Product Description

Although dermatomyositis is a rare connective tissue disease, many physicians are confronted with the diagnosis and treatment of patients affected by this condition. Based on the vast personal experience of the authors, who have diagnosed, treated, and managed many dermatomyositis patients, this clinical guide provides dermatologists, rheumatologists, pediatricians, neurologists, and general practitioners with the keys to interpreting the clinical symptoms of dermatomyositis. Also included are algorithms to help the reader to make the correct diagnosis, as well as guidance on new diagnostic methods and treatment schemes.

Customer Reviews (1)

EXCELLENT MEDICAL BOOK AND GREAT FOR PATIENTS AS WELL
This book anwered every question about the disease I have had for the past five years or so. Obviously it was written as a textbook for Medical School Students going into the fields of Rheumatology, Dermatology, and Neurology, but as a patient with the disease, I found it more easy to understand and take control of my health. I recommend this to everyone who has to treat patients with the disease as well as those that have the disease. I have done extensive research and have not found as complete a text that covers all the symptoms I have.

Great job to the doctors who wrote it and smart decision by the Universities that use in in their medical field curriculums.

This book was delivered as promised via Amazon.com. I could not put the book down for a few days until I read it. It told me everything I wanted to know about Autoimmune diseases and more, and gave me much more appreciation for my Rheumatologists Doctors Philip Sedrish and Marielisa Sedrish at Gulfcoast Rheumatology at Slidell Memorial Hospital. They have been doing everything like clock work with me and I have been a very trying case for especially for Dr Philip Sedrish. These doctors are definitely experts in Rheumatology and all the other Auto-Immune Neuromuscular and Skin Diseases such as (RA, PM, DM, IBM, Sjogrens, Scleroderma, Lupus, ALS, etc...) that go along with their specialty. They referred me to the best specialists: Dermatology - Dr Eric Tabor; Cardiology - Dr Ignatius Thomas; Pulmonology - Doctor Dennis Dale and Doctor Janine Parker; Opthamology- Dr David Slagle; Gastroenternology - Dr Anthony Albright. These doctors all work well with each other and me to address all my symptoms associated with Dermatomyositis, Sjogrens, and Psoriasis. Thanks to these doctors, I have not had to drive 100 miles a trip to the MDA Clinic at Children'sHospital in New Orleans or even further as may others end up doing.

Thank you to the authors of this book and my friends from The Myositis Association, Polymyositis and Dermatomyositis forum.

I recommend this book to anyone diagnosed with a Auto-Immune Disease and associated Cancer.

Bill Morell
Diagnosed with Dermatomyositis, Sjogrens Syndrome, and Psoriasis.
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Product Description
"Finally, comprehensive information in one book we all - mother, father, and patient - can understand with information to relieve the angst of countless questions and sleepless nights." - Jacquelyne DenUyl, mother of Eric, juvenile dermatomyositis."Everything you need to know has been carefully put together here in this one source. If your child has myositis and you want the best possible results, you need to read this book!" - Thomas J. A. Lehman, MD, Chief, Division of Pediatric Rheumatology, Hospital for Special Surgery in NY, and Author of "It's Not Just Growing Pains.""This gem of a book is a great resource to educate, remove some of the fears, and provide hope for anyone faced with living with this disease." - John H. Klippel, MD, President and CEO, Arthritis Foundation.This comprehensive resource for patients, families, and healthcare providers has been written and edited by medical experts in juvenile myositis. It summarizes much of what is known about this rare but serious autoimmune disease in which the body's own defense system attacks muscle and other healthy tissues. It is an indispensable resource for families of children with myositis and their healthcare teams. By reading this book, you will: 1. Learn what juvenile myositis (JM) is and how to explain it to children; 2. Understand the symptoms of JM, tests used to diagnose it, and how to find medical help; 3. Find strategies to help your child adjust to physical limitations and to cope with JM as a family; 4. Understand treatment options and how health professionals track your child's progress; 5. Gain information on different aspects of JM, including long-term outcomes; and, 6. Discover a number of resources to assist you in the fight against your child's myositis.Proceeds from the sale of this book will help fund further research into juvenile myositis. ... Read more

Customer Reviews (3)

A review of Myositis and You
This book is an excellent resource for anyone dealing with, or wanting to know more about this rare group of diseases. Since I've actually met some of the contributing authors I can honestly say this book is an intelligent and well thought out body of medical research. It is well worth the purchase price, especially if your child is afflicted by one of these diseases. Chapter 28 has good information on overlap conditions that occur with Juvenile Dermatomyositis.

Invaluable information
This book is very informative on juvenile dermatomyositis.It is very helpful in teaching you what to expect in every stage of the disease, whether you are the child, parent, family member or friend.It explains the possible medications needed and their side effects.I refer to it almost daily.It has been an invaluable tool for us!

Very Informative
I'm 19 and I've had DM since I was 2. This book (edited by my doctor Lauren Pachman) is extremely informative and has everything you need to correctly help you or your child. I highly recommend this book to anybody that has Myositis or anybody that is a parent or family member of somebody with any form of Myositis. ... Read more

Product Description
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to dermatomyositis (also Idiopathic inflammatory myopathy), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on dermatomyositis. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. ... Read more

Customer Reviews (3)

Good Book -But Not Up to Date with Specialists In Gulf Coast Area
This book was delivered as promised via Amazon.com.

I could not put the book down for a few days until I read through it.

It told me alotof things I already know. I wanted to know about Dermatomyositis and more.

I was a little disappointed since it did not show many specialists and clinics in the Gulf Coast Area, ex. Louisiana. I am sure others with the disease will pick up on the same and feel they have to travel half way across the states to beproperly takencare of. That is definitely an unintentional, but obvious feeling I had. So I will mention the book was good, but maybe my story below will let folks know their are many outstanding specialists in their home towns, that they have not found. A more general and true statement in the book would have been that the United States is hurting for Rheumatologists.

The book did give me much more appreciation for my own Rheumatologists, Doctors Philip Sedrish and Marielisa Sedrish at Gulfcoast Rheumatology at Slidell Memorial Hospital. They have been doing everything like clock work with me and I have been a very trying case for especially for Dr Philip Sedrish. These doctors are definitely experts in Rheumatology and all the other Auto-Immune Neuromuscular and Skin Diseases such as (RA, PM, DM, IBM, Sjogrens, Scleroderma, Lupus, ALS, etc...) that go along with their specialty. They referred me to the best specialists: Dermatology - Dr Eric Tabor; Cardiology - Dr Ignatius Thomas; Pulmonology - Doctor Dennis Dale and Doctor Janine Parker; Opthamology- Dr David Slagle; Gastroenternology - Dr Anthony Albright. These doctors all work well with each other and me to address all my symptoms associated with Dermatomyositis, Sjogrens, and Psoriasis. Thanks to these doctors, I have not had to drive 100 miles a trip to the MDA Clinic at Children'sHospital in New Orleans or even further as may others end up doing.

Thank you to the authors of this book and my friends from The Myositis Association, Polymyositis and Dermatomyositis forum.

I recommend this book to anyone diagnosed with a Auto-Immune Disease and associated Cancer.

Bill Morell
Diagnosed with Dermatomyositis, Sjogrens Syndrome, Psoriasis,GERD,and Sleep Apnea, with additional symptoms severe symptoms of Dyspnea, Dysphagia, Dysphonia, etc..

PS: I had to edit this quite a few times since my distal muscles have also been effected by oneorallof my Autoimmune diseases. My fingers miss or don't hit the spacebar hard enough on my home and work keyboards. My fingers also are deforming and stubby now so I am usually off a key, I hate misspelling because as a writer I am losing it.

Of little value
I had anticipated several descriptive chapters on symptoms and prognosis of Dermatomyositis, but found about 4 pages.

The majority of the book is a listing of URL's (websites) of various entities, agencies and programs involved in experimentation & treatment. Many of the descriptions and links appear to be out of date.This book did not meet my expectations; I do not recommend it.

book
the book is very informative on this most complicated disease i recomend it highly ... Read more

Product Description
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading."Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing.This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more

Product Description
Hannelore Helbing-Sheafe’s constant struggle with her health was a powerful motivator to investigate possible ways to help herself and others.The focus of her practice was always on finding the cause of the problem and instructing patients in using correct nutrients and/or natural medicine and therapy to correct and reverse existing health problems.Her main focus has been to seek balance in all body systems.

Connective Tissue Diseases - Holistic Therapy Options provides valuable information about holistic therapy options for patients afflicted with connective tissue (collagen) problems.Detailed information is given regarding current medical diagnostic procedures and treatment, followed by holistic therapy options.The book also provides details about the multiple, complexing symptoms experienced during this illness.

Connective Tissue Diseases - Holistic Therapy Options is an education on "Nature's Pharmacy". It promises no miracle cures; instead, it lists natural substances that soothe pain, improve circulation, repair and restore connective tissue to normal function, reverse illness to a more manageable level and give the chronically ill patient quality of life and hope. ... Read more

Customer Reviews (1)

Good coverage of a little covered subject
Even though the title is in medical jargon, this book is really for the average person trying to get a handle on how to deal with their particular connective tissue disease from Lupus to CREST to some weird rash related to an auto immune reaction. After a short intro on how the author came to write about connective tissue diseases, the book takes each disease, or condition, and systematically going through the symptoms, conventional medical treatment with their side effects and then alternatives including foods to eat or avoid, supplements, and related treatments. After this there are sections on herbs and foods that are antibiotic, that help vasolate the blood vessels--ie open them up and help circulation, especially in the extremities: fingers, toes, hands and feet, and items that do other specific work with the body to alleviate symptoms--not just masks them. The book has several weaknesses--although the bulk of the book is well organized--the beginning and end are a bit confusing. The table of contents is strange--seems more like a list than what is in the book. However you can probably skip those parts for all they add, and start right in on reading about the various diseases, especially since many are related or some people can have one condition like Raynaud's along with more serious diseases. Also the index is just about useless. There are index entries pointing to pages that do not exist in the book and the index misses many pages that mention an important symptoms such as dry eyes or lesions, for example. And the sub-subjects are not indented, so it's confusing. this is true at times in the main text--it's not formatted so that you know that something is separate from something else. Still there is a lot of good info here, so I suggest you take notes if you read the book--to note page numbers and info that is important to you, so you can find it later.
The book needed a good editor and/or someone with a sharp eye for formatting. I would have given five stars if the formatting and index had been up to snuff. ... Read more

Product Description
In clinical practice, scleroderma and dermatomyositis (DMS) are commonly and seen in the dermatological department. These diseases invade the skin as well as many organs, severely influencing a patient's health and may even become life threatening. They are recognized as difficult diseases to cure with poor prognosis. Based on pattern differentiation, Chinese medical approaches can effectively decrease the side effects of biomedical therapies, regulate the immune system and improve patient's health and life quality.Our editorial board has made a refined summary of Chinese medical clinical diagnosis and treatment methods according to extended clinical observation and current research results. ... Read more

Product Description
This digital document is an article from Skin & Allergy News, published by International Medical News Group on April 1, 2004. The length of the article is 711 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Dermatomyositis Dx: consider the cutaneous: quality of life concerns.(Clinical Rounds)
Author: Diana Mahoney
Publication: Skin & Allergy News (Magazine/Journal)
Date: April 1, 2004
Publisher: International Medical News Group
Volume: 35Issue: 4Page: 31(1)

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Product Description
This digital document is an article from Dermatology Nursing, published by Jannetti Publications, Inc. on April 1, 1998. The length of the article is 7178 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

From the author: The cutaneous manifestations of rheumatic diseases are extremely numerous and varied. A discussion is presented concerning the recognition and management of the most common cutaneous changes seen in the three major rheumatic diseases of interest to dermatology nurses -- lupus erythematosus, dermatomyositis/polymyositis, and scleroderma/systemic sclerosis.

Citation Details
Title: Cutaneous manifestations of rheumatic diseases: lupus erythematosus, dermatomyositis, scleroderma. (continuing education series with quiz)
Author: Richard D. Sontheimer
Publication: Dermatology Nursing (Refereed)
Date: April 1, 1998
Publisher: Jannetti Publications, Inc.
Volume: v10Issue: n2Page: p81(17)

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Product Description
This digital document is an article from Internal Medicine News, published by International Medical News Group on June 1, 2004. The length of the article is 971 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Dermatomyositis diagnosis: look for skin clues.(Dermatology)
Author: Diana Mahoney
Publication: Internal Medicine News (Magazine/Journal)
Date: June 1, 2004
Publisher: International Medical News Group
Volume: 37Issue: 11Page: 28(1)

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Product Description
This digital document is an article from Southern Medical Journal, published by Thomson Gale on July 1, 2006. The length of the article is 1826 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Dermatomyositis and esophageal cancer.(Case Report)(medical research)(includes related article "Key Points" and "Diagnosis of dermatomyositis and polymyositis" table)
Author: Imran Iftikhar
Publication: Southern Medical Journal (Magazine/Journal)
Date: July 1, 2006
Publisher: Thomson Gale
Volume: 99Issue: 7Page: 777(3)

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Product Description
This digital document is an article from Skin & Allergy News, published by Thomson Gale on September 1, 2005. The length of the article is 1021 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Know the signs of dermatomyositis and systemic lupus erythematosus: in children, overlooking or misinterpreting certain dangerous symptoms can be lethal.(Clinical Rounds)
Author: Doug Brunk
Publication: Skin & Allergy News (Magazine/Journal)
Date: September 1, 2005
Publisher: Thomson Gale
Volume: 36Issue: 9Page: 29(1)

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Product Description
This digital document is an article from Family Practice News, published by Thomson Gale on August 1, 2007. The length of the article is 636 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Watch dermatomyositis patients for cancers and organ involvement.(Skin Disorders)
Author: Nancy Walsh
Publication: Family Practice News (Magazine/Journal)
Date: August 1, 2007
Publisher: Thomson Gale
Volume: 37Issue: 15Page: 21(1)

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Targeted to patients, their families and allied health students, The “Gale Encyclopedia of Neurological Disorders” provides in-depth coverage of neurological diseases and disorders, including stroke, multiple sclerosis, Parkinson disease, Tourette Syndrome, Alzheimer's disease, cerebral palsy, vertigo, amnesia and epilepsy. Related topics include communication aids, electric personal assistive mobility devices, medications for treating neurological diseases and conditions, understanding the needs of Alzheimer patient caregivers and more. This two-volume set provides an alternative to resources that either fail to explore neurological disease in any depth and or do so at a level not appropriate for students and general readers.

Product Description
This up-to-date electronic book on CD-ROM provides the best collection available anywhere of official Federal government information and documents on the subject of myositis including dermatomyositis and polymyositis. This CD-ROM uses next-generation search technology that allows complete indexing and makes all files on the disc fully searchable. For patients, practical information is provided in clearly written patient education documents. For medical professionals, doctor reference tools and texts have detailed technical information and clinical background material.

This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Centers for Disease Control (CDC), the Combined Health Information Database (CHID), the Food and Drug Administration (FDA), and Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). Contents include clinical and medical information, with information on signs, symptoms, testing, diagnosis, treatment, research, and more.

In addition, as a bonus we have included an encyclopedic collection of general medical and health documents – thousands of pages with extensive material from the NIH on hundreds of diseases and health topics from A to Z, along with government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers’ health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government.

This CD-ROM has over 32,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable!

Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.) ... Read more

Product Description
This digital document is an article from Gale Encyclopedia of Medicine, 3rd ed., brought to you by Gale®, a part of Cengage Learning, a world leader in e-research and educational publishing for libraries, schools and businesses.The length of the article is 1083 words.The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase.You can view it with any web browser.The third edition of this authoritative, comprehensive, in-depth medical guide features information on medical topics in language accessible to adult laypersons. Disease/disorder articles typically cover definition; description; causes and symptoms; diagnosis; treatments; prevention; and more. Test/treatment articles typically cover definition; purposes; precautions; preparation; risks; normal and abnormal results; and much more. ... Read more

Product Description
This digital document is an article from Pediatric News, published by Thomson Gale on October 1, 2005. The length of the article is 865 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Know skin-related signs of dermatomyositis, SLE.(Clinical Rounds)
Author: Doug Brunk
Publication: Pediatric News (Magazine/Journal)
Date: October 1, 2005
Publisher: Thomson Gale
Volume: 39Issue: 10Page: 56(2)

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Product Description
This digital document is an article from Skin & Allergy News, published by Thomson Gale on July 1, 2007. The length of the article is 673 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Be alert to cancers in dermatomyositis patients.(Clinical Rounds)
Author: Nancy Walsh
Publication: Skin & Allergy News (Magazine/Journal)
Date: July 1, 2007
Publisher: Thomson Gale
Volume: 38Issue: 7Page: 41(1)

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Product Description
This digital document is an article from Skin & Allergy News, published by Thomson Gale on July 1, 2007. The length of the article is 701 words. The page length shown above is based on a typical 300-word page. The article is delivered in HTML format and is available in your Amazon.com Digital Locker immediately after purchase. You can view it with any web browser.

Citation Details
Title: Assessment tools prove useful in juvenile Dermatomyositis.(Clinical Rounds)
Author: Sharon Worcester
Publication: Skin & Allergy News (Magazine/Journal)
Date: July 1, 2007
Publisher: Thomson Gale
Volume: 38Issue: 7Page: 40(1)

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