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Spina Bifida: more books (100)

Children with Spina Bifida:A Parents' Guide by Edited by Marlene Lutkenhoff; R.N.; M.S.N., 2007-11-30

Christal: Coping With Spina Bifida by Karen Snyder Travis, 2001-05

Living with Spina Bifida: A Guide for Families and Professionals by AdrianM.D. Sandler, 2004-03-15

Living with Spina Bifida: Speaking Out About My Disability by Larry E. Appelmann, 2006-07-06

Spinabilities: A Young Person's Guide to Spina Bifida

Spina Bifida (Genetic and Developmental Diseases and Disorders) by Stephanie Watson, 2008-09

The Official Parent's Sourcebook on Spina Bifida: A Revised and Updated Directory for the Internet Age

Spina Bifida: Management and Outcome

The teacher and the child with spina bifida by Elizabeth Pieper, 1977

Comprehensive Management of Spina Bifida by Harold L. Rekate, 1990-12-13

Caring for the Child With Spina Bifida: Shriners Hospitals for Children by John F., M.D. Sarwak, Shriners Hospitals for Children, 2002-01

I Have Spina Bifida (One World) by Brenda Pettenuzzo, David Purcell, et all 1987-10

Cody's Story: Living One Day at a Time with Spina Bifida by Janny J. Dicken, 2005-04-18

Prevention of Spina Bifida by Author Unknown, 1983-02-11

lists with details

Association For Spina Bifida And Hydrocephalus - Information Pages
Information about spina bifida, hydrocephalus, the services offered by the Association for spina bifida and Hydrocephalus and related topics. Home pages of the Association for spina bifida and Hydrocephalus. Association for spina bifida and Hydrocephalus. Registered in England Charity No 249338
http://www.asbah.org/

Extractions: The Association for Spina Bifida and Hydrocephalus beneficial area is England, Wales and Northern Ireland. These pages have been designed to be easy and quick to download and print. If you publish any of the information elsewhere please credit the Association for Spina Bifida and Hydrocephalus and set up a link back to these pages. ASBAH Information Other Links ... Hydrocephalus - Information for Parents/Parents to be A series of three articles by Dr Roger Bayston MMedSci MRCPath: Specialist Support ... Research Information Sheet to GPs on Hydrocephalus available from Rosemary Batchelor Download Information Sheets and Leaflets in pdf Format Discussion groups for people with Benign Intracranial Hypertension A Constant Fight - and summary of ASBAH's report on the need for accessible and coordinated services for children and adults with hydrocephalus and/or spina bifida
Spina Bifida Association Of America - Welcome
Promotes prevention of spina bifida and addresses needs of people affected.Category Health Conditions and Diseases Organizationsspina bifida Association of America. 4590 MacArthur Blvd., NW, Suite 250 Washington,DC 200074226. Copyright spina bifida Association of America.
http://www.sbaa.org/

Extractions: Click Here for 2003 Conference Information! 2002 Back-to-School Guide The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year. SBAA provides services such as: Toll Free 800 Information and Referral Service Bi-monthly Newsletter
NINDS Spina Bifida Information Page
Read about this neural tube defect, and find treatment options and research. Get contact info for organizations. What is spina bifida? spina bifida (SB) is a neural tube defect (a disorder involving incomplete development of the
http://www.ninds.nih.gov/health_and_medical/disorders/spina_bifida.htm

Extractions: There is no cure for SB because the nerve tissue cannot be replaced or repaired. Treatment for the variety of effects of SB may include surgery, medication, and physiotherapy. Many individuals with SB will need assistive devices such as braces, crutches, or wheelchairs. Ongoing therapy, medical care, and/or surgical treatments may be necessary to prevent and manage complications throughout the individual's life. Surgery to close the newborn's spinal opening is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. What is the prognosis?
SBH Queensland
For any enquiries or comments about spina bifida, hydrocephalus, our services or this Web site, please email me.
http://www.spinabifida.org/

Extractions: Welcome to the SBH Queensland Web site. Charity Auctions SBH Queensland is raising funds by conducting on-line honeymoon and holiday auctions with Wedding Links and Window Shopping Directory Centre To find out more about the auctions please click here. Current auctions are for honeymoons or holidays at Kingfisher Bay Resort This site contains information about spina bifida and hydrocephalus as well as spina bifida occulta When you have finished having a look around this site, please take a look at some of the other great spina bifida and hydrocephalus sites These generous firm s donated its time and assistance to help us establish our first Web site. This site is maintained by Bill Shead, the Information Officer at SBH Queensland and was last updated on 01 February 2002. For any enquiries or comments about spina bifida, hydrocephalus, our services or this Web site, please email me. SBH Queensland is located in Brisbane, Australia. The centre is at:
Spina Bifida And Hydrocephalus Association Of Nova Scotia
Find facts about spina bifida and hydrocephalus, as well as spinal cord regeneration research, from this Nova Scotia organization.
http://www.chebucto.ns.ca/Health/SBANS

Extractions: Association of Nova Scotia Last Updated July 31, 2000 - New Stuff Spina Bifida (latin, meaning "divided spine") , is a congenital birth defect which occurs in approximately 1 out of every 750 live births in Canada. There is currently no cure for Spina Bifida, though research is ongoing. Hydrocephalus , a condition found in %80 of people with Spina Bifida, is the excessive build-up of cerebrospinal fluid (CSF) on the surface of the brain, resulting from the brain's lack of natural absorption capabilities. Keep track of developments, and items of interest related to SB and Hydrocephalus. (Not updated often.) If you're in a hurry to find something, the Quick Index provides easy navigation of our site. And, if you can't find what you're looking for on our site, check out the Resource List , a categorized list of on-line and off-line resources. Visit our parent organization, The Spina Bifida and Hydrocephalus Association of Canada
Children With Spina Bifida: A Resource Page For Parents & Professionals
Features web resources and links for parents of children with spina bifida and health professionals.
http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx
Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH)
Peruse this list of resources, associations, Web resources and online discussion groups. With treatment information. spina bifida Organizations ~ spina bifida Articles Web Sites ~. ~ spina bifida Online Discussion Groups
http://www.asbh.de/
Fetal Surgery For Spina Bifida
Features various information regarding fetal surgery for spina bifida.
http://www.fetal-surgery.com

Extractions: fetal-surgery.com Home News Articles Research Pictures Links ... This site is not affiliated with Children's Hospital of Philadelphia Vanderbilt University Medical Center , or any other medical institution. This site is a resource center of information. See the MOST asked for photos on the web. This page is dedicated to providing information information regarding an exciting surgical option, offering hope and additional choices to parents faced with the grim news that their unborn child has Spina Bifida. This site is a resource, pointing parents and family to appropriate medical institution for additional information. As the father of a child with spina bifida, I know first hand the pain of such a discovery. I also know the joy, of fetal surgery for spina bifida. My son was one of the first ever to have this type of surgery. It was providential that we learned about this new surgery. My hope is that this page will make it easier for you to find information, and be pointed to those who can help.
International Federation For Hydrocephalus & Spina Bifida
Its mission is to improve the quality of life of people with Hydrocephalus and spina bifida throughout the world. To decrease the prevalence of Hydrocephalus and/or spina bifida by primary prevention.
http://www.ifglobal.org/

Extractions: home contact sitemap About if Spina Bifida Hydrocephalus Pregnancy Human Rights Developing Countries Newsroom Forum Links WELCOME! We welcome you to the official website of the International Federation for Hydrocephalus and Spina Bifida called if if is a world-wide umbrella organisation and has a contact net on every continent. Its members and contacts are organisations for Spina Bifida and Hydrocephalus in more than 40 countries, making a unique network of experience and knowledge. 2 - 3 de octubre de 2003 en Arequipa, Perú. Idiomas de la conferencia españolas son el inglés y el español. Evitar tiempo innecesario de viaje y altos gastos de viaje, reservando antes de febrero de de 2003. Co-organizacion : Paz- Holandesa; CAT travel Informacion turistica : nuestro socio para los arreglos turisticos Programa de la conferencia Haga su reserva ahora y por aqui!
Spina Bifida Association Of America - Facts About Spina Bifida
Presents facts about this serious form of birth defect.Category Kids and Teens Health Conditions and Diseases spina bifidaFacts About spina bifida What are Neural Tube Defects? There are 3types of NTDs anencephaly, encephalocele, and spina bifida.
http://www.sbaa.org/html/sbaa_facts.html

Extractions: Facts About Spina Bifida What are Neural Tube Defects? Neural tube defects (NTDs) are serious birth defects that involve incomplete development of the brain, spinal cord and/or protective coverings for these organs. There are 3 types of NTDs: anencephaly, encephalocele, and spina bifida. Babies born with anencephaly have underdeveloped brains and incomplete skulls. Most infants born with anencephaly do not survive more than a few hours after birth. Encephalocele results in a hole in the skull through which brain tissue protrudes. Although most babies with encephalocele do not live or are severely retarded, early surgery has been able to save a few children. What is Spina Bifida? Spina bifida is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. Spina bifida, the most common NTD, is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord.
Disability Info: Spina Bifida Fact Sheet (FS12)
spina bifida means cleft spine, which is an incomplete closure in the spinal column.
http://www.nichcy.org/pubs/factshe/fs12txt.htm

Extractions: Myelomeningocele: This is the most severe form of spina bifida, in which a portion of the spinal cord itself protrudes through the back. In some cases, sacs are covered with skin; in others, tissue and nerves are exposed. Generally, people use the terms "spina bifida" and "myelomeningocele" interchangeably. Back to top Approximately 40% of all Americans may have spina bifida occulta, but because they experience little or no symptoms, very few of them ever know that they have it. The other two types of spina bifida, meningocele and myelomeningocele, are known collectively as "spina bifida manifesta," and occur in approximately one out of every thousand births. Of these infants born with "spina bifida manifesta," about 4% have the meningocele form, while about 96% have myelomeningocele form.
Centro Spina Bifida Università Cattolica Sacro Cuore
Roma Presso l'Istituto di clinica pediatrica dell'universit cattolica del Sacro Cuore ¨ attivo il Centro per lo studio e l'assistenza al bambino affetto da questa patologia. Le attivit di cura, di prevenzione, d'orientamento e di informazione.
http://www.centrospinabifida.it/
Spina Bifida - Keep Kids Healthy
Information about the most common symptoms and treatment for children with spina bifida, or myelomeningocele.
http://www.keepkidshealthy.com/welcome/conditions/spinabifida.html

Extractions: Recommend Us tell a friend about us or email this page to a friend Main Diseases and Conditions Spina bifida is a type of congenital malformation of the central nervous system. In its mildest form, spina bifida occulta , there is a malformation of the vertebral arches of the spinal cord without other problems. This occurs in 5% of the population and does not cause any symptoms or problems and no treatment is required. Some children with this disorder also have a patch of hair or skin discoloration on the skin of the lower back with the defect occurs. Children with spina bifida , or myelomeningocele also have a malformation of the vertebral arches of the spinal cord and they have abnormalities of the spinal cord, in which the spinal cord and nerve roots protrude out. The malformation is most commonly found in the lumbosacral area of the lower back, but it can occur anywhere along the spinal cord.
Spina Bifida, Wet Voorzieningen Gehandicapten En Overige Voorzieningen
In de volksmond wordt het meestal open rug genoemd.
http://home.hccnet.nl/dam.willemsen/
Spina Bifida Association
Louisiana's constituency of the national organization. Contact, resource and membership information Category Regional North America Louisiana Health Associationsspina bifida Association of Greater New Orleans Post Office Box 1346Kenner, Louisiana 70063 (504) 7375181 What Is spina bifida?
http://www.gnofn.org/~sba/

Extractions: Spina Bifida (spy-nuh-bi-fi-duh) is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. More children are affected by this condition than muscular dystrophy, multiple sclerosis, and cystic fibrosis combined. Spina Bifida (myelomeningocele) is a disabling birth defect of the spinal column resulting from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back. Surgery to close the newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. The condition may cause varying degrees of paralysis and loss of feeling in the lower limbs, and bowel and bladder complications. A large percentage of children born with spina bifida have hydrocephalus, the accumulation of fluid in the brain. Hydrocephalus is controlled by a surgical procedure called "shunting" which relieves the fluid build up in the brain by redirecting it into the abdominal area. Although spina bifida is relatively common, until recently most children born with myelomeningocele died shortly after birth. Due to a revolutionary surgical techniques, today we can expect 85-90% of newborns to survive.
Arbeitsgemeinschaft Spina Bifida Und Hydrocephalus E.V. (ASbH)
Informationen ¼ber den Verein und seine Aktivit¤ten. Neben der Beschreibung der Krankheitsbilder finden sich wissenschaftliche Beitr¤ge, Antworten auf Sozialrechtsfragen, Hinweise auf die regionalen Selbsthilfegruppen und die M¶glichkeit zum Austausch im Forum und im Chat.
http://www.paritaet.org/asbh/
Web Hosting, Domain Name, Free Web Site, Email Address Web
Offers information about spina bifida, complete with diagrams and links.Category Health Conditions and Diseases spina bifidaInformation On spina bifida. I also have some great links on SpinaBifida. What is spina bifida ? spina bifida is the most frequently
http://www.fortunecity.com/millenium/plumpton/268/sb.htm

Extractions: web hosting domain names email addresses related sites Spina bifida is the most frequently occurring permanently disabling birth defect. It affects approximately one out of every 1,000 newborns in the United States. More children have spina bifida than have muscular dystrophy, multiple sclerosis, and cystic fibrosis combined. Spina bifida, the most common neural tube defect (NTD), is one of the most devastating of all birth defects. It results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord. Because of the paralysis resulting from the damage to the spinal cord, people born with spina bifida may need surgeries and other extensive medical care. The condition can also cause bowel and bladder complications. A large percentage of children born with spina bifida also have hydrocephalus, the accumulation of fluid in the brain. Hydrocephalus is controlled by a surgical procedure called "shunting" which relieves the fluid build up in the brain by redirecting it into the abdominal area. Most children born with spina bifida live well into adulthood as a result of today's sophisticated medical techniques.
Spina Bifida
Features a chat room, information, pictures, stories, facts, diagrams, and resources for living with Category Health Conditions and Diseases spina bifida
http://www.geocities.com/HotSprings/2474/
The Spina Bifida Hydrocephalus Association Of Ontario
Information, resources, support.Category Health Conditions and Diseases Organizationsspina bifida Hydrocephalus Association of Ontario To improve the quality of lifeof all individuals with spina bifida and/or hydrocephalus, through research
http://www.sbhao.on.ca/
Redirection Vers Spina Bifida (Suisse)
Site personnel, cr©© par les parents d'un enfant atteint de ce handicap. Suisse.
http://www.perso.ch/dupuism/

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