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Rombergs Syndrome: more detail

The Official Patient's Sourcebook on Parry-Romberg Syndrome: A Revised and Updated Directory for the Internet Age by Icon Health Publications, 2002-10

Beneficial effect of immunosuppressive drugs on Parry-Romberg syndrome: a case report and review of the literature.(Case Report): An article from: Southern Medical Journal by Cengiz Korkmaz, Baki Adapinar, et all 2005-09-01

lists with details

Health/Consumer_Support_Groups/Facial_Differences/Parry-Rombergs_Syndrome
as your guide to reliable health information. / Health / Consumer_Support_Groups/ Facial_Differences / Parryrombergs syndrome.
http://www.health-information-resource.com/Health/Consumer_Support_Groups/Facial

Extractions: Search: Welcome to the health-information-resource.com search portal. Health-information-resource.com is the premiere health and wellness search portal dedicated to providing comprehensive and up-to-date health information. Whether you are a healthcare professional or a healthcare consumer, you are likely to find health, wellness and medical-related information here that is informative and practical. Health-information-resource.com strives to provide the most thorough and reliable health information possible to ensure that every individual and family can better manage their health. Feel free to browse the health-focused directory or conduct a search for your specific wellness-related request. As a healthcare consumer today, you are faced with many important decisions regarding your physical condition. Choosing between hospitals, health care providers, doctors, prescriptions, vitamins, and a variety of other wellness-related choices can be extremely complicated. Finding a single resource that can provide you with all the answers to your health questions may seem like an unbearable task. However, health-information-resource.com can do just that. Our database is updated on a continuous basis with innovative and pertinent content, serving as your guide to reliable health information. Health Parry-Rombergs Syndrome The Romberg's Connection
1Up Health > Health Links Directory > Support Groups: Conditions And Diseases: F
Categories. Apert Syndrome (10) Cleft Lip and Palate (33) Craniosynostosis(4) LangerGiedion Syndrome (2) Parry-rombergs syndrome (4).
http://www.1uphealth.com/links/conditions-and-diseases-facial-differences.html
Parry-Rombergs Syndrome
Web Directory. Top / Health / Consumer Support Groups / Facial Differences/ Parryrombergs syndrome The Romberg's Connection The
http://www.reference.com/Dir/Health/Consumer_Support_Groups/Facial_Differences/P
A'dan Z'ye Skleroderma: Cizgisel Skleroderma Nedir?
Linear Scleroderma Treatments Doctors Bulletin Board UC Davis. ParryRombergsSyndrome Includes patient stories. Parry-rombergs syndrome.
http://www.sclero.org/lang/turkish/linear.html

Extractions: The International Scleroderma Network (ISN) Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups Turkish: Skleroderma Nedir? Skleroderma Tipleri: Genel Bakis Cocukluk Cagi Sklerodermasi Nedir? Cizgisel Skleroderma Nedir? Morphea Nedir? CREST Nedir? Yaygin Skleroderma Nedir? Overlap (Ust Uste Binmis) Skleroderma Hikaye sunusu veya Yenileme Formu Gonderiniz Icin Tesekkurler Cizgisel Skleroderma Nedir? Bu sayfa Shelley Ensz tarafindan yazilmistir, ve Mehmet Kalender Cizgisel Skleroderma Nedir?
Linear Scleroderma By Scleroderma From A To Z
Parryrombergs syndrome. Parry-rombergs syndrome, is also known as ProgressiveHemifacial Atrophy or HFA. Parry-rombergs syndrome Includes patient stories.
http://www.sclero.org/medical/about-sd/types/linear.html

Extractions: The International Scleroderma Network (ISN) Now Available in 18 Languages: Bahasa Malaysia Chinese Deutsche (German) English ... Worldwide Support Groups Select Medical Topic Here What is Scleroderma? Causes of Scleroderma Difficult Diagnosis Types of Scleroderma Localized: - Linear Scleroderma - Morphea Scleroderma - Juvenile Scleroderma Systemic: - CREST Syndrome - Diffuse Scleroderma - Limited Scleroderma - Overlap/MCTD/UCTD Photos of Scleroderma Symptoms Scleroderma Specialists Scleroderma Registries U.K. Registry Ineffective or Unproven Alternative Medicine Scleroderma Symptoms Cardiac (Heart) Dental/Mouth Gastrointestinal Liver Pulmonary (Lungs) Raynaud's (Cold Hands/Feet) Renal (Kidney) Calcinosis Fibrosis (Hardening) Telangiectasia (Spider Veins) Xerosis (Dry Skin) SIMILAR TO SCLERODERMA Arthritis/Dermatology (General) Atrophoderma of Pierini/Pasini Eosinophilic Fasciitis Eosinophilia-Myalgia (EMS) Glossary of Skin Disorders Lichen Sclerosis
Online And Offline Support: R
Romberg Syndrome/ParryRomberg Syndrome. The Rombergs Connection and The Romberg'sConnection Annex People served Individuals dealing with rombergs syndrome;
http://www.widesmiles.org/support/r.html

Extractions: R Robinow Syndrome Robinow Syndrome Foundation Romberg Syndrome/Parry-Romberg Syndrome The Rombergs Connection and The Romberg's Connection Annex Rubinstein-Taybi Syndrome Please note: Children, teens, and adults with Rubinstein-Taybi Syndrome have specific facial features that do not require reconstructive surgery. Rubinstein-Taybi Parent Group (RTPG) People served: Parents of children with Rubinstein-Taybi Syndrome Services provided: Support, parent-matching, information, and newsletter Address: PO Box 146, Smith Center KS 66967 Phone number: (785) 697-2984 Contact people: Garry and Lorrie Baxter Email address: lbaxter@ruraltel.net
Online And Offline Support: P
ParryRomberg Syndrome/Romberg Syndrome. The Rombergs Connection and The Romberg'sConnection Annex People served Individuals dealing with rombergs syndrome;
http://www.widesmiles.org/support/p.html

Extractions: P Pallister-Hall Syndrome Pallister-Hall Foundation Pallister-Killian Syndrome Pallister-Killian Family Support Group Parry-Romberg Syndrome/Romberg Syndrome The Rombergs Connection and The Romberg's Connection Annex Pituitary Disorders Please note: Pituitary disorders can occur with craniofacial conditions. Pituitary Tumor Network Association Network People served: Individuals and families dealing with pituitary tumors or other disorders of the pituitary gland Services: Offline: Information and referral, resource guide, news on diagnosis and treatment, and support
WebGuest - Open Directory Health Support Groups Conditions
Parryrombergs syndrome (4). Sagittal Synostosis (3); Smith-Magenis Syndrome@(4); Stickler's Syndrome (3); Treacher Collins Syndrome (5). Sites
http://directory.webguest.com/index.cgi/Health/Support_Groups/Conditions_and_Dis
Directory :: Look.com
Parryrombergs syndrome (4) Sites. Parry Romberg Syndrome Stories frompeople affected by Parry Romberg syndrome, support and information.
http://www.look.com/searchroute/directorysearch.asp?p=58495
Directory :: Look.com
Pancreatitis (9) Panic (21) Papillotonic Psuedotabes (5) Parasitic Infections (81)Paresthesia (2) Parkinson's Disease (75) Parryrombergs syndrome (4) Passive
http://www.look.com/searchroute/directorysearch.asp?p=43358
Burn Support Groups Database
hotmail.com; Link to the Parry rombergs syndrome web site in the USA.To the top of this page Return to Home page Return to database.
http://www.burnsupportgroupsdatabase.com/files/south-af.htm
Parry-Rombergs Syndrome Website Results :: Linkspider UK
Parryrombergs syndrome Websites from the Linkspider UK. Parry-rombergs syndromeDirectory. Complete Results for Parry-rombergs syndrome Related Topics.
http://www.linkspider.co.uk/Health/SupportGroups/ConditionsandDiseases/FacialDif

Extractions: Directory Tree: Top Health Support Groups Conditions and Diseases ... Facial Differences : Parry-Rombergs Syndrome (4) Add URL Advertise Here! Personalize Amazon ... The Romberg's Connection - International support group for families whose lives are affected by Romberg's syndrome. Romberg's Syndrome - General information, contacts, on-line discussion groups and links. Parry Romberg Syndrome - Stories from people affected by Parry Romberg syndrome, support and information. Parry Romberg Syndrome Information Page - Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
P Website Results :: Linkspider UK
Disease@ (75); Parryrombergs syndrome@ (4); Passive-Aggressive PersonalityDisorder@ (5); Patellofemoral Disorder@ (8); Pathologic
http://www.linkspider.co.uk/Health/ConditionsandDiseases/P/
The DRM WebWatcher: Parry Romberg Syndrome
personal website represents an international support group made up of over 200 individualsand families whose lives are affected by rombergs syndrome and who
http://www.disabilityresources.org/PARRY.html

Extractions: Home Subjects States Librarians ... Contact Us The DRM WebWatcher Parry Romberg Syndrome Updated 7/24/2001 A B C D ... About/Hint/Link Parry Romberg syndrome (also known as progressive hemifacial atrophy or HFA) is a rare disorder characterized primarily by the wasting away of the tissue on one side of the face. Beyond the Mirror This well-written article from the Rocky Mountain News describes the impact of Parry Romberg syndrome on a 10-year-old girl and her family. Hemifacial Atrophy, Progressive A technical overview and references from the Online Mendelian Inheritance in Man (OMIM) database. NINDS Parry Romberg Syndrome Information Page A brief overview of Parry Romberg syndrome from The National Institute of Neurological Disorders and Stroke. Parry Romberg Syndrome An overview from the National Organization for Rare Disorders database. The Romberg's Connection This personal website represents "an international support group made up of over 200 individuals and families whose lives are affected by Rombergs Syndrome [and who have] come together to offer our strength, courage, support and friendship to one another." Its contents include a message board relating to surgery, frequently asked questions, a short online newsletter, family photos and stories, and some links. Related Subjects Craniofacial Disorders Neurological Disorders Rare Disorders Resources in your state (c) 1997-2001 Disability Resources, inc.
The Personal Side Of Craniofacial Differences
Personal accounts of living with craniofacial conditions, and related webrings.Category Health Support Groups Facial Differences CranioSynostosis; Crouzon Syndrome; Goodman Syndrome. Page 2 Jackson-Weiss; Langer-Geidon;Parry-rombergs syndrome; Pfeiffer Syndrome; Pierre-Robin Syndrome/Sequence;
http://members.tripod.com/~Craniofacial/

Extractions: This page is dedicated to all of the people whose lives are affected by Craniofacial Disorders. If you are one of these people - this page is for you. Please look upon this page as "yours." I will need assistance from everyone to help locate as many personal pages on these disorders as we can find. We are starting out with just 15 disorders, so please feel free to e-mail me with any craniofacial disorders that are not listed here. Thanks to all who have sent me links already. Page 1 Page 2 * Website updated March 18, 2002 *
Electricbrain Home: Index: Health: Consumer Support Groups: Facial Differences:
electricbrain Index Health Consumer Support Groups Facial DifferencesParryrombergs syndrome, home index write privacy. Famous quotes
http://www.electricbrain.com/index/Health/Consumer_Support_Groups/Facial_Differe

Extractions: Index Health Consumer Support Groups ... Facial Differences : Parry-Rombergs Syndrome home index write privacy Famous quotes: A single flow'r he sent me, since we met. All tenderly his messenger he chose; Deep-hearted, pure, with scented dew still wet One perfect rose. I knew the language of the floweret; "My fragile leaves," it said, "his heart enclose." Love long has taken for his amulet One perfect rose. Why is it no one ever sent me yet One perfect limousine, do you suppose? Ah no, it's always just my luck to get One perfect rose. Dorothy Parker, "One Perfect Rose" Find someone: Old Friends New Friends Lost Love
Electricbrain Home: Index: Health: Consumer Support Groups: Facial Differences
LangerGiedion Syndrome Apert Syndrome Craniosynostosis Parry-rombergs syndrome SagittalSynostosis Stickler's Syndrome Treacher Collins Syndrome Cleft Lip and
http://www.electricbrain.com/index/Health/Consumer_Support_Groups/Facial_Differe
Listings Of The World Health Support Groups Conditions And
Listings World Health Support Groups Conditions and Diseases Facial DifferencesParryrombergs syndrome. Listings World,
http://listingsworld.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Di
Listings Of The World Health Support Groups Conditions And
Apert Syndrome (10) Cleft Lip and Palate (35) Craniosynostosis (5), LangerGiedionSyndrome (3) Parry-rombergs syndrome (5) Sagittal Synostosis (4), Stickler's
http://listingsworld.com/Health/Support_Groups/Conditions_and_Diseases/Facial_Di
Facial Difference / Disfigurement / Scars Deformity - Dr.Bermant's Plastic Surge
http//www.geocities.com/HotSprings/1018/, We are a newly founded internationalsupport group for people whose lives are affected by rombergs syndrome.
http://www.plasticsurgery4u.com/web_links_folder/facial_difference.html

Extractions: Fax: (416) 650-5073 " Ability OnLine is an electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors. This easy-to-use network gives "wings" to thousands of children and adolescents by removing the social barriers that can come with having a disability and illness, and by providing opportunities to form friendships, build self-confidence, exchange information, and share hope and encouragement through E-mail messages

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