Searchalot Directory For Barth Syndrome Related Web Sites. barth syndrome Family Network Offers details aboutthe disease, message board, research sites, events and private chats. http://www.searchalot.com/Top/Health/ConditionsandDiseases/RareDisorders/BarthSy
Extractions: Home Search News Email Greetings Weather ... Global All the Internet About AltaVista AOL Search Ask Jeeves BBC Search BBC News Business Dictionary Discovery Health Dogpile CheckDomain CNN Corbis eBay Education World Employment Encyclopedia Encarta Excite Fast Search FindLaw FirstGov Google Google Groups Infomine iWon Librarians Index Looksmart Lycos Metacrawler Microsoft Northern Light Open Directory SearchEdu SearchGov Shareware Teoma Thesaurus Thunderstone WayBackMachine Webshots WiseNut Yahoo! Yahoo! Auctions Yahoo! News Yahooligans Zeal Sponsored Links Top Health Conditions and Diseases Rare Disorders : Barth Syndrome Related Web Sites Barth Syndrome Family Network - Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources.
02-392 Barth Syndrome Foundation Date 05/16/2002. To RGS Fundopp. Re 02-392 barth syndrome Foundation.TO RGS Fundopp Subscribers 02-392 Subject barth syndrome http://alpha.ddm.uci.edu/zotmail/archive/2002/20020516107.html
Current E-news barth syndrome Foundation to Award Research Grants Deadline for letters of intentJune 30 The barth syndrome Foundation will award its first grants for http://www.med.umich.edu/medschool/enews/archive/june14.htm
Extractions: "We at the Medical School are saddened by the passing of Donald Fredrickson, a distinguished U-M Medical School alumnus, former director of the National Institutes of Health and past president of the Howard Hughes Medical Research Institute in Bethesda. Our sympathies are with his wife and two sons. Dr. Fredrickson received both his bachelor of science and medical degrees from U-M. After graduating from the Medical School in 1949, he began a career in research and scientific leadership. Dr. Fredrickson discovered two genetic disorders and helped to illuminate our understanding of plasma lipoproteins. While serving as the NIH director, he smoothed the way for our society's acceptance of genetic engineering and the safety of recombinant DNA technology.
NINDS: Organization Contact Information (help). Contact us My privacy NINDS is part of the National Institutes ofHealth. Organization Contact Information. barth syndrome Foundation, Inc. http://www.ninds.nih.gov/find_people/vol_org.htm?index=801&webcode=A1
Extractions: Bainbridge Arts and Crafts was founded in 1948 on Bainbridge Island in Washington "to inspire interest in the visual arts, advance creative achievement in craft and fine art, support the development of local and regional artists, and fund arts education." The nonprofit organization and gallery offers a wide variety of charitable support and programs, including scholarships for local arts students, educational programs and funds for the community, a cultural grant to individuals and community arts organizations, an Art Apprentice Program and the quarterly ART NEWS publication. Visitors to the Bainbridge Arts and Crafts Web site will find information on current and upcoming exhibits, general news on the organization and contact information. The Bainbridge Foundation supports community organizations on and near Bainbridge Island, Washington. The Foundation runs the "One Call for All" funding drive in order to support these agencies. The Foundation's Web site lists Island agencies and Off-Island agencies that it funds, and maintains an online feedback and pledge form for donors. The Bainbridge Island (Washington) Arts and Humanities Council was established in 1986. The group's mission is to "provide access to the arts and humanities for every Island citizen, and to assist individuals and organizations delivering cultural services and programs." The elegant site includes a searchable database of cultural resources and artists in the area. There is also information on current exhibits and events, a calendar of cultural events in the community, a page of links to related sites, and a membership form. The site does not offer any information on applying for a grant.
Extractions: with Hypertrophic Cardiomyopathy Disease/ Syndrome Noonan Syndrome Pompe Disease Fatty Acid Oxidation (carnitine deficiency, CPT, MCAD, VLCAD, LCHAD, LCAD, SCHAD, glutaric acidemia II, beta oxidation spiral defects) Recurrent episodes of illness caused by fasting or reduced food intake when sick, vomiting, severe lethargy that can progress to coma Hypoglycemia, respiratory distress, congestive heart failure with or without arrhythmias, muscle weakness, low muscle tone Incidence of 1 in 10,000 live births (MCAD - most common form of FOD)
Websites En Adressen Kenmerken Diagnose+behandeling Websites+ www.barthsyndrome.org logo barth syndrome Family Network, link naar www.barthsyndrome.orgDit is de pagina van de barth syndrome Foundation, opgericht in de http://www.stofwisselingsziekten.nl/ziekten/barthsyn/barweb.html
Extractions: Dit is de pagina van de Barth Syndrome Foundation, opgericht in de Verenigde Staten van Amerika door het Barth Syndrome Family Network. Bij dit Barth Syndrome Family Network zijn families van over de hele wereld aangesloten en al deze families hebben zelf met het Barth Syndroom te maken. Op deze pagina is veel informatie over het Barth Syndroom te vinden met veel nuttige links naar andere websites. Het is allemaal in het Engels. Als dit een probleem is, neem dan contact op met Joke van Loo . Zij kan de informatie op deze pagina voor U vertalen.
Directory :: Look.com barth syndrome (3) See Also. Sites. barth syndrome Family Network Offers detailsabout the disease, message board, research sites, events and private chats. http://www.look.com/searchroute/directorysearch.asp?p=524632
MEDLINEplus: Genetic Disorders Specific Conditions/Aspects About barth syndrome (barth syndrome Foundation);Angelman Syndrome (National Institute of Neurological Disorders and Stroke); http://www.nlm.nih.gov/medlineplus/geneticdisorders.html
Extractions: Gene-Environment Interaction Fact Sheet (National Center for Environmental Health) Genes and Birth Defects: Common Forms of Inheritance (March of Dimes Birth Defects Foundation) Late-Appearing Defects (March of Dimes Birth Defects Foundation) Multifactorial Inheritance (March of Dimes Birth Defects Foundation) Clinical Trials
Extractions: Deadline: June 30, 2002 (Letters of intent) In 2002, the Barth Syndrome Foundation will award its first grants for research on the natural history, biochemical basis, and treatment of Barth syndrome. The foundation anticipates awarding up to $100,000, divided among several one- or two-year grants ranging in size from $10,000 to $40,000. Barth syndrome is an X-linked recessive, cardioskeletal myopathy associated with neutropenia, growth delay, and diverse biochemical abnormalities, among which are defects in mitochondrial metabolism and phospholipid biosynthesis. Because many clinical and biochemical abnormalities of Barth syndrome remain poorly understood, the foundation is seeking proposals for research that may shed light on any aspect of the syndrome. The foundation hopes to find improved treatments and ultimately a cure for this rare but serious disorder. The Barth Syndrome Foundation awards grants to principal investigators who are affiliated with nonprofit institutions. The foundation is interested in providing seed money to experienced investigators for the testing of initial hypotheses and collection of preliminary data leading to successful long-term funding by NIH and other major granting institutions, and in attracting new investigators to the field of Barth syndrome research.
Cardiomyopathy A condition known as barth syndrome, a rare and relatively unknown geneticallylinked cardiac disease, can cause dilated cardiomyopathy. http://www.americanheart.org/presenter.jhtml?identifier=4468
June 14, 2002 -- SSTI Weekly Digest Funding Supplement barth syndrome Foundation The barth syndrome Foundation serves to help finda cure for barth syndrome and to educate and support physicians. http://www.ssti.org/Digest/2002/Supplements/061402supplement.htm
IComm: File Not Found! barth syndrome ..CardiomyopathyNeutropeniaSyndrome). barth syndrome at UMDF http//www.umdf.org. http://www.icomm.ca/geneinfo/b.htm
IComm: File Not Found! Lethal Infantile Cardiomyopathy (LIC) .barth syndrome), barth syndromeat UMDF United Mitochondrial Foundation http//www.umdf.org http://www.icomm.ca/geneinfo/l.htm
Mitochondrial Conditions 5070 International Mitochondrial Disease Network (IMDFN) Website www.imdn.org Email info@imdn.org barth syndrome Family Network Web site www.barthsyndrome http://www.kumc.edu/gec/support/mitochon.html
