Geometry.Net - Health_Conditions: Narcolepsy

Narcolepsy.com Home Page
Online version of patient, researcher and physician newsletter.
http://www.narcolepsy.com/

Extractions: Multi Purpose Link to [Get email notices when we add new articles or take positions on public policy issues (including Legislative threats to treatment)]. Please take a look at this as a means to advance our mutual interests. Link to Sleep Home Page Extensive coverage of sleep and sleep disorders including links to sleep related resources. Please report site technical difficulties to Web Mistress.
NINDS Narcolepsy Information Page
National Institute of Neurological Disorders and Stroke describes narcolepsy and its prognosis. Table of Contents (click to jump to sections). What is narcolepsy? Is there any treatment?
http://www.ninds.nih.gov/health_and_medical/disorders/narcolep_doc.htm

Extractions: There is presently no cure for narcolepsy; however, the symptoms can be controlled with behavioral and medical therapy. The excessive daytime sleepiness may be treated with stimulant drugs or with the drug modafinil (Provigil), which was approved by the FDA for this use in 1999. Cataplexy and other REM-sleep symptoms may be treated with antidepressant medications. At best, medications will reduce the symptoms, but will not alleviate them entirely. Also, many currently available medications have side effects. Basic lifestyle adjustments such as regulating sleep schedules, scheduled daytime naps and avoiding "over-stimulating" situations may also help to reduce the intrusion of symptoms into daytime activities. What is the prognosis?
CENTER FOR NARCOLEPSY
The Stanford University Sleep Clinic was the first medical clinic established to specialize in sleep Category Health Conditions and Diseases Sleep Disorders narcolepsynarcolepsy is a serious medical disorder and a key to understanding othersleep disorders. It is the world leader in narcolepsy research.
http://www-med.stanford.edu/school/Psychiatry/narcolepsy/

Extractions: Narcolepsy is a serious medical disorder and a key to understanding other sleep disorders Narcolepsy is a disabling illness affecting more than 1 in 2,000 Americans. Most individuals with the disorder are not diagnosed and are thus not treated. The disease is principally characterized by a permanent and overwhelming feeling of sleepiness and fatigue. Other symptoms involve abnormalities of dreaming sleep, such as dream-like hallucinations and finding oneself physically weak or paralyzed for a few seconds (see Symptoms). The Stanford University Sleep Clinic was the first medical clinic ever established to specialize in sleep disorders. It was founded in the early 1970s by Dr. William Dement to diagnose and treat narcoleptic patients. The Stanford Center for Narcolepsy was established in the 1980s and is now directed by Drs. Emmanuel Mignot and Seiji Nishino. The Center for Narcolepsy is part of the Department of Psychiatry and Behavioral Sciences and has published more than 100 articles on narcolepsy. It is the world leader in narcolepsy research. Several hundred patients with the disorder are currently treated at the Center or participate in various research protocols. Other research protocols are conducted in animals models of narcolespy. The Stanford Center for narcolepsy was the first to report that narcolepsy-cataplexy is caused by hypocretin (orexin) abnormalities in both animal models and humans (see Research). We are always looking for volunteers in our narcolepsy research studies.
Narcolepsy VER. 6.0
A large B/S and B/other archive. Also includes fanart and challenges.
http://www.my-brain-hurts.org/narcolepsy/

Extractions: subscribe to Narcolepsy_updates [ the board ] leave me a message *coming back soon* Email me for story submission or any other info about this site phlem183@hotmail.com I make no claims to any of the stories that are not written by me, or any of the characters, they all belong to their respective creators (the BtVS ones being Joss and the rest of 'em) I do however own the artworks (not the original photographs) so please do not steal, it doesn't take much to send me an email ...so go do that. narcolepsy ver. 6.0 best viewed 800 x 600 19.feb.03 Sorry for the lack of site again, no idea why the q-board site was coming up thanks to those who informed me. Again no REAL update, *sigh* I really got discouraged by the quality of fics I was finding, but I've recently found a hum dinger and hopefully that'll propel me back into the world of fanfic. 03.jan.03
[Narcolepsy Internet]
Support and Information for people with narcolepsy or ideopathic hypersomnia, their family, and care-prov Category Health Conditions and Diseases Sleep Disorders narcolepsyOnline support and education for people with narcolepsy, their family and partners,and care providers. My talk at narcolepsy Network's 1997 Conference
http://www.narcolepsy.org/
Narcolepsy Association UK (UKAN)
The homepage for narcolepsy Association UK UKAN a registered charityCategory Health Conditions and Diseases Sleep Disorders narcolepsynarcolepsy Association UK (UKAN). narcolepsy Association UK (UKAN). This Association.Can you help with our study of children with narcolepsy?
http://www.narcolepsy.org.uk/
Narcolepsy Nnetwork
narcolepsy Network You will now be redireted to http//www.narcolepsynetwork.orghttp//www.websciences.org/narnet January 29, 2003 - 1 KB4. Center for narcolepsy ResearchPeople with narcolepsy are unable to resist falling asleep. Includes facts, support networks, and research activities. Tapes of Experts speaking on topics of interest to persons with narcolepsy http//www.uic.edu/depts/cnr - March 5, 2003 - 27 KB5. narcolepsy InternetOn-line support and education for people with narcolepsy, their family and partners, and care providers. An annotated list of WWW links that have been mentioned on the narcolepsy InterNet's list .http//www.narcolepsy.net/ - July 20, 2000 - 14 KB6. narcolepsy Association U.K. (UKAN)Nonprofit organization based in the United Kingdom, supporting the interests of people with narcolepsy. Provides information on symptoms, diagnosis and medications. narcolepsy Association UK (UKAN)
http://www.websciences.org/narnet
Sleep Apnea, Narcolepsy, Hypersomnia And Other Sleep Disorders
Sleep medicine resources for detection and control of sleep apnea, narcolepsy, hypersomnia, insomnia and sleep disorders.
http://www.netexp.net/~flamenco/sleepresources.html

Extractions: productivity of millions who do not even realize they are ill. For example, sleep apnea has been documented in 10% of adult men. Complications of untreated sleep apnea include heart attack, heart failure, stroke, incapacitating sleepiness and sleep attacks with motor vehicle crashes. The impact of sleep apnea narcolepsy hypersomnia insomnia and other sleep disorders on industry and transportation is similarly dramatic. Sleep deprivation and sleepiness due to shift work escalate the risks. Annual U.S. losses from workplace sleepiness have been estimated at 189.5 billion dollars. Physicians must be detect and ensure treatment of sleep apnea and other sleep disorders , even from the standpoints of medicolegal liability and losses related to care of sleep disorders' complications in a capitated setting.
NHLBI Home Page: Jump To New Location
Basic information on narcolepsy from National Institutes of Health National Heart, Lung, and Blood Institute.
http://www.nhlbi.nih.gov/nhlbi/sleep/gp/narcolep.htm
SNaG Schweizerische Narkolepsie Gesellschaft/SNA Swiss Narcolepsy Association
http://www.narcolepsy.ch/
Narcolepsy And Hypocretin: Information And Background
narcolepsy. Epidemiology; Symptoms; Diagnosis; Treatment1, 2; Genetics and HLA Part 1, 2, 3; Links.
http://www.geocities.com/mhungs/
Narcolepsy
Information on the difficulties associated with diagnosis and treatment.
http://users.pullman.com/beaumont/Narcolepsy.htm

Extractions: Narcolepsy: What is it really like? from: "Symptom Description and Management in Narcolepsy" The Results of University of Illinois at Chicago Center for Narcolepsy Study In association with the American Sleep Disorders Association in a random sample of 1500 narcoleptics from the American Narcolepsy Association by Cohen FL, Nehring WM, Cloninger l Holistic Nursing Practice 1996;10(4):44-53 No one drug successfully treats all the manifestations of narcolepsy. The excessive daytime sleepiness/sleep attacks are often treated with stimulant medications.... Despite the array of drugs that have been used in the treatment of narcolepsy, success in symptom control is limited, and side effects may be prevalent. Patients often do not perceive a major relief of symptoms. In the present study, symptom prevalence was reported to continue in the majority of individuals despite their medications. [Because they insist on treating you like it is your fault (psychiatric), and giving drugs like Ritalin that do not function effectively even when they know good DAMN WELL what drugs are effective] Therapy is long term and usually lifelong, so that narcolepsy is categorized as a chronic illness. Because narcolepsy is an incurable illness with variable treatment results and symptoms that interfere with daily functioning, its impact on quality of life is significant.
Narcolepsy - A Sleep Disorder
Site dedicated to narcoleptics by a narcoleptic. Includes experiences with this disorder, FAQs, message board, chat and information on medicine.
http://www.cataplexic.com/

Extractions: Narcolepsy - A Sleep Disorder Updated 03-28-03 This site is dedicated to all that live with the symptoms of narcolepsy To go straight to index click here 02-21-02 The following letter was posted on the message board recently and I felt it was the perfect letter to start my web page with. It is so perfectly descriptive of what we narcoleptics ALL go through at one time or another in our lives that I think we all can relate to it. Anyone who does not have narcolepsy but has a friend, relative, co-worker, etc that does, will learn so much about what we go through by reading this. Thanks to DeAnna for such a wonderfully worded letter.~~~~Melody Narcolepsy - A Sleep Disorder Index Our Experiences - Page with your stories on your experiences with narcolepsy. Updated 05-25-02. Tips and Tricks Want to submit or find ideas on coping with everyday problems associated with Narcolepsy? Updated 11-19-02. News on Narcolepsy News on research, new FDA approved medicines, etc. as it becomes available.
Narcolepsy Nnetwork
narcolepsy Network. You will now be rediretedto http//www.narcolepsynetwork.org.
http://www.websciences.org/narnet/default.html
Living With Narcolepsy
A site dedicated to narcolepsy and the people who live with it, including a description of symptoms, tips for coping with the disorder, treatment options, sources of help, and links to research and sleep disorder sites.
http://expage.com/page/livingwithnarcolepsy

Extractions: Hello! Welcome to my place. How do you like it? Well having a web page is new to me, but I thought this one was well worth the effort. Now, lets get a few things straight. I am Not a health professional, but Narcolepsy and I are old friends, well, ok, maybe not Friends, but we have lived together for more than 15 years, 17 to be exact.
Narcolepsy Research Project - University Of Pennsylvania
Flyer for research project looking for narcoleptic volunteers.
http://www.nursing.upenn.edu/Narcolepsy/

Extractions: "Imagine falling asleep while at the wheel waiting for a green light, or at work, as happened to my patients. Excessive daytime sleepiness is often the most disabling symptom of narcolepsy and the most difficult to treat. The goal of my research is to find better ways to control this symptom.." Ann E. Rogers PhD, RN Associate Professor, University of Pennsylvania Narcolepsy is a chronic neurological disorder characterized by excessive daytime sleepiness and sleep attacks. Other symptoms include brief episodes of muscle weakness or paralysis, dream-like images when falling asleep and disturbed sleep at night. Narcolepsy effects equal numbers of men and women and occurs in all racial groups. This sleep disorder usually develops during the late teens or early twenties and continues throughout the individual's life. Early diagnosis and appropriate medical care are critical for reducing the adverse effects of this disorder. With adequate medication and support from their teachers, employers and families, most patients can enjoy a near-normal lifestyle. Unfortunately, many patients remain undiagnosed and undertreated. The Narcolepsy Research Project consists of a group of clinicians and investigators dedicated to improving the care of narcoleptic patients. We are particularly interested in learning more about the treatment of excessive daytime sleepiness; what treatments are effective and what treatments are not effective for controlling this symptom.
Narcolepsy Internet Jumpstation
Jumpstation and WWW links for narcolepsy, sleep disorders, and other healthrelated information. N, narcolepsy Disabilities narcolepsy. Support
http://www.narcolepsy.org/narc.links.html

Extractions: An annotated list of interesting WWW sites [Narcolepsy] [Sleep Disorders] [Medical] [Information] ... [Other Disabilities] [Support Groups] [Research] [News] [Stories] ... [Other] Narcolepsy Internet (http://www.narcolepsy.org) On-line support and information for people with narcolepsy and ideopathic hypersomnia, their families, their partners and care givers. Narcolepsy Network (http://www.websciences.org/narnet) Narcolepsy self-help Group. They have an annual conference and quarterly newsletters. Coordinate US-Based self-help groups. Pamphletes and information for narcoleptics and their family. Their web pages are very static. YAWN (Young Americans With Narcolepsy) (http://www.yawn.org/) YAWN is a youth outreach and development organization that aims to provide educational and social support services to all persons with narcolepsy or whose life is affected by narcolepsy family, peers, teachers, faculty, health care providers, business leaders, employers and others in the community. This site is under construction and has a lot of potential. Sleep/Wake Disorders of Canada (http://www.geocities.com/HotSprings/1837/)
Welcome To HealthGate Data Corp.
From Healthgate information about insomnia, narcolepsy, sleep apnea, snoring, and restless legs .
http://www3.healthgate.com/default.asp?docid=/hic/sleep/index
OMIM ENTRY 161400
narcolepsy Epidemiology Symptoms Diagnosis Treatment 1, 2 Genetics and HLA Part 1, 2, 3 Links narcolepsy
http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?161400
Center For Narcolepsy Research Homepage
General narcolepsy information and faqs, support groups, research and schedule of events. Part of Category Health Conditions and Diseases Sleep Disorders narcolepsy
http://www.uic.edu/depts/cnr/

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