  5. Sturge-Weber syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Neurological Disorders</i> by Deepti, MS Babu, 2005
  6. Sturge-Weber syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Deepti, MS Babu, 2005
  7. The Sturge-Weber syndrome by George Lionel Alexander, 1960
  8. Sturge-Weber syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Children's Health: Infancy through Adolescence</i> by Christine Kelly, 2006
  9. Sturge-Weber Syndrome by George Lionel Alexander, R.M. Norman, 1960-12
  10. A fourth type of phakomatosis, Sturge-Weber syndrome, (Verhandelingen der Koninklijke Akademie van Wetenschappen te Amsterdam, Afdeeling Natuurkunde, 2. sect) by Bernard Brouwer, 1937
  11. Neurocutaneous Disorders: Phakomatoses & Hamartoneoplastic Syndromes
  12. Brain involvement in Sturge-Weber.(SPECIAL NEEDS: REALIZING POTENTIAL): An article from: Pediatric News by Anne Comi, 2009-02-01
  13. Skin syndromes may spring from one disease: Klippel-Trenaunay and Sturge-Weber.(Clinical Rounds): An article from: Skin & Allergy News by Jeff Evans, 2003-09-01

41. Wills Glaucoma Service & Foundation: ICE Syndrome, Sturge-Weber Syndrome, Inflam
ICE Syndrome, sturgeweber syndrome, Inflammatory Traumatic Glaucoma ChatHighlights December 12, 2001. P What causes sturge-weber syndrome?
http://www.wills-glaucoma.org/supportgroup/20011212.html

Chat Highlights
December 12, 2001
Norma Devine, Editor
On Wednesday, December 12, 2001, Dr. Rick Wilson
Moderator:
Doctor Rick, tonight we would like to discuss four types of glaucoma: Iridocorneal endothelial (ICE) syndrome, Sturge-Weber syndrome, inflammatory glaucoma, and traumatic glaucoma. What do these types of glaucoma have in common? Dr. Rick Wilson: They are all secondary glaucomas, caused by a visible problem, as opposed to chronic open-angle glaucoma, the cause of which is unknown. In ICE, a spectrum of diseased corneal endothelium, the inside lining of the cornea, grows off the cornea, covers the drain or pulls the iris up over the drain, blocking it. The cornea is injured by this abnormal lining and often gets swollen at a lower-than-usual intraocular pressure. Moderator: What causes ICE? Dr. Rick Wilson: ICE may result from a herpes simplex infection of the cornea in utero (before birth). P: At what age does ICE commonly occur? Is it unilateral? Dr. Rick Wilson:

42. Www.stephiescorner.com/
Similar pages Online Dermatology Image Library HEAD sturgeweber syndrome © 2001-02, Johns Hopkins University School ofMedicine Dermatlas, Image Name sturgeweber_2_021122, File Type jpg.
http://www.stephiescorner.com/

43. 1Up Health > Sturge-Weber Syndrome > Causes, Incidence, And Risk Factors Of Stur
1Up Health Diseases Conditions sturgeweber syndrome Causes, Incidence,and Risk Factors. sturge-weber syndrome Causes, Incidence, and Risk Factors.
http://www.1uphealth.com/health/sturge_weber_syndrome_info.html
1Up Health Sturge-Weber syndrome Alternative Medicine Clinical Trials ... Health Topics A-Z Search 1Up Health Sturge-Weber syndrome Information Sturge-Weber syndrome Causes, Incidence, and Risk Factors Alternative names : Encephalotrigeminal angiomatosis, Sturge-Weber-Dimitri syndrome Definition : A rare and sporadically occurring disease without a recognized hereditary component. It consists of multiple vascular lesions (angiomas) involving the skin of the face, mucus membranes, and covering of the brain (meninges).
Causes, Incidence, and Risk Factors
The cause of Sturge-Weber is unknown. Because of its spotty appearance in the population, specific risk factors are not yet recognized.
Previous
Next Jump to Another Section of this Guide Definition
Causes, Incidence, and Risk Factors
Symptoms

Prevention

Diagnosis, Signs, and Tests

Treatment
...
Calling your Health Care Provider

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Review Date
Reviewed By
: David G. Brooks, M.D., Ph.D., Division of Medical Genetics, University of Pennsylvania Medical Center, Philadelphia, PA. Review provided by VeriMed Healthcare Network.

44. Sturge-Weber Syndrome
sturgeweber syndrome. What is sturge-weber syndrome? sturge-weber syndromerarely affects other body organs. Is there any treatment?
http://www.clevelandclinic.org/health/health-info/docs/1300/1349.asp?index=6074

45. Norwegian Foundation For Sturge-Weber Syndrome
Norwegian Foundation for sturgeweber syndrome (NFSW). NFSW is a nationalorganisation founded in 1993 by private initiative. The
http://home.c2i.net/knut.sletten/engelsk.htm
Norwegian Foundation for Sturge-Weber syndrome
(NFSW)
NFSW is a national organisation founded in 1993 by private initiative.
The foundation is for everyone with the diagnose SWs and their relatives.
Others can become supporting members.
The foundation's goals :
  • Advising, informing, and helping people with SWs and their relatives.
  • Share knowledge about SWs to hospitals and institutions.
  • Emphasizing SWs special needs, and make the departments aware about their situation.
Guestbook:
Please Sign Our Guestbook
Please View Our Guestbook
Guestbook added to this page on 16 December 1996 courtesy of LPAGE.COM.
Other Sturge-Weber related sites:
You should also search the net, the www is constantly changing !
I have provided a search-link for you. Select what you want to search for, click 'Yahoo! Search' ! Sturge-Weber Encephelotrigeminal angiomatosis Facial birthmark Neurological abnormalities Glaucoma Port wine stains options
Address:
Norsk Forening for Sturge-Weber syndrom
Vestre Haugen 60
1054 Oslo
NORWAY Telephone: +47 22 16 10 01
Cellular phone: +47 909 10 820
E-mail: Knut.Sletten@Keysoft.no

46. Arch Neurol -- Page Not Found
Books sturgeweber syndrome edited by John B. Bodensteiner, MD, and E. Steve Roach,MD, 90 pp, with illus, $49.95, ISBN 0-9670484-0-0, Mt Freedom, NJ, Sturge
http://archneur.ama-assn.org/issues/v57n11/ffull/nbk1100-5.html
Select Journal or Resource JAMA Archives of Dermatology Facial Plastic Surgery Family Medicine (1992-2000) General Psychiatry Internal Medicine Neurology Ophthalmology Surgery MSJAMA Science News Updates Meetings Peer Review Congress
The page you requested was not found. The JAMA Archives Journals Web site has been redesigned to provide you with improved layout, features, and functionality. The location of the page you requested may have changed. To find the page you requested, click here HOME CURRENT ISSUE PAST ISSUES ... HELP Error 404 - "Not Found"

47. Sturge-Weber Syndrome: XtraMSN Health
2003. A to Z Conditions. sturgeweber syndrome Health24 Sturge-Webersyndrome is also called Encephalotrigeminal Angiomatosis. It
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Tue 01 April 2003 A to Z Conditions Sturge-Weber Syndrome
  • Sturge-Weber syndrome is also called Encephalotrigeminal Angiomatosis.
  • It is a congenital disorder characterised by a vascular birthmark and neurological abnormalities.
  • Symptoms of the disorder, which vary widely among patients, may include eye and internal organ irregularities.
  • The most apparent symptom is a facial birthmark or port wine stain which is present at birth and usually involves at least one upper eyelid and the forehead.

48. Health Library - Sturge Weber Syndrome
Sturge Weber Syndrome. Synonyms Disorder Subdivisions General Discussion Resources GeneralDiscussion. sturgeweber syndrome is composed of three major symptoms.
http://health_info.nmh.org/Library/HealthGuide/IllnessConditions/topic.asp?hwid=

49. Health Information Resource Database: Sturge-Weber Foundation
Abstract. The SturgeWeber Foundation (SWF) is a non-profit foundation serving peoplewith sturge-weber syndrome (also known as encephalotrigeminal angiomatosis
http://www.health.gov/nhic/NHICScripts/Entry.cfm?HRCode=HR2360

50. Health Library: All Topics: S: Sturge-Weber Syndrome - Healthfinder®
sturgeweber syndrome A general overview of sturge-weber syndrome that includesa description of the disorder, treatment, prognosis and research information.
http://www.healthfinder.gov/Scripts/SearchContext.asp?topic=826

51. Sturge Weber Syndrome
Sturge Weber Syndrome. A congenital Each case of sturgeweber syndromeis unique and exhibits findings to varying degrees. The most
http://www.cv.quik.com.au/hmegroup/Aust/Sturge Weber.htm
Sturge Weber Syndrome
A congenital facial birthmark and neurological abnormalities characterize this condition. Other symptoms associated can include eye and internal organ irregularities. Each case of Sturge-Weber syndrome is unique and exhibits findings to varying degrees. The most apparent indication of Sturge-Weber syndrome is a facial birthmark or "port wine stain" present at birth and typically involving at least one upper eyelid and the forehead. Neurological concerns relate to the development of excessive blood vessel growth on the surface of the brain (angiomas). Seizure activity is the most common early problem, often starting by one year of age. The convulsions usually appear on the opposite side of the body from the port wine stain and vary in severity. A weakening or loss of the use of one side of the body may develop opposite to the port wine stain. Developmental delay of motor and cognitive skills may also occur to varying degrees. Australian Sturge Weber Support Group Emedicine - Sturge Weber Page Contact A Family UK - Sturge Weber Page

52. Your Healthcare Primer For Long Term Care: Sturge-Weber Syndrome. UNM Health Sci
sturgeweber syndrome. Definition. sturge-weber syndrome is a neurocutaneous(brain-skin) disorder characterized by three features
http://star.nm.org/manual/sturge-weber/
UNM COC : Your Healthcare Primer for Long Term Care

Sturge-Weber Syndrome
Definition
Sturge-Weber Syndrome is a neurocutaneous (brain-skin) disorder characterized by three features:
  • Port wine stain (cutaneous facial angioma) Seizures and other neurologic complications associated with angioma of the leptomeningies Glaucoma (increased pressure within the eyeball.)
  • Introduction
    Sturge-Weber Syndrome (also called encephalotrigeminal angiomatosis) is an uncommon condition. It occurs in 1:50,000 to 1:60,000 births. The cause is unknown but some scientists think it is the result of abnormal development of the primordial vascular bed (blood supply) of the brain very early in the formation of the embryo. Most cases are sporadic but occasionally cases within families are reported. Males and females seem to be equally affected. It has been reported in individuals of White, Hispanic, African and Asian heritage. The facial port wine stain is present at birth in 98% of individuals with Sturge Weber Syndrome. In general the port wine stain tends to be found in the area of the face enervated by the fifth cranial nerve (trigeminal nerve.) It tends to be unilateral (on one side or the other) but can be bilateral (on both sides.) Port wine stain may also be found on the trunk or extremities of some individuals with Sturge Weber Syndrome. Not all individuals with port wine stain have Sturge Weber.

    53. Sturge Weber Patient Resources
    Foundation Address PO Box 418 City Mount Freedom, NJ 07970 Phone (800) 6275482;(201) 895-4445 Type Article Subject sturge-weber syndrome Title Sturge
    http://med-aapos.bu.edu/PediRef/sturge_weber.html
    Sturge-Weber
    You can send E-Mail to the AAPOS Web Server directly from here. Please send comments and suggestions. You may also attach electronic files to e-mail. Please send us feedback
    Last Modified by Rick Blocker on 7/17/97
    Press This To Return Pedi Resource Home Page

    54. Corpus Christi Online - / Sturge-Weber Syndrome Hurts Boy, Family
    Thursday, Mar. 25, 1999. sturgeweber syndrome hurts boy, family. `Portwine' marks on face just a part of the misery. By SYLVIA R. LONGORIA
    http://www.caller.com/autoconv/slongoria99/slongoria22.html
    Marketplace Services Contact Us Community ... Local Guides Thursday, Mar. 25, 1999
    Sturge-Weber Syndrome hurts boy, family
    `Port wine' marks on face just a part of the misery
    By SYLVIA R. LONGORIA
    Staff Writer
    Belinda Gonzalez was devastated when her son, Alex, came home from school crying one day. "The kids had called him names. They wanted to know why he has two colors of skin on his face.
    "I was so upset I had to go to another room and cry before I could go back and tell him everything was going to be OK."
    Alex, 8, a student at West Oso's JFK Elementary, was diagnosed with Sturge-Weber Syndrome in 1993, a congenital disorder of unknown origin that causes a facial birthmark, or "port wine stain," usually on one side of the face.
    Schoolmates have no idea that what Alex has leads to seizures, neurological abnormalities such as glaucoma, and internal organ irregularities. What they do see, however, is a side of his face that turns even deeper in color whenever he engages in physical activity. Which is why they nicknamed him "two face."
    The teasing got so bad, Alex said, that he dreaded going to school.

    55. IU Opt Clinics: Patient Educ: Glaucoma Types: Sturge-Weber
    sturgeweber syndrome Glaucoma. sturge-weber syndrome and 16 years. Sturge-WeberSyndrome is a common cause of blindness during childhood.
    http://www.opt.indiana.edu/clinics/pt_educ/glaucoma/types/swg.htm
    Angle on Glaucoma: Types
    Sturge-Weber Syndrome Glaucoma

    Sturge-Weber Syndrome is a somewhat common condition that is characteristically identified by port-wine stain located on the face. These port wine stains are large reddish-purple angiomas caused by an abnormal distribution of blood vessels. They can occur at birth or during infancy, but most commonly develop between the ages of 9 and 16 years. Sturge-Weber Syndrome is a common cause of blindness during childhood. The angioma can affect two branches of the trigeminal nerve which innervate the eyelids, and the vascular abnormalities can then affect the sclera, eyelids, iris, choroid, and the conjunctiva of the eye. If the port wine stain is located on the upper eyelid and forehead, it is most likely that glaucoma will occur. There is usually an increase in intraocular pressures due to the abnormal vasculature of the sclera and damage to the trabecular meshwork. Glaucoma can develop at any age and can be unilateral (usually the same side as the port wine stain) or in some cases bilateral. Early diagnosis and treatment is key to preventing severe vision loss in these patients. What Is Glaucoma?

    56. OSL: Sturge-Weber Syndrome With Bilateral Congenital Syndactyly - A Previously U
    Volume 30 (3) * March 1999 * Case Reports (abstract). sturgeweber syndromeWith Bilateral Congenital Syndactyly A Previously Undescribed Association.
    http://www.slackinc.com/eye/os/stor0399/mandal.htm
    Ophthalmic Surgery and Lasers
    [About Ophthalmic Surgery and Lasers [Table of Contents]
    Volume 30 (3) * March 1999 * Case Reports (abstract)
    Sturge-Weber Syndrome With Bilateral Congenital Syndactyly:
    A Previously Undescribed Association
    Anil K. Mandal, MD
    ABSTRACT
    The Sturge-Weber syndrome consists of unilateral port-wine haemangioma of the face which may be associated with an ipsilateral intracranial haemangioma and choroidal angioma. The common derivation of the meningeal, choroidal and facial vessels may explain a congenital malformation of all three areas. I report the case of a child with typical Sturge-Weber syndrome who had a previously undescribed association with bilateral congenital syndactyly.
    Ophthalmic Surg and Lasers
    AUTHORS
    Accepted for publication October 13, 1998.
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    57. Epilepsy Ontario - Links To Sites For Sturge-Weber Syndrome
    Links to Sites for sturgeweber syndrome. Epilepsy Ontario Index Page.
    http://epilepsyontario.org/links/condlinks/sws.html
    Links to Sites for
    Sturge-Weber Syndrome
    Sturge-Weber Foundation

    58. Sturge-Weber Syndrome : Meddie Health Search
    A Mother's Journal of her Daughter's Life with Sturge Weber Syndrome This siteis dedicated to Stephanie Linell Yarbrough, and all others that have been
    http://www.meddie.com/search/Health/Conditions_and_Diseases/Genetic_Disorders/St
    HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED
    Search Meddie: the entire directory only this category More search options Home Health Conditions and Diseases ... Genetic Disorders : Sturge-Weber Syndrome ITEMS: LINKS:
    • A Mother's Journal of her Daughter's Life with Sturge - Weber Syndrome
      This site is dedicated to Stephanie Linell Yarbrough, and all others that have been affected by Sturge-Weber Syndrome. The site highlights the more personal aspects of Sturge-Weber syndrome and how it affects daily life.
      (Rating: 0.00 Votes: 0) Rate It
    • Pediatric Database
      A definition of Sturge-Weber syndrome, the epidemiology, pathogenesis, pathology, clinical features, investigations and management.
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    • The Sturge-Weber Foundation
      A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
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    59. 24Dr.com Reference Library - Encyclopaedia - Sturge-Weber Syndrome
    sturgeweber syndrome. What is it? Sturge-Weber is a condition whichconsists of a birth mark always involving the forehead and a
    http://www.24dr.com/reference/encyclopaedia/sturge_weber.htm
    Search for in All of 24Dr.com Contact points Dictionary Encyclopaedia eShop Library News Medicines Information Symptoms Travel Clinic Home Register / Login Dictionary Encyclopaedia Travel clinic Drug database Library Contact points Common symptoms Illustrations Feedback
    STURGE-WEBER SYNDROME
    What is it?
    Sturge-Weber is a condition which consists of a birth mark always involving the forehead and a similar blood vessel abnormality on the brain surface (often called an angioma). Sometimes the birth mark may be on one side only, sometimes it is on both sides. Occasionally it may also be on the trunk or limbs, again on one or both sides. By some process which probably involves depriving the underlying brain of some of its blood supply, the underlying brain shrinks, and specks of calcium appear in it. This process probably also causes the brain angioma to grow over the surface of the brain usually from the back towards the front.
    Who gets it?
    It is probably not hereditary. If a first child has it, the chances of further children having it are less than one in a hundred. There are cases on record of each in a pair of identical twins having it, and also of only one in a pair having it. There is also one record of both the father and the son having it but this is so rare that it is probably a coincidence. It seems that the hitch in blood vessel development is an accident of nature. Nothing that happens or does not happen in pregnancy seems to cause it.
    What are the symptoms?

    60. Sturge-Weber Syndrome 1-1833
    sturgeweber syndrome 1-1833. sturge-weber syndrome is an exampleof a neuro-cutaneous syndrome, phakomatosis. It comprises the co
    http://www.sbu.ac.uk/dirt/museum/p1-1833.html
    Sturge-Weber Syndrome 1-1833
    Sturge-Weber Syndrome is an example of a neuro-cutaneous syndrome, phakomatosis. It comprises the co-incidence of a cerebral leptomeningial angiodysplasia and a cutaneous naevus, which lies high on the face. Not having read the textbook, the visible stain does not confine itself to the maxillary division of the fifth nerve. We should not be surprised by this. The closer the ectoderm (of the final cutaneous lesion) to the neuropore, the more likely there is to be an association of a cutaneous with an intra-cranial abnormality. This underlies the observation that the port-wine stain usually extends above the level the eye and doesn't have to be always on the same side.
    Various anatomic expressions of pathology.
    access full size image
    ian@idmhome.demon.co.uk

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