Geometry.Net - Health_Conditions: Tuberous Sclerosis

Tuberous Sclerosis Association, UK
"Supporting sufferers, promoting awareness, and seeking the causes and best possible management Category Health Conditions and Diseases tuberous sclerosisThe tuberous sclerosis Association, UK Supporting sufferers, promoting awareness,and seeking the causes and best possible management of tuberous sclerosis.
http://www.tuberous-sclerosis.org/

Extractions: Zones: People with TSC Parents Doctors Carers ... Discussions NEW! About this site The top row of the menu bar takes you to useful information about the TSA and the services it provides. The bottom row allows you to examine resources tailored to your needs. Welcome to the Web site of the Tuberous Sclerosis Association, the UK charity that supports sufferers, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis (TSC). Training day, 23 May 2003, London
Tuberous Sclerosis - Lisa's Site
An incurable genetic condition that causes tumors to grow in various places in the body.
http://www.title14.com/ts/

Extractions: Tuberous Sclerosis Links My Family Story My Laser Surgery Experience Photo Album ... Lisa and Pat got married!! Tuberous Sclerosis is a genetic disorder that causes benign tumors on various organs, including the brain, kidneys, heart, skin and lungs. Seizures also occur in some people with TSC, as does mental retardation. There is a very strong occurance of Tuberous Sclerosis (TSC) in my family. This page may take a couple of minutes to load. View my Renal Ultrasound A Word Of Thanks I would like to say thank you for all the wonderful messages you all have sent me over the years! I read each and every one and sometimes get teary-eyed reading them... but I love them all. I'm so happy to be able to make a difference in some of your lives... you have done the same for me just by writing. Thank you! Our photo album - Come see Jen, Pat, Aura, Jas, Dutchess, the cats, and...me!
NINDS Tuberous Sclerosis Information Page
A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Category Health Conditions and Diseases tuberous sclerosistuberous sclerosis information sheet compiled by the National Institute ofNeurological Disorders and Stroke (NINDS). More about tuberous sclerosis,
http://www.ninds.nih.gov/health_and_medical/disorders/tuberous_sclerosis.htm

Extractions: Tuberous sclerosis is a rare genetic, neurological disorder primarily characterized by seizures, mental retardation, and skin and eye lesions. In some cases, neurobehavioral problems may also occur. Individuals with tuberous sclerosis may experience none or all of the symptoms with varying degrees of severity. Tuberous sclerosis is a multi-system disease that can affect the brain, kidneys, heart, eyes, lungs, and other organs. Small benign tumors may grow on the face and eyes, as well as in the brain, kidneys, and other organs. Neuroimaging studies may be able to confirm the diagnosis. Seizures most often begin in the first year of life. Is there any treatment?
Tuberous Sclerosis Alliance
Nonprofit organization provides information, resources, and support for those with tuberous sclerosis and their families. to serving individuals and families affected by tuberous sclerosis complex. Although we have a new name, image,
http://www.tsalliance.org/

Extractions: Welcome and thank you for visiting the Tuberous Sclerosis Alliance (TS Alliance), a national voluntary health organization dedicated to finding a cure for the many aspects of tuberous sclerosis complex (TSC). Take a tour of our site and learn more about this genetic disorder and how you can help! Become an advocate for increased federal support for TSC research! Click here for details. GIVING Join volunteers across the country by taking part in a national letter-writing campaign during Tuberous Sclerosis Awareness Month in May. Click here for more information! Interested in organizing or participating in a walk for the TS Alliance? Out Get involved TODAY! Click here to register with the TS Alliance Website! Registration takes only a moment and will allow you to track your donations, sign up for electronic updates on TSC research and participate in a variety of TS Alliance activities. Join in our first national Outreach and Awareness Campaign Click here to help!
Tuberous Sclerosis And Related Sites
Lisa's Long List of tuberous sclerosis and Related Websites
http://www.title14.com/ts/tssites.html

Extractions: Here is my list of sites on Tuberous Sclerosis. This used to be a very small page due to the lack of information about Tuberous Sclerosis available on the net back in 1995, when this site was created. Things have changed.. I am so happy to see that information about Tuberous Sclerosis is becoming easier to find. If you have a suggestion for a new catagory or site, or if you find that any of these links are not working, please send me E-mail at latrainor@title14.com and let me know. Thanks!
MEDLINEplus: Tuberous Sclerosis
FAQ's about tuberous sclerosis Complex (tuberous sclerosis Alliance)
http://www.nlm.nih.gov/medlineplus/tuberoussclerosis.html
Tuberous Sclerosis Fact Sheet
Developed by the National Institute of Neurological Disorders and Stroke (NINDS).Category Health Conditions and Diseases tuberous sclerosistuberous sclerosis fact sheet developed by the National Institute of NeurologicalDisorders and Stroke (NINDS). What is tuberous sclerosis?
http://www.ninds.nih.gov/health_and_medical/pubs/tuberous_sclerosis.htm

Extractions: Request free mailed brochure Tuberous sclerosis-also called tuberous sclerosis complex (TSC) - is a rare, multi-system genetic disease that causes benign tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin. It commonly affects the central nervous system and results in a combination of symptoms including seizures, developmental delay, behavioral problems, skin abnormalities, and kidney disease. The disorder affects as many as 25,000 to 40,000 individuals in the United States and about 1 to 2 million individuals worldwide, with an estimated prevalence of one in 6,000 newborns. TSC occurs in all races and ethnic groups, and in both genders.
Tuberous Sclerosis / The Family Village
tuberous sclerosis. Synonyms Epiloia or Bourneville's disease
http://www.familyvillage.wisc.edu/lib_tube.htm
TOUS: CAS TUBEROUS SCLEROSIS
Les dossiers classés en "tuberous sclerosis". ANGIOMYOLIPOMA CT tuberous sclerosis ANGIOMYOLIPOMA
http://www.med.univ-rennes1.fr/cerf/iconocerf/idx/tous/TUBEROUS_SCLEROSIS.html
Pediatric Oncall- TUBEROUS SCLEROSIS
Offers commonly asked questions about this disease.
http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp
Overview, Cincinnati Childrens Hospital Medical Center
Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
http://www.cincinnatichildrens.org/Programs_Services/229/index.asp

Extractions: The Tuberous Sclerosis Clinic at Children's Hospital Medical Center of Cincinnati was organized in 1993 to assist in the medical care of children and adults who have or are suspected of having Tuberous Sclerosis. The purpose of the Tuberous Sclerosis clinic is not to replace care from the child's pediatrician or family physician, but to assist the primary care doctor in dealing with those aspects of Tuberous Sclerosis that affect the child's health or development. The basis of the Tuberous Sclerosis Clinic is the realization that people with Tuberous Sclerosis are different from other individuals who have epilepsy, learning disabilities, behavior problems, etc. For too long the unique problems found in this disease have been lumped together with similar disorders in children without tuberous sclerosis. Yet, research has increasingly shown that disorders of the brain, learning, heart, kidney, and other organs in Tuberous Sclerosis are different than the same conditions in individuals without Tuberous Sclerosis. The Tuberous Sclerosis Clinic is managed by the Neurology Department at Children's Hospital Medical Center of Cincinnati, and is part of the University of Cincinnati Medical Center.
Tuberous Sclerosis Hub
A brief definition of, followed by links to overviews, research articles, case reports and images.
http://www.healthubs.com/tuberous

Extractions: Tuberous sclerosis is an hereditary disorder characterized by seizures, mental retardation, and skin and eye lesions. It is a multi-system disease that can affect the brain, kidneys, heart, eyes, lungs, and other organs. Small benign tumors may grow on the face and eyes, as well as in the brain, kidneys, and other organs. Neuroimaging studies may be able to confirm the diagnosis. Seizures most often begin in the first year of life. Acne Allergy Antibiotics Antioxidants ... NINDS Tuberous Sclerosis Information Page - by The National Institute of Neurological Disorders and Stroke, National Institutes of Health. Recognizing an Index Case of Tuberous Sclerosis - by Joseph S. Hurst, M.D., Susan Wilcoski, M.D. Tuberous Sclerosis by Alicia Zukas Tuberous Sclerosis, Lymphangiomyomatosis, and Polycystic Kidney Disease - from Fox Chase Cancer Center. Tuberous Sclerosis Complex - by Cheryl Howell, Kenyon College. Cutaneous Tumorigenesis in Patients with Tuberous Sclerosis Tuberous Sclerosis - Bourneville's Disease - by Jeff Goree, M.D. Tuberous Sclerosis Complex (TSC) - by the Center for Human Genetics - Duke University Medical Center.
Tuberous Sclerosis Canada Sclérose Tubéreuse
Site includes contact email sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
http://www.tscst.org

Extractions: Dedicated to the principles of providing encouragement and support to individuals and their families diagnosed with Tuberous Sclerosis Complex (TSC); raising public awareness and educating our communities of TSC; and to promote and support research aimed at the cure for TSC and/or control of Tuberous Sclerosis symptoms.
Pediatric Database
A definition of tuberous sclerosis, followed by the epidemiology, pathogenesis, clinical features, investigations and management.
http://www.icondata.com/health/pedbase/files/TUBEROUS.HTM

Extractions: Pediatric Database (PEDBASE) Discipline: CNS Last Updated: 5/28/94 A neurocutaneous syndrome characterized by cutaneous and neurologic manifestations (mental retardation and seizures), and tumors. risk factors: if 2 or more siblings with Tuberous Sclerosis (TS) then one parent always has at least one skin manifestation of TS sporadic rate varies from 58-77% if both parents are normal the TS in a child is probably a new mutation basic cause is unknown but considered a disorder of early embryogenesis greater the # of tubers the greater the neurologic impairment found anywhere within the cerebral hemispheres: typically present in the subependymal region (located in the walls of the lateral ventricles and on the surface of the basal ganglia) and may extend into the ventricles also cortical gyri, sulcus terminalis
Marian's Life With Tuberous Sclerosis
Marian's story. Information about the disease, pictures, contacts, medicine, links.
http://www.expatworld.de/marian

Extractions: Marian's story. A boy who suffers from Tuberous Sclerosis. Informations about the disease, pictures, contacts, medicine, links and some more. TS, TSC, Tuberöse, Sklerose, krank, Newsgroup, Diskussionsforum, herzkrank, Herztumore, Rhabdomyome, Kinder, Kardiologie, Kinderkardiologie, Herz, Tumor, Aortenbogenhypoplasie, Prostaglandin, Therapie, Herzkatheter, Echokardiographie, Krampfanfall, Epilepsie, Aortenbogenhypoplasie, Aortenisthmusstenose, pulmonale, Hypertension, Herzoperation, Depigmentierungen, Sabril, antikonvulsiv, Anfallsleiden, Anastomose, Patcherweiterungsplastik, Aorta, Luminal, Phenobarbital, ill, sick, cardiologic, heart, cardiac, defect, suffer, spasm, convulsion, cramp, tuberous, Tuberous, Sclerosis, sclerosis, autism, Genetic, Seizure, Seizures, Epilepsy, Health, Disease, Rare, Disorders, Genetics, Conditions, tubular Text and idea by TReiske@uni-muenster.de Last update: 20. 10. 2002
The Rothberg Institute - Home
The Rothberg Insitute is a nonprofit organization dedicated to finding a cure for tuberous sclerosis Complex
http://www.childhooddiseases.org

Extractions: The Rothberg Institute For Childhood Diseases is a non-profit organization dedicated to finding a cure for children suffering from Tuberous Sclerosis Complex (TSC). We operate at the intersection of modern biology, computer science, and chemistry. The work we do on TSC will also have a direct impact on cancer research, and we will be testing the drugs we find as weapons against cancer. In addition the work we do to create a system to attack orphan diseases will form a prototype for work on other orphan diseases and diseases that affect the third world. TSC is a genetic disorder that leads to benign tumors in multiple organs, including the brain, kidneys, heart, eyes, lungs and other organs. During the first few years, the severity of TSC can range from mild skin abnormalities to, in severe cases, seizures, mental retardation or renal failure. For more information about TSC please visit www.tsalliance.org
What Is Tuberous Sclerosis?
National tuberous sclerosis web site, for valuable information and supportfor those affected by tsc. WHAT IS tuberous sclerosis COMPLEX?
http://www.tsalliance.org/WhatIsTSC/

Extractions: WHAT IS TUBEROUS SCLEROSIS COMPLEX? Tuberous sclerosis complex (TSC) is a genetic disorder that causes benign tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. You will see it referred to both as tuberous sclerosis (TS) and tuberous sclerosis complex (TSC). The term TSC is used in scientific literature to distinguish tuberous sclerosis from Tourette's syndrome. The true prevalence of TSC is unknown, but its incidence has recently been estimated to be 1 in 6,000 live births. This means approximately 50,000 individuals in the United States and more than 1 million worldwide have TSC. It occurs in both sexes and in all races and ethnic groups. Frequently Asked Questions (FAQ's)
Team Ninja
This is the home of Team Ninja, a team that pursues distributed computing projects. We currently work on Distributed Folding tuberous sclerosis Complex (TSC)
http://www.team-ninja.com
Tuberous Sclerosis Alliance
tuberous sclerosis Alliance. A new name, a new logo and a new Web site.For more than 25 years, NTSA has been the only national organization
http://www.ntsa.org/

Extractions: A new name, a new logo and a new Web site. For more than 25 years, NTSA has been the only national organization dedicated to serving individuals and families affected by tuberous sclerosis complex. Although we have a new name, image, address and Web site, we remain true to our mission of finding a cure for tuberous sclerosis complex while improving the lives of those affected. Please bookmark our new Web address:
Cell Biology And Cytoskeleton Group
The Cell Biology and Cytoskeleton Group of the Division of Hematology at the Brigham and Women's Hospital and Harvard Medical School (Stossel, Hartwig and Kwiatkowski Labs) focuses mainly on the structure, function and regulation of the cytoskeleton and related areas in cell biology actin dynamics, cell motility and mechanics, cytoskeletal polymer physics and rheology, interactions between different cytoskeletal polymer systems, phosphoinositides and signaling to the cytoskeleton. In addition, the Group has an active program of research on tuberous sclerosis.
http://zk.bwh.harvard.edu

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