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Arthrogryposis:     more books (21)

Freeman-Sheldon syndrome: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Lisa Fratt, 2005 Series of casts straightens ligaments: correcting clubfoot without surgery.(Clinical Rounds)(Ponseti method): An article from: Pediatric News by Anne Scheck, 2004-05-01 Amyoplasia: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Mary, MS, CGC Freivogel, 2005 Just a Krooked Kid by Goodwin Hale, 1994-12-15 Some Crawl and Never Walk by Celestine Tate, 1995-06 Brittany: Child of Joy by Anne Adams, 1987-02

lists with details

21. Cici's Arthrogryposis Page
    I was born with arthrogryposis so I'm creating this site for arthrogryposis patients.  
    http://members.aol.com/_ht_a/pggystrk/myhomepage/

22. Arthrogryposis
    arthrogryposis is a broad umbrella term that encompasses about 150 individualconditions contractures or curvatures of the joints. What is arthrogryposis?  
    http://www.shrinershq.org/patientedu/arthrogryposis.html
    
    Extractions: Telephone (509) 623-0400 Arthrogryposis (Arthrogryposis Multiplex Congenita) is a term describing the presence of a muscle disorder that causes multiple joint contractures at birth. A contracture is a limitation in the range of motion of a joint. In some cases, few joints may be affected and the range of motion may be nearly normal. In the "classic" case of arthrogryposis, hands, wrists, elbows, shoulders, hips, feet and knees are affected. In the most severe cases, nearly every body joint may be involved, including the jaw and back. Frequently, the contractures are accompanied by muscle weakness, which further limits movement. Arthrogryposis is relatively rare, occurring in approximately one in 3,000 births. What causes arthrogryposis?

23. Arthrogryposis
    arthrogryposis information and international support groups, clinics withgenetic counselors and geneticists. Image arthrogryposis. AVENUES  
    http://www.kumc.edu/gec/support/arthrogr.html

24. Theresa's Page
    A personal story of an artistic woman with arthrogryposis.  
    http://members.aol.com/_ht_a/terry2745/
    
    Extractions: Believe in yourself- in the power you have to control your own life, day by day, Believe in the strength that you have deep inside, and your faith will help show you the way. Believe in tomorrow and what it will bring- Let a hopeful heart carry you through, For things will work out if you trust and believe there's no limit to what you can do. ~Emily Mathews Psalm 23:4 "Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me;" Arthrogryposis. When I was born the doctors told my parents that I would never be able to walk or do things for myself. We proved them wrong! Sister had a lot to do with that, I think she was tired of carrying me! At age 5, most children are enrolled in kindergarten with no problems. My parents had to fight to get me enrolled in public school in a regular graduated in 1983. I did everything a "normal" child would do growing up like girl scouts, camping trips, attending basketball games in high school (I live in Indiana, high school basketball is a BIG thing here!) . I have never been

25. The Contact A Family Directory - ARTHROGRYPOSIS
    printer friendly, arthrogryposis, upon Tyne, UK. THE arthrogryposisGROUP (TAG). The arthrogryposis Group (TAG) Beak Cottage Dunley  
    http://www.cafamily.org.uk/Direct/a72.html
    
    Extractions: printer friendly ARTHROGRYPOSIS home more about us in your area conditions information ... how you can help search this site Arthrogryposis: amyoplasia congenita : arthrogryposis multiplex congenita:AMC: Otto Syndrome Arthrogryposis Multiplex Congenita (AMC) is a term used to describe a baby born with multiple joint contractures and covers a wide range of conditions. The contractures limit the range of movement of the joints. The joints themselves may be fixed in a flexed or extended position. The number of joints affected can range from two or three to almost total involvement, including spine and jaw, resulting in a wide range of disability. AMC is a non-progressive condition with a normal life-span. However, joint contractures are sometimes linked to rare syndromes with limited life expectancy. Although AMC is associated with fetal immobility, the exact causes are not known. Early and specific diagnosis for each case is essential so that appropriate therapy can begin as soon as possible. Such treatment includes physiotherapy (including passive stretching) splinting and surgery. Inheritance patterns These are variable. In Amyoplasia, the most common form of AMC, there is no significant inheritance risk. Distal arthrogryposis, which primarily affects the hands and feet, is autosomal dominant. However, as there are over one hundred types of AMC, precise diagnosis of individual cases is necessary to establish the risk of possible recurrence.

26. Geno's Page!
    This page is all about my son Geno and arthrogryposis.  
    http://www.geocities.com/deb40965ky/Geno.html
    
    Extractions: 10 on July 28th and Geno will be 4 on July 22nd. This page is about my littlest angel, Geno. He was born with Arthrogryposis.. A very rare condition that occurs in only 1 out of 3000 births. Thankfully I have been lucky enough to find others through this little screen who have "AMC" (Athrogryposis Mulitplex Congenita), or loved ones who do, and I have created this page so that I can share Geno's Story with all of you. I hope it helps you in some way.

27. Arthrogryposis
    Back Home Next. arthrogryposis. Clay's arthrogryposis Homepage A sitedovoted to arthrogryposis, and special needs children. Copyright  
    http://www.ability.org.uk/Arthrogryposis.html

28. JDnD
    Dylan has a condition called arthrogryposis.  
    http://communities.msn.com/JDnD
    
    Extractions: JDnD JDnD@groups.msn.com Groups Home My Groups Language Help ... Tools Dylan's Web Page! Hi, my name is Dylan. I am 4 years old and I have a condition called Arthrogryposis, which makes it hard for me to move. But I don't let that get in my way. I love to play, color, and drive in my power chair. I've come a very long way since I was born. I am really into the Muppets and as you can Yellow is my favorite color. I am in Pre-school and pretty smart, just ask me and I'll tell you. There are tons of pictures of me on these pages if you want to take a look. I have a little brother named Casey who is 1 year. We play really well together and soon will be able to plot against mom and dad. If you would like to see pictures of him check out Casey's page If you would like to learn more about Arthrogryposis please visit the websites Mom and Dad posted. Click here to see the pictures!

29. Contractures
    arthrogryposis multiplex congenita (AMC). Distal arthrogryposis, type3 (Gordon syndrome) (DA3) l Autosomal Dominant Clinical features  
    http://www.neuro.wustl.edu/neuromuscular/msys/contract.html

30. Having Arthrogryposis
    My name is Denise and I was born with arthrogryposis.  
    http://www.geocities.com/denisecsus/LittleDeniseandherfamily.html
    
    Extractions:     At birth my feet were clubbed, my hands were in an abnormal position and I had a cleft pallate, acutally three of them. I have had numerous surgeries and only some of them were successful.  Years of physical and speech therapy proved to be the most helpful intervention for me. Therapy only worked for me because it began at a very early age, I was still an infant.     I can speak with out any type of defect and I am mobile. I discontinued physical therapy as a pre-teen. I have since suffered for that decision. I have lost fleibility and range of motion. I have recently tried to stretch my joints but I am very forgetful and need to motivate or pay the price even further.     I am currently attending a California University and I have a dream to counsel disabled kids. Being a kid isn't easy and being disabled sure doesn't help. I feel that my disability would allow the kids to open up to me and to think that maybe I do know where they are comming from. I can only hope I am right. Little Me Links: Yahoo!

31. Our Daughter's Arthrogryposis
    Special needs adoption story a baby with arthrogryposis grows up to bea talented young girl. Our Daughter's arthrogryposis. By Barb Burke.  
    http://www.comeunity.com/adoption/special_needs/arthrogryposis.html
    
    Extractions: By Barb Burke Our family has come in contact with so many beautiful children and families struggling with Arthrogryposis. They have been such an inspiration and encouragement to our family! My husband and I did some ground work prior to accepting the referral of our daughter from the adoption agency. We attended a full-day seminar on Arthrogryposis at our local Children's Hospital headed by Dr. Judith Hall, the leading expert on the subject. She has researched this condition for the past 20 years and revealed cutting-edge information on the subject. I also contacted a few parents who were raising children with arthrogryposis and found them most helpful. Initial Contact We first heard of our daughter residing in a babies home in Seoul, Korea when she was 4 months old. At that time, she had been diagnosed as being born with a type of Arthrogryposis known as Amyoplasia, affecting only her upper limbs. Within 10 days of life, her biological parents placed her in the care of an agency for adoption because they were given little hope for her future, and felt unable to afford the needed care. We first met Soo (Excellent) Hee (Brilliant) through a picture at age four months. She was born with shoulders internally rotated, elbows fixed in extension,and flexion contracture of her wrists. She received range of motion by a therapist visiting her 3x's weekly in the orphanage. The US doctors believe this saved her small muscles from atrophying.

32. Desertroses_Page
    I was born with a condition called arthrogryposis multiplex congenita.  
    http://www.geocities.com/desertroze2000/Desertroses_Page.html

33. Kimberly's Autobiography
    This is the life story of a woman with multiple disabilities, including arthrogryposis multiplex congenita.  
    http://communities.msn.com/KimberlyAngelheart

34. Special Child: Disorder Zone Archives - Arthrogryposis Multiplex Congenita
    Disorder Zone Archives. arthrogryposis Multiplex Congenita Dylan Brown. He wasdiagnosed as having severe arthrogryposis Multiplex Congenita and scoliosis.  
    http://www.specialchild.com/archives/dz-036.html
    
    Extractions: Jess Daniel Introduction Arthrogryposis Multiplex Congenita (AMC) is a musculoskeletal disorder characterized by the presence of multiple joint contractures (limitation of the range of motion of a joint) at birth. In some cases, only a few joints may be affected, however, in the classic cases of AMC, hands, wrists, elbows, shoulders, hips, feet, and knees are affected. In the more severe cases, joints in the back and jaw can be affected as well. In addition to having joint contractures, children also experience muscle weakness, which further limits movement. There may be as many as 10 to 20 different arthrogrypotic disorders, all with similar joint manifestations. However, the most common form of AMC is amyoplasia. There are many different causes of AMC, but typically it is a result of either problems with joint growth and development, decreased fetal movement (not enough room in the uterus to move), or problems with spinal development in the first 3 months of pregnancy. AMC occurs in 1 out of every 3,000 live births. In most cases, AMC is not inherited and does not occur more than once in a family. However, in about 30% of the cases, a genetic cause has been identified.

35. JUST A KROOKED KID
    Born with arthrogryposis and author of his autobiography Just a Krooked Kid.  
    http://www.geocities.com/gjhaleus/krookedkid.html

36. Arthrogryposis.com
    http://www.arthrogryposis.com/

37. Aging Gracefully With AMC
    Aging gracefully with arthrogryposis.  
    http://members.aol.com/_ht_a/jfp832/myhomepage/
    
    Extractions: Hi! I'm Jackie. I live in Music City. I'm going on 67. Born with arthrogryposis multiplix congeniti that significantly affects my four extemities, I've been experiencing severe nerve and muscle pains in my legs, possably caused by sitting in my wheelchair all these years. I work full-time as Program Coordinator for the Disability Information Office for local government for over 21 years. I have three degrees from Peabody College/Vanderbilt University In addition to seeking information about the aging process and my disability, I want to be kept abreast of disability rights issues, with special emphasis on home-based long term care and attendant care. I also want to be kept updated on how churches will begin to create greater inclusion of persons with disabilities and their families in ongoing programs and services. I enjoy decorating and cooking TV programs and reading materials, all types of music (I sing in my church's chior) and attending concerts and plays. A somewhat new interest is dabbling in writing my story as someone with quadriplegia who has had some measure of success, been involved with the Independent Living movement, and working for many years encouraging greater inclusion of persons with disabilities in religious experiences. aol

38. Dan's Place
    Florida male with arthrogryposis shares his interests.  
    http://www.dango727.com
    
    Extractions: The article is below. The funny thing about it is the pic they show is not of me, the dog, or its owner. Oh well, it's about me though, so here it is for your reading pleasure. Dan's CD's - My favorite type of music is Hip-Hop. I've been into it since the early 80's. I am always looking to expand my CD collection. If you are interested in trading CD-R's with me, check out the link. Dan's Autographs - One of my biggest hobbies is collecting autographs. I don't buy, sell, or trade autographs, but if you're interested in looking at whose autographs I've obtained, check out the link.

39. Helpful Arthrogryposis Links
    Helpful arthrogryposis Links. NEW!!! Brand PHOTOS Avenues A NationalSupport Group for arthrogryposis Multiplex Congenita. What  
    http://www.angelfire.com/journal/adoptionhelp/helparthro.html

40. HoppusChick182
    Brief profile of a girl from Nebraska with arthrogryposis.  
    http://www.geocities.com/bsshiningstars/hoppuschick182.htm

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