Home  - Health_Conditions - Leukodystrophy

Books Baby Camera Phones Computers Games DVD Electronics Kitchen Magazines Music Garden Software Tools Toys Video Apparel & Accessories Jewelry & Watches Musical Instruments Health & Personal Care Beauty Sports & Outdoors Office Products

e99.com Bookstore

Images

Newsgroups

1-20 of 105    1  | 2  | 3  | 4  | 5  | 6  | Next 20

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

Leukodystrophy:     more books (21)

The Official Parent's Sourcebook on Leukodystrophy: Directory for the Internet Age by Icon Health Publications, 2005-01-31 Leukodystrophy - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by ICON Health Publications, 2004-10-21 The Official Parent's Sourcebook on Metachromatic Leukodystrophy: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-09-11 Leukodystrophy: Webster's Timeline History, 1954 - 2007 by Icon Group International, 2010-05-14 Leukodystrophy: An entry from Thomson Gale's <i>Gale Encyclopedia of Genetic Disorders, 2nd ed.</i> by Ken Wells, 2005 21st Century Complete Medical Guide to Leukodystrophies: Authoritative Government Documents, Clinical References, and Practical Information for Patients and Physicians by PM Medical Health News, 2004-05 21st Century Ultimate Medical Guide to Leukodystrophies - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News, 2009-05-21 Leukodystrophies: Adrenoleukodystrophy, Canavan Disease, Pelizaeus-Merzbacher Disease, Metachromatic Leukodystrophy, Krabbe Disease Metachromatic leukodystrophy: An entry from Thomson Gale's <i>Gale Encyclopedia of Neurological Disorders</i> by Igor, MD, PhD Medica, 2005 Leukodystrophy: An entry from Thomson Gale's <i>Gale Encyclopedia of Neurological Disorders</i> by Scott, MS, CGC Polzin, 2005 21st Century Complete Medical Guide to Degenerative Nerve Diseases, Adrenoleukodystrophy, Leukodystrophy, Rett Syndrome, Canavan Disease, Ataxias, Authoritative ... for Patients and Physicians (CD-ROM) by PM Medical Health News, 2004-04-01 Gale Encyclopedia of Medicine: Lipidoses by Altha Roberts Edgren, 2002-01-01 Krabbe disease: An entry from Thomson Gale's <i>Gale Encyclopedia of Neurological Disorders</i> by Amie, MS Stanley, Rosalyn, MD Carson-DeWitt, 2005 Lipidoses: An entry from Gale's <i>Gale Encyclopedia of Medicine, 3rd ed.</i> by Altha Edgren, 2006

lists with details

1. UNITED LEUKODYSTROPHY FOUNDATION
   Nonprofit, voluntary health organization dedicated to providing patients and their families with informat Category Health Conditions and Diseases leukodystrophyUNITED leukodystrophy FOUNDATION. Email the ULF. This site last modifiedFeb. 23, 2003. (c) United leukodystrophy Foundation, Inc. Webmaster.  
   http://www.ulf.org/
   
   Extractions: FAX: (815) 895-2432 The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies are a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted. The ULF is supported solely by donations. Frequently asked questions about ULF Who are the people behind the ULF? Endowment Fund and Funding Opportunities, Medical Research Agencies of America Send comments or apply for membership ... Links to disability resources on the web The ULF Public Information VIDEO narrated by Tim Conway (ULF video catalogue #162). This video is available for rent by our members or sale to anyone. For more information on this and other videos

2. The Family Village / Library / Leukodystrophy
   Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic leukodystrophy, and Refsum's Disease  
   http://www.familyvillage.wisc.edu/lib_leukodystrophy.html
   
   Extractions: Website: http://www.ulf.org/ This is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease. In addition, it provides assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness; acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. The ULF is supported solely by donations. Adrenoleukodystrophy

3. Leukodystrophy Hub
   Family group supports research on repairing the substance that insulates nerves. Read about progress, publications and organizations.  
   http://www.projectlinks.org/leukodystrophy
   
   Extractions: Leukodystrophy, also called "the leukodystrophies," refers to a group of genetic disorders that are characterized by the imperfect growth or development of the white matter or myelin sheath covering nerve fibers in the brain. Specific leukodystrophies include metachromatic leukodystrophy, Krabbe leukodystrophy, adrenoleukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, Alexander disease, Zellweger syndrome, Refsum disease, and cerebrotendinous xanthomatosis. The most common signs seen in most leukodystrophies include gradual changes in an infant or child who previously appeared well. Changes may appear in body tone, movements, gait, speech, ability to eat, vision, hearing, behavior, memory, or thought processes. The symptoms, which vary according to the specific type of leukodystrophy, may be difficult to recognize in the early stages of the disease.

4. Introduction To Leukodystrophy
   Symptoms presented with this disease, the diagnosis and the treatment.Category Health Conditions and DiseasesUNITED leukodystrophy FOUNDATION. Introduction to leukodystrophy.Outlined below are brief introductions to the leukodystrophies.  
   http://www.ulf.org/ulf/intro/
   
   Extractions: Outlined below are brief introductions to the leukodystrophies. Further extensive in-depth research information is available on these subjects and more through the ULF library of printed and videotape materials. When requesting further information please let us know whether you are a professional or lay-person so that we can respond with the appropriate information level. Introduction Patterns of Inheritance Adrenoleukodystrophy (ALD)/Adrenomyeloneuropathy (AMN) Aicardi-Goutieres Syndrome ... Zellweger Syndrome INTRODUCTION The leukodystrophies are genetically determined progressive disorders that affect the brain, spinal cord and peripheral nerves. The term leukodystrophy derives from the Greek words "leuko" meaning white and referring to the white matter of the nervous system and "dystrophy" meaning imperfect growth or development. White matter is white to the naked eye because it contains a complex chemical substance called the myelin sheath. Myelin contains a variety of fatty substances or lipids. Its function is to insulate the axon through which nerve impulses are conducted, much as does insulation around an electric wire; the axon being the biological equivalent of the wire. The myelin sheath is a very complex substance. It is made up of at least ten, and probably more distinct chemicals. Each of the leukodystrophies affects one (and only one) of these substances that all affect the myelin sheath in some way, but otherwise, they are totally separate. Leukodystrophy of one type, does not in any way predispose to, or increase the risk of another type of leukodystrophy.

5. Leukodystrophy
   CHORUS document on the different types of leukodystrophy. A little technical.  
   http://chorus.rad.mcw.edu/doc/00231.html

6. NINDS Leukodystrophy Information Page
   A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.Category Health Conditions and Diseases leukodystrophy More about leukodystrophy, Studies with patients, NINDS is part of the National Institutesof Health. NINDS leukodystrophy Information Page Reviewed 1119-2001  
   http://www.ninds.nih.gov/health_and_medical/disorders/leukodys_doc.htm
   
   Extractions: Treatment for most of the leukodystrophies is symptomatic and supportive, and may include medications, physical, occupational and speech therapies, and nutritional, educational, and recreational programs. Bone marrow transplantation is showing promise for a few of the leukodystrophies. What is the prognosis?

7. Brianna
   Personal page about how this neurological disorder affects children and their families. Provides links to resources and support.  
   http://hometown.aol.com/ydb739094/brianna.html

8. NINDS Metachromatic Leukodystrophy Information Page
   A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.Category Health Conditions and DiseasesMetachromatic leukodystrophy information sheet compiled by the NationalInstitute of Neurological Disorders and Stroke (NINDS).  
   http://www.ninds.nih.gov/health_and_medical/disorders/meta_leu_doc.htm

9. Undiagnosed Leukodystrophy
   Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic.  
   http://members.tripod.com/phillipslauren
   
   Extractions: Get Five DVDs for $.49 each. Join now. Tell me when this page is updated My Homepage About Me My Family My School My Carers My Story My Story Continued Latest Happenings Past News Lauren's Homepage Hello, my name is Lauren Phillips. Mum and dad are writing about me because they think I am very special. I have just had my seventh birthday. Each year my mum, Carolyn goes to a lot of trouble to make a great looking birthday cake which everyone admires and loves to eat. Unfortunately I've never tasted one of mum's cakes or any other food she has prepared. I'm fed through a plastic tube in my stomach because I can't eat or swallow properly. There are other things about me that make me different from other children my age, so I'll let mum and dad explain. albert9@rabbit.com.au

10. Metachromatic Leukodystrophy
    metachromatic leukodystrophy. dysmyelinating disease autosomal recessive;aryl sulfatase A absent from urine and serum; most present  
    http://chorus.rad.mcw.edu/doc/00263.html

11. OMIM - Metachromatic Leukodystrophy
    Online Mendelian Inheritance in Man covers MLD, including sections on gene maps, research models and molecular mutations.  
    http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?250100

12. Wang
    Fei, Jing Chen, and Hans. Photos and information about Hans' medical condition of leukodystrophy.  
    http://ourworld.compuserve.com/homepages/wang/

13. Help Nasten'ka
    A 3 year old Russian girl needs help to fund a metachromic leukodystrophy treatment.  
    http://www.helpnastya.narod.ru/indexx.html

14. Natalie's Miracle
    Natalie suffers from Metachromatic leukodystrophy. This site is about her prayers for healing.  
    http://onin.com/natalie/

15. The Myelin Project: Home
    The Myelin Project works to accelerate research on myelin repair. Myelin is damaged by multiple sclerosis, leukodystrophy and the many other demyelinating disorders.  
    http://www.myelin.org/
    
    Extractions: Oligodendrocytes (red), the myelin-producing cells of the brain, shown here in tissue culture in association with astrocytes (green). The Myelin Project … an international grassroots organization whose mission is to accelerate medical research on myelin repair. more Research Progress First in vitro… then animals… now humans Medical history was made when Myelin Project researchers at Yale University transplanted myelin-forming cells into the brain of a 53-year-old MS patient. more... Myelin Project sponsored approaches to remyelination include the use of olfactory ensheathing cells, stem cells and progesterone. more... Lorenzo's Oil The movie tells the real-life story of Lorenzo Odone and his parents, Augusto and Michaela, the inventors of the oil and the founders of The Myelin Project. var site="s14myelinproject" Tel. (800)-8-MYELIN

16. Metachromatic Leukodystrophy (MLD)
    The Metachromatic leukodystrophy (MLD) Page. is no longer being maintained.  
    http://www.duke.edu/~pdrh/MLD.html

17. METACHROMATIC LEUKODYSTROPHY
    Pediatric Database (PEDBASE); Discipline MET; Last Updated 12/23/94METACHROMATIC leukodystrophy. DEFINITION A lysosomal storage  
    http://www.icondata.com/health/pedbase/files/METACHRO.HTM

18. Australian Leukodystrophy Support Group Inc
    http://home.vicnet.net.au/~leuko/

19. Home Of Joe Johnson MSIE
    Directed at making life better for people affected by leukodystrophy and those who know and love them.  
    http://www.joejohnson.net/
    
    Extractions: Search Now: Contents Joe's Links Jump to a Medline Search Page Leukodystrophy Information United Leukodystrophy Foundation ... Contact Me T his site replaces the Call Again Soon BBS. The Call Again Soon BBS supported over 300,000 log ons since it's inception in 1990. Dumb name but it means a lot to me. The Call Again Soon was dedicated to my son Joey and all those affected by Leukodystrophy. This web site carries on this name and dedication. The mission of the Call Again Soon is to provide a place where people affected by Leukodystrophy and those who know and love them can find information Computers, databases, evergrowing online communities and finally the arrival of the Internet have contributed to the survival of Joey and his family. So..... in case your wondering there is a lot of stuff on this site that points to things unrelated to leukodystrophy. I love my work and my work loves me. My work is automating the Internet. Fun for me is trying the latest toy, code scrap or thing that goes beep. Best of all is the sheer joy of discovering and sharing new stuff. Please share with us. Make Suggestions and send us links, please. So look around, have fun and remember

20. Australian Leukodystrophy Support Group Inc
    http://home.vicnet.net.au/~leuko/welcome.htm

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

1-20 of 105    1  | 2  | 3  | 4  | 5  | 6  | Next 20