ISNA.org :: V-Day Challenge 2002 Genetic females (XX) born without fully formed vagina, cervix, uterus, and/or fallopiantubes are said to have mayerrokitansky-kuster-hauser syndrome (MRKH). http://www.isna.org/events/vday/
Extractions: V-Day Endorses ISNA's V-Day Challenge 2002 (press release, Jan. 18, 2002). V-Day Challenge 2002 is a national initiative by Intersex Society of North America (ISNA) that will coincide (although not officially affiliated) with V-Day 2002 , the global campaign against violence against women and girls. According to the web site of
Purchase Viagra Online Now! - Mullerian Agenesis a region that includes a mullerian agenesis translocation breakpoint in a patientmullerian agenesis with mayerrokitansky-kuster-hauser (MRKH) syndrome. http://www.mrkh.net/viagra/mullerian-agenesis-1.html
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Abdominal Imaging 24, 2 (1999) Article in PDF 202204 CS Rhee, JS Kim, SK Woo, SJ Suh MRI of round ligament leiomyomaassociated with mayer-rokitansky-kuster-hauser syndrome Article in PDF http://link.springer-ny.com/link/service/journals/00261/tocs/02402.html
Extractions: (Picasso - 'Three Bathers') The Androgen Insensitivity Syndrome Support Group (AISSG) is a consortium of worldwide support groups that owe their origins to the UK-based group which was started in 1988. We provide information and support to young people and adults with complete and partial Androgen Insensitivity Syndrome (AIS) - old name Testicular Feminization Syndrome or Testicular Feminisation Syndrome (TFS) - and to parents of AIS youngsters. We also support those affected by Swyer's Syndrome (XY Gonadal Dysgenesis), 5-alpha Reductase Deficiency, Leydig Cell Hypoplasia, Mayer-Rokitansky-Kuster-Hauser (MRKH) Syndrome, Mullerian Dysgenesis, Mullerian Duct Aplasia, Vaginal Atresia, and other related conditions. Aims of the Group The AIS Support Group has the following aims:
AIS (Androgen Insensitivity Syndrome) Support Group Worldwide. Includes medical information about Androgen Insensitivity, support group contacts, newslette Category Society Transgendered Support Groups syndrome (XY gonadal dysgenesis), 5alpha-reductase deficiency, Leydig cell Hypoplasia,mayer-rokitansky-kuster-hauser (MRKH) syndrome, Mullerian dysgenesis http://www.medhelp.org/www/ais/
Extractions: Androgen Insensitivity Syndrome AIS is a condition that affects the development of reproductive and genital organs. Both men and women usually have at least one X chromosome, which contains a gene that gives their bodies the capacity to recognise and react to masculinizing hormones (androgens). Men usually have a Y chromosome as well, which codes for the production of androgens and the inhibition of female internal organ development. Women with AIS have a functioning Y chromosome (and therefore no female internal organs), but an abnormality in the X chromosome that renders the body partially or completely incapable of recognising the androgens produced, therefore allowing the default external genital development along female lines. Other related conditions, based on different chromosomes, also disrupt the normal pathway of androgen action, resulting again in a female phenotype. The Support Group We are a support group providing information and support to young people and adults with complete and partial Androgen Insensitivity Syndrome, and to parents of AIS youngsters. We also support those affected by Swyer's syndrome (XY gonadal dysgenesis), 5-alpha-reductase deficiency, Leydig cell Hypoplasia, Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome, Mullerian dysgenesis, Mullerian duct aplasia, vaginal atresia, and other related conditions. Please note that AIS is also known as Testicular Feminisation (or Feminization).
GenderTalk #359, May 13, 2002 Learn about mayer rokitansky kuster hauser (MRKH) syndrome (also known as MullerianAgenesis, Vaginal Agenesis, or Congenital Absence of Vagina) at www.mrkh http://www.gendertalk.com/real/350/gt359.shtml
Extractions: IMPORTANT REMINDER Home About GenderTalk How to Listen What is GenderTalk Shows by Topic Shows by Date ... About the TG symbol Participate Email List Submit a News Item Submit a Question Suggest a Guest ... Submit Announcement About us GenderTalk Staff Nancy's Bio Gordene's Bio Contact Nancy ... Contact Karen Video Download In Memory of Rita Special Presentation 30th Nat'l Day of Mourning Awards Winner, "Outstanding LGBT Radio" "Outstanding Community Service" Nancy Nangeroni Program #359, May 13, 2002: Esther Morris , on the response to her "Missing Vagina Monologue" activism from Eve Ensler and the MRKH intersexual community Charlie Fernandez , program officer with the Colin Higgins Foundation, on those who have shown the utmost grace and courage in the face of overwhelming hostility and hate TIME TOPIC (Click on bold/colored text below for web site or email) Introduction Question of the week
Extractions: This page was last updated on 1/8/03. If you know of errors please click here to let us know. American Psychological Association's Healthy Lesbian, Gay, and Bisexual Students Project provides resources and training events to school counselors, nurses, psychologists and social workers to help these professionals be more effective in meeting the health and mental health needs of LGBQ youth. Email: jporter@apa.org ; Web site: www.apa.org/ed/hlgb.html Ask-the-Doctor Service: from Seattle Gay Clinic: www.seattlegayclinic.org/ask_the_doctor/Ask_The_Doctor.cfm Basic Tips for Health Care and Social Service Providers Working with Transgendered People : 2-page handout available free online: http://www.gender.org/resources/dge/gea01006.pdf (pdf format) Britain's UK Intersex Association: writings by intersex individuals and excellent links: www.ukia.co.uk Celebrating the Pride and Diversity Among and Within the Lesbian, Gay, Bisexual, and Transgender Populations: health issues, especially alcohol and other substance abuse, treatment resources, from the U.S. Substance Abuse and Mental Health Services Administration:
Extractions: Other information The following links take you straight to pages of information about hormone disorders. This information has been checked by doctors to ensure it is correct and appropriate for UK patients. British Society for Paediatric Endocrinology and Diabetes - contains information written by a specialist doctor on: Achondroplasia, Congenital Adrenal Hyperplasia, Complete Androgen Insensitivity Syndrome (CAIS), Congenital Hypothyroidism, Coeliac Disease, Delayed Puberty, Diabetes Insipidus, Grave's Disease (Thyrotoxicosis), Growing Pains, Gynaecomastia, Hypopituitarism, Hypothyroidism (Acquired), Klinefelter's Syndrome, Labial Adhesions, Marfan's Syndrome, Overweight, Partial Androgen Insensitivity Syndrome (PAIS), Precocious Puberty, Steroid Replacement, Steroid Treatment, Tall Stature, Turner's Syndrome Cancer BACUP - a UK site with very detailed information on all aspects of living with all of the different types of cancer which can cause hormone disorders Endocrine surgeon - this site has detailed information at a more technical level on thyroid, parathyroid, adrenal, pancreas and pituitary disorders, multiple endocrine neoplasia, carcinoid syndrome, pineal gland and melatonin, osteoporosis, erectile dysfunction.
Survivor Project: Links MRKH.org is a nonprofit organization providing support and information forwomen with mayer-rokitansky-kuster-hauser syndrome. Trans Resources. http://www.survivorproject.org/links.html
Extractions: Intersex Resources Trans Resources Other Related Resources Intersex Society of North America (ISNA) is dedicated to ending shame, secrecy and unwanted genital surgeries for children born with atypical sex anatomy. CAH Our Voices and Our Stories was created by people with congenital adrenal hyperplasia (CAH) to educate parents and medical professionals about what living with CAH is like. AIS Support Group is a support group providing information and support to young people and adults with complete and partial Androgen Insensitivity Syndrome, and to parents of AIS youngsters. MRKH.org is a non-profit organization providing support and information for women with Mayer-Rokitansky-Kuster-Hauser syndrome. Transgender Outreach Project is dedicated to spreading the word about the importance of safer sex within the trans community, distributing safer sex supplies and literature on how to use them. American Boyz is a support and social group for people who were born female but who feel that is not a complete or accurate assessment of who they are (FTMs) and their significant others, friends, families and allies (SOFFAs). ButchDykeBoy.com
Ipdx - Intersex Initiative Portland Esther is a fabulous activist from Boston area who founded MRKH.org, a resourcefor people who experience mayerrokitansky-kuster-hauser syndrome. http://www.survivorproject.org/ipdx/articles/
Extractions: home articles + documents Basic Information About Intersex Medical Abuse of Intersex Children and Child Sexual Abuse Originally written for our V-DAY 2003 related project, but perfect for reprinting in other feminist and anti-violence newsletters. Also available as a PDF ( download So, You Wanna Know About "Hermaphrodites"? This is a handout containing the basic information about intersex: what it is, who we are, and what we want. It also explains why we avoid the word "hermaphrodite." Also available as a PDF ( download Frequently Asked Questions About Intersex Activism This is an updated and simplified version of ISNA's Intersex FAQ designed to provide the information that are relevant to doing activism around intersex. It is not intended to provide information about medical conditions. PDF version coming soon. Shifting the Paradigm of Intersex Treatment [PDF] by Alice Dreger This compact chart contrasts the old "concealment-based" protocol versus the "patient-centered" protocol that we are advocating for. This is essential to understanding what intersex activists are working toward. Courtesy of Intersex Society of North America. Suggested Guidelines on Writing About Intersexuality and Intersex People Inspired by Jacob Hale's similar recommendations on writing about transsexual people, Emi made this list for students, journalists, and others who want to write about us.
Androgen Insensitivity Support Group Testicular Feminization; 5 Alphareductase deficiency; XY Pure Gonadal Dysgenesis;Swyer syndrome; mayer-rokitansky-kuster-hauser syndrome; Vaginal Atresia http://www.geneticalliance.org/diseaseinfo/displayorganization.html?orgname=Andr
MUMS List Of Disorders - M www.mastokids.org; mayerrokitansky-kuster-hauser syndrome (absenceof uterus) (7); McArdle Disease (1) *; McCune-Albright syndrome http://www.netnet.net/mums/mum_m.htm
Extractions: indicates there is a support group which covers that diagnosis. MELAS Mitochondrial Encephalopathy Lactic Acidosis Syndrome (7) * Macrocephaly (large head) (29) Macroglossia (6) Macrosomia (abnormally large body) (2) Macular Degeneration (4) * Macular Degeneration (Infantile) * Male Pseudohermaphroditism (2) * Malignant Hyperthermia (12) * Malrotation of the Intestines (31) Mandibuloacral Dysplasia(Craniomandibular Dermatodysostis) (2) Manic Depression, Bipolar (64) * Manic Depressive Schizophrenia (19) * Mannosidosis (Glycogen Storage) (4)** Maple Syrup Urine Disease (7) * Marcus Gunn Phenomenon (Jaw Winking) (3) Marden-Walker Syndrome (7) Marfan Syndrome (12) * Marinesco-Sjogren Syndrome (1) www.marinesco-sjogren.org Marshall-Smith Syndrome (1) Mast Cell Disease (Urticaria Pigmentosa) (9) Mastocytosis (Urticaria Pigmentosa) (9) www.mastokids.org Mayer-Rokitansky-Kuster-Hauser Syndrome (absence of uterus) (7) McArdle Disease (1) * McCune-Albright Syndrome (6) ** Measles Vaccine (bad reaction) (9) * Meckel-Gruber Syndrome (2) Meckels Diverticulum (2) Mediterranean Fever, Familial (2)
Medicine Arena - Journal Resources HM Salihu; G. Tchuinguem; J. KamdomMoyo; R. Ratard. Laparoscopic removal of anectopic uterus in a patient with mayer-rokitansky-kuster-hauser syndrome, p97. http://rudolfo.ingentaselect.com/vl=1/cl=7/ini=medarena/nw=1/rpsv/cw/www/tandf/a
Extractions: Volume 20 Number 1 January 2000 Paget's disease of the vulva A. B. MacLean Critical appraisal workshops to promote evidence-based healthcare A. O. Awonuga; L. S. Dwarakanath; R. Johanson; C. Hyde; R. Taylor K.; S. Khan Outcome of pregnancy following renal transplantation L. Byrd; P. Donnai; R. Gokal The effect of maternal exercise on umbilical artery blood flow in pregnancy-induced hypertension N. M. Rafla Obstetric outcome in women over the age of 40 years M. Prasad; S. Ghosh; H. Al-Taher Women with placenta praevia and antepartum haemorrhage have a worse outcome than those who do not bleed before delivery C. M . Lam; S. F. Wong; K. M. Chow; L. C. Ho Socioeconomic barriers to safe motherhood among booked patients in rural Nigerian communities O.C. Ezechi; O.B. Fasubaa; F.O. Dare Headache following parturition J. I. B. Adinma A.; O. Agbai Aetiology and management of the secondary brow K. Chapman Caesarean morbidity and mortality at Maiduguri, Nigeria C. M . Chama; A. U. El-Nafaty; A. Idrisa
Society For Endocrinology - Patient Support Groups those affeceted by Swyer's syndrome (XY gonadal dysgenesis), 5 alphareductase deficiency,mayer-rokitansky-kuster-hauser (MRKH) syndrome, Mullerain dysgenesis http://www.endocrinology.org/sfe/ptsgate.htm
Extractions: Society for Endocrinology These links are provided as a service to users. They have not been quality-checked by the Society for Endocrinology and their inclusion here is not an endorsement. Please mail details of any sites you would like to see added to this page so they can be included in the next review. Other gateways: Publications Endocrinology-related Sites Professional Bodies Members' Pages ... Educational Resources Click on the title itself to go direct to the site. www.heightmatters.org.uk ACIF is a federation of organisations in the field of Addison's disease and Cushing's syndrome. ACIF provides patients with information on existing support groups around the world. In addition, ACIF will help patients wishing to start a national or local support group, and will provide general information on Addison's disease, Cushing's syndrome and related adrenal and pituitary disorders. Back to list The Addison's Disease Self Help Group is the UK support group for men, women and children suffering from Addison's Disease and for their families.
Extractions: Welcome to the Chromosomes Directory Menu Genetics Intersexed Klinefelters KS Links ... XXY Support Group Main National Support Groups - Information Sites Genetic Disorders (small) Genetic Disorders (large) Alport Syndrome Home Page ... http://www.emedicine.com/ped/topic1252.htm# Klinefelter Syndrome Last Updated: November 2, 2001 Synonyms and related keywords: XXY male, XXY syndrome, XXXY syndrome, XXYY syndrome, XXXXY syndrome, XXXYY syndrome A Parent's View Author: Harold Chen, MD, MS, FAAP, FACMG , Chief, Professor, Department of Pediatrics, Section of Perinatal Genetics, Louisiana State University Medical Center Harold Chen, MD, MS, FAAP, FACMG, is a member of the following medical societies: American Academy of Pediatrics American College of Medical Genetics American Medical Association American Society of Human Genetics , and Teratology Society Editor(s): Ian Krantz, MD
AMEDEO: The Medical Literature Guide Nephron 2002; 92 7556. ZERBI S, Orani MA, Bonforte G. End-stage renal diseasein mayer-rokitansky-kuster-hauser syndrome. Nephron 2002; 92 752-3. http://www.amedeo.com/medicine/crf/NEPHRON.HTM
Extractions: Drawing on remarkable case studies, scholar Alice Dreger explores encounters between hermaphroditespeople born with "ambiguous" sexual anatomyand the medical profession of late 19th-century Britain and France. Comparing protocols applied today in similar situations, this meticulously researced book will compel the attention of anyone interested in the meanings and foundations of sexual identity. 24 photos. Punctuated with remarkable case studies, this book explores extraordinary encounters between hermaphroditespeople born with "ambiguous" sexual anatomyand the medical and scientific professionals who grappled with them. Alice Dreger focuses on events in France and Britain in the late nineteenth century, a moment of great tension for questions of sex roles. While feminists, homosexuals, and anthropological explorers openly questioned the natures and purposes of the two sexes, anatomical hermaphrodites suggested a deeper question: just how many human sexes are there? Ultimately hermaphrodites led doctors and scientists to another surprisingly difficult question: what is sex, really?
Women's Health: The Comfort Zone - March 11, 1998 A personal article about the effects of the syndrome on the self-esteem of women.Category Health Women s Health Menstruation Amenorrhea MRKHMRKH Madness, by Niki Taylor. mayerrokitansky-kuster-hauser (MRKH) syndromeis a fairly rare syndrome that affects about 1 in 10,000 women. http://www.obgyn.net/women/articles/comfort/comfort008.htm
Extractions: The Comfort Zone - April 15, 1998 MRKH Madness, by Niki Taylor Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome is a fairly rare syndrome that affects about 1 in 10,000 women. This syndrome can cause a variety of medical problems including reproductive, skeletal, and renal (kidney) problems. The reproductive problems may include a short or absent vagina, a partial or absent uterus, and infertility. The patient with MRKH has amenorrhea or absence of periods. Even if a patient has a partial uterus, it is usually removed due to stomach pains and the inability of menstruation to leave the body. Normally, the ovaries are fine. Keep in mind that the patient is genetically a female with breasts and feminine body hair. As for the skeletal problems, vertebrae malformations may be present. Other bone malformations may be in the limbs. Renal (kidney) problems are very common. A kidney may be missing or in the wrong place. Another problem MRKH women may experience is hearing loss. Except for the reproductive problems, MRKH women may have all, some or none of these symptoms. Treatments are possible for the reproductive problems. Doctors can form a new vagina through surgery. Another way to create a longer vagina is the use of dilators. These are phallus-shaped instruments that the patient inserts into the vaginal area over periods of time. These procedures take a great deal of patience, but according to many patients, they're worth it. Many patients report satisfactory sexual intercourse after these treatments.
