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Batten Disease:     more books (19)

The Neuronal Ceroid Lipofuscinoses (Batten Disease) (Biomedical and Health Research) Batten Disease - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by ICON Health Publications, 2004-09-03 Batten Disease: Diagnosis, Treatment, and Research, Volume 45 (Advances in Genetics) The Official Parent's Sourcebook on Batten Disease: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-11-18 Ceroid-lipofuscinoses: Batten disease and allied disorders : proceedings of the International Conference on Ceroid-Lipofuscinoses, held on Staten Island, New York, April 30 and May 1, 1987 Dogs help track down genes.(MEDICAL UPDATE: Cutting-edge news from a source you can trust)(Batten disease): An article from: Saturday Evening Post Batten disease: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Michelle Brandt, 2005 Ceroid Liposfucsinosis: Batten's Disease by D. Armstrong, N. Kappang, et all 1982-04 Batten disease: An entry from Thomson Gale's <i>Gale Encyclopedia of Neurological Disorders</i> by Michelle lee Brandt, Rosalyn, MD Carson-Dewitt, 2005 The dissection of a degenerative disease: Proceedings of four round-table conferences on the pathogenesis of Batten's disease (neuronal ceroid-lipofuscinosis) Batten disease: overview and current research topics by Nuno Osório, Daniel Osório, 2010-06-06 Epizootic hemorrhagic disease in cattle, western Turkey.(DISPATCHES): An article from: Emerging Infectious Diseases by Ethem Mutlu Temizel, Kadir Yesilbag, et all 2009-02-01 Transplacental transmission of bluetongue virus 8 in Cattle, UK.(DISPATCHES)(Report): An article from: Emerging Infectious Diseases by Karin E. Darpel, Carrie A. Batten, et all 2009-12-01 Batten Disease: Diagnosis, Treatment, Research (Advances in Genetics, Vol 45) by Nanbert Zhong K. E. Wisniewski, 2001

lists with details

1. Batten Support & Research Trust
   Information about this disorder, fund raising and links from The Batton Support and Research Trust.  
   http://www.bsrt.co.uk

2. NINDS Batten Disease Information Page
   Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.  
   http://www.ninds.nih.gov/health_and_medical/disorders/batten.htm
   
   Extractions: Batten disease is a fatal, inherited disorder of the nervous system that begins in childhood. In some cases, the early signs are subtle, taking the form of personality and behavior changes, slow learning, clumsiness, or stumbling. Symptoms of Batten disease are linked to a buildup of substances called lipopigments in the body's tissues. Lipopigments are made up of fats and proteins. Because vision loss is often an early sign, Batten disease may be first suspected during an eye exam. Often, an eye specialist or other physician may refer the child to a neurologist. Diagnostic tests for Batten disease include blood or urine tests, skin or tissue sampling, an electroencephalogram (EEG), electrical studies of the eyes, and brain scans.

3. BDSRA - Batten Disease Support And Research Association
   batten disease Support and Research Association seeks to link medical professionals with patients. Get information on local chapters. Facts and Fictions about batten disease in English and en Espanol  
   http://www.bdsra.org/
   
   Extractions: International Family Conference Annual Quilt Raffle! R eceive "Flight of the Dancers" signed print and raise money for Batten research ..., click picture for more information: Facts and Fictions about Batten Disease in English and en Espanol Faces of Batten "angels among us ..." Batten Disease Testing Sign Our Guest Book help raise awareness Scientific/Medical Advisory Boards Bulletin Boards on several related subjects Recent NCL Publications The Family Room chat rooms see 2003 RFP The Illuminator newsletter, w /April 2003 Gene Mutation Database and Articles The Lighthouse now includes Winter 2003 9th International Congress on NCL In the News family news, see special hotel rates! Related Links Robby Benson , spokeperson supports BDSRA CFC Agency 2992 Federal employees support us Page Updated/Reviewed

4. BDFA Batten Disease Family Association Homepage
   Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.  
   http://www.bdfauk.freeserve.co.uk/

5. BDSRA - Batten Disease Support And Research Association
   BDSRA goals, support groups, local chapters, and resources for parents and families of batten disease Category Health Conditions and Diseases Genetic Disorders Batten Facts and Fictions about batten disease in English and en Espanol.  
   http://www.bdsra.org/&e=747

6. BDSRA - Batten Disease Support And Research Association
   What is batten disease? batten disease is named after the British pediatricianwho first described it in 1903. What are the forms of NCL/batten disease?  
   http://www.bdsra.org/batten.htm&e=747

7. BDFA Batten Disease Family Association Homepage
   Information about the BDFA, which provides supportive, informative, networking for the families, Category Health Conditions and Diseases Genetic Disorders Battenbatten disease Family Association. A supportive, informative, networkingorganisation for the families, carers and professional  
   http://www.bdfauk.freeserve.co.uk/&e=747

8. Home Page
   Information for parents and researchers regarding batten disease also know as Juvenile Neuronal Ceroid Lipofuscinoses (JNCL).  
   http://www.jnclresearch.org
   
   Extractions: The JNCL Research Fund is committed to seeking out and supporting science of excellence, relevant to the discovery of treatments for the most common degenerative brain disease of children, JNCL (commonly known as Batten Disease). This site has information for scientists, parents of affected children and all those interested in supporting our goals. Throughout this site you will discover what we have accomplished and where we intend to go. You are visitor # The JNCL Research Fund is a public, tax-exempt, non-profit organization pursuant to Section 501(c)(3) of the Internal Revenue Code, and all gifts and donations to the Fund are tax deductible. 100% of your donation is applied directly to research. last updated March 5th 2001 Web design by SlikWeb

9. The Family Village - Batten Disease
   Who to Contact batten disease Support and Research Association (BDSRA) 2600 Parsons Avenue Columbus, Ohio, USA 432072972 Related Disorders Santavnori, Jansky, Bielschowsky, Spielmeyer, Sjogren, Kuf, Parry.  
   http://www.familyvillage.wisc.edu/lib_batt.htm
   
   Extractions: Related Disorders: Santavnori, Jansky, Bielschowsky, Spielmeyer, Sjogren, Kuf, Parry. The Batten Disease Support and Research Association (BDSRA) is an international support and research networking organization that works with families of children and young adults with the inherited neurological degenerative disorder, Battens Disease. They act as a national registry for NCL researchers throughout the world, maximize the opportunities of patients with Batten to lead as normal a life as possible, educate lay persons and professionals about the special needs of patients and their families, and provide a parent communication network for information and emotional support. The association has local chapters and a directory of these is available. They will provide assistance to an individual who wishes to start a local support group, and do parent-to-parent matching. The Batten Disease Support and Research Association publishes a quarterly newsletter

10. About BDFA Batten Disease Family Association Homepage
    About batten disease Family Association. About BDFA. The principal aim of the groupis to provide contact and support to families affected by batten disease.  
    http://www.bdfauk.freeserve.co.uk/about.htm&e=747

11. NINDS Batten Disease Information Page
    Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.Category Health Conditions and Diseases Genetic Disorders Battenbatten disease information sheet compiled by NINDS, the National Instituteof Neurological Disorders and Stroke. More about batten disease,  
    http://www.ninds.nih.gov/health_and_medical/disorders/batten.htm&e=747

12. Batten Disease Fact Sheet
    batten disease Fact Sheet (includes infantile, late infantile, juvenile, andadult forms). Where can I find more information? What is batten disease?  
    http://www.ninds.nih.gov/health_and_medical/pubs/batten_disease.htm&e=747

13. What Is Batten Disease?
    An article about batten disease, its history, a look at neuronal ceroid lipofuscinoses disorders, Category Health Conditions and Diseases Genetic Disorders Battenbatten disease What is batten disease? batten disease is a fatal, inheriteddisorder of the nervous system that begins in childhood.  
    http://www.medhelp.org/lib/batten.htm&e=747

14. Med Help International
    An article about batten disease, its history, a look at neuronal ceroid lipofuscinoses disorders, how they are inherited, statistics, causes, diagnosis, treatment and research.  
    http://medhlp.netusa.net/lib/batten.htm

15. Batten Disease Articles, Support Groups, And Resources
    batten disease articles, support groups, and resources for patientsfrom Med Help International (www.medhelp.org). batten disease.  
    http://www.medhelp.org/HealthTopics/Batten_Disease.html&e=747

16. The Contact A Family Directory - BATTEN DISEASE
    printer friendly, batten disease, batten disease FAMILY ASSOCIATION.batten disease Family Association c/o Heather House Heather Drive  
    http://www.cafamily.org.uk/Direct/b11.html&e=747

17. The Family Village - Batten Disease
    Library A B batten disease. batten disease Support and Research Association(BDSRA) 2600 Parsons Avenue Columbus, Ohio, USA 43207-2972 (800) 448-4570.  
    http://www.familyvillage.wisc.edu/lib_batt.htm&e=747

18. Batten Disease
    What Is batten disease? Medically Speaking batten disease is the juvenileform of a group of progressive neurological diseases called  
    http://www.nataliefund.org/batten.html&e=747

19. The Natalie Fund
    The Natalie Fund. In Search of a Treatment and Cure for batten disease. TheNatalie Fund is striving to find a treatment and a cure for batten disease.  
    http://www.nataliefund.org/&e=747

20. Batten Disease
    batten disease is a fatal, inherited disorder of the nervous system that beginsin childhood. Receive HealthLink via email! Subscribe now . batten disease.  
    http://healthlink.mcw.edu/article/921388974.html&e=747

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