Friendly Faces -- External Links Incorporated (NFI) NEVUS Nevus Outreach ORAL FACIAL DIGITAL SYNDROME NORD Entryfor Oral Facial Digital Syndrome PARRYrombergs syndrome The Romberg's http://www.friendlyfaces.org/links/
Parry-Rombergs Syndrome All Format Long Search Words Top Health Consumer Support Groups FacialDifferences Parryrombergs syndrome The Romberg's http://www.healthorgs.com/ConsumerSupportGroups/FacialDifferences/Parry-Rombergs
Open Classes's $p->page_title Open Directory Health Support Groups Conditions and DiseasesFacial Differences Parry-rombergs syndrome Previous Catagory. http://dodo101.ath.cx/expat/odp.php/Health/Support_Groups/Conditions_and_Disease
Extractions: Open Directory Edit Add URL Update URL Advanced ... Svenska Open Directory - Health: Support Groups: Conditions and Diseases: Facial Differences: Parry-Rombergs Syndrome [ Previous Catagory All the Web AltaVista Deja Google ... Yahoo Help build the largest human-edited directory on the web. Submit a Site Open Directory Project Become an Editor
You're Not Alone If You're Online - Support Groups The Rombergs Connection is an international support group made up of over 100individuals and families whose lives are affected by rombergs syndrome. http://c-city.com/c-city/c-city_archives/020199.htm
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Romberg's Syndrome one click For Medical Professionals only. Romberg's syndrome,,Print this article, (Moritz Romberg, 17951873, German neurologist http://www.amershamhealth.com/medcyclopaedia/Volume VII/ROMBERGS SYNDROME.asp
Extractions: *For Medical Professionals only, registration required Romberg's syndrome, (Moritz Romberg, 17951873, German neurologist), wasting of the soft tissues on one side of the face with a sharp delineation. It may be associated with alopecia and neurological disorders such as trigeminal neuralgia, Horner's syndrome and epilepsy. Radiologically, there may be bone atrophy corresponding to the site of the soft tissue atrophy.
Extractions: The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only they do not constitute endorsements of those other sites.
Page 2 JacksonWeiss, Langer-Geidon, Parry-rombergs, Pfeiffer, Pierre-Robin, Russell LangerGiedion Langer-Giedion syndrome Association National Organization of Rare http://members.tripod.com/~Craniofacial/page2.htm
Extractions: The Craniofacial Disorders indexed on this page are: Jackson-Weiss, Langer-Geidon, Parry-Rombergs, Pfeiffer, Pierre-Robin, Russell-Silver, Saethre-Chotzen, Sagittal Synostosis, Shprintzen-Goldberg, Stickler, and Treacher-Collins. Page 1 includes Antley-Bixler, Apert, Arhinia, Baller-Gerold, Carpenter, Craniosynostosis, Crouzon and Goodman. Jackson-Weiss
Rombergs Connection rombergs Connection httphttp//www.geocities.com/HotSprings/1018/ Our primary purposeis to locate other people with Romberg's syndrome, (also known as Parry http://www.pslgroup.com/dg/3d7b2.htm
Health Library - Parry Romberg Syndrome In most cases, ParryRomberg syndrome appears to occur randomly for unknown reasons 550First Avenue New York, NY 10016 Tel (212)340-5400 rombergs Connection c http://health_info.nmh.org/Library/HealthGuide/IllnessConditions/topic.asp?hwid=
Facial Neuralgia Resources: Template Conditions ParryRomberg syndrome appears to occur randomly for unknown reasons (sporadically).Online Resources Contact T. Hildebrand c/o The rombergs Connection 4106 http://facial-neuralgia.org/conditions/romberg.html
Extractions: Related Disorders DESCRIPTION CAUSES SYMPTOMS ONLINE RESOURCES The names Progressive Facial Hemiatrophy, Progressive Hemifacial Atrophy, Romberg Syndrome, PRS, HFA are synonyms for this disorder TAKE A CLOSER LOOK READ ABOUT KELLEY , an extraordinary little girl who suffers from Parry-Romberg Syndrome, in an article published in the Rocky Mountain News. Don't miss reading the MANY MESSAGES sent to her from people all over the world. The following information is excerpted from the National Organization for Rare Disorders, Inc.database on rare disorders and is posted in compliance with the FAIR USE DOCTRINE and is for educational purposes only and not for commercial use. Description
NORD - National Organization For Rare Disorders, Inc. Organizations related to Parry Romberg syndrome Epilepsy Foundation 4351 GardenCity Drive rombergs Connection c/o T. Hildebrand Chicago IL 60415 Phone N/A http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Parry Romberg
NORD - National Organization For Rare Disorders, Inc. Polychondritis Educational Society Progressive Supranuclear Palsy (PSP Europe)Association rombergs Connection RothmundThomson syndrome Pages Sarcoidosis http://www.rarediseases.org/nord/programs/links/disease
Canadian Directory Of Genetic Support Groups Restless Legs syndrome, Nocturnal Myoclonus) Retinoblastoma Family Association (Retinoblastoma)rombergs Connection (Parry Romberg syndrome) (Romberg syndrome http://www.lhsc.on.ca/programs/medgenet/r_sup.htm
Parry Romberg Syndrome; Treatment, Prevention, Cure Judy's ParryRomberg Story. The rombergs Connection is definitely a God-send . Isuffer from Romberg's syndrome, otherwise known as facial hemiatrophy http://www.healthlinkusa.com/content/237.html
Parry Romberg Syndrome; Treatment, Prevention, Cure I was diagnosed with Parry Romberg syndrome when I was 6 years old. Chantele's Story I was diagnosed with rombergs Hemifacial Atrophy just before Christmas of http://www.healthlinkusa.com/237a.asp
Extractions: Links to websites which may include treatment, cures, diagnosis, prevention, support groups, email lists, messageboards, personal stories, risk factors, statistics, research and more. Featured Sites Become a Featured Site? I first noticed my face was becoming asymmetrical when I was 16 years of age Romberg's has not been an easy disease to live with. As Kermit the Frog said, "It ain't easy being green." 40 featured health areas. Select a Featured Area here Alternative Medicine Bladder Disorders Blood/Lymphatic System Cancer Cardiology Digestive System Digestive Health Endocrine System (Hormones) Environmental Health Genetics/Birth Defects Immune System/AIDS Infections Men's Health Pain Management Reproduction,Pregnancy,Birth
Parry Romberg Syndrome The rombergs Connection Site provides information, FAQs, support, chat/messageboard article about a young girl with Parry Romberg syndromeinformative and http://rarediseases.about.com/cs/parryromberg/