41. Finally I Found A Website That Can Give Support To Family With A Child Who Has D At first the doctors said that he had tar syndrome. but I recentlyfound this site that talk about Vater Syndrome And tar syndrome. http://www.vaterconnection.org/stories/Jonathan.htm

Finally I found a website that can give support to family with a child who has disability. My son Jonathan was born with only one kidney and Radial Club Hands (both hands). Also was born with a hole in his heart ,but was close after his first birthday. He has gone through three hand surgery before his three birthday. At first the doctors said that he had TAR Syndrome. but I recently found this site that talk about Vater Syndrome And TAR Syndrome. I would like to know what syndrome my son has because it's very confusing, if he has Vater Syndrome or TAR Syndrome. My son will be 10yrs on Feb. 28, 2001 If anyone has inform on these syndrome please email me at AdriJoni@aol.com

42. Wests Glass: TAR tar syndrome Meg Anne West (DOB 4th December 1998) We created this siteto provide information for families with TAR children. Sharing http://www.westsglass.com.au/home.asp?ct=TAR

43. Mioti: Medical Condition Main Page Add Website Add Conference Advertising Information Email Mioti. Condition tar syndrome. NORD Thrombocytopenia Absent Radius Syndrome. http://www.mioti.com/cat/condition/condition.asp?Cat=TARSyndrome

44. Mioti: Medical Condition Takayasu Disease, • Tangier Disease. • tar syndrome, • TardiveDyskinesia. • Target Cell Anemia, • Tarsal Tunnel Syndrome. http://www.mioti.com/cat/condition/results.asp?Alpha=T

45. Thrombocytopenia Absent Radius Syndrome : Meddie Health Search ITEMS LINKS Pediatric Database A definition of tar syndrome, the epidemiology,pathogenesis, clinical features, investigations and management. http://www.meddie.com/search/Health/Conditions_and_Diseases/Genetic_Disorders/Th

HOME ADD A LINK MODIFY A LINK NEW LINKS ... TOP RATED Search Meddie: the entire directory only this category More search options Home Health Conditions and Diseases ... Genetic Disorders : Thrombocytopenia Absent Radius Syndrome ITEMS: LINKS: Pediatric Database A definition of TAR syndrome, the epidemiology, pathogenesis, clinical features, investigations and management. (Rating: 0.00 Votes: 0) Rate It TAR Syndrome A personal page about this disorder including links to information. (Rating: 9.00 Votes: 1) Rate It HOME ADD A LINK MODIFY A LINK ... Design © ISC Enterprises Inc.

46. TAR-syndromet - Små Och Mindre Kända Handikappgrupper Det finns ingen förening för TARsyndromet i Sverige, men svenska familjer välkomnasav den engelska föreningen tar syndrome Support Group, Internetadress http://www.sos.se/smkh/2002-29-157/2002-29-157.htm

Socialstyrelsen 106 30 Stockholm e-post Socialstyrelsen klassificerar sin utgivning i olika dokumenttyper TAR-syndromet Sjukdom/skada/diagnos Orsak till sjukdomen/skadan Symtom Diagnostik ... Databasreferenser Dokumentdatum: 2002-09-11 Version. 1.0 Socialstyrelsen Detta är ett utdrag ur Socialstyrelsens kunskapsdatabas om små och mindre kända handikappgrupper. Med små och mindre kända handikappgrupper avses ovanliga sjukdomar/skador som leder till omfattande funktionshinder och som finns hos högst 100 personer per miljon invånare. Syftet med databasen är att ge aktuell information om små och mindre kända handikappgrupper och om det stöd och den service som dessa grupper behöver. För ytterligare information om aktuell diagnos hänvisas till informationsmaterial, litteratur och databaser som anges under resp diagnos. Sjukdom/skada/diagnos t a r Orsak till sjukdomen/skadan Symtom Diagnostik Praktiska tips Resurspersoner Kurser, erfarenhetsutbyte, rekreation kerstin.wennstrom@telia.com styrelse.sallsyntadiagnoser@funka.nu , Internetadress: www.sallsyntadiagnoser.nu mail@riks.rbu.se

47. GASNet Anesthesiology: TAR Syndrome tar syndrome (Thrombocytopenia and Absent Radius) symptoms and caveats http://gasnet.med.yale.edu/pediatric-syndromes/tar.php

48. GASNet Anesthesiology: Contents S - Z TAR. tar syndrome (Thrombocytopenia and Absent Radius). Tauri. Thrombocytopenia.tar syndrome (Thrombocytopenia and Absent Radius). Tooth. http://gasnet.med.yale.edu/pediatric-syndromes/s2z_br.php

Contents S - Z - pediatric syndromes - Sachs Tay - Sachs Disease Saethre Saetre - Chotzen Syndrome Sanfilippo Sanfilippo Syndrome (Mucopolysaccharidosis Type III) Scheie Scheie Disease (Mucopolysaccharidosis Type V) Schönberg Albers - Schönberg Disease (Osteopetrosis, Marble Bone Disease) Schönlein Henoch - Schönlein Purpura Schuller Hand - Schuller - Christian Disease (Histiocytosis X) Schwartz Schwartz - Jampel Syndrome Scleroderma Scleroderma Senior Senior - Loken Syndrome Seip Seip - Lawrence Syndrome Sheldon Freeman - Sheldon Syndrome (Whistling Face Syndrome) Shone Shone Syndrome Shy Shy - Drager Syndrome Siemens Christ - Siemens - Touraine Syndrome (Anhydrotic Ectodermal Dysplasia) Silver Russell - Silver Syndrome Sipple Sipple's Syndrome (MEN - type II) Siwe Letterer - Siwe Disease (Acute Disseminated Histiocytosis) Smith Smith - Lemli - Opitz Syndrome Sotos Sotos's Syndrome (Cerebral Gigantism) Spatz Hallervorden - Spatz Disease Stevens Erythema Multiforme Major (Stevens - Johnson Syndrome) Steinert Myotonic Dystrophy (Steinert's Disease) Stickler Stickler Syndrome Still Still's Disease Strandberg Groenblad - Strandberg Syndrome (Pseudoxanthoma Elasticum) Streiff Hallerman - Streiff Syndrome Sturge Sturge - Weber Syndrome Sulzberger Bloch - Sulzberger Syndrome Sydenham Sydenham's Chorea System Lupus Erythematous System Lupus Erythematous Tangier Tangier Disease (Analphalipoproteinemia) TAR TAR Syndrome (Thrombocytopenia and Absent Radius) Tauri Tauri Disease (Glygogen Storage Disease Type VII) Tay Tay - Sachs Disease Taybi Rubenstein - Taybi Syndrome Telangiectasia

49. Support Organisations For Parents, Children & Carers: Raisingkids tar syndrome Support Group Selfhelp group offering support and telephonecontact with others in a similar situation where possible. http://www.raisingkids.co.uk/sup/sup_T01.asp

SITEMAP Site Search Home 1st Time Here? Free Membership! Help! How Do I... ... About Us Support For Parents (A-Z Listings By Topic): T Talipes: STEPS Charity No 327662 Support for any condition that can affect walking ability such as clubfoot, or congenital dislocation and developmental dysplasia of the hip. Talking: AFASIC Charity No 1045617 Combats communication impairment in children. TAR Syndrome Support Group Self-help group offering support and telephone contact with others in a similar situation where possible. Teenagers: Connections - Next Steps at 16 Guidance and support for 13 to 19 year olds, to help make the transition to adult life a smooth one. Terminal Care: Association of Children's Hospices Represents all the voluntary sector children's hospices and brings together over 37 voluntary sector organisations in Great Britain dedicated to the care of terminally ill children. Terminal Care: Cancer Care Society Emotional support for lives touched by cancer.

50. Thrombocytopenia Absent Radius Syndrome Information Sites See Also Health Conditions and Diseases Rare Disorders. tar syndromeSupport Group For families of children born with this rare disorder. http://www.healthorgs.com/ConditionsandDiseases/GeneticDisorders/Thrombocytopeni

HEALTHorgs.com Search The Largest Human Reviewed Health Database on Internet (Not sure of spelling? Use first letters and * such as abc* or abcd* or abcde*) Match:.. All Any Format: Long Short Search Words: Search the Internet (Not sure of spelling? Use first letters and * such as abc* or abcd* or abcde*) Match:.. All Any Format: Long Short Search Words: Top Health Conditions and Diseases Genetic Disorders : Thrombocytopenia Absent Radius Syndrome See Also: Health: Conditions and Diseases: Rare Disorders TAR Syndrome Support Group - For families of children born with this rare disorder. TAR Syndrome - A personal page about this disorder including links to information. NORD - Thrombocytopenia Absent Radius Syndrome - Offers the synonyms, a general discussion and further resources. Pediatric Database - A definition of TAR syndrome, the epidemiology, pathogenesis, clinical features, investigations and management. Click Here for a fast ON-LINE APPLICATION FREE HOME LOAN APPRAISAL (on approved loans) The content of the SPYorg.com directory is based on the Open Directory and is enhanced using Spyorg.com technology.

51. Ask Jeeves: Search Results For "Absent" 1. tar syndrome On September 28, 1998 my son Alex was born with thrombocytopenia(low platelet count) and missing radii in both arms. http://webster.directhit.com/webster/search.aspx?qry=Absent

52. Diet, Health, Diseases, Vitamins Iwant2bhealthy.com tar syndrome. tar syndrome SUPPORT GROUP – Sue and Evan Edwards, ‘Little Wings’,Whatfield Road, Elmsett, IP7 6LS. Tel 01473 657 535 (89pm week-days). http://www.iwant2bhealthy.com/supportgroups/index_t.shtml

location: support groups healthy iwant2b.com Support groups Thalassaemia Thyroid Tourette syndrome Trauma and disaster ... Treacher collins syndrome Support groups quick finder Aids / HIV Anorexia Arthritis Asthma ... P Q R S T U ... X Y Z Information supplied by g-text FREEPOST NWW6775, BLACKPOOL. FY4 3GA. TAKAYASU’S ARTERITIS see under Stuart Strange Trust under Wegener’s Granulomatosis TALIPES contact STEPS under Lower Limb Abnormalities TAR SYNDROME TAR SYNDROME SUPPORT GROUP – Sue and Evan Edwards, ‘Little Wings’, Whatfield Road, Elmsett, IP7 6LS.  Tel 01473 657 535 (8-9pm week-days).  Information, newsletters and annual meetings. TAY-SACHS SYNDROME see also RTMDC under Metabolic Diseases BRITISH TAY-SACHS FOUNDATION – Mrs Jess Clare, 17 Highfield Road, Golders Green, London, NW11 9LS.  Tel 020 8922 2590/Fax 020 8922 2585.  Information and screening and funds research.  E-mail info@jcare.org            Web page http://www.jcare.org

53. Surgery Door Support Groups tar syndrome SUPPORT GROUP (Great Britain and Europe). tar syndrome SUPPORTGROUP (Great Britain and Europe). TOURETTE SYNDROME (UK) ASSOCIATION. http://www.surgerydoor.co.uk/sg/detailtest.asp?keyword=RARE SYNDROME

54. Nature Publishing Group with absent radii (TAR) syndrome and Fanconi anaemia 13 . So far, proximal radial-ulnarsynostosis has not been associated with the tar syndrome, which, as http://www.nature.com/cgi-taf/DynaPage.taf?file=/ng/journal/v26/n4/full/ng1200_3

55. VADA GEZONDHEID En ZIEKTE - HEALTH And DISEASE THROMBOCYTOPENIA THROMBOCYTOPENIA ABSENT RADIUS SYNDROME TAR tar syndrome.tar syndrome Association; Thrombocytopenia. THROMBOCYTOPENIC PURPURA. http://www.vada.nl/medisch/medteh.htm

VADA - GEZONDHEID en ZIEKTE HEALTH and DISEASE TE - TH OPGELET - ATTENTION Patienten en leken die raadgevingen/adviezen/informatie zoeken via deze verzameling links wordt dringend geadviseerd de verzamelde informatie te bespreken met de (behandelend) arts/specialist/hulpverlener. Patients and lay persons looking for guidance among the target sources of this collection of links are strongly advised to review the information retrieved with their professional health care provider. TECHNOSIS TECHNOSTRESS See also: STRESS TechnoStress TEELBAL ZAADBAL TESTIKEL TESTIS BALLEN TESTICLE See also: KLINEFELTER SYNDROOM KLINEFELTER's SYNDROME See also: ORCHIDOPLEXIE See also: BALZAK SCROTUM Human Testis Spermatic Cord - Head of Epididymus - Efferent Ducts - Straight Tubule - Rete Testis - Seminiferous Tubule - Tunica Albuginea - Scrotal Cavity - Tail of Epididymus - Ductus Deferens - Body of Epididymus Mannelijke geslachtsorganen: Testikels Ballen Balonderzoek The Endocrine System TEEN TENEN TOE TOES INTOEING PIGEON TOES See also: NAAR BUITEN GERICHTE GROTE TEEN See also: ZIEKTE van RAYNAUD RAYNAUD's DISEASE See also: VOET FOOT A case of Subungal Exostosis (great toe) About Intoeing in Children - Virt Hosp In-Toeing - Children's Hospital TELEMEDICINE Telemedicine TELEPATHIE GANZFELD-EXPERIMENT TELEPATHY ESP Ganzfeld-experiment Introduction to the Ganzfeld ESP Technique Telepathy. the other way the mind communicates. Introduction to Mental Telepathy: showing historical accounts and a brief look at the various types

56. Roche Lexikon Medizin (4. Aufl.) - TAR-Syndrom Translate this page TAR-Syndrom. engl. tar syndrome. (engl. = thrombocytopenia-absent radiussyndrome) autosomal-rezessiv erbliche symmetrische Radiusaplasie http://www.gesundheit.de/roche/ro37500/r38037.html

TAR-Syndrom engl.: TAR syndrome (engl. = t hrombocytopenia- a bsent r Verwandte Themen Tetraphokomelie

57. Unser Gästebuch Translate this page Maar kan het wel spreken en lezen. We zijn een gezin dat een vier maanden oudebaby met tar syndrome ze heeft juist haar eerste operatie ondergaan. http://www.1-2-3-gaestebuch.de/buch.gb?benutzer=Colt&sn=3

58. Home Page Details of a comprehensive and up-to-date directory of UK self help groups.Category Health Support Groups Disability...... SOLVENT ABUSE, SOTOS SYNDROME, SUDDEN INFANT DEATH SYNDROME, SYRINGOMYELIA , SYSTEMICSCLEROSIS, TAKAYASU'S ARTERITIS, TALIPES, tar syndrome, TAYSACHS SYNDROME http://www.doctor.gp/help/

DIRECTORY OF BRITISH SELF HELP GROUPS AND SUPPORT ORGANISATIONS by Steve and Julie Garrill New 9th Edition Now available on CD. The directory contains details of over 820 British national self-help and support organisations covering more than 750 conditions and needs. It is alphabetically sorted, cross-referenced and indexed. Some conditions included in the directory:- Full list of conditions covered

59. Globlank tar syndrome Support Group tar syndrome (Thrombocytopenia with abscent radii)is characterised by a reduction of the number of platelets in the blood and http://www.thalidomide.org/FfdN/english/eglolank.htm

International links Ishizue ( Japanes/English ) http://www02.so-net.ne.jp/~ishizue Thalidomide Victims Association of Canada, TVAC ( English ) http://www.thalidomide.ca Health World ( English ) http://www.healthworld.com/library/search/medline.html Disability Access ( English ) http://www.healthworks.co.uk/ ADA ( English ) http://www.public.iastate.edu/~sbilling/ada.html WebAble ( English ) http://www.yuri.org/webable/ Full Rulle ( Norwegien ) http://www.fullrulle.no http://www.independentliving.org ( English ) http://neptune.psn.net/~oandpnet/ The PeopleNet Dis - Ability DateNet ( English ) http://idt.net/~mauro/ The Child Amputee Home Page ( English ) http://www.amp-info.net/childamp.htm TAR Syndrome Support Group T.A.R Syndrome (Thrombocytopenia with abscent radii) is characterised by a reduction of the number of platelets in the blood and bilateral absence of the radii (forearm bones) In about 50% of cases there are other skeletal abnormalities, particularly to the lower limbs. The webpage is in english and belongs to a supportgroup for persons with T.A.R syndrom.

60. TVAC Educational Brochure Hand syndrome; Fanconi's panmyelopathy; tar syndrome (thrombocytopeniaabsentradius); Cornelia de Lange syndrome; VATER association; http://www.thalidomide.ca/english/brochure1.htm

TVAC's Position Regarding the Return of Thalidomide Information Directors Links Contacts ... Visualisez ce site en français Malformations Caused By Thalidomide PHOCOMELIA is the limb malformation most commonly associated with Thalidomide. The word phocomelia is from the Greek words phoke meaning "seal" and melos meaning "limb", in which the hands and/or feet start immediately at the main joint (shoulder/hip). Thalidomide malformations are almost all bilateral/symmetrical. That means both sides of the body are affected in the same way (both arms, both legs, all four). Other Thalidomide malformations When taken during pregnancy (particularly the first trimester) thalidomide causes malformations to almost any part of the body that is developing at the time the drug is taken. These are just some resulting malformations: Missing or malformed limbs (bilateral) No ears or deafness Missing or extra fingers or toes Partial or total loss of sight Improper formation of the heart, kidney and other internal organs Improper formation of the anus and/or genitalia Cleft palate Flattening of the bridge of the nose Thalidomide Chronology Thalidomide became available in West Germany on October 1, 1957. Although never licenced for sale in the United States, it was available in sample form in the U.S. from 1958 to 1961

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