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Potters Syndrome:     more detail

High-risk Pregnancy And Foetal Diagnosis: Your Journey by Stephanie Azri, 2006-04-30 Asperger Syndrome-Practical Strategies for the Classroom: A Teacher's Guide by George Thomas, Phil Whitaker, et all 2002-02-11 Syndrome Paranéoplasique: Syndrome Myasthénique de Lambert-Eaton, Hippocratisme Digital, Syndrome de Stauffer, Syndrome de Dodge-Potter (French Edition) ALFRED HITCHCOCK'S SHROUDS AND POCKETS - Anthology 26 - Winter 1988: The Maudering Syndrome; Jigsaw Puzzle; The Return of Bridget; The Day We Killed the Madman; Where Is Harry Beal; Twang; Lost Gun; Time Waits for No Man; Where Have You Gone Sam by Cathleen (editor) (Lawrence Treat; Richard Deming; Dana Lyon; Stephen Wasylyk; Jack Ritchie; Edward D. Hoch; John Lutz; Robert Twohy; Arthur Porges; Kevin O'Donnell; Bill Pronzini; Edward Wellen; Joe L. Hensley) Jordan, 1988 The Sick Building Syndrome (Bsria Technical Note) by I. N. Potter, 1988-10 Congenital Disorders of Urinary System: Potter Sequence, Polycystic Kidney Disease, Dent's Disease, Meckel Syndrome, Nephronophthisis The hand of the potter, by Nel Motte, 1956 Smart Women Foolish Choices, Finding the Right Men and Avoiding the Wrong Ones by Connell Cowan Melvyn Kinder, 1985

lists with details

41. Pregnancy And Infants' Illness Historical Posts June 1998
    I too had a child with potters syndrome and although it was 14 yearsago I am still searching for answers. This is the first page  
    http://askwaltstollmd.com/archives/preg/p061998.html
    
    Extractions: Posted by Walt Stoll on June 02, 1998 at 12:18:01: Dear Georgina, Like many chronic problems, the best solution is prevention. That is a little late once the damage is done. HOWEVER, those who have had a child with this condition are a little more likely to learn how to never have something like that happen again. If everyone would read Paavo Airola, ND's classic "Every Woman's Book" (at least 2 years before conception) there would be less than 1% of the birth defects we see today. There would be much less hyperactivity, learning deficiencies and aggressive children as well. He died about 10 years ago but his family continues to keep this essential knowledge in print. There has been a lot learned in the past 10 years that, once the reader is sensitized to the process, would stick out like sore thumbs in the recent literature. Let us know what you learn. Walt Posted by Fiona Reoch on June 17, 1998 at 19:02:50: In Reply to: Re: Potter's Syndrome posted by Walt Stoll on June 02, 1998 at 12:18:01:

42. Pregnancy, Birth, Infant Care
    Ask Dr. Stoll' BBS There have been a few posts to the Ask Dr Stoll Bulletin Board(BB) regarding Pregnancy and Infants' Illnesses, including potters syndrome.  
    http://www.findhealer.com/link/pregnancy.php3
    
    Extractions: attachment parenting,attachment, breastfeeding,extended breastfeeding,toddlers,nursing toddlers,mothering,motherhood,Christian parenting,Christian attachment parenting,parenting,vaccinations,vaccines,babies, stay at home mom, GFI, Growing Kids God's Way,SAHM,children, Ezzo, childbirth, newborn, infant, crying, spanking, alternatives to spanking,positive discipline,breastmilk,breast milk,breast feeding,immunizations,childbirth stories,natural childbirth,pregnancy,pro-life,mommy,gentle discipline, discipline,loving guidance,bonding,Dr. Sears,ap,La Leche League, LLL,abortion,shots,Gary Ezzo,the Ezzos,William Sears,fussy baby,childcare, natural mothering,natural parenting,housewife,wife,homemaker,keeper of the home Midwifry Archives

43. Heaven's Tiniest Angels Page
    Allison Dawn Ramos February 11th, 1999 (potters syndrome) Parents Royce BonnieRamos They say it is a beautiful journey, From the old world to the new.  
    http://www.intothearmsofangels.com/tiniest3.html

44. Gone To Soon, Birth ~ 10 Yrs. Memorial Page
    Harry George Solomon May 12th, 2000 potters syndrome 30 minutes Of Age Son Of Neiland Marcheta Solomon Brother To Cherise Tamiko and Olivia A christmas gift  
    http://www.intothearmsofangels.com/2soon4.html

45. M.E.N.D.
    i have read your very sad storys i know how they feel as i to lost my first daughteri know it was 17 years ago due to her having potters syndrome she only  
    http://www.mend.org/guests_2002.asp?range=20

46. Findsupport Directory - Unclassified : : Findsupport National Directory - Direct
    Trust PEX Action on Pesticide Exposure Pierre-Robin Contact Group PlanningAid Porencephaly Contact Group potters syndrome Contact Group Prader Willi  
    http://www.findsupport.co.uk/Unclassified/
    
    Extractions: DIRECTORY - Findsupport Directory - Unclassified : To make it easier to find a relevant group, we have organised them into categories. This is still a new feature of Find support.co.uk so if you think that a group should be in a different category, or if you think categories need renaming, or restructuring, then please let us know CATEGORY Top Unclassified SUB-CATAGORIES

47. LCOG Prayer Requests
    As you know, her prior ultrasound in June revealed that the baby had potters syndromewhich showed a bladder that was about to perforate and burst since the  
    http://www.lcog.net/prayerrequests/archview.asp?ID=297

48. Diet, Health, Diseases, Vitamins Iwant2bhealthy.com
    potters syndrome. potters syndrome CONTACT GROUP – Mrs S Bonsall,46 Borfa Green, Welshpool, Powys, SY21 7QF. · PRADERWILLI SYNDROME.  
    http://www.iwant2bhealthy.com/supportgroups/index_p.shtml
    
    Extractions: FREEPOST NWW6775, BLACKPOOL. FY4 3GA. PACHYGYRIA contact Lissencephaly Contact Group PAGET'S DISEASE NARPD – 323 Manchester Road, Walkden, Worsley, Manchester, M28 3HH.  Tel 0161 799 4646/Fax 799 6511.  Funds medical research.  Offers information, support and advice.  director@paget.org.uk PAIN see also under Stress PAIN SOCIETY (THE ) – 9 Bedford Square, London, WC1B 3RE.  Tel 020 7636 2750/Fax 020 7323 2015.  General information on chronic pain/details of pain clinics in UK.  www.staff.ncl.ac.uk/r.j.hayes/painsoc.html PAIN WISE UK – Rosalie Everatt, 33 Kingsdown Park, Tankerton, Kent, CT5 2DT.  Tel/Fax 01227 277 993.  Group support and counselling for people with chronic pain.  Relaxation/stress reduction strategies. PALLID SYNCOPE contact Stars under Reflex Anoxic Seizures PANCREATITIS THE PANCREATITIS SUPPORTERS NETWORK – J A Armour, PO Box 8938, Birmingham, B13 9FW.  Tel/Fax 0121 449 0667.  Information and advice for patients, families and friends. 

49. Welcome To The TEF / Vater® Web Site!
    spinabifida, hypospadia, epispadia, hydrocephally, cancer, eye and ear anomalies,teeth anomalies, missing kidneys called potters syndrome, missing brain  
    http://www.tefvater.org/vater.html
    
    Extractions: Cardiac Home How The Heart Works PDA = Patent Ductus Arteriosis Coarctation of the Aorta ... TOF = Tetrology of Fallot AVC = Atrioventricular Canal TOA = Transposition of Great Arteries Dextrocardia HPLHS = Hypo-plastic Left Heart Syndrome Pacemaker Cardiac Catheterization Other Heart Defects Congenital Heart Defect or Disease Anal Home IA= Imperforate Anus High Imperforate Anus Low Imperforate Anus Colostomy Ileostomy Jejunostomy Cecumostomy Ace Malone Procedure Bowel Continence Bowel Incontinence Surgeries Radial Home Radial Aplasia Radial Dysplasia Missing Finger or fingers Ulnar defects Multiple Fingers (more than 5) Duplication of Fingers Duplication of Hands Pollicization Operation Ilzarod Operation Hand,arm, leg and foot defects Personal Stories Renal Home Polycystic Kidney Horseshoe kidney Kidney Reflux Ureters Bladder problems UTI- Urinary Tract Infection Bladder Exstrophy Cloaca Cloaca Exstrophy Hypospadia Epispadia Omphacele Testicle problems Male Female Oesophagus Home Oesophageal Atresia Anastamosis of Esophagus Cervical Esophagostomy Gastric Tube Replacement Intercolon Position Gastric Pullup Stretching of Esophagus Dilations of Esophagus Gastrostomy Feeding GERD=Gastro-esophageal Reflux Nissen Fundoplications Medications ... History of Oesophageal Atresia Nursing a baby with Esophageal Atresia Interview about Oesophageal Atresia First Survivors Family Stories History of esophageal replacements Scars After Surgery Trachea Home TEF= Tracheo-esophageal FistulaTOF

50. Welcome To Alicia Rose
    Please use the link listed below to take you to the 'potters syndrome Online SupportGroup' where you will find a wealth of Support and Information regarding  
    http://www.angelalicia.dabsol.co.uk/
    
    Extractions: Song Playing:~ 'One Sweet Day' Our Beautiful Baby Girl ~ Alicia Rose, born March 23rd 2002, leaving for Heaven shortly after her birth. These pages are dedicated to Our Angel Alicia. We will include many of our most 'treasured photographs' and 'memories' of our precious angel Daughter. Please use the links below to take you through 'Alicia's Treasured Memories'. ~ Our Story ~ (Coming Soon) Our Photos Alicia's Portrait Notice in Newspaper Reflections at Alicia's Memorial UPDATE PAGES Alicia's Online Quilt Please be sure to visit our Alicia's Beautiful 'Online Quilt' sewn especially by Tina from ~ Spreading Smiles ~ Alicia's 1st Heavenly Birthday Wishes * New ~ March 23rd 2003 Please sign our Guest~Book before you leave and tell us a little about yourselves and how you came to meet ~ 'Our Precious Little Angel' ~ 'Alicia Rose'. Please use the link listed below to take you to the 'Potters Syndrome Online Support Group' where you will find a wealth of Support and Information regarding this devastating disease, a Support Group for families worldwide.

51. The Story Of Baby Alica Rose...
    potters syndrome is an extremely rare condition where the unborn baby's kidneysdo not develop properly and thus don't produce any fetal urine, also known as  
    http://alicia.rose.nettgen.home.mindspring.com/OurStory.htm
    
    Extractions: Home Our Story Alica's Birth The Memorial ... Links We have endured a few rough times in our young lives. My wife and I lost our firstborn children, twins Jonathon and Julia, who were born prematurely in September 1997. Two years later we found great joy in the birth of our healthy daughter, Maria, only to have that joy assaulted by the sudden death of my wife's father from a heart attack at the young age of 59 just 12 days later. Thank God he at least was able to spend four days with us and get to know his baby granddaughter, Maria, before he passed away. It was the summer of 2001 and we were excited when we found out that we were going to have another baby. Having fought infertility the first five years of our marriage and in our late 30's, we were overjoyed to know we were expecting a third time. And then on December 14th of that year tragedy struck us again - we were told that our as yet unborn baby would die shortly after birth because of a rare condition commonly referred to as "Potter's Syndrome." Potters Syndrome is an extremely rare condition where the unborn baby's kidneys do not develop properly and thus don't produce any fetal urine, also known as amniotic fluid. Without this fluid, a cascade of developmental events can't occur during pregnancy, most notably the development of functional lungs with which to breath.

52. Heavenly Lights Childens Memorial Page 7
    Kathleen Renee Leukemia 4/28/75 8/22/82. Christal Gayle Gibson Cerebral Palsey2/23/79 8/6/01. Abigail Chrystal Kuzel potters syndrome 3/30/02 3/30/02.  
    http://www.heavenlylights.homestead.com/page7.html
    
    Extractions: Heavenly Lights Childrens Memorial Contact the webmaster, with suggestions, comments or questions by the email button above. Best experienced with Internet Explorer. 800 x 600 pixels optimized Childloss Support also includes weekly free newsletter and Light A Candle dedication, Topsites for grieving families, grief poetry, online memorial of stars, death quotes, bereavement resources, grief links, poetry to help the fight for better cures, Childhood Cancer Awareness, cancer/leukemia resources, inspirational poetry, and more. You are listening to 'The Dance' Heavenly Lights Childrens Memorial/Home Index Page Ways To Make A Difference

53. Heavenly Lights Children's Memorial - Master Of All Children Who Have Lost Their
    Page 1. Kull, Zackery, MDS, 5/14/906/3/02, Page 7. Kuzel, Abigail Chrystal,potters syndrome, 3/30/02-3/30/02, Page 7. Ladner, Haley Brianna,  
    http://www.heavenlylights.homestead.com/listing.html
    
    Extractions: Memorial Christmas Stockings by Heavenly Lights Begin HTML566> Alphabetical Disease Dates Page # Aarvig, Skyler Edward Primary Pulmonary Hypertension Page 3 Adelman, Paul Ependymoma Brain Tumor Page 9 Al-Fuwaires', Yousef Thalassemia Page 9 Alimentato, Sam Non Hodgkins Lymphoma Stage 3 Page 5 Allen, Michael Anthony GvH Chediak-Higashi Page 9 Alt, Joshua Aaron CML Page 5 Amore, Ashley Elizabeth Williams Syndrome Page 5 Anastasi, Connell Nicholas Anaplastic Astrocytoma Brain Tumor Page 5 Anderson, Chayton Hunter Rhabdoid Brain Tumor Page 6 Anderson, William Joseph Neuroblastoma Page 4 Andreu, Megan Breanne

54. In Memory Of Anna Guilbert's Dreambook
    I lost my son to potters syndrome on March 3,2002.I have never experinced anything as painfull. I found your site, while looking up potters syndrome.  
    http://books.dreambook.com/guilbert/anna.html
    
    Extractions: New Dream Network Dreamhost , and Dreamservers If you have a minute, please sign my Dreambook too! Name: Amanda Mabey E-mail address: beloved140@hotmail.com Comments: I came across your website well looking for other moms with twins. As I read that your daughter Anna is now a big sister to twins. I recently had boy/girl twins, born prematurely but now doing great. My room mate in prenantal(hospital bed rest for a month before babies were born) had her baby too early. She took me to vist him in the NICU when he was barely a day old. 2 wks later he was call to Heaven. Now 6 months have passed and I still find myself in tears whenever I am reminded of him. Death is unfair excepially when it is a child. My deepest sympathys go to u and your family and at the same time Congradulations on the Birth of your Twins. God works In Weird Ways. Monday, January 27th 2003 - 07:37:56 PM Name: tracy E-mail address: abbydoo_uk@yahoo.co.uk Comments: Dear Kelly and Ian On reading your special words about the lost of your daughter Anna, i couldn't help thinking that i am so very lucky not to have had to go through the pain you have both gone though.You have been so very brave and strong, your memories and pictures of your angel can never be taken from you and i am sure when you time comes she will be waiting for her mummy and daddy with all her friends and family too.Good luck with the twins, i hope everything goes well for you both. Take care and enjoy every second with your new arrivals. ((((Hugs))))

55. Garden 16
    In Memory Adrian Paul Devenish 25th August 1999 Died from potters syndrome nokidneys 18 weeks Always remembered and sadly missed by Mommy and Daddy.  
    http://www.kaylan.addr.com/lmma.htm

56. Garden 14
    mother's life. Joe Fuller. In Memory Jonathan Gage Carson B/D date July25, 1997 Was born without kidneys potters syndrome . In Memory  
    http://www.kaylan.addr.com/jmme.htm

57. MISS - Support Group Information
    In May 2000, 19+weeks pregnant, the little girl I was carrying was diagnosed withpotters syndrome/ Renal Agenesis(no kidneys)and I gave birth to her with no  
    http://www.missfoundation.org/friends/mfbaus00.html
    
    Extractions: Return to our contact info on The M.I.S.S. Friends List Cheryle-Anne New South Wales, Australia I am a Mother of a baby girl Courtney whom was STILLBORN at 36 weeks. I would like to have contact with others who have gone through such tragedies in there lives. After all we are now joined by our PRECIOUS little ANGELS in HEAVEN with the ANGELS. Return to our contact info on The M.I.S.S. Friends List Marie Hopkins Queensland, Australia In May 2000, 19+weeks pregnant, the little girl I was carrying was diagnosed with Potters Syndrome/ Renal Agenesis(no kidneys)and I gave birth to her with no hope of survival. Please contact me if you have had/having a similar experience.

58. Zachary
    A memorial page for our son, Zachary, who died ofBilateral Renal Agenesis (potters syndrome).  
    http://www.voglewedefamily.homestead.com/zachary.html
    
    Extractions: Daddy please don't look so sad, Momma please don't cry, Cause I am in the arms of Jesus and He sings me lullabies. Please try not to question God, Don't think He is unkind. Don't think He sent me to you, And then He changed His mind. You see, I am a Special Child, And I am needed up above, I'm the special gift you gave Him, The product of your love. I'll always be there with you, And watch the sky at night Find the brightest star that's gleaming, That's my halo's brilliant light You'll see me in the morning frost, That mists your windowpane. That's me, in the summer showers, I'll be dancing in the rain. When you feel a gentle breeze, From a gentle wind that blows, That's me, I'll be there, Planting a kiss on your nose. When you see a child playing

59. Homebirth Association Of Ireland
    ended in a miscarriage, the second in Ferdia's high intervention delivery and thethird in Phelim's death at home as a result of potters syndrome, which is  
    http://www.iol.ie/~hba/amyhazelmulvanyobrolchain.htm
    
    Extractions: Midwife Mary Cronin D eciding to try for another baby was not a decision we took lightly. My first pregnancy ended in a miscarriage, the second in Ferdia's high intervention delivery and the third in Phelim's death at home as a result of Potters Syndrome, which is incurable. I I 'm not a fan of ante natal check ups but Bridget made them bearable and I liked her informal antenatal classes, even though this was my fourth pregnancy there was a lot I could learn. This pregnancy felt different from the start. My energy was good even in the mornings. I did not want a scan as I strongly felt that if there was anything wrong with this baby there was nothing that could be done before birth. I heard the baby's strong heartbeat for the first time at 14 weeks when Bridget used her sonic aid. I was a happy person going home that day. A bout five months into the pregnancy we knew for certain that we would be moving to Cork. We decided that a move before the baby was born might be less stressful than after, based on experience. I relaxed when Bridget was able to recommend the midwives in Cork with whom she had previously worked. We contacted Mary Cronin and I met her at 28 weeks of pregnancy and I was once again relieved that she took us on. We had only met a couple of times when Mary left for her much deserved five weeks holiday.

60. JohnPetersAngelFriendsWall
    Abigail Chrystal Kuzel One Hour Old Born ~ March 30th, 2002 Flew ~ March 30th,2002 Cause ~ potters syndrome Parents ~ Kenneth and Chrystal and Big Sister  
    http://www.johnpeter.net/JohnPetersAngelFriendsWall.htm

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