Geometry.Net - Health_Conditions: Cystic Fibrosis

NIGMS -- News & Events: Bacterial Slime Clogs Cystic Fibrosis Lungs
A research brief on how bacteria that thrive in the thick mucus clogging thelungs and intestines of people with cystic fibrosis encase themselves in a
http://www.nigms.nih.gov/news/releases/brief_greenberg.html

Extractions: April 2, 2002 Cystic fibrosis (CF) is one of the most common fatal genetic diseases in the United States. Approximately 30,000 Americans have the disease and an estimated 8 million are carriers of it. Thick, sticky mucus clogs the lungs and intestines of those with CF, causing malnutrition, frequent lung infections, breathing difficulty, and eventually permanent lung damage. Bacteria, especially Pseudomonas aeruginosa, thrive in this thick mucus, causing persistent infection. Most people with CF die from respiratory failure caused by these infectionsoften around the age of 30. Once these bacteria gain a foothold in CF lungs, they are invincible even to long-term antibiotic treatment. Scientists led by Dr. E. Peter Greenberg of the University of Iowa College of Medicine revealed why. The researchers showed that the bacteria encase themselves in a protective slime called a biofilm. Partial to wet surfaces, biofilms are responsible for everything from dental plaque and bathtub soap scum to bacterial colonies that corrode the bottom of ships. Within gluey pockets in the biofilm, colonies of bacteria flourish, nourished by a network of water-filled channels and shielded from the effects of antibiotics. Dr. Greenberg and his coworkers developed a sensitive lab test that detects biofilms in CF lungs, based on telltale molecules produced by the structures.
Blazing A Genetic Trail
Research on mutant genes and hereditary diseases. Includes family studies, the Human Genome Project, how to conquer hereditary diseases like cystic fibrosis, key to basic genetics and a glossary.
http://www.hhmi.org/genetictrail/
Consensus Statement Overview: Genetic Testing For Cystic Fibrosis
Related to this Consensus Conference. Genetic Testing for cystic fibrosisApril 1416, 1997 Vol. 15, No. 4. Genetic testing for CF
http://consensus.nih.gov/cons/106/106_intro.htm

Extractions: NOTE: NIH Consensus Statements are prepared by a nonadvocate, non-Federal panel of experts, based on (1) presentations by investigators working in areas relevant to the consensus questions during a 2-day public session; (2) questions and statements from conference attendees during open discussion periods that are part of the public session; and (3) closed deliberations by the panel during the remainder of the second day and morning of the third. This statement is an independent report of the panel and is not a policy statement of the NIH or the Federal Government. The statement reflects the panelís assessment of medical knowledge available at the time the statement was written. Thus, it provides a "snapshot in time" of the state of knowledge on the conference topic. When reading the statement, keep in mind that new knowledge is inevitably accumulating through medical research.
Cystic Fibrosis - General Practice Notebook
Clinicallyoriented information.
http://www.gpnotebook.co.uk/MedwebPage.cfm?ID=919601157
NIH Consensus Statements: 106. Genetic Testing For Cystic Fibrosis
State of Knowledge Regarding Natural History, Epidemiology, GenotypePhenotypeCorrelations, Treatment, and Genetic Testing of cystic fibrosis in Various
http://consensus.nih.gov/cons/106/106_statement.htm

Extractions: This statement was originally published as: Genetic Testing for Cystic Fibrosis. 1997 April 14-16;15(4);1-37. For making bibliographic reference to consensus statement no. 106 in the electronic form displayed here, it is recommended that the following format be used: Genetic Testing for Cystic Fibrosis. NIH Consens Statement Online 1997 Apr 14-16 [cited year, month, day];15(4): 1-37. NIH Consensus Statements are prepared by a nonadvocate, non-Federal panel of experts, based on (1) presentations by investigators working in areas relevant to the consensus questions during a 2-day public session; (2) questions and statements from conference attendees during open discussion periods that are part of the public session; and (3) closed deliberations by the panel during the remainder of the second day and morning of the third. This statement is an independent report of the panel and is not a policy statement of the NIH or the Federal Government. The statement reflects the panelís assessment of medical knowledge available at the time the statement was written. Thus, it provides a "snapshot in time" of the state of knowledge on the conference topic. When reading the statement, keep in mind that new knowledge is inevitably accumulating through medical research.
Lost Lake Breath Of Life Run - Home Page
Race to benefit cystic fibrosis.
http://www.lostlakerun.org/

Extractions: Lost Lake Breath of Life Run THE RESULTS ARE IN! Click Here to jump to the results for 2002 Click HERE to View pictures from 2002 2003 - Race Directors' Message: Enjoy a day of viewing the most beautiful countryside on the Kenai Peninsula. Challenge yourself for thousands of children and young adults that suffer from Cystic Fibrosis. All proceeds and donations from the 12th annual Lost Lake Breath of Life Run will be sent to the Cystic Fibrosis Foundation to help fund research to find a cure. Applications will be available to download after June 1, 2003. Entry fee for 2003 will be $150.00 and must be postmarked before July 1, 2003 for this reduced rate. The entry fee can be collected donations, so ask your friends to help - it's all tax deductible. Come enjoy the last run of the season for a great cause - You'll feel great! Challenge yourself! Alaska's only cross-country race to benefit Cystic Fibrosis. Breathtaking View of Resurrection Bay 16 Miles of Cross-Country Terrain Peak Elevation Gain of 2,100 Feet
CDC - Infection By Ralstonia Species In Cystic Fibrosis Patients: Identification
Infection by Ralstonia Species in cystic fibrosis Patients Identification of R.pickettii and R. mannitolilytica by Polymerase Chain Reaction. cystic fibrosis.
http://www.cdc.gov/ncidod/eid/vol8no7/01-0472.htm

Extractions: *University of Michigan Medical School, Ann Arbor, Michigan, USA; and Ghent University, Ghent, Belgium The frequency of respiratory tract infections caused by Ralstonia species in persons with cystic fibrosis (CF) and the role of these species in CF pulmonary disease are not well documented. In part, this lack of documentation may be attributed to the difficulty in accurately identifying Ralstonia species; R. mannitolilytica and R. pickettii in particular may be misidentified as other closely related species, particularly those of the Burkholderia cepacia complex. We used polyphasic analyses to identify 42 Ralstonia isolates from sputum cultures from 38 CF patients. Several isolates that could not be identified to the species level may belong to novel
National Cystic Fibrosis Awareness
This committee exists to serve as an instrument for advancing the public's awareness of the genetic disease, cystic fibrosis. Site includes mission statement and message board.
http://www.cfawareness.org/
Department Of Paediatrics Cystic Fibrosis
cystic fibrosis. Table of Contents. Introduction. cystic fibrosis occursin about 1 in 2,500 births in Victoria. All patients are seen
http://www.med.monash.edu.au/paediatrics/resources/cf.html

Extractions: Table of Contents Cystic fibrosis occurs in about 1 in 2,500 births in Victoria. All patients are seen at the Royal Children's Hospital at the time of diagnosis, which is usually in the first year of life. Some patients living in the south-east of the city or eastern Victoria are cared for jointly by the department of Thoracic Medicine at the RCH and the Department of Paediatric Respiratory Medicine, MMC. The prognosis has improved very considerably over the last 20 years and most patients now reach adulthood. In the ward the resident medical staff will see patients who have acute flare-ups of chest infection and those with severe lung disease. The 50% of patients who have little chest trouble are rarely admitted to the ward, so staff are likely to have a biased view of the condition. The development of a very positive attitude by the parents from the time of diagnosis seems to be very important in the prognosis. The handling of the family at the time of diagnosis is carefully planned. If they are given a gloomy outlook, this can be hard to change.
Proteome Systems Limited - Proteomics Technology And Discovery.
Specializes in interpretation of 2dimensional gels, for discovery programs in the areas of cystic fibrosis, cancer, infectious disease and aging. US and Japanese contacts with headquarters in Sydney, Australia.
http://www.proteomesystems.com/

Extractions: Sydney, Australia March 25, 2003 - Proteome Systems and VRI BioMedical Limited (ASX: VRI) have finalised a binding Master Development Agreement on development of point-of-care diagnostics. The first joint product under this agreement involves the development of a simple, quantitative test for assessing the immune system of elite athletes. This program will involve partnering with sporting bodies, including The Australian Institute of Sport , to evaluate the ... more
Cystic Fibrosis
cystic fibrosis Research Mucociliary Clearance For cystic fibrosis CollaboratorsC. William Davis, Garrett Matthews (Cell and Molecular Physiology).
http://www.cs.unc.edu/Research/nano/cismm/cystic/

Extractions: Cystic Fibrosis Research Mucociliary Clearance For Cystic Fibrosis Collaborators: C. William Davis, Garrett Matthews (Cell and Molecular Physiology) This collaboration is using the 3D Force Microscope and nanoManipulator core projects. Garrett Matthews was a Physics graduate student working on the Adenovirus studies. After graduation, he began working in Davis' lab on the mucociliary clearance project. His cross-disciplinary training within the Resource has made this possible. Overview: The mucociliary clearance system is the first line of defense against inhaled particulates, aerosols, and pathogens in the airways of the lung. These materials are adsorbed out of the air stream onto the mucus gel contained within the airway surface liquid (ASL) coating the ciliated epithelium that lines the airways. The particulate-laden mucus is transported continuously by cilia, beating in a mucus-free periciliary liquid (PCL), to the glottis where it is expelled from the airways and swallowed. This collaboration is applying the new capabilities afforded by nanometer-resolution 3D force microscope to two unsolved biophysical problems in mucociliary clearance: the behavior and fate of periciliary liquid during mucus transport, and the effects of volume-depletion on the viscoelastic properties of mucus.
Cystic Fibrosis Information And Resources
Non profit web site which provides free information to professionals involved with the treatment of cystic fibrosis. An open access (PUBLIC) section is also available to both patients and family
http://www.cysticfibrosismedicine.com
Breathing Room: The Art Of Living With Cystic Fibrosis
Guidance about the art of living with cystic fibrosis.Category Health Conditions and Diseases cystic fibrosisBreathing Room facilitates candid and open communication between adults with CysticFibrosis, supports the development of a community of adults with CF and
http://www.thebreathingroom.org/
We'll Find A Cure // This Time Around
Supports fans with cystic fibrosis. Lyrics, fun, links and campaigns.
http://www.fallenstars.com/hmh/
Cystic Fibrosis Disease Information On Symptoms, Treatment And Causes
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be Category Health Conditions and Diseases cystic fibrosisBUPA health information factsheet cystic fibrosis (CF) is an inherited diseasethat affects the lungs and causes chest infections cystic fibrosis.
http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cystic_fibrosis.html

Extractions: January, 2003 Download this factsheet Cystic fibrosis (CF) is an inherited condition. It can have many symptoms, affecting different parts of the body, particularly the lungs and digestive system. CF is the most common inherited disease in white people, affecting about 1 in every 2,500 children born. It is much more rare in people of African or Asian descent. About one in five babies with CF are diagnosed at birth, when their gut becomes blocked by extra thick meconium (the black tar-like bowel contents that all babies pass soon after birth). This condition may need surgery. Just over half of people with CF are diagnosed as babies because they are not growing or putting on weight as they should. This is because the pancreas is not producing chemicals (enzymes) which pass into the gut as food leaves the stomach. Without these enzymes, the fat in food cannot be properly digested. In children who are affected, the fat passes straight through the gut. The child does not benefit from the energy from the fat. Since the stools contain an excess of fat, they are oily and very smelly. CF is a "multi-system" disease, meaning that it affects many body organs. However, most of the symptoms are to do with the lungs and the gut.
Welcome To Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countrie Category Health Conditions and Diseases cystic fibrosiscystic fibrosis Western Australia provides care and support, services andinformation for people with CF. cystic fibrosis Western Australia,
http://www.cysticfibrosiswa.org/
Boogerwoods
Halloween haunted house/trail in which all proceeds are donated for the cure of cystic fibrosis.
http://www.boogerwoods.com/
Cystic Fibrosis Medical A-Z Directory
Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
http://www.cellscience.com/CFmain.html

Extractions: rating for web sites is intended to serve only as an indication of the design quality, clarity, presentation and style of the URL, and is in no way intended as a judgement of the quality of services or information provided. To have a site listed is itself an indication that the site is of general interest - (Guide: NR Not rated, strong, good, excellent)
Céline Dion - The Journey So Far - Céline Supports
Celine Dion lost her niece to CF and has supported the cause since.Category Health Conditions and Diseases Personal Pages She is the National Celebrity Patron for the Canadian cystic fibrosis Foundation,and supports the TJ Martell Foundation and the Diana Princess of Wales
http://www.celinedion.com/english/journey_celinesupports.html
Cystic Fibrosis Foundation ... Adding Tomorrows Every Day
Salutes Cochran for her support of the cystic fibrosis Foundation. (April 2001)
http://www.cff.org/specialpeople04.htm

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