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Post Polio Syndrome: more books (34)

Post-polio syndrome (SuDoc HE 20.3620:P 84) by U.S. Dept of Health and Human Services, 1996

Post-Polio Syndrome: A Guide for Poliio Survivors and Their Families by J. K. Silver, 2001

Post-Polio Syndrome by Gunnar Grimby Lauro S. Halstead, 1995-02

Postpolio Syndrome Symptoms Progress and Plateau.(Brief Article): An article from: Family Practice News by Timothy F. Kirn, 2000-03-15

Of myths and chicken feet: A polio survivor looks at survival by Nancy Baldwin Carter, 1992

lists with details

Post Polio Syndrome
post polio syndrome. post polio syndrome (PPS). An Introduction to post polio syndromeBy Jack Trombadore. LCarnitine and Post-polio Syndrome - MJ Matheson, MD.
http://dspace.dial.pipex.com/comcare/pps.html

Extractions: An Introduction to Post Polio Syndrome By Jack Trombadore Post-Polio Symptoms and Effects: A Brief Guide Poliomyelitis Fact Sheet An Overview of Polio and Its Late Effects Information On Post-Polio Muscle Atrophy - What is Post-Polio Muscle Atrophy? ... A Shot in the Dark - By Pat Wechsler The Polio Vaccine And Simian Virus 40
Post-Polio Syndrome: Resources
Web Sites post polio syndrome Fact Sheet From the National Institute of NeurologicalDisorders and Stroke. Medline search and resources on post polio syndrome.
http://www.vhct.org/case399/resources.shtml
Report On Post-Polio Syndrome In Australia, Canada, France, Germany, Japan, UK &
The Japanese government has not yet recognized post polio syndrome as a conditionthat merits special attention. Polio epidemics ended in Japan by 1963.
http://www.disabilityworld.org/05-06_01/news/ppsreport.shtml

Extractions: A major problem confronting millions of polio survivors is that too few doctors, in both industrial and developing countries, recognize this slow moving and little understood secondary illness, called post-polio syndrome (PPS). The main symptoms of PPS are new progressive muscle weakness that gradually worsens, together with severe fatigue and pain in muscles and joints. It is often accompanied by decreased muscle endurance during activities.
Tracking Post Polio Syndrome
Tracking PostPolio Syndrome by Warren Froelich. from the Salk Institute Signals/ Fall 1999. Until recently, post-polio syndrome seemed to defy explanation.
http://sandiego_polio.tripod.com/TrackingPPS.htm

Extractions: by Warren Froelich from the Salk Institute Signals / Fall 1999 In a lab once occupied by polio vaccine pioneer Jonas Salk, researchers are now tackling some unfinished business: Post-polio syndrome. This syndromes difficult to ignore, and it shouldnt be ignored, said Assistant Professor Samuel L. Pfaff, a developmental neurobiologist at The Salk Institute who directs the lab located on the 5 th floor of the Institutes West Building. Its going to affect such a large number of people in our population, he added. According to the best estimates, roughly 40 percent of the 600,000 polio survivors in this country, or about a quarter million people, currently suffer with post-polio syndrome. Generally striking decades after recovering from paralytic polio, symptoms usually begin with progressive muscle weakness, followed by debilitating fatigue, loss of function and pain, especially in the muscles and joints, swallowing becomes difficult, and breathing turns labored. Until recently, post-polio syndrome seemed to defy explanation. But during the past half dozen years or so, scientists like Pfaff have begun to unravel some of the genetic mechanisms that may one day provide new tools to treat post-polio syndrome and other similar neurological disorders including Lou Gehrigs disease.
Post Polio Syndrome- New Problems From An Old Disease
doing. She hadn't yet heard of postpolio syndrome, so it never occurredto her that she might experience problems in the future.
http://www.mipolio.org/newsltr/fall2001/familyaffair.html

Extractions: One of the difficulties of being in a relationship with a person who has a chronic illness is the belief that we are alone. Everything is directed toward the person with the chronic illness and while that is fair enough, it is important to remember that the partner is also having to make adjustments to the illness. In today's discussion I am going to outline my situation when my partner, Dr. Mavis Matheson, began having problems with post-polio, and how we managed our relationship as her post-polio progressed. Mavis and I met in Regina as interns in 1985. Early in our relationship she mentioned she had had polio and had recovered. She led an active life, had swum competitively and enjoyed hiking and skiing - all the things that I enjoy doing. She hadn't yet heard of post-polio syndrome, so it never occurred to her that she might experience problems in the future. We had two children and worked together at the same clinic for five years. We were traveling and enjoying life together - things were working pretty well. She was one of those active, Type A people - always doing five things at the same time.
Post-Polio Syndrome Information And More
Sylvia and Marilyn's page on several disability topics and other interests.
http://www.fortunecity.com/meltingpot/eagle/1135

Extractions: Perhaps it's too difficult to reach the backyard, or the front yard. We all need time to "play," to let the child within come forth and when the sun is warm and calling our name, if we can't get to the door or through the door, some of that desire to play, some of that child within, is going to give up, and we would then find ourselves a prisoner in our own home. Some of us are bedridden, and for those who are, these pages will help to bring the sunshine to you, with lots of jokes and laughter, stories of our adventures and the crazy antics of the animals that are willing to let us share the house with them. Also some ideas of how to make doorways/step-downs, more accessible for those in wheelchairs or scooters. The late effects of Polio, called Post-Polio, or PPS, will be covered as well as, CFS, and the effects of anesthesia on Polio survivors. Links to other PPS sites, Crohns and Scoliosis sites, heart attack information, with an article on knowing what to do to survive a heart attack if you are alone; baby-boomers and possible links to their having CFS (Chronic Fatigue Syndrome); magnets that work; memory loss in Polio survivors and more are in these pages.
Polio
Offers information, inspiration, ideas and resources to help you understand polio and postpolio syndrome, and to confidently manage life with it.
http://www.polionet.org/

Extractions: (a wide variety of post-polio resources) Make a Donation Futures Unlimited, Inc. - "Offering hope for improvement - a treatment that works ." Where Can I Find a Support Group? Meeting s for your support group Resource Links: Polio Places, People and Forums on the Internet ... Your comments Post-polio syndrome - the new challenge of an old disease. Polio Experience Network offers information, inspiration, ideas and resources to help you understand polio and post-polio syndrome, and to confidently manage life with it. Or to help a loved one cope with the effects of polio. We also offer resources for students doing research on the disease. We even have some links about disability in general. Browse - we should have something to help. Search Our Website: Search polionet.org
Post-Polio Syndrome, Recently Published Medical Articles
Recently Published Medical Articles This is a list of medical articles on postpolio syndrome published from 1990 to 12/01/2002. The list is representative though not necessarily exhaustive.
http://www.execpc.com/~epwoll/medindx.html

Extractions: Recently Published Medical Articles This is a list of medical articles on Post-Polio Syndrome published from 1990 to 12/01/2002. The list is representative though not necessarily exhaustive. I've accumulated the list over the last few years through accesses to Medline via Grateful Med and PubMed . I was advised that it would be acceptable to repost this information as long as I deleted the article abstracts, which I have done. Abstracts are available for most articles by following the article number links back to PubMed. The intent is simply to provide information on PPS to those who need it. As far as the list itself is concerned the abbreviations are: TI - Title of article. UI or PMID - The Medline or PubMed number of the article (linked back to PubMed abstract) The articles themselves are not on this site. They are available in the specific journals listed in the SO entry line, and should be available in most medical libraries. Full text for some of the articles is available by following the URL links, or via additional links available with the abstract at PubMed. Most of the articles are also available by mail through the
Post-Polio Syndrome, Recently Published Medical Articles
postpolio syndrome Recently Published Medical Articles. This is a list of medicalarticles on post-polio syndrome published from 1990 to 12/01/2002.
http://my.execpc.com/~epwoll/medindx.html

Extractions: Recently Published Medical Articles This is a list of medical articles on Post-Polio Syndrome published from 1990 to 12/01/2002. The list is representative though not necessarily exhaustive. I've accumulated the list over the last few years through accesses to Medline via Grateful Med and PubMed . I was advised that it would be acceptable to repost this information as long as I deleted the article abstracts, which I have done. Abstracts are available for most articles by following the article number links back to PubMed. The intent is simply to provide information on PPS to those who need it. As far as the list itself is concerned the abbreviations are: TI - Title of article. UI or PMID - The Medline or PubMed number of the article (linked back to PubMed abstract) The articles themselves are not on this site. They are available in the specific journals listed in the SO entry line, and should be available in most medical libraries. Full text for some of the articles is available by following the URL links, or via additional links available with the abstract at PubMed. Most of the articles are also available by mail through the
Who Has A Disability?
postpolio syndrome, CFS, progressive long term disabilities, helpful hints and links, information on SS Guidelines, equipment options, accessibility solutions, handicap lifestyle changes, family awareness and support.
http://www.fortunecity.com/meltingpot/grove/1105

Extractions: We have since then bought a Ford F150 and replaced the tailgate with a commercial quality electric lift usually used by agencies like the Sheriff's Department. We will supply a picture as soon as we can borrow a camera. We had many reason's for making this our choice after looking into all the other ramps, vans, lifts available on the market. If you have any questions, please do not hesitate to drop us a note. Let us explore the question "Who has a Disability" with an open mind and heart. Is someone disabled only if you can see that they have a physical limitation? Is someone disabled by something you can not readily see or perceive? If you take a very broad brush and label anyone who has a limitation of any kind, either mentally, physically or emotionally, then everyone is disabled on some level. Why do some people feel uncomfortable if they see someone using a "tool" to help them walk or get from point A to point B? Everyone uses tools to get a job done, don't they? If someone has a physical limitation, does that automatically mean they have a less than average mental capacity? Who and what defines an individual's worth to society? We hope to explore these questions and many more with you and will look forward to hearing your thoughts on the subjects as time goes on.
SAPP Online
Information on polio, postpolio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled.
http://freenet.sfn.saskatoon.sk.ca/health/polio/
Post-Polio Syndrome Fact Sheet
postpolio syndrome (PPS) fact sheet compiled by the National Institute ofNeurological Disorders and Stroke (NINDS). What is post-polio syndrome?
http://www.ninds.nih.gov/health_and_medical/pubs/post-polio.htm

Extractions: Request free mailed brochure What is post-polio syndrome? What causes PPS? How is PPS diagnosed? How is PPS treated? ... Where can I go for more information? Post-polio syndrome (PPS) is a condition that affects polio survivors anywhere from 10 to 40 years after recovery from an initial paralytic attack of the poliomyelitis virus. PPS is characterized by a further weakening of muscles that were previously affected by the polio infection. Symptoms include fatigue, slowly progressive muscle weakness and, at times, muscular atrophy. Joint pain and increasing skeletal deformities such as scoliosis are common. Some patients experience only minor symptoms, while others develop spinal muscular atrophy, and very rarely, what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. PPS is rarely life-threatening. The extent to which polio survivors will suffer from PPS depends on how seriously they were affected by the original polio attack. Patients who had only minimal symptoms from the original attack and subsequently develop PPS will most likely experience only mild PPS symptoms. People originally hit hard by the polio virus, who were left with severe residual weakness, may develop a more severe case of PPS with a greater loss of muscle function, difficulty in swallowing, and more periods of fatigue.
MEDLINEplus: Polio And Post-Polio Syndrome
polio and postpolio syndrome. Search MEDLINE for recent research articleson polio and post-polio syndrome polio postpolio syndrome.
http://www.nlm.nih.gov/medlineplus/polioandpostpoliosyndrome.html
Post-Polio Syndrome
postpolio syndrome (PPS) is a condition that can strike polio survivors anywherefrom 10 to 40 years after recovery from an initial attack of the
http://healthlink.mcw.edu/article/922570549.html

Extractions: Subscribe now >> Post-polio syndrome (PPS) is a condition that can strike polio survivors anywhere from 10 to 40 years after recovery from an initial attack of the poliomyelitis virus. PPS is characterized by a further weakening of muscles that were previously injured by polio infection. Symptoms include fatigue, slowly progressive muscle weakness, muscle and joint pain, and muscular atrophy. Some patients experience only minor symptoms, while others develop spinal muscular atrophy or what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. PPS is rarely life-threatening. The extent to which polio survivors will suffer from PPS depends on how seriously they were affected by the first polio attack. Patients who had only minimal symptoms from the original attack and subsequently develop PPS will most likely experience only mild PPS symptoms. People originally hit hard by the polio virus may develop a more severe case of PPS with a greater loss of muscle function, difficulty in swallowing, and more periods of fatigue. More than 300,000 polio survivors in the United States may be at risk for PPS. Doctors are unable to establish a firm incidence rate, but they estimate that the condition affects 25 percent of these survivors.
Lincolnshire Post-Polio Network - Main Gate To Polio And Post-Polio Information
Short news items, with a postpolio element, gleaned from 'here, thereand everywhere', A brief but concise overview of post-polio syndrome.
http://www.ott.zynet.co.uk/polio/lincolnshire/

Extractions: The core of this site is an online library of well over one hundred full text articles on Post-Polio conditions, many from peer reviewed medical journals. The library is catalogued to assist reading order and new articles are added typically every few weeks. A categorised directory of Polio resources is also provided with every entry having a description. The regularly updated NewsBites section includes Polio related news items from around the world and all the bi-monthly LincPIN Post-Polio information newsletters are available in the Networking section. Information
Welcome To The Post-Polio Resource Group
Formed by polio survivors to provide information and support to polio survivors and their families and to educate the medical community and the general public about postpolio syndrome (PPS).
http://www.geocities.com/HotSprings/4760/
Lincolnshire Post-Polio Library [Post-Polio Syndrome]
Lincolnshire postpolio Library post-polio syndrome Decades after recoveringmuch of their muscular strength, survivors of paralytic polio are reporting
http://www.ott.zynet.co.uk/polio/lincolnshire/library/halstead/sciampps.html

Extractions: http://www.sciam.com/ Decades after recovering much of their muscular strength, survivors of paralytic polio are reporting unexpected fatigue, pain and weakness. The cause appears to be degeneration of motor neurons. In the first half of the 20th century, the scourge of paralytic poliomyelitis seemed unstoppable. A major polio epidemic hit the New York area in 1916, and in the following decades the epidemics grew in size and became more deadly. The epidemic of 1952, for instance, affected more than 50,000 Americans and had a mortality rate of about 12 percent. It is difficult to realize today the extent of the fear and panic that gripped the public. Polio haunted everyone: families stayed at home; swimming pools were closed; public events were canceled. Children in particular were at risk. With the introduction of Jonas E. Salk's injected killed-virus polio vaccine in 1955 and Albert B. Sabin's oral live-virus vaccine six years later, the epidemics were brought to an end. By the mid-1960s the number of new polio cases dropped to an average of 20 a year. Polio had been vanquished. Or so it seemed. For the average American, polio no longer meant a disease but a vaccine. Medically, polio came to be regarded as a static, nonprogressive neurological disorder. It was believed that after rehabilitation and reeducation most survivors could reach a plateau of neurological and functional stability that would last more or less indefinitelyand that is where our understanding of polio as a chronic disease remained until fairly recently.
Post-Polio
About postpolio syndrome. Did you have polio? Are Back to menu. FrequentlyAsked Questions about post-polio syndrome by Dave Graham. 1
http://www.polionet.org/PPS.htm
North Central Florida Post-Polio Support Group
Educates and informs polio survivors, healthcare professionals and family about polio, postpolio syndrome and care in polio vaccination.
http://www.postpoliosupport.com
Post-Polio Syndrome - A Definition
DEFINITION OF postpolio syndrome By Tom Walter. What is PPS? post-poliosyndrome, or PPS, is a name that has been adopted to indicate
http://www.christring.org/helms/ppsdefinition.htm

Extractions: By Tom Walter What is PPS? Post-Polio Syndrome, or PPS, is a name that has been adopted to indicate a constellation of NEW symptoms that occur an average of 31 years generally ranging from 20 to 40 years after the onset of the initial polio infection and after a period of "recovery" of at least 10 years. These symptoms often include NEW weakness, pain, breathing and/or swallowing difficulties, a variety of sleep disorders, muscle twitching (known as "fasiculations"), gastrointestinal problems, muscle fatigue and/or "central" fatigue. And these symptoms can occur in previously-affected muscles and/or in what were previously thought to be muscles that were not affected at onset. Complications often include neuropathies, nerve entrapments, arthritis, scoliosis, osteoporosis and, sometimes, additional atrophy known as Post-Polio Muscular Atrophy (PPMA). There are no definitive tests to determine a diagnosis of PPS so it is done by history and ruling out other possible causes that mimic these symptoms. Those who were most affected by the virus at initial onset AND who made the best recovery seem to have the worst PPS symptoms later on.

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