Geometry.Net - Health_Conditions: Neurofibromatosis

The National Neurofibromatosis Foundation - NF
Comprehensive information sponsored by the National neurofibromatosis Foundation for people with NF, Category Health Conditions and Diseases neurofibromatosisneurofibromatosis, NF, neurofibromatosis 1, NF1, neurofibromatosis 2, NF2, NF Foundation,NF Research, NF Clinical Programs, NF Public Education, NF Fundraising
http://www.nf.org/

Extractions: neurofibromatosis, NF, neurofibromatosis 1, NF1, neurofibromatosis 2, NF2, NF Foundation, NF Research, NF Clinical Programs, NF Public Education, NF Fundraising, NF Support Groups, International NF Association, Von Reckinghausen's Disease, Vestibular Schwannoma, Neurofibromas., Plexiform Neurofibroma, NF and Learning Disabilities, National Neurofibromatosis Foundation, Neurofibromatosis One, Neurofibromatosis Two, International Neurofibromatosis Association CENTER OF EXCELLENCE AWARD: In the Spotlight New Postdocotoral Fellowship Program
THE NF, INC. WEB SITE! THE NEUROFIBROMATOSIS, INC. HOMEPAGE
Support and information for those with neurofibromatosis.
http://www.nfinc.org/
The Neurofibromatosis Association
neurofibromatosis(Von Recklinhausen disease) A review of the most important aspects on physical examination, classification and treatment. neurofibromatosis. neurofibromatosis(NF) is an autosomal dominant disease characterized by disordered growth of
http://www.users.zetnet.co.uk/neurofibromatosis
Neurofibromatosis Resources
Comprehensive source of links to NF information, including support groups, personal stories and associated conditions.
http://neurosurgery.mgh.harvard.edu/NFR

Extractions: before accessing this web site. Welcome! My name is Carol, and my life partner, Gene, has Neurofibromatosis, Type One. We've collected links to some of the finest sources of information about NF on the Internet. There is a great deal of information out there! Unfortunately, a lot of it was not written with regular people in mind. On these pages, you will find carefully selected sites - only the best. We hope that this information will help answer your questions and that you'll find it helpful.
MEDLINEplus: Neurofibromatosis
neurofibromatosis From the National Institutes of Health. neurofibromatosis (National Institute of Neurological Disorders and Stroke)
http://www.nlm.nih.gov/medlineplus/neurofibromatosis.html
GeneReviews: Neurofibromatosis 1
Clinical description and diagnostic and technical details of this condition typified by numerous benign tumors of the nervous system.
http://www.geneclinics.org/profiles/nf1
::: Asociación Argentina De Neurofibromatosis
Asociaci³n cuyo prop³sito es el estudio y la difusi³n de la enfermedad neurofibromatosis . NF1, NF2.
http://www.aanf.org.ar
Neurofibromatosis Recklinghausen
Om foreningen, kalender, sygdommen, butikken, kontakter og presseklip.
http://www.nfrecklinghausen.dk/
Nfca
A nonprofit organization for people with NF and their families.
http://trfn.clpgh.org/nfca
NINDS Neurofibromatosis Information Page
Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.Category Health Conditions and Diseases neurofibromatosisneurofibromatosis information sheet compiled by the National Institute ofNeurological Disorders and Stroke (NINDS). More about neurofibromatosis,
http://www.ninds.nih.gov/health_and_medical/disorders/neurofibro.htm

Extractions: In most cases, symptoms of NF1 are mild, and patients live normal and productive lives. In some cases, however, NF1 can be severely debilitating. In some cases of NF2, the damage to nearby vital structures, such as other cranial nerves and the brainstem, can be life-threatening. What research is being done?
Neurofibromatosis(Von Recklinghausen's Disease) MEDSTUDENTS-NEUROLOGY
A review of the most important aspects on physical examination, classification and treatment, for medical students.
http://www.medstudents.com.br/neuro/neuro7.htm

Extractions: NF is divided in two Types: Neurofibromatosis 1(NF1) is characterized by spots of increased skin pigmentation(café au lait spots), combined with peripheral nerve tumors and a variety of others dysplastic abnormalities of the skin, nervous system, bones, endocrine organs and blood vessels. Etiology The reponsible gene is located on the long arm of chromosome 17 Epidemiology Its incidence is 1 per 3.000 births and present in about 30 persons per 10.000 population. It is inherited as an autosomal dominant trait, but about 50 percent of cases arise as mutations. Pathology The peripheral nerve tumors of two types, schwannomas and neurofibromas. Both types of tumor occasionally become malignant. Clinical Manifestations The pigmented spots are irregular in shape with relatively even borders, vary in size, and are of brownish coffe color(café au lait). They are most proeminent over the trunk, in the axilla(axillary freckles), and about the pelve.
Neurofibromatosis Clinics Association Volunteer Opportunities
Details of many ways to volunteer to help the neurofibromatosis Clinics Association.Category Health Conditions and Diseases neurofibromatosisVolunteer Opportunities. Opportunities exist in several areas FundraisingEvents. 5K WALK FUN RUN APRIL 12, 2003; Men Womens
http://trfn.clpgh.org/nfca/volunteer.html
M. D. Anderson Cancer Center - Neurofibromatosis (NF) Clinic
Information about neurofibromatosis and details of the center which provides diagnosis, treatment, patient education, and relevant research.
http://www.mdanderson.org/departments/neurofibrom/

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Daniels Nf Page
A child living with neurofibromatosis and optic glioma with links.
http://www.ilynn6.freeserve.co.uk
Neurofibromatosis Association Of Australia Inc. - Home Page
Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close Category Health Conditions and Diseases neurofibromatosis Content Last Updated 11 December 2001 Copyright © 2001,neurofibromatosis Association of Australia Inc.
http://www.nfaa.org.au/
Neurofibromatosis 1 And Neurofibromatosis 2...[Fulltext, July 2 JAMA.1997;278:51
Revised criteria published in JAMA in 1997, by the National neurofibromatosis Foundation Clinical Care Advisory Board.
http://www.ama-assn.org/sci-pubs/journals/archive/jama/vol_278/no_1/rv71001.htm

Extractions: Review - July 2, 1997 David H. Gutmann, MD, PhD; Arthur Aylsworth, MD; John C. Carey, MD; Bruce Korf, MD, PhD; Joan Marks, PhD; Reed E. Pyeritz, MD, PhD; Allan Rubenstein, MD; David Viskochil, MD, PhD Neurofibromatosis 1 and neurofibromatosis 2 are autosomal dominant genetic disorders in which affected individuals develop both benign and malignant tumors at an increased frequency. Since the original National Institutes of Health Consensus Development Conference in 1987, there has been significant progress toward a more complete understanding of the molecular bases for neurofibromatosis 1 and neurofibromatosis 2. Our objective was to determine the diagnostic criteria for neurofibromatosis 1 and neurofibromatosis 2, recommendations for the care of patients and their families at diagnosis and during routine follow-up, and the role of DNA diagnostic testing in the evaluation of these disorders. Published reports from 1966 through 1996 obtained by MEDLINE search and studies presented at national and international meetings.
British Columbia Neurofibromatosis Foundation - Home Page
BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.
http://www.bcnf.bc.ca

Extractions: BCNF is a non-profit charitable organization serving individuals and families throughout British Columbia and Western Canada. This site is meant to offer assistance and information to those looking to contact us and use, or contribute to, our services. It is not intended to replace the diagnosis and care provided by your personal physician. What are the neurofibromatoses? The neurofibromatoses are genetic disorders of the nervous system that primarily affect the development and growth of neural (nerve) cell tissues. These disorders cause tumours to grow on nerves and produce other abnormalities such as skin changes and bone deformities. The neurofibromatoses occur in both sexes and in all races and ethnic groups. This site deals with both neurofibromatosis type1 (NF1) and neurofibromatosis type 2 (NF2), however, the common name is really a historical error, as the two disorders were once believed to be closely related. Today it is known from genetic research that they are unrelated, each the result of a distinct gene on separate chromosomes. Further confusion results from other historical names: most older technical articles refer to the neurofibromatoses collectively as von Recklinghausen disease, after the doctor who first published studies of cases. More unfortunately, many people referred to the disorders as the Elephant Man's disease, since it was believed that John Merrick had NF, now generally refuted. (You can read more about this
Neurofibromatosis, Inc. Homepage - What Is NF
What Is NF Effects Of NF References Misconception Transcripts neurofibromatosis,pronounced Neurofi-bro-ma-to-sis, (NF for short), is a genetic disorder
http://www.nfinc.org/whatisnf.html
WebRing: Hub
Promotes education, enlightenment, and encouragement. Open to organizations, medical sites, and personal homepages. Sites pertaining to all aspects of the disorder are welcome, including associated conditions.
http://r.webring.com/hub?ring=neurofibroma&list
Golf
Information on event in Pittsburgh, Pennsylvania.
http://trfn.clpgh.org/nfca/golf.html

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