Welcome To The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome.Category Health Support Groups Parryrombergs syndromeThe Romberg's Connection is an international support group made up of over 275individuals and families whose lives are affected by rombergs syndrome. http://www.geocities.com/HotSprings/1018/
Extractions: support and friendship to one another. Parry-Rombergs Syndrome Information National Organization of Rare Disorders Medical Searches Romberg's Connection News ... Frequently Asked Questions about the Romberg's Connection Photo Album (New Pictures Added March 16, 2003) Our Stories New Story from Petra (September 21, 2001) Our Kelley's story appeared in the Rocky Mountain News recently.
Romberg's Syndrome General information, contacts, on-line discussion groups and links.Category Health Support Groups Parry-rombergs syndromeLibrary Q R. Romberg's Syndrome. Synonyms Parry-Romberg's Syndrome, ProgressiveFacial Hemiatrophy. Web Sites. The Rombergs Connection. Back to Q - R http://www.familyvillage.wisc.edu/lib_rombs.html
Parry-Rombergs Syndrome A B C D E F G H I J K L M N O P Q R S T U V W X Y Z . Back Home Next. Parryrombergs syndrome. http://www.ability.org.uk/Parry-Rombergs_Syndrome.html
Extractions: "see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Parry-Rombergs Syndrome The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments
Parry-Rombergs Syndrome Resources On The Internet millions of published articles for news on Parryrombergs syndrome. The eLibrary newspaper and magazine archive contains http://www.healthcyclopedia.com/parry-rombergs_syndrome.html
Extractions: The eLibrary newspaper and magazine archive contains articles from current and back issues of hundreds of publications, including: Modern Medicine Aging The Ardell Wellness Report HealthFacts The Journal of Environmental Health Medical Post Medical Update Men's Health and the National Women's Health Report
Parry-Rombergs Syndrome Information Parryrombergs syndrome Listed below are a few links to clinic descriptionsof rombergs syndrome. rombergs syndrome is also known http://www.geocities.com/HotSprings/1018/info.html
Parry-Rombergs Syndrome Information Listed below are a few links to clinic descriptions of rombergs syndrome. rombergs syndrome is also known as Progressive Facial Hemiatrophy (PFH). Please understand that Rombergs affects everyone differently. No two cases are alike. http://www.geocities.com/HotSprings/1018/info.htm
Support Groups Parry-Rombergs Syndrome A B C D E F G H I J K L M N O P Q R S T U V W X Y Z . Back Home Next. Support Groups Parryrombergs syndrome. http://www.ability.org.uk/support_groups_parry-rombergs.html
Extractions: "see the ability, not the disability" You to can help support the Ability Project by: Our Aims ... Z Support Groups Parry-Rombergs Syndrome The Romberg's Connection - The Rombergs Connection is an international support group made up of over 130 individuals and families whose lives are affected by Rombergs Syndrome. Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor Webmaster . Site Design by Ability "see the ability, not the disability" Acknowledgments
Rombergs Syndrome rombergs syndrome. Email Address rombergs@hotmail.com My name is TheresaHildebrand, I live in Chicago, Illinois, and I have rombergs syndrome. http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderF/10.23.976.28PMRombergsS
Extractions: My name is Theresa Hildebrand, I live in Chicago, Illinois, and I have Rombergs Syndrome. I used to think that I was alone in the world until I found Terry. Terry lives in Washington and he has Rombergs too. We decided to join forces and search for other people who also have Rombergs. Today is Thursday, October 22, 1997, and we have found 12 other people with Rombergs. They live mostly in the USA, but some are from Great Britain, South Africa, and Australia. There may be someone with Rombergs in your neighborhood that you could talk to. You are definitely not alone when it comes to Rombergs !! You can get in touch with us by e-mailing: rombergs@hotmail.com Or visit us, on our webpages: http://www.geocities.com/HotSprings/1018 OR http://www.geocities.com/HtoSprings/Spa/4818 Hope to hear from you soon, Theresa Next Article
Rombergs Syndrome rombergs syndrome. This response submitted by Marilyn Neal on 10/24/97. Iam 50 years old and have had rombergs syndrome for over 35 years. http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderF/RombergsSyndrome.html
Extractions: I, too, am a member of the Rombergs Connection Support Group. I am 50 years old and have had Rombergs Syndrome for over 35 years. I am so grateful to have found this group. Having such a rare disorder can really make one feel alone. I feel we can share our experiences as well as help each other in trying to find a common thread that would help the medical community come up with some answers concerning this disorder.
Parry-Rombergs Syndrome Top Health Consumer Support Groups Facial Differences ParryRombergsSyndrome (1). The Romberg's Connection - The Rombergs Connection http://www.foundhealth.com/Health/Consumer_Support_Groups/Facial_Differences/Par
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Rombergs Disorder Romberg Syndrome and Plastic Surgery (1/28/98) 243 PM. rombergs syndrome (1/26/98) 156 PM http://neuro-www.mgh.harvard.edu/forum/RombergsDisorderMenu.html
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Extractions: Advertisement Foundhealth.com Search All Terms Any Term Tips Browse foundhealth.com Health calculators Fast Food Database Speakers Bureau How to evaluate sites Submit a site Contact us Home - main directory Top Health Consumer Support Groups : Facial Differences Apert Syndrome Cleft Lip and Palate Craniosynostosis Langer-Giedion Syndrome ... AboutFace - An international organization which provides information and emotional support to individuals with facial differences and their families. Children's Craniofacial Association - A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for facially disfigured individuals and their families. How Come You Look Different?: Resources on Craniofacial Anomalies - Many useful links on this page. Let's Face It - A nonprofit network for people with facial difference, their families, friends and professionals. We link professionals, patients, parents and communities to each other and to networks, books and articles. The Personal Side of Craniofacial Differences - Dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find.
Parry-Rombergs Syndrome : Meddie Health Search ITEMS LINKS Parry Romberg Syndrome Stories from people affected byParry Romberg syndrome, support and information. (Rating 0.00 http://www.meddie.com/search/Health/Consumer_Support_Groups/Facial_Differences/P
Searchalot Directory For Parry-Rombergs Syndrome Related Web Sites. The Romberg's Connection International supportgroup for families whose lives are affected by Romberg's syndrome. http://www.searchalot.com/Top/Health/SupportGroups/ConditionsandDiseases/FacialD
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Searchalot Directory For P Psuedotabes (5); Parasitic Infections (81); Paresthesia (2); Parkinson'sDisease (75); Parryrombergs syndrome (4); Passive-Aggressive http://www.searchalot.com/Top/Health/ConditionsandDiseases/P/
Extractions: Home Search News Email Greetings Weather ... Global All the Internet About AltaVista AOL Search Ask Jeeves BBC Search BBC News Business Dictionary Discovery Health Dogpile CheckDomain CNN Corbis eBay Education World Employment Encyclopedia Encarta Excite Fast Search FindLaw FirstGov Google Google Groups Infomine iWon Librarians Index Looksmart Lycos Metacrawler Microsoft Northern Light Open Directory SearchEdu SearchGov Shareware Teoma Thesaurus Thunderstone WayBackMachine Webshots WiseNut Yahoo! Yahoo! Auctions Yahoo! News Yahooligans Zeal Sponsored Links Top Health Conditions and Diseases : P All the Internet About AltaVista AOL Search Ask Jeeves BBC Search BBC News Business Dictionary Discovery Health Dogpile CheckDomain CNN Corbis eBay Education World Employment Encyclopedia Encarta Excite Fast Search FindLaw FirstGov Google Google Groups Infomine iWon Librarians Index Looksmart Lycos Metacrawler Microsoft Northern Light Open Directory SearchEdu SearchGov Shareware Teoma Thesaurus Thunderstone WayBackMachine Webshots WiseNut Yahoo!