41. Public Information Links Malformations Celiac Disease Cyclic Vomiting Cystic Fibrosis Eating Disorders EosinophilicDisorders Esophageal AtresiaTEF-vater syndrome Familial Polyposis http://www.naspgn.org/sub/publicinfolinks.asp

Note: Links lead to other WWW sites on the Internet. NASPGHAN has not endorsed and makes no warranty as to the accuracy of the information contained within them and assumes no liability related to their use. NASPGHAN has not endorsed, and is not responsible, for the content of any of these linked, third-party websites. NASPGHAN has not endorsed any products advertised on any of the linked third-party websites. Public Information Links This page contains names and addresses of organizations prepared to answer questions and supply information about the following gastrointestinal conditions. Anorectal Malformations Celiac Disease Cyclic Vomiting Cystic Fibrosis ... TPN and Enteral Nutrition Category Organization Description Web Link Anorectal Malformations Pull-Through Network Parent/patient information and/or support group http://www.pullthrough.org Anorectal Malformations The Family Village Online discussion group http://www.familyvillage.wisc.edu/lists/ anorect.htm Celiac disease Canadian Celiac Association Parent and Professional information http://www.celiac.ca

42. New Memeber Daughter Has Caudal Regression Syndrome, Vater Syndrome And Syrinx New memeber daughter has Caudal Regression syndrome, vater syndromeand syrinx. Author, Subject history. She has vater syndrome. It http://asap4sm.org/forums/general/posts/2363.html

New memeber daughter has Caudal Regression syndrome, Vater syndrome and syrinx Author Subject: New memeber daughter has Caudal Regression syndrome, Vater syndrome and syrinx Laura Posted At Laura. Kassie's mom This forum is not a substitute for medical advice. Always consult a qualified medical professional. ASAP does not monitor or endorse the content of this forum. Debbie Blecha Re: New memeber daughter has Caudal Regression syndrome, Vater syndrome and syrinx (Currently replies) Posted At Laurie Re: New memeber daughter has Caudal Regression syndrome, Vater syndrome and syrinx (Currently replies) Posted At Vicki Re: New memeber daughter has Caudal Regression syndrome, Vater syndrome and syrinx (Currently replies) Posted At Hi!! Well I guess I am the oldest one here with CRS. As with Laurie, there was no name for this when I was born, and my parents were told the same thing about my life expectancy! Damn good thing they didn't quit their doctor jobs, as they suck BIG time as a physic! giggles Now since my grandfather told me years ago "a woman who will tell her age, will tell anything" giggles.. I will only

43. Neonatal Intensive Care Exam 4. Define Gatroschisis ? a), Often associated with TEF and vater syndrome. 7.Define Omphalocele, a), Often associated with TEF and vater syndrome. http://208.251.36.57/testing/qptest/XMnicu.HTM

Neonatal Intensive Care Exam Quiz Number: xmNICU Teacher: Procare One Nurses, LLC Teacher's Home Page: http://procareone.com Student Name: Student No: Student Email: No. of Questions= Pass mark is - To submit this test, press the Submit button at the bottom of the page Please choose the BEST possible answer. Be sure to answer every question. What is the definition of "Acrocyanosis"? a) Abdominal wall defect to the right of the midline without a sac or sac remnants b) Umbilical defect with viscera protruding from the abdominal cavity into a transparent sac c) Peripheral cyanosis of the hands and feet. What is the definition of "Caput Succedaneum"? a) Edematous area on the presenting part of the scalp that extends over the suture lines: resolves in 24-48 hours b) Characterized by drooling difficulty in feeding, coughing and regurgitating after 1-2 sucks c) Peripheral cyanosis of the hands and feet What is the definition of "Choanal Atresia"? a) Edematous area on the presenting part of the scalp that extends over the suture lines: resolves in 24-48 hours b) Characterized by the noisy breathing, cyanosis and apnea of the quiet infant (mouth closed).

44. URMC Press Release Austin was born with what is called vater syndrome, a group of birthdefects commonly associated with one another. Children who http://www.urmc.rochester.edu/pr/News/ithaca.html

Education Research Patient Care URMC Publications ... News Page Hot off the presses... May 30, 2001 For more information contact: Travis Anderson (716) 273-1757 Ithaca Baby Beats "Condition Incompatible with Life" His family will share its heartwarming story during Miracle Weekend Hours after Austin Lamb was born, doctors at Children's Hospital at Strong in Rochester described the premature baby's condition as grave. Without specialized surgery, the newborn would die. That was in August 2000. Less than a year later, Austin Lamb has undergone four major re-constructive surgeries to make his gastrointestinal system - among other parts of his body - function as it should. His physicians expect him to make a full recovery. As part of its Miracle Weekend celebration May 31 to June 3, Children's Hospital at Strong is honoring five children - including Austin - as Miracle Kids. Each child overcame significant health problems while being treated at Children's Hospital at Strong. Austin's Story On Aug. 16, 2000, some two months before she was due to give birth to her first child, Sally Lamb suddenly went into labor. Because she wasn't due until October, Lamb was transferred from Cayuga Medical Center in Ithaca to Arnot-Ogden Hospital in Elmira, where she delivered a baby boy.

45. Keep Kids Healthy - Free Pediatric Parenting Advice Turner Syndrome. Ulcerative colitis. Urinary Incontinence New! vater syndrome.Vesicoureteral Reflux New! Wilms tumor. Preventing Common Childhood Infections. http://www.keepkidshealthy.com/pediatric_problems.html

Bookstore Site Map Contact Us Help ... Free Web Pages! Search this site: Advanced Search Free Newsletters Main Menu Useful Tools Index of Topics Pediatric Problems New! Parenting Tips Symptom Guide Nutrition Immunizations ... Web Links Online Resources What's New Reviews New! Growth Charts Online Forums Vaccine Schedule Baby Names Guide ... Height Calculator Newsletters: Subscribe to get free news, tips and updates. Recommend Us tell a friend about us or email this page to a friend Common Problems Diseases/Conditions Common Infections ... Child Abuse New! Colic Constipation Crossed eyes Dental Health ... Food allergies New! Gastroenteritis Gynecomastia New! Hay fever Headaches Hearing loss Heart murmur ... Suicide New! Sunburn Swimmer's Ear New! Toilet Training Toilet training resistance New! Torticollis Undescended testicles Urinary Tract Infections Vision problems ... Aicardi Syndrome AIDS Anxiety Disorders New! Arrhythmias Arthritis Asperger's syndrome Attention Deficit Hyperactivity Disorder Autism Beckwith Weidemann syndrome ... Celiac Disease New! Cerebral palsy Cleft lip and palate Congenital Adrenal Hyperplasia (CAH) Congenital Heart Disease Craniosynostosis Crohn disease Cystic fibrosis Depression ... Fragile X syndrome Galactosemia Gilberts syndrome Glomerulonephritis Guillain Barre Syndrome Hematuria Hemophilia Hemolytic Uremic Syndrome Henoch-Schonlein purpura Hereditary Hemochromatosis Hirschsprungs disease Horner syndrome Hydrocephalus Hypertension Hypospadias and Chordee Inflammatory bowel disease Irritable Bowel Syndrome New!

46. Listings Of The World Health Conditions And Diseases Rare 2) Pemphigus (9), Phenylketonuria (8) Pierre Robin Syndrome (5) Progeria (10)RubinsteinTaybi Syndrome (5) Tyrosinemia (7) vater syndrome (9) Wegener's http://listingsworld.com/Health/Conditions_and_Diseases/Rare_Disorders/

47. Self Help Groups NG4 2NN. The VATER connection See also Jordan's Story vater syndromein the Electronic Journal of Hand Surgery. TAG (arthrogryposis http://www.leeds.ac.uk/handsurgery/Self_help_groups.htm

Hand Surgery Home The Team Specialist Services Related links ... Hand FAQ's Self Help Groups Erbs Palsy Group - Erb's Palsy/Brachial Plexus Paralysis The Erb's Palsy Group, UK This condition is mainly caused by birth trauma, affecting one or all five nerves that supply the movement and feeling to the arm. The paralysis can be partial or complete and depends on the damage that the nerve(s) have received. We, as a group, help and support parents and professionals by; Giving support to parents Putting parents in contact with each other Producing a quarterly Newsletter Assist in obtaining medical information Advise on benefits and aids for the children Holding an Annual study day for professionals If you would like more information, please contact: UK: The Erb's Palsy Group , 2 Willoughby Close, Emesford Grange, Coventry, CV3 2GJ Phone: 01203 452321. email address: info.erbspalsy@btinternet.com

48. Links: Health: Rare Disorders- Alabama Council For Developmental Disabilities Syndrome; Tyrosinemia; Usher Syndrome; vater syndrome; VeloCardio-FacialSyndrome; Waardenburg Syndrome; WAGR Syndrome; Weaver Syndrome; http://www.acdd.org/Links/conditions/Rare_Disorders.htm

You are here: Home Links Conditions Rare Disorders Rare Disorders Home About Definition Planning ... Search On this page: General Disorders General Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization. International Rare Disease Support Network - A community providing more than a 1000 different links to support groups for the people of all nations. Kindler Syndrome - An article and case study of this rare disease. Includes links. National Organization for Rare Disorders, Inc.

49. VATER Syndrome Web Directory. Top / Health / Conditions and Diseases / V / vater syndrome http://www.reference.com/Dir/Health/Conditions_and_Diseases/V/VATER_Syndrome/

(info) Premium: Sign up Login YOUR AD HERE Almanac ... Thesaurus Web Directory Web Directory Top Health Conditions and Diseases V / VATER Syndrome Hirschsprungs Imperforate Anus EA/TEF Family Support Connection Formed by and for families of children born with EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) and the medical professionals who treat them. The Vater Connection Support organization created by parents of children diagnosed with VATER Association TOFS - Tracheo-Oesophageal Fistula Support Group TOFS is a national registered charity in the UK which supports families and carers of babies born with Tracheo-Oesophageal Fistula, Oesophageal Atresia, VATER (VACTERL) Syndrome or any form of oesophageal defect or damage. Vater Syndrome Resources on the Net Definition of the various anomalies associated with the various acronyms - VATER, VACTERLS, VATERS, VACTERL. Link resources and information. Limb Anomalies Missing arm(s) or leg(s), Poland anomaly, Proximal Femoral Focal Deficiency, Holt Oram Syndrome, ectrodactyly, Proteus Syndrome, Sturge Weber Syndrome, Epidermolysis Bullosa, Nail Patella Syndrome, VATER Association, Arthrogryposis (amyoplasia), Cornelia de Lange Syndrome, other VACTERLS Association Family Network Organization connecting VACTERLS/VATER families to create a network of those who have survived and can help others make it through.

50. The National Kidney Research Fund Lee suffers from vater syndrome and has had much to cope with throughout hislife. In recognition of his bravery Lee received £2,000 prize money. http://www.nkrf.org.uk/pages/news/yhmullett.htm

NEWS RELEASE 6 December 2002 Lee Mullett from Ipswich is Award winner at National Awards Ceremony 17 year-old Lee Mullet of Ipswich, Suffolk has won the patient category of The National Kidney Research Fund's annual Young Hero Awards. The Young Hero Awards 2002 took place at Planet Hollywood, London on Thursday 28th November. A host of celebrities joined Lee and the other children at the Awards including Christine Hamilton, most recently on television programmes 'I'm a Celebrity Get Me Out of Here' and 'Have I Got News for You', Ben Shephard from GMTV, Jez Edwards and Angelica Bell, children's television presenters, Georgina Sherrington, who plays the Worst Witch, artists from soap opera Emmerdale and children's drama Byker Grove, as well as the Red Arrows. Lee has spent much of his childhood in Great Ormond Street and has recently received his second transplant - his first transplant did not go well, Lee suffered severe complications resulting in the kidney having to be removed. Lee, like all other children who have VATER syndrome suffers from a host of other problems. However, despite his problems and setbacks Lee is a real character. Lee doesn't take no for an answer and when he was twelve years old he signed himself up for the local football team. Lee stayed for three seasons and David's proudest moment was when Lee scored his first goal.

51. Medicalseek - Search Engine For The Healthcare Industry Conditions and DiseasesRare Disordersvater syndrome A Problem Shared The TOFSSupport Group was founded in 1982 in response to the needs of children born http://www.medicalseek.net/Conditions_and_Diseases_Rare_Disorders_VATER_Syndrome

CATEGORIES ADD A LINK ADVERTISE CONTACT US ... Rare Disorders VATER Syndrome Conditions and Diseases:Rare Disorders:VATER Syndrome A Problem Shared The TOFS Support Group was founded in 1982 in response to the needs of children born with Tracheo-Oesophageal Fistula and associated conditions. tofs.org.uk EA/TEF Family Support Connection Formed by and for families of children born with EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) and the medical professionals who treat them. eatef.org/ Frequently Asked Questions (FAQ) Surgeons, Nurses and Parents questions regarding The Malone Procedure, VATER, Soave pull-through for Hirschsprung's and more. lij.edu/sch/ped_surgery/psarp-faq.html KUMC Pediatrics: Approach to the Dysmorphic Infant Dysmorphology is the study of abnormal form (congenital anomalies) nursing.umaryland.edu/mch/courses/639/dysmo... Online Mendelian Inheritance in Man - VATER Association database catalog of human genes and genetic disorders authored and edited by Dr. Victor A. McKusick and his colleagues at Johns Hopkins and elsewhere www3.ncbi.nlm.nih.gov:80/htbin-post/Omim/di...

52. Advanced Respiratory - Primary Diagnosis Referral Listing Prune Belly Syndrome; Sanfilippo Syndrome; Trisomy 14 Q Plus; TurnerSyndrome; vater syndrome; VeloCardio-Facial Syndrome. Immunological http://www.abivest.com/conditions/pdrl.asp?gs=patients

53. Destinee's Story vater syndromeVacterl vertebral anomalies tethered spinal cord fused vertebraesacral agenesis fused ribs-missing ribs retinopathy genital tract anomalies http://destinees_story.tripod.com/

Get Five DVDs for $.49 each. Join now. Tell me when this page is updated Please DO NOT Take this angel! You can adopt your own Destinee Angel at Touch of Heaven "Hearts of Gold" God sent her an angel from up above, An angel who needed much love. She is not perfect in other peoples eyes. But to a mother, she is more beautiful then a zillion butterflies. Her name is Destinee, Named for a future we can not forsee. Her life is embedded deep within her mother's heart, Even after they must part. Destinee an angel in disguise, A mother's greatest prize. A treasure they will always hold, Destinee was born at 34 weeks gestation on 4/28/95 after inducing labor that lasted 36 hours with no progress. Lost all vitals with resulted in a crash c-section. Back a little, Destinee was conceived with help of infertility medications when I was 37 years old. I have 3 other children with no special needs. I had an amneo at 16 weeks results fine. Had level 2 ultrasound the last month of pregnancy and stress tests 3 times a week, she failed most of the time. The high risk doctors told me all was fine, she was fine. What were they looking at? Back to Destinee being born. The c-section they had to start in my room as I was going down the hall. The doctors and nurses were all over me. Destinee's first look at the world and my 2 seconds looking at her, my little girl were horrifying. Bubbles were coming out of her nose and mouth, she was so little and blue. The room was full of so many people, not at all what I had planned for the birth. They took her out to the NICU and finished with me. I wanted so to hold my baby. Destinee was flown within one hour of birth to a children's hospital. I had doctors calling me to give them permission to operate on my baby over the phone, strangers asking me to put her on machines and tubes and if I wanted her to try and be saved or to just let her be with out pain and let nature take it's course, all I knew was that god would have taken her by now if it was her time so I said do all it takes and put my faith in god. She went into surgery within hours of being there.

54. Medicine Online Medical Reference, Cosmetic Plastic Surgery, Bid For Rx, Medicat vater syndrome Support this site is a useful way to get information on where youcan find support if you or a love one is afflicted with vater syndrome. http://bid.medicineonline.com/Default.asp?SubCatID=47&Main=1

55. Electricbrain Home: Index: Health: Conditions And Diseases: Rare Disorders Progeria vater syndrome Wegener's Granulomatosis Agnosia Cystinosis Aicardi SyndromeAlstrom Syndrome Cleidocranial Dysplasia Cerebrocostomandibular Syndrome http://www.electricbrain.com/index/Health/Conditions_and_Diseases/Rare_Disorders

electricbrain Index Health Conditions and Diseases : Rare Disorders home index write privacy ... Ollier Disease Famous quotes: Slurm, n.: The slime that accumulates on the underside of a soap bar when it sits in the dish too long. Rich Hall, "Sniglets" Find someone: Old Friends New Friends Lost Love New Love ... privacy

56. Vater Syndrome vater syndrome A Problem Shared http//www.tofs.org.uk The TOFSSupport Group was founded in 1982 in response to the needs of http://www.medlina.com/vater_syndrome.htm

Academic Medicine Addiction Aging AIDS-HIV ... Women's Health The Web MEDLINA.com (partial) CDC WHO FDA NIH CATEGORIES Search: All Products Books Magazines Popular Music Classical Music Video DVD Baby Electronics Software Outdoor Living Wireless Phones Keywords: Home Up Vater Syndrome Velo-Cardio-Facial Syndrome VATER Syndrome A Problem Shared - http://www.tofs.org.uk The TOFS Support Group was founded in 1982 in response to the needs of children born with Tracheo-Oesophageal Fistula and associated conditions. The Vater Connection - http://www.vaterconnection.org Support organization created by parents of children diagnosed with VATER Association Pediatric Database - http://www.icondata.com VACTERL Association definition Radial Challenged Hands - http://www.vaterconnection.org Article by William P. Cooney, M.D. Division of Hand Surgery, Mayo Clinic Search for genetic factor(s)in VATER Syndrome - http://www.vaterconnection.org Article regarding systematic search for genetic factor(s) associated with VATER. Cloacal Exstrophy - http://www.vaterconnection.org

57. GASNet Anesthesiology: Contents S - Z Uremic. Hemolytic Uremic Syndrome. VATER. vater syndrome. Velocardiofacial. VelocardiofacialSyndrome. Vertebral. Goldenhar Syndrome (Auriculo Vertebral Syndrome). http://gasnet.med.yale.edu/pediatric-syndromes/s2z_br.php

Contents S - Z - pediatric syndromes - Sachs Tay - Sachs Disease Saethre Saetre - Chotzen Syndrome Sanfilippo Sanfilippo Syndrome (Mucopolysaccharidosis Type III) Scheie Scheie Disease (Mucopolysaccharidosis Type V) Schönberg Albers - Schönberg Disease (Osteopetrosis, Marble Bone Disease) Schönlein Henoch - Schönlein Purpura Schuller Hand - Schuller - Christian Disease (Histiocytosis X) Schwartz Schwartz - Jampel Syndrome Scleroderma Scleroderma Senior Senior - Loken Syndrome Seip Seip - Lawrence Syndrome Sheldon Freeman - Sheldon Syndrome (Whistling Face Syndrome) Shone Shone Syndrome Shy Shy - Drager Syndrome Siemens Christ - Siemens - Touraine Syndrome (Anhydrotic Ectodermal Dysplasia) Silver Russell - Silver Syndrome Sipple Sipple's Syndrome (MEN - type II) Siwe Letterer - Siwe Disease (Acute Disseminated Histiocytosis) Smith Smith - Lemli - Opitz Syndrome Sotos Sotos's Syndrome (Cerebral Gigantism) Spatz Hallervorden - Spatz Disease Stevens Erythema Multiforme Major (Stevens - Johnson Syndrome) Steinert Myotonic Dystrophy (Steinert's Disease) Stickler Stickler Syndrome Still Still's Disease Strandberg Groenblad - Strandberg Syndrome (Pseudoxanthoma Elasticum) Streiff Hallerman - Streiff Syndrome Sturge Sturge - Weber Syndrome Sulzberger Bloch - Sulzberger Syndrome Sydenham Sydenham's Chorea System Lupus Erythematous System Lupus Erythematous Tangier Tangier Disease (Analphalipoproteinemia) TAR TAR Syndrome (Thrombocytopenia and Absent Radius) Tauri Tauri Disease (Glygogen Storage Disease Type VII) Tay Tay - Sachs Disease Taybi Rubenstein - Taybi Syndrome Telangiectasia

58. GASNet Anesthesiology: VATER Syndrome vater syndrome symptoms and caveats http://gasnet.med.yale.edu/pediatric-syndromes/vater.php

59. Health/Conditions_and_Diseases/Rare_Disorders/VATER_Syndrome content, serving as your guide to reliable health information. / Health/ Conditions_and_Diseases / Rare_Disorders / vater syndrome. http://www.health-information-resource.com/Health/Conditions_and_Diseases/Rare_D

Search: Welcome to the health-information-resource.com search portal. Health-information-resource.com is the premiere health and wellness search portal dedicated to providing comprehensive and up-to-date health information. Whether you are a healthcare professional or a healthcare consumer, you are likely to find health, wellness and medical-related information here that is informative and practical. Health-information-resource.com strives to provide the most thorough and reliable health information possible to ensure that every individual and family can better manage their health. Feel free to browse the health-focused directory or conduct a search for your specific wellness-related request. As a healthcare consumer today, you are faced with many important decisions regarding your physical condition. Choosing between hospitals, health care providers, doctors, prescriptions, vitamins, and a variety of other wellness-related choices can be extremely complicated. Finding a single resource that can provide you with all the answers to your health questions may seem like an unbearable task. However, health-information-resource.com can do just that. Our database is updated on a continuous basis with innovative and pertinent content, serving as your guide to reliable health information. Health VATER Syndrome EA/TEF Family Support Connection Formed by and for families of children born with EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) and the medical professionals who treat them.

60. Korean Standard Classification Of Diseases Weber syndrome nail patella syndrome RubinsteinTaybi syndrome sirenomelia syndromethrombocytopenia with absent radius syndromeTAR vater syndrome Q87.3 http://www.nso.go.kr/eng/standards/edis/q87.htm

Q87 Other specified congenital malformation syndromes affecting multiple systems Q87.0 Congenital malformation syndromes predominantly affecting facial appearance Acrocephalopolysyndactyly Acrocephalosyndactyly (Apert) Cryptophthalmos syndrome Cyclopia syndrome Goldenhar syndrome Moebius syndrome Oro-facial-digital syndrome Robin syndrome Whistling face Q87.1 Congenital malformation syndromes predominantly associated with short stature Aarskog syndrome Cockayne syndrome De lange syndrome Dubowitz syndrome Noonan syndrome Prader-Willi syndrome Robinow-Silverman-Smith syndrome Russel-Silver syndrome Seckel syndrome Smith-Lemli-Opitz syndrome Exclusion : Ellis-van Creveld syndrome(Q77.6) Q87.2 Congenital malformation syndromes predominantly involving limbs Holt-Oram syndrome Klippel-Trenaunay-Weber syndrome nail patella syndrome Rubinstein-Taybi syndrome sirenomelia syndrome thrombocytopenia with absent radius syndrome[TAR] VATER syndrome Q87.3 Congenital malformation syndromes involving early overgrowth Beckwith-Wiedmann syndrome Sotos syndrome Weaver syndrome Q87.4 Marfan's syndrome Q87.5 Other congenital malformation syndromes with other skeletal changes Q87.8 Other specified congenital malformation syndromes, NEC Alport syndrome Laurence-Moon(-Bardet)-Biedl syndrome Zellweger syndrome

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