Extractions: et Fibromyalgie Révisé en date du 7 octobre 2000 Ci-dessous se trouvent les liens de diverses sources au sujet du SFC. En bas de cette page, il y a une brève description du SFC et de la Fibromyalgie. Actualités SFC du SFC-NET Bulletin Internet du Syndrome de Fatigue Chronique / Encéphalomyélite Myalgique mettre) : sfc-actualites-subscribe-request@maelstrom.stjohns.edu Si vous avez une quelconque difficulté, contactez l'éditeur à l'adresse e-mail suivante : sfc-actualites-request@maelstrom.stjohns.edu Qu'est-ce que le SFC? Qu'est-ce que la fibromyalgie? Le SFC est-il une maladie psychologique? ... SFC-NET Site d'Information sur le Syndrome de Fatigue Chronique et la Fibromyalgie de Paris Forum aux questions de M.E. Canada Articles concernant la fibromyalgie Liens pour le fibromyalgie de L'Association de la Fibromyalgie de l'Estrie Le Collège des médecins du Québec se prononce sur le syndrome de fatigue chronique SPID - Fibromyalgies - Polyenthésopathie Indications des Substances : Syndrome de Fatigue Chronique Ma préoccupation actuelle : la FIBROMYALGIE ou SPID ... Chambre des Communes : la journée de sensibilisation au syndrome de fatigue chronique Le mercredi 11 mai 1994 Information in English L'Association Française de l'Encéphalomyélite Myalgique - L'A.F.E.M.
Les Soins De Nos Enfants - Le Syndrome Du Bébé Secoué Translate this page Les répercussions risquent de durer toute la vie! des renseignements plusprécis sur le syndrome du bébé secoué vous sont aussi offerts. http://www.soinsdenosenfants.cps.ca/grossesse/SBS.htm
Extractions: Planifiez. Voici quelques conseils : Les secousses ne font pas partie des premiers soins! vous sont aussi offerts. Consultez le catalogue des publications Pour de plus amples renseignements librairie National (U.S) Center on Shaken Baby Syndrome www.dontshake.com Saskatchewan Institute on Prevention of Handicaps
Obstetrics Issues (25). ARC Known Carcinogens Diethylstilbestrol Informationon the potential carcinogenicity of des. Carcinogenicity of http://www.foundhealth.com/Health/Medicine/Ob-Gyn/Obstetrics/DES_Syndrome/
Extractions: Advertisement Foundhealth.com Search All Terms Any Term Tips Browse foundhealth.com Health calculators Fast Food Database Speakers Bureau How to evaluate sites Submit a site Contact us Home - main directory Top Health Medicine Ob-Gyn ... Obstetrics : DES Syndrome See also: Health: Conditions and Diseases: I: Infertility Health: Consumer Support Groups: Women's Health Issues ARC Known Carcinogens: Diethylstilbestrol - Information on the potential carcinogenicity of DES. Carcinogenicity of Diethylstilbestrol - A study of the structural basis of the carcinogenicity of diethylstilbestrol (DES) and metabolites. DES Action USA - Non-profit organization dedicated to informing the public about DES (diethylstilbestrol) and helping DES-exposed individuals. Publishes on various aspects of DES exposure and provide a link between DES-exposed people, researchers, and the medical community. DES Cancer Network - Organization that addresses the special needs of women who have clear cell adenocarcinoma of the vagina and/or cervix, a rare cancer linked to exposure to diethylstilbestrol before birth. DES Daughters Mailing List and Online Support Group - Email online support group for daughters exposed to diethylstilbestrol (DES), which can result in infertility, reproductive abnormalities and other problems. Password-protected bulletin board, live chat and virtual seminars.
Extractions: Au stade d'insuffisance rénale terminale, le traitement fait appel à la dialyse ou à la transplantation. La maladie ne récidive pas sur le transplant mais 3 à 4 % des patients développent une maladie des anticorps anti-membrane basale glomérulaire de novo. Les anticorps sont généralement dirigés contre l'antigène de Goodpasture, situé dans la chaîne alpha 3, et sont similaires aux anticorps présents dans les formes "classiques" de maladie anti-GBM. Cet antigène est reconnu comme étranger dans le greffon, probablement parce qu'il n'est pas exprimé dans le rein natif en raison de l'absence de formation du collagène spécifique contenant l'association de chaînes alpha 3- alpha 5.
Accueil Translate this page Association des groupes Amitié Turner. 34, rue de la Tour d'Auvergne 75009 Paris.Tél 01 40 16 01 23 Fax 01 40 16 01 23 e-mail AGAT51@wanadoo.fr. Orphanet. http://orphanet.infobiogen.fr/associations/AGAT/AGAT.html
Extractions: Accueil Qu'est-ce que le syndrome de Turner ? Quel examen fait-on pour dépister le syndrome de Turner ? Si nous avons d'autres enfants, pourront-ils aussi être atteints par le syndrome ... Nous contacter Association des groupes Amitié Turner 34, rue de la Tour d'Auvergne 75009 Paris Tél : 01 40 16 01 23 Fax : 01 40 16 01 23 e-mail: AGAT51@wanadoo.fr
Extractions: main people Hey there, My name is David Rodgerson, I am 21 years old, and this is my temporary XLP web site. In August of 2001 I discovered that I have a condition called XLP (X-Linked Lymphoproliferative Disease, or Duncan's disease). In April 2002, I had a stem cell transplant to "cure" me of this condition. While this does not fix the underlying genetic problem, it has replaced my immune system with a new healthy one. Since then I have had a little trouble with graft vs host disease (a complication caused often by transplants), but have otherwise been recovering nicely. As it is an extremely rare condition, I have been looking for other people in the world who might share this condition and wish to talk with me. I'm looking for stories, information, or even just someone to say "I have this too." With some help, my sister and I are working to create a resource page for XLP, where people with this condition can do research to find out about the latest information on the disorder, and read other people's stories (with their permission to have them posted of course). As for now, I'd like to hear from anyone interested in talking. You can click my name below to reach me via e-mail. Yours truley
Mothers Against Munchausen Syndrome By Proxy Allegations M.A.M.A. was started in response to the fast growing number of false allegations of Munchausen syndrome by Proxy (MSBP). Parents are being accused of making their own children ill. http://www.msbp.com/
Extractions: M others A gainst M unchausen S yndrome b y P roxy A llegations "You shall not bear false witness against your neighbor." Exodus 20:16 M.A.M.A. was started in response to the fast growing number of false allegations of Munchausen Syndrome by Proxy (MSBP) . Parents are being accused of making their own children ill. Increasingly, families across America, Britain, Australia, Canada and New Zealand are being destroyed by doctors and other professionals who make unwarranted allegations against desperate mothers of chronically/critically ill children. The motives of the accusers can be multi-faceted. Often, allegations are used by a doctor or institution to evade a medical malpractice lawsuit , or to simply rid themselves of a troublesome mom when unable to diagnose a child's condition. "MSBP experts" are career building at the expense of children! Increasingly, this "diagnosis" is being deliberately misused by opposing parents in child custody suits. Many nurses and even doctors have been accused. SIDS deaths are the new frontier of prosecution.
NINDS Fahr's Syndrome Information Page Information sheet compiled by the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/fahrs.htm
Extractions: Fahr's syndrome is a rare neurological disorder characterized by abnormal deposits of calcium in certain of areas of the brain including the basal ganglia and the cerebral cortex. Symptoms of the disorder may include motor function deterioration, dementia, mental retardation, spastic paralysis, dysarthria (poorly articulated speech), spasticity (stiffness of the limbs), ocular (eye) impairments, and athetosis (involuntary, writhing movements). Features of Parkinson's disease such as tremors, rigidity (resistance to imposed movement), a mask-like facial appearance, shuffling gait, and a "pill-rolling" motion of the fingers may also occur in individuals with Fahr's syndrome. Other symptoms may include dystonia (disordered muscle tone), chorea (involuntary, rapid, jerky movements), and seizures. Onset of the disorder may occur at any time from childhood to adulthood.
PWSA Of Victoria (Australia) Home Page Includes details about the organization, a diagnosis/infant guide, a general guide, members stories and links. http://www.pws.asn.au
Extractions: On this Prader-Willi Syndrome Association of Victoria (Australia) website you will find: Details on our Association, what we offer and how we can be contacted Information for those who have had a recent diagnosis of PWS for your infant or toddler General information about PWS across all age groups A list of books, publications, and tapes available in our Members Library Stories and pictures from some of our members Contacts for other Australian PWS Associations Links to PWS Associations around the world and other useful organisations A link to our community at MC2 (at the top of the page) where you can look at, or post messages to, a forum where parents and others discuss PWS issues. You can also "chat" to others in your situation and find out about events
Genetic Disorders: The Links To Diet Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis. http://www.ctds.info/genetic_disorders.html
Extractions: Genetic Disorders The Links to Diet Recommended Book: Genetic Nutritioneering by Jeffrey S. Bland with Sara H. Benum. How you can modify inherited traits and live a longer, healthier life. An interesting book about using nutrition and other lifestyle changes to overcome inherited health risks. ( more books Many researchers and support groups state that birth defects and genetic disorders, especially connective tissue disorders such as Marfan syndrome osteogenesis imperfecta and Ehlers-Danlos syndrome , can't possibly be cured through diet because they are inherited genetic disorders. This conclusion is invalid simply because many birth defects and inherited genetic disorders have been found to be improved, or even cured, through diet. The old school of thinking that a birth defect or inherited disorder had to be caused by a single gene is no longer widely held in medical circles. The breakthrough concept in research is that many birth defects and inherited disorders are influenced by both genes and environmental factors, especially nutrition. Genes may make people susceptible to certain defects and disorders, but they are often only a part of the picture.
Extractions: The Fruits of Unbelief and Chronic Fatigue Syndrome - Professor Campbell Murdoch, M.D., Ph.D, writes, "On a recent trip to Malaysia, I was asked to suggest some topics for talks to interested doctors in Ipoh and Kuala Lumpur. Near the top of the list was Chronic Fatigue Syndrome (CFS) in view of our recent b ... READ MORE Fibromyalgia Versus Parvovirus Infection - A 40 year-old woman presenting with fibromyalgia symptoms posed an interesting clinical problem to her doctor. Resistant to the treatments prescribed to her, Stephen Paget, M.D., asked the question: did the patient ever have acute parvovirus infection? READ MORE Summary of the AACFS Sixth International Conference on Chronic Fatigue Syndrome, Fibromyalgia and Related Illnesses - Dr. Charles Lapp writes, "The biannual scientific conference of the AACFS was attended by over 190 physicians and professionals from more than 14 countries. This years format was new. The first day was an introductory course on the diagnosis and basic m ... READ MORE
Virtual Hospital: Tourette Syndrome A list of documents concerning Tourette syndrome and their relevant medical treatments as well as their related topics aimed at the public. Taken from the Iowa Health Book, a part of the University of Iowa's Virtual Hospital. http://www.vh.org/Patients/IHB/Psych/Tourette/HomePage.html
Extractions: Last Revised: May 2000 Table of Contents Definitions Physician/Treatment Information Academic/Student Information Other Internet Sites See related Patient Textbooks about Psychiatry See related Patient Topics Brain and Nervous System Genetics/Birth Defects Psychiatry or Tourette Syndrome See related Provider Textbooks about Psychiatry See related Provider Topics Brain and Nervous System Genetics/Birth Defects or Psychiatry Virtual Hospital Home Virtual Children's Hospital Home Site Map ... UI Health Care Home http://www.vh.org/adult/patient/psychiatry/tourettesyndrome/index.html
IBS FAQ IBS frequently asked questions by Laura Zurawski and Dr. Anthony Lembo. http://www.angelfire.com/il/ibshelp/
Extractions: Dr. Anthony Lembo Updated 1/2/99 Visited times What this FAQ covers: This FAQ deals primarily with questions, problems, and concerns associated with Irritable Bowel Syndrome (IBS). What this FAQ does NOT cover: This FAQ is about IBS and IBS only. It does not answer questions related to other diseases of the colon (IBDs such as Crohns and Ulcerative Colitis). It does not answer any questions related to food allergies, including lactose intolerance and wheat/gluten intolerance (Celiac disease). OTHER RESOURCES OF INFORMATION PART 1: Background 1a: What is Irritable Bowel Syndrome?
Personal Open Directory ARC Known Carcinogens Diethylstilbestrol Information on the potentialcarcinogenicity of des. Usenet alt.support.des - news - Google Groups. http://www.ideas4you.net/cgi-bin/pod/hot.cgi/Health/Medicine/Medical_Specialties
Extractions: The HOT Index about dmoz add URL ... help the entire directory only in Obstetrics/DES_Syndrome Top Health Medicine Medical Specialties ... Obstetrics : DES Syndrome Description See also: Health: Reproductive Health: Infertility Health: Women's Health: Support Groups DES Action USA - Non-profit organization dedicated to informing the public about DES (diethylstilbestrol) and helping DES-exposed individuals. Publishes on various aspects of DES exposure and provide a link between DES-exposed people, researchers, and the medical community. DES Cancer Network - Organization that addresses the special needs of women who have clear cell adenocarcinoma of the vagina and/or cervix, a rare cancer linked to exposure to diethylstilbestrol before birth. DES Daughters Mailing List and Online Support Group - Email online support group for daughters exposed to diethylstilbestrol (DES), which can result in infertility, reproductive abnormalities and other problems. Password-protected bulletin board, live chat and virtual seminars. DES Stories - DES Stories is the first book of photos and stories of DES daughters, mothers, and sons with DES history, research, and resources. In photographic portraits and interviews, DES daughters, mothers, and sons tell, in their own voice, what its like to be DES-exposed.
Hydrops Fetalis With Polymalformative Syndrome Medical report on two consecutive pregnancies with this diagnoses, as well as intrauterine growth retardation and Dysmorphic syndrome. http://www.hydropsfetalis.org/index.html
Extractions: My both pregnancies ended in non immune hydrops fetalis because of possible cardiomyopathy. The first case report describes a polymalformative syndrome. Some congenital malformations could be attributed to Seckel syndrome. The following address we refer you to will give you a good idea of this complex phenomenon called hydrops fetalis : Universal edema of the newborn Our site is intended for : physicians (gynecologists, geneticists, pathologists ) who have a real passion for uncommon and complex mechanisms before birth, who love caring for patients with humanity, who can question their knowledge and proceed like detectives paying attention to each detail ; couples whose pregnancy was affected who look for information desperately because no scientist was able to answer their questions. After your visit, you will know that you are not alone. We are most grateful to the specialists who really helped us in our search : Dr Raymonde Bouvier, Edouard Herriot Hospital in Lyon (France) Dr Géraldine Viot, Cochin Hospital Complex, Port-Royal in Paris (France)
