The Diagnosis Trail visit, he suggested that we see a geneticist and on the 17 th November Mitchellwas diagnosed with a very rare disorder called Floating Harbor syndrome. http://www.autismtas.org.au/mitchell.htm
Extractions: Hi my name is Lyn Leedham and I live in Tasmania. I am married to Brian and we have Nicholas who is 16 and in his first year of college and is a typical teenager, then we had Michael who was still born and if he was alive he would be 11 years. Then we have Mitchell who has turned 9 of June this year. Mitchell was a hard baby and I knew that something was not right with this child as beautiful as he is, I just knew. I was for ever at the doctor's and as usual nothing wrong, or he might have a virus. This went on for 41/2 years until a new doctor came to our clinic. It just all went into place. He suggested that we see a paediatrician and that Mitchell could have a congenital abnormality. Gee, was we scared. After the paediatrician's visit, he suggested that we see a geneticist and on the 17 th November Mitchell was diagnosed with a very rare disorder called Floating Harbor Syndrome. Our lives would never be the same, but we went on living until Mitchells prep teacher asked if a child can have 2 syndromes. I asked what she meant and she thought that Mitchell might have Asperger's and it would be a good idea to have him assessed for it. I left the classroom to go and see the principal and well he suggested the same thing, so I got on the phone and so our journey began. I rang the Guidance officer and gee, what a shock. She said that she couldnt assess him and with her own admission she knew nothing about Autism. She suggested this other person which I contacted and she performed a CARS on Mitchell and he scored 34 but she wouldnt give him a proper diagnosis because he had Floating Harbor Syndrome.
Extractions: This page provides links to information about autism, personal stories and autistic culture. If you have information regarding relevant resources, please let us know. autism@autismtas.org.au Personal Pages Tasmanians who have an interest in autism. Treatments, therapies and diets which have been considered beneficial for ASDs. It is important to realize that these are personal choices and are not recommendations from Autism Tasmania. Related Conditions Support and Services Support throughout the lifespan. Home
Mioti: Medical Condition Condition Floating Harbor syndrome. NORD Floating Harbor syndrome. Informationfrom the National Organization for Rare Disorders. General Topics. http://www.mioti.com/cat/condition/condition.asp?Cat=FloatingHarbor
Health Library - Floating Harbor Syndrome SEARCH. Floating Harbor syndrome. Synonyms Disorder Subdivisions GeneralDiscussion Resources National Organization for Rare Disorders. http://www.muskogeehealth.com/Library/HealthGuide/IllnessConditions/topic.asp?hw
Untitled Floating Harbor syndrome, also an autosomal dominant condition, was named afterthe two hospitals where it was originally identified and is characterized by http://www.faseb.org/genetics/ashg00/f585.htm
Listings Of The World Health Conditions And Diseases Genetic Floating Harbor syndrome Support Group Post Review Provides a description,including a list of symptoms, things to do and links to other resources. http://listingsworld.com/Health/Conditions_and_Diseases/Genetic_Disorders/Floati
Metropolitan Society For Crippled Children & Adults Floating Harbor syndrome Support Group 160 Guild NE Grand Rapids, MI 49505 Phone(616) 4479175 Fax (616) 447-9175 Website http//www.hometown.aol.com http://www.wheeler.org/pages/national_directory/natl_dir_f.html
Extractions: The federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. The federation operates a Parent Center which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.
BCcomm: Health & Fitness/Conditions & Diseases/Genetic Disorders 2 . Floating Harbor syndrome Support Group. Provides a list of symptoms andoffers support for parents whose children have Floating Harbor syndrome. http://www.bccomm.net/dir/Health___Fitness/Conditions___Diseases/Genetic_Disorde
Health Library - Floating Harbor Syndrome Search. Floating Harbor syndrome. Synonyms Disorder Subdivisions GeneralDiscussion Resources National Organization for Rare Disorders. http://www.uvmc.com/library/healthguide/IllnessConditions/topic.asp?hwid=nord934
March 1997 Back to Top. Floating Harbor syndrome. This little girl was diagnosed with FloatingHarborsyndrome, a rare condition of unknown cause, characterized by http://www.childguidanceclinic.ca/FocusMar97.htm
Extractions: Focus On Children The Newsletter of the Child Guidance Clinic March 1997 Contents CGC Mission Statement The primary mission of the Child Guidance Clinic shall be to provide multi-disciplinary services to school systems for children with special needs by providing preventative, consultative, diagnostic, and intervention services. The services provided the Clinic shall be consistent with the most relevant research and proven methods in regard to the delivery of innovative and quality educational programs. Back to Top A Wonderful Life? The weeks following the Christmas Break often seem lethargic after the rush to get everything done for the holidays. One perennial holiday experience is the presentation of the film It's A Wonderful Life in which Jimmy Stewart's character is given an opportunity to look at what life in his world would have been like if he had never existed. Some of us began to reflect along the theme "What would our system be Eke if the Child Guidance Clinic hadn't existed?" Sometimes we become so caught up both in dealing with the day to day pressures as well as the ongoing need to justify our existence it seems easy to forget why this organization was created in the first place. We were reminded that a speaker several years ago admonished our staff to keep a file of all the positive feedback they'd received, through letters, cards, etc. and to look through it on those days when the doldrums set in. With that in mind, we began to explore stacks of files for the kind of feedback we'd received at the Clinic over the years. We know that our agency offers a wide range of services, and our examination indicates that there is appreciation for each of them.
Extractions: FREEPOST NWW6775, BLACKPOOL. FY4 3GA. FABRYS DISEASE FABRYS DISEASE SUPPORT GROUP Suzanne Hill, 10 Broadmeadow Rd, Wyke Regis, Weymouth, DT4 9BS. Tel 01305 774 443. Information/Contact. FACIAL DISFIGUREMENT see under Disfigurement FACIOAURICULOVERTEBRAL SYNDROME see under Goldenhar Syndrome FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY contact FSH Muscular Dystrophy Support Group under Muscular Dystrophy FAMILIAL ATHEROSCLEROSIS contact Family Heart Association under Heart FAMILIAL GOUT/FAMILIAL JUVENILE GOUT (Lesch-Nyhan Syndrome) contact PUMPA under Metabolic Diseases FAMILIAL HAEMORRHAGIC TELANG-IECTASIA contact Telangiectasia Group FAMILIAL HYPERCHOLESTEROLAE-MIA contact Family Heart Association under Heart FAMILIAL HYPERLIPIDAEMIA contact Family Heart Association under Heart FAMILIAL SPASTIC PARAPLEGIA also known as Strumpell-Lorrain FSP SELF HELP GROUP Mrs Sally Langton, 116 Queens Road, Leicester, LE2 3FL. Tel 0116 270 0450. Collecting details on how the disease affects different families, ie age of onset, degree of disability and passes this information to research organisations.
