21. About Syringomyelia Or Syrinx syringomyelia is an abnormal fluid cavity inside the spinal cord, which causes anabnormal cavity within the structure of the spinal cord, causes pressure and http://tribble.missouri.edu/ns/chiari/syrinx.htm

The Chiari Clinic Mission Who We Are Location ... Glossary Syringomyelia Diane Mueller, ND, RN, C-FNP Other terms for syringomyelia (pronounced sir-ing-o-my-eel-ya) often used include syrinx (see-rin-x), hydromyelia (hi-dro-my-eel-ya), syringohydromyelia, The spinal cord is connected to the lower part of the brain, called the brainstem. The spinal cord is a delicate (long, thin, sausage shaped) structure that rests within the spinal canal, and is surrounded by a tough outer covering, called the dura. Normally, the spinal cord ends at about the first or second lumbar vertebra in the adult. The spinal canal is surrounded and protected by the bony structure of the spinal column (or vertebra). Cerebrospinal fluid (CSF) surrounds the spinal cord and travels from the brain, down the spinal canal and back up to the brain. Normally, there is no CSF within the structure of the spinal cord, instead, the fluid surrounds the cord. The function of the CSF is to bathe and nourish the brain and spinal cord. Many nerves originate from the spinal cord, and are responsible for movement and sensation of the arms, legs and areas of the torso. Syringomyelia was first described by Antione Portal, in 1803. He described a patient who experienced numbness and loss of function of the lower extremities. A cavity, called a syrinx, was found on autopsy examination of the spinal cord.

22. Living With Syringomyelia LIVING WITH syringomyelia.. Let us fight together! This Site on syringomyeliais being reorganized ! To visit my old site on syringomyelia http://www.geocities.com/Paris/Parc/2166/syringomyelia.html

LIVING WITH SYRINGOMYELIA.. Let us fight together! This Site on Syringomyelia is being reorganized ! To visit my old site on Syringomyelia please send mail to : prem@vsnl.com (My Old Site Contains information on Syringomyelia and "Similar Patient's Database") Cautions About Using The Internet At present, websites offering medical information are not regulated for accuracy, proper disclosures, or ethical practices including privacy, accountability, identification of sources of information, links to other sites, and methods of contacting the parent organization and registering consumer complaints. The consumer is advised to be cautious and to find out: Is the author a researcher, physician, organization, patient, or health writer? Is the author credentialed or otherwise qualified to provide accurate information? Are references or documentation (e.g., a bibliography) provided? Is the article intended as fact or opinion? How current is the information? Are products promoted? Are sales tactics reasonable, or pushy and somewhat suspect? Please keep in mind the above facts while visiting sites on internet

23. Canadian Syringomyelia Network http://www.ftn.net/~csn/

24. EMedicine - Syringomyelia : Article By Hassan A Al-Shatoury, MD, MSc syringomyelia syringomyelia is the development of a fluid-filled cavityor syrinx within the spinal cord. Hydromyelia is a dilatation http://www.emedicine.com/NEURO/topic359.htm

document.write(''); (advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Neurology Movement And Neurodegenerative Diseases Syringomyelia Last Updated: February 1, 2002 Rate this Article Email to a Colleague Synonyms and related keywords: hydromyelia, syrinx, syringohydromyelia, syringocephalus, syringobulbia AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Hassan A Al-Shatoury, MD, MSc , Research Fellow, Department of Neurosurgery, University of Illinois at Chicago Coauthor(s): Franklin C Wagner, Jr, MD , Chief, Division of Spine and Spinal Cord Surgery, Professor, Department of Neurosurgery, University of Illinois at Chicago College of Medicine Editor(s): Christopher C Luzzio, MD , Clinical Assistant Professor, Department of Neurology, University of Wisconsin at Madison; Francisco Talavera, PharmD, PhD , Senior Pharmacy Editor, Pharmacy, eMedicine; Selim R Benbadis, MD

25. EMedicine - Posttraumatic Syringomyelia : Article By Lance Goetz, MD Posttraumatic syringomyelia First described by Bastian in 1867, posttraumatic syringomyelia(PTS) refers to the development and progression of a cyst filled http://www.emedicine.com/pmr/topic115.htm

(advertisement) Home Specialties CME PDA ... Patient Education Articles Images CME Patient Education Advanced Search Link to this site Back to: eMedicine Specialties Physical Medicine and Rehabilitation Spinal Cord Injury Posttraumatic Syringomyelia Last Updated: October 18, 2001 Rate this Article Email to a Colleague Synonyms and related keywords: syringomyelia, posttraumatic cystic myelopathy, progressive posttraumatic cystic myelopathy, progressive posttraumatic noncystic myelopathy, cystic myelopathy, syrinx, posttraumatic spinal cord injury, syringomyelia, late neurological deterioration following spinal cord injury AUTHOR INFORMATION Section 1 of 11 Author Information Introduction Clinical Differentials ... Bibliography Author: Lance Goetz, MD , Staff Physician, Assistant Professor of Physical Medicine and Rehabilitation, Spinal Cord Injury Center, Dallas VA Medical Center Coauthor(s): Michael Priebe, MD , Director of Spinal Cord Injury Research Division, Associate Professor, Department of Physical Medicine and Rehabilitation, University of Texas Southwestern Medical Center Lance Goetz, MD, is a member of the following medical societies:

26. Syringomyelia / Hydromyelia syringomyelia / hydromyelia. syrinx syringomyelia dissection of CSF within cordno ependymal lining hydromyelia dilatation of central canal lined by ependyma. http://chorus.rad.mcw.edu/doc/00388.html

CHORUS Collaborative Hypertext of Radiology Nervous system Feedback Search syringomyelia / hydromyelia "syrinx" congenital: 90% a/w Arnold-Chiari acquired: trauma, tumor, infection, hemorrhage syringomyelia dissection of CSF within cord no ependymal lining hydromyelia dilatation of central canal lined by ependyma associated with myelomeningocele Arnold-Chiari malformation Dandy-Walker cyst Klippel-Feil syndrome neuropathic joint (most common cause in upper extremity) Charles E. Kahn, Jr., MD - 2 February 1995 Last updated 14 March 2001 Medical College of Wisconsin

27. The Contact A Family Directory - SYRINGOMYELIA printer friendly, syringomyelia, syringomyelia refers to a cystic likechange (syrinx) within the spinal cord. It can have many different http://www.cafamily.org.uk/Direct/s66.html

printer friendly SYRINGOMYELIA home more about us in your area conditions information ... how you can help search this site Syringomyelia refers to a cystic like change (syrinx) within the spinal cord. It can have many different causes such as spinal cord trauma, spinal cord tumours, scoliosis , spinal cord tethering and Chiari malformation, or it may have no identifiable cause. Hydrocephalus can be an associated condition and treatment of it may resolve the syringomyelia. The cyst like change within the spinal cord can extend over a variable length and the symptoms it can cause reflects the level of the change within the spinal cord. Sometimes they can actually be asymptomatic. However, often they can affect sensory perception and ultimately can cause deranged motor function. As the syrinx is usually secondary to another condition the patient most commonly presents with the symptoms attributable to that condition. Therefore in cases of syringomyelia secondary to another condition the treatment is not aimed at the syrinx but at the cause. The treatment of syringomyelia with no identifiable cause can be controversial as in many cases no treatment may be required.

28. Syringomyelia syringomyelia is a disorder in which a cyst forms within the spinal cord. Bykeywords Receive HealthLink via email! Subscribe now . syringomyelia. http://healthlink.mcw.edu/article/923779378.html

Search Articles: search tips Please Take the HealthLink Survey Email this article Print this article Find related articles: By topic: Neurology By keywords: Receive Health Link via email! Subscribe now >> Syringomyelia Syringomyelia (sear-IN-go-my-EEL-ya) is a disorder in which a cyst forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord. Since the spinal cord connects the brain to nerves in the extremities, this damage results in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands. Each patient experiences a different combination of symptoms. Other, more common disorders share the early symptoms of syringomyelia. In the past, this has made diagnosis difficult. The advent of one outpatient test, however, called magnetic resonance imaging (MRI), has significantly increased the number of syringomyelia cases diagnosed in the beginning stages of the disorder. About 21,000 American men and women have syringomyelia, with symptoms usually beginning in young adulthood. Signs of the disorder tend to develop slowly, although sudden onset may occur with coughing or straining. If not treated surgically, syringomyelia often leads to progressive weakness in the arms and legs, loss of hand sensation, and chronic, severe pain.

29. Australian Syringomyelia Network since June 1st, 2000.. This page is being setup to help people who are living withsyringomyelia (SM) and who are seeking information about this disorder. http://www.tvnmc.com/asn/

Home So what is it? Syringomyelia Support Groups Australian Links ... Join Us Welcome.... Hi there, you are visitor No. since June 1st, 2000 .. This page is being setup to help people who are living with Syringomyelia (SM) and who are seeking information about this disorder. I was diagnosed as having SM in 1986 and as it was once considered to be a rare disorder, I soon found myself feeling alone without a support group to turn to, until one day, when my OT (Occupational Therapist) suggested trying to make contact with others in a similar position to me. My search started by writing to a few magazines and slowly people started to make contact. To cut a long story short, my goal is to see this web site become a focus point for SM sufferers and carers, primarily in Australia (because there no support group here in Oz') but also for others around the globe who have found themselves in a similar situation. Today there is greater interest in spinal cord research and this is reflected in the recent spinal cord forum which was supported by the N. S. W. Government, which was attended by Christopher Reeves. For further details

30. Syringomyelia Support Groups. search engine. Enter your text below. options. syringomyelia Support Groups. Othersyringomyelia web pages around the world. CANADIAN syringomyelia NETWORK. http://www.tvnmc.com/asn/support.htm

Home So what is it? Syringomyelia Support Groups Australian Links ... Medical Links Syringomyelia Support Groups. During my search for information I came into contact with two overseas support groups, both have newsletters and will send out information about SM, they are in touch with the latest research and developments and are well worth making contact with. The addresses are: A.N.T.S Jocelyn Lodge, Keythorpe Tugby, Leicester UK LE7 9XJ. American Syringomyelia Alliance Project, Inc. P.O. Box 1586 Longview, TX 75606-1586 USA (800) ASAP-282 American Syringomyelia Alliance Project an excellent site with excellent resources for finding out about syringomyelia Pictures, glossary, personal histories etc. etc. Making contact with other people living with syringomyelia...... Making contact with other people living with syringomyelia...... If you would like to contact others with SM, the following listserver is available... ASAP listserv LISTSERV@maine.maine.edu

31. UCLA NEUROSURGERY | Spinal Disorders & Diseases SPINAL DISEASES DISORDERS syringomyelia. What is syringomyelia? Accumulation syringobulbia.What are the different types of syringomyelia? http://www.neurosurgery.medsch.ucla.edu/Diagnoses/Spinal/SpinalDis_18.html

Syringomyelia COMPREHENSIVE SPINE PROGRAM COMPREHENSIVE SPINE DIAGNOSES INDEX What is syringomyelia? Accumulation of cerebrospinal fluid (CSF) within the spinal cord is a frequent finding in patients with Chiari I Malformation. Simple distention of the ependymal-lined central canal is classically termed hydromyelia. Dissection of CSF through the ependyma to form cavitation within the substance of the spinal cord is termed syringomyelia. The distinction between these two is not possible based upon imaging studies. Therefore the term syrinx, or syringohydromyelia, is used to describe any abnormal accumulation of CSF within the spinal cord. Extension upward into the brainstem is termed syringobulbia. What are the different types of syringomyelia? 1. Syringomyelia: associated with abnormalities of the foramen magnum (e.g. Chiari I malformation), retained rhombic roof, post surgical scar 2. Primary spinal syringomyelia: cyst arises in the cord substance without tonsillar descent; may be due to trauma, tumor, or arachnoiditis What are the symptoms of communicating syringomyelia?

32. A.N.T.S Q.What is syringomyelia? syringomyelia is not a single disease. Itis a condition which may have many causes and any two people http://glaxocentre.merseyside.org/syring.html

Q.What is Syringomyelia? Syringomyelia is not a single disease. It is a condition which may have many causes and any two people who have it are not likely to progress in the same way. The common causes include deformities of the base of the brain, hydrocephalus (water on the brain), spina bifida, brain tumours, spinal cord tumours, paraplegia caused by fractures of the spine, bone disorders and meningitis. It is not an inherited complaint. The effects are very variable. The commonest symptoms are pain, often not explained for a long while, curvature of the spine, disruptions of joints, loss of feeling in the limbs, particularly loss of ability to feel heat, cold and pain sensations and wasting, weakness and clumsiness of the limbs. In the late stage of the most severe varieties of the disorder, swallowing or breathing may be affected and a proportion of patients become reduced to using a wheelchair. Q. What are the aims of research? The commonest variety of Syringomyelia, the kind where the base of the brain is deformed, remains unexplained in the majority of cases. The elucidation of the cause of these deformities and also the way in which they cause the Syringomyelia cavities within the spine, requires further understanding. The best form of treatment is undetermined. There are several varieties of surgical treatment, all of these have some success but they are not successful in arresting the disease in all patients. The best treatment for each variety of the disease is at present often a matter of guesswork.

33. Syringomyelia syringomyelia. Who to Contact Where to Go to Chat with Others Learn More AboutIt Web Sites Search AltaVista for syringomyelia . syringomyelia and Scoliosis. http://www.familyvillage.wisc.edu/lib_syrn.htm

Syringomyelia Who to Contact Where to Go to Chat with Others Learn More About It Web Sites ... Search AltaVista for "Syringomyelia" Who to Contact American Syringomyelia Alliance Project, Inc. P.O. Box 1586 Longview, Texas 75606-1586 1-800-ASAP-282 Email: info@asap4sm.com Where to Go to Chat with Others Syringomyelia on-line discussion groups. Learn More About It Syringomyelia fact sheet from NIH Hydromyelia/Syringomyelia information Syringomyelia - from The Spinal Cord Injury Newsletter Syringomyelia and Scoliosis ... Syringomyelia information from OMIM Web Sites Syringomyelia Facts American Syringomyelia Alliance Project, Inc. Back to [ S - T Family Village Home Library Coffee Shop ... Information Last Updated May 6, 1999 by familyvillage@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/lib_syrn.htm

34. Syringomyelia syringomyelia OnLine Discussion Groups. Mailing Lists. ASAP-L American syringomyeliaAlliance Project - Open to anyone interested in syringomyelia. http://www.familyvillage.wisc.edu/lists/Syringomyelia.htm

Syringomyelia On-Line Discussion Groups Mailing Lists ASAP-L American Syringomyelia Alliance Project - Open to anyone interested in syringomyelia. To join send an e-mail message to: listserv@maine.maine.edu In the body of the message type: Subscribe asap-l Your Name If you know of an on-line discussion group that should be added to the list, please send a note to Linda Rowley at: rowley@waisman.wisc.edu Last updated 9-Jan-1997 by rowley@waisman.wisc.edu.

35. MedFriendly.com: Syringomyelia TM, syringomyelia MedFriendly.com TM TM. Featured book on syringomyelia fromBarnes Noble.com What is it? What does syringomyelia look like? http://www.medfriendly.com/syringomyelia.html

TM Syringomyelia MedFriendly.com TM TM A B C D ... What is the origin of the term, syringomyelia? WHAT IS IT? Syringomyelia is a rare condition in which long, fluid filled spaces are present in the central gray matter (a gray looking substance) of the spinal cord and surrounded by thick tissues made of glial cells . Glial cells maintain and support other cells. A cell is the smallest, most basic unit of life, that is capable of existing by itself. Because syringomyelia usually gets worse over time it is known as a progressive illness. WHAT DOES SYRINGOMYELIA LOOK LIKE? The long spaces in syringomyelia look like tubes in the spinal cord. It can also look like one big tube in the spinal cord. Here is an example of what syringomyelia looks like in this scan of the spine: WHAT CAUSES SYRINGOMYELIA? In syringomyelia, cerebrospinal fluid enters the spinal cord an forms an opening known as a syrinx. Cerebrospinal fluid is a cushiony fluid that protects the brain and spine. Over time, the opening gets bigger and longer, destroying the center of the spinal cord. Nerve fibers inside the spine can also get damaged.

36. Syringomyelia AHIS. SEARCH BROWSE ABOUT WHAT'S NEW SUBMIT SITE TRAINING SITE MAP, syringomyeliaup. syringomyelia, A short document about syringomyelia aimed at the public. http://omni.ac.uk/browse/mesh/detail/C0039144L0039144.html

Syringomyelia [up] Related topics: broader Spinal Cord Diseases other Amyotrophic Lateral Sclerosis Muscular Atrophy, Spinal Poliomyelitis Spinal Cord Injuries ... Syringomyelia A short document about syringomyelia aimed at the public. It explains syringomyelia, its causes and the aim of research, written by Ann's Neurological Trust Society which is a self- help group for patients with syringomyelia. Published on the web by the Glaxo Neurological Centre. Patient Education Self-Help Groups Syringomyelia Last modified 28/Mar/2003 [Low Graphics]

37. ClinicalTrials.gov - Linking Patients To Medical Research: Results Search results for syringomyelia ALLFIELDS are shown below. 1. Recruiting,Study and Surgical Treatment of syringomyelia Condition syringomyelia. http://www.clinicaltrials.gov/search/term=Syringomyelia

Home Search Browse Resources ... About Search results for Syringomyelia [ALL-FIELDS] are shown below. Show all trials, including those no longer recruiting patients. 3 studies were found. Recruiting Study and Surgical Treatment of Syringomyelia Condition: Syringomyelia Recruiting Establishing the Physiology of Syringomyelia Conditions: Arnold Chiari Deformity; Hydrocephalus; Syringomyelia Recruiting Genetic Analysis of the Chiari I Malformation Conditions: Syringomyelia; Type I Arnold Chiari Malformation U.S. National Library of Medicine Contact NLM Customer Service National Institutes of Health Freedom of Information Act ... Accessibility

38. ClinicalTrials.gov - Linking Patients To Medical Research: Study Details Establishing the Physiology of syringomyelia. syringomyelia is a pocketwithin the CSF channels that results from abnormal CSF flow. http://www.clinicaltrials.gov/ct/gui/show/NCT00001327?order=2

39. Pulse24 - Toronto's News survive the onslaught of syringomyelia. Chances are you’ve never heardof syringomyelia. And if so, you’re one of the lucky ones. http://www.pulse24.com/News_Features/Pulse_on_Health/20020121-001/page.asp

Monday, March 31, 2003 Top Stories War In Iraq Newserials Strange But True ... Startv Spine Tingling Health Specialist Laura DiBattista finds patients need a lot of backbone to survive the onslaught of Syringomyelia. Chances are you’ve never heard of Syringomyelia. And if so, you’re one of the lucky ones. The debilitating spinal condition is progressive, and can eventually leave the sufferer paralyzed. “It refers to a cyst that forms in the spinal cord,” explains Neurosurgeon Dr. Michael Fehlings of Toronto Western Hospital. “It's a very serious condition that can result in paralysis, numbness, loss of function.” But now researchers are making inroads on this puzzling syndrome, by examining human spinal tissue. They hope it will hold the key to unlock the mystery behind the disease. For Barbara Forrestall, who developed the condition after an auto accident, that can’t come too soon. “It’s constant pain that no pill can take away,” she laments. “I feel the pain 24 hours a day. It would be amazing to be without pain for even one hour.” Dr. Fehling agrees more attention is needed to the problem. “Often the treatments are not very effective,” he acknowledges. “We really need improved medical research in this area.” Canadian Syringomyelia Network 69 Penny Crescent Markham, Ontario L3P 5X7

40. NEJM -- Syringomyelia Images in Clinical Medicine from The New England Journal of Medicine syringomyelia. Volume346e1, January 3, 2002, Number 1. Next Next. syringomyelia. http://content.nejm.org/cgi/content/full/346/1/e1

HOME SEARCH CURRENT ISSUE PAST ISSUES ... HELP Volume 346:e1 January 3, 2002 Number 1 Next Syringomyelia View larger version [in this window] [in a new window] A 24-year-old man had a three-year history of progressive muscle wasting and sensory loss in his arms, dysphonia, and dysphagia. During the previous five months, he had had several painless burns on his hands. He had no history of cranial or cervical trauma. He had marked atrophy of the right deltoid, biceps, and upper trapezius muscles and of the hypothenar eminence and dorsal interosseous muscles of the right hand. Biceps, triceps, and brachioradialis reflexes were bilaterally abolished. Sensitivity to pain and heat was lost in both arms, over the right side of the face, and over the chest and upper back. Hypalgesia was present in the perioral skin of the left side of the face. The right corneal reflex was decreased. Touch and pressure perception was preserved. No gait abnormality was identified. Sagittal, T -weighted magnetic resonance imaging (MRI) of the cervical spine without gadolinium enhancement showed a pathologic cavitation (syrinx) extending along the entire cervical cord (arrows in Panel A). MRI of the dorsal spine showed syringomyelic disease of the dorsal cord (arrows in Panel B). A cervical syringotomy was performed. Two years later, there had been no change in the degree of sensory loss and amyotrophy, but the dysphonia and dysphagia had decreased, and no further clinical deterioration had occurred. Monterrey, Mexico

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