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Cystic Fibrosis:     more books (100)

Cystic Fibrosis (Genes and Disease) by Sharon Giddings, 2009-06-30 Cystic Fibrosis: A Guide for Patient and Family CF vs Us: The Story of a Battle Between a Family and Cystic Fibrosis by Karen Dohren, 2008-01-29 The Power of Two: A Twin Triumph over Cystic Fibrosis by Isabel Stenzel Byrnes; Anabel Stenzel, 2007-10-05 Taking Cystic Fibrosis to School by Cynthia S. Henry, Cynthia S. Henry, et all 2000-09 Understanding Cystic Fibrosis (Understanding Health and Sickness Series) by Ph.D.Karen Hopkin, 1998-07-01 Cystic Fibrosis: Everything You Need To Know (Your Personal Health) by Wayne Kepron MDFRCPC, 2004-01-29 Cystic Fibrosis: Handbook for Patient and Family Cystic Fibrosis (Oxford Respiratory Medicine Library) by Alex Horsley, Steve Cunningham, et all 2010-11-01 The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease by Keith Wailoo, Stephen Pemberton, 2006-04-20 Cystic Fibrosis: Etiology, Diagnosis and Treatments (Genetics-Research and Issues Series) Cystic Fibrosis by Margaret Hodson, Duncan Geddes, et all 2007-07-05 The Stones Applaud: How Cystic Fibrosis Shaped My Childhood by Teresa Anne Mullin, 2007-03-16 Cystic Fibrosis (Lung Biology in Health and Disease) by Davis, 1993-03-31

lists with details

1. Cystic Fibrosis Foundation... Adding Tomorrows Every Day
   Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those Category Health Conditions and Diseases Foundations , Highlights from the North American CF Conference Are Available. •, Aboutthe cystic fibrosis Foundation. •, News. •, Publications. •, Special People.  
   http://www.cff.org/
   
   Extractions: Cystic Fibrosis Foundation Therapeutics Awards $1.5 million to Inologic for the Preclinical Development of INO-4995 CF Foundation Launches National Volunteer Leadership Initiative Highlights from the North American CF Conference Are Available About the Cystic Fibrosis Foundation Cystic Fibrosis Foundation Therapeutics Awards $1.5 million to Inologic for the Preclinical Development of INO-4995 CF Foundation Launches National Volunteer Leadership Initiative Highlights from the North American CF Conference Are Available About the Cystic Fibrosis Foundation ... Special Event Prizes

2. Cystic Fibrosis Trust: Home
   in the cystic fibrosis community. Living with CF has practical information for families and gives advice about nutrition  
   http://www.cftrust.org.uk/
   
   Extractions: Living with CF has practical information for families and gives advice about nutrition and physiotherapy. Fundraising contains information about how you can help us find a cure, either as an individual or as an organisation. Detailed, scientific information about CF can be found in Medical Research . Children, young people and adults can meet and have discussions in Meeting Point CF Trust tells you who we are and what we do.

3. Cystic Fibrosis Resources For Daily Living And Information
   A cystic fibrosis community for patients, families and caregivers offering news,messageboards, daily living, associations, cf centers, fund raisers, books and  
   http://www.cysticfibrosis.com/

4. Cystic-L - Cystic Fibrosis Info & Support
   CysticL's popular e-mail list server and support page for CF patients, their friends, and families includes archives and discussion group.  
   http://www.cystic-l.org/

5. Cystic Fibrosis Mutation Database
   It was initiated by the cystic fibrosis Genetic Analysis Consortium in 1989 to increase and facilitate communications  
   http://www.genet.sickkids.on.ca/cftr

6. Cystic Fibrosis : Cystic Fibrosis Information
   cystic fibrosis Over 1 671 links! One of the most complete sites about CF available! Excellent for people with CF, parents, relatives, friends, and students. Some pages are really easy to read, others are very technical medical pages. cystic fibrosis. Be notified. when this. page changes  
   http://personal.nbnet.nb.ca/normap/CF.htm
   
   Extractions: ChangeDetection Hi! I made this page because I have CF. I am a 41 y.o. woman, have been married for 21 years, and am fortunate enough to have a beautiful, healthy 19 year old daughter without CF. I would like to educate and inform as many people as I can about CF. It is a genetic disease that affects approximately 3,000 people in Canada, and 30,000 in the US, plus many more throughout the world. It is a disease that affects the exogenous secreting glands of the body, and generates thickened secretions, therefore blocking certain normal functions of certain organs. The organs most affected are the lungs and pancreas, therefore affecting breathing and digestion. There is no cure as of yet, but we hope there soon will be. Research is ongoing, and great strides are being made! Whereas 30 years ago, not many people with CF lived past childhood, nowadays many can live into their 30's. Still too many are dying young though...sadly. Please support CF research! Join Cystic-L, the best e-mail discussion/support group on CF. This is for people with CF (pwcf), parents of children with CF, spouses of, children of, and friends of pwcf, and for anyone else just wanting to learn more about it, such as students, teachers, medical personnel, etc...if you have any questions that may not have been answered here on these pages, please join our group! I have been with them since August of 1996, and love it!

7. MEDLINEplus: Cystic Fibrosis
   Gene Therapy and cystic fibrosis (cystic fibrosis Foundation). New Theory Proposed for cystic fibrosis Infections  
   http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html

8. Cystic Fibrosis Foundation ... Adding Tomorrows Every Day
   What Is CF cystic fibrosis is a genetic disease affecting approximately30,000 children and adults in the United States. CF causes  
   http://www.cff.org/about_cf/
   
   Extractions: CF causes the body to produce an abnormally thick, sticky mucus, due to the faulty transport of sodium and chloride (salt) within cells lining organs such as the lungs and pancreas, to their outer surfaces. The thick CF mucus also obstructs the pancreas, preventing enzymes from reaching the intestines to help break down and digest food. Specialized treatments are available to address these problems at CF Foundation-supported care centers across the country. CF has a variety of symptoms. The most common are: very salty-tasting skin; persistent coughing, wheezing or pneumonia; excessive appetite but poor weight gain; and bulky stools. The sweat test is the standard diagnostic test for cystic fibrosis. This simple and painless test measures the amount of salt in the sweat. A high salt level indicates that a person has CF. The treatment of CF depends upon the stage of the disease and which organs are involved. One means of treatment, chest physical therapy, requires vigorous percussion (by using cupped hands) on the back and chest to dislodge the thick mucus from the lungs. Antibiotics are also used to treat lung infections and are administered intravenously, via pills, and/or medicated vapors which are inhaled to open up clogged airways. When CF affects the digestive system, the body does not absorb enough nutrients. Therefore, people with CF may need to eat an enriched diet and take both replacement vitamins and enzymes.

9. Canadian Cystic Fibrosis Foundation
   Describes the disorder, lists the foundation's publications and research projects, and presents an events calendar. Join a discussion forum.  
   http://www.ccff.ca/

10. Cystic Fibrosis Trust: Fundraising - Press Office
    Press Office Welcome to the media relations site for the cystic fibrosisTrust. This section gives you the latest news from the  
    http://www.cftrust.org.uk/fundraising/press_office.htm

11. Cystic Fibrosis Research, Inc. (CFRI)
    News about CF research. Site also has a newsletter available.Category Health Conditions and Diseases cystic fibrosisEnter here  
    http://www.cfri.org/

12. -+=CFRI=+- Cystic Fibrosis Research, Inc.
    http://www.cfri.org/home.htm

13. Canadian Cystic Fibrosis Foundation
    Support and resources. Located in Toronto, Ontario.Category Health Conditions and Diseases Foundations  
    http://www.cysticfibrosis.ca/

14. Cystic Fibrosis Victoria Inc
    Current information on cystic fibrosis, cystic fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events cystic fibrosis Victoria. 80 Dodds Street Southbank VIC 3006  
    http://www.cfv.org.au/

15. Canadian Cystic Fibrosis Foundation
    About cystic fibrosis About the foundation CF research clinical care Ourpublications getting involved Resources. Information designed for you.  
    http://www.cysticfibrosis.ca/home.asp

16. Genetic Testing For Cystic Fibrosis (CBM 97-2)
    Current Bibliographies in Medicine 972. Genetic Testing for cystic fibrosis. Bibliographycystic fibrosis and Genetics. Molecular Biology of cystic fibrosis.  
    http://www.nlm.nih.gov/pubs/cbm/cystic_fibrosis.html
    
    Extractions: Bethesda, Maryland 20894 Series Note Each bibliography in the Current Bibliographies in Medicine (CBM) series covers a distinct subject area of biomedicine and is intended to fulfill a current awareness function. Citations are usually derived from searching a variety of online databases. NLM databases tm , POPLINE tm Other publications in the Current Bibliographies in Medicine series are available at no cost to anyone with Internet access through the Library's World Wide Web site at http://www.nlm.nih.gov/pubs/resources.html

17. Cystic Fibrosis
    cystic fibrosis. © SCIENTIFIC AMERICAN, December, 1995. The genetic D.Vade. McGrawHill, 1994. Web Resources on cystic fibrosis.  
    http://www.people.virginia.edu/~rjh9u/cfsciam.html
    
    Extractions: December, 1995 Notice: Scientific American According to Linda Hertz , permissions and rights manager at Scientific American , the magazine cannot grant electronic rights for copies of their articles. However, it is possible to subscribe to the digital version of Scientific American which has monthly issues from 1993 forward. It is not clear if all articles in each issue are available in digital form. And, there is a subscription cost. In any case, the Cystic Fibrosis article cited above will not be available from the Human Biology web site.

18. Cystic Fibrosis Molecular Biology
    The most frequently occurring mutation, deltaF508, is a single amino acid deletion in exon 10 which Category Health Conditions and Diseases cystic fibrosiscystic fibrosis gene to product. Graphic taken (in part) from Human GeneticsConcepts and Applications by Ricki Lewis (1994), Wm. C. Brown.  
    http://www.people.virginia.edu/~rjh9u/cfmap.html
    
    Extractions: The most frequently occurring mutation, delta-F508, is a single amino acid deletion in exon 10 which codes for a portion of the first nucleotide binding function (NBF-1) domain of the cystic fibrosis transmembrane conductance regulation protein. Although the mutant protein is produced since it is only missing one amino acid, it seems to be identified as non-functional and does not undergo the usual final modifications within the endoplasmic reticulum. Instead, the mutant protein is degraded. A list of other CF mutations is available

19. Cystic Fibrosis 101 - Over 250 Links Related To CF
    250 links all related to cystic fibrosis and classified under the following subjectsGeneral Information on cystic fibrosis; Associations; Books; Genetic  
    http://personal.nbnet.nb.ca/normap/CF101/home.htm

20. Cystic Fibrosis Worldwide..People Whose Lives Are Affected By
    International Association of cystic fibrosis Adults web site and International cystic fibrosis Mucoviscid Category Health Conditions and DiseasesThis site contains information relating to cystic fibrosis with a worldwidemandate. VOLUNTEERS NEEDED! We are seeking Adults with cystic fibrosis.  
    http://www.iacfa.org/

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