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1. Myositis and You: A Guide to Juvenile Dermatomyositis for Patients, Families, and Healthcare Providers | |
Perfect Paperback: 480
Pages
(2007-02-05)
list price: US$25.00 -- used & new: US$25.00 (price subject to change: see help) Asin: 0978522532 Average Customer Review: Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description Customer Reviews (3)
A review of Myositis and You
Invaluable information
Very Informative |
2. Inclusion-Body Myositis and Myopathies | |
Hardcover: 413
Pages
(1998-04-13)
list price: US$209.99 -- used & new: US$11.48 (price subject to change: see help) Asin: 0521571057 Average Customer Review: Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description Customer Reviews (1)
Inclusion-Body Myositis - technical but useful |
3. Myositis: Webster's Timeline History, 1887 - 2007 by Icon Group International | |
Paperback: 118
Pages
(2010-03-10)
list price: US$28.95 -- used & new: US$28.95 (price subject to change: see help) Asin: B003L781L4 Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
4. A Contribution to the Study of Myositis Ossificans Progressiva by Julius Rosenstirn | |
Hardcover: 122
Pages
(2009-09-30)
list price: US$28.99 -- used & new: US$23.19 (price subject to change: see help) Asin: 1115107631 Canada | United Kingdom | Germany | France | Japan | |
5. The Official Patient's Sourcebook on Inclusion Body Myositis | |
Paperback: 204
Pages
(2002-10)
list price: US$28.95 -- used & new: US$26.00 (price subject to change: see help) Asin: 0597830738 Average Customer Review: Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description Customer Reviews (2)
I expected more. The book is presented as a sourcebook for patients and to a large degree it is - patients in general, not patients with IBM. It also says it is a revised and updated directory for the internet age. A book about internet sites is almost an oxymoron - in the rapidly changing landscape of medical research and the internet how current is it? Not very as we will see. Most of the book presents very generic information obtained from the internet and adapted by the editors (I can see why they don't call themselves authors - it appears that they did not write much of the material themselves). Sadly, the phrase inclusion body myositis is simply inserted where appropriate - where the name of any disease could just as easily be substituted. I imagine that the other books in the series simply reprint a great deal of this basic information on internet health care and disease resources. The book has a jumpy and pasted together feeling - like the editors just put material in to fill up space. Some illustrations are in order. First we are presented a description of IBM "adapted from the National Institute of Neurological Disorders and Stroke" (an excellent organization to be sure). We are told that IBM is "very similar" to polymyositis. In fact, the two diseases share initial symptoms that are very similar (thus IBM is often misdiagnosed as polymyositis), but the two diseases are in fact very different beasts. On page 11 we are told in four sentences that there is no standard course of treatment for IBM. No specific treatments are mentioned. We are presented with the web addresses of a number of organizations offering pamphlets and brochures on IBM. Page 15 presents us with the results of an internet search the editors did producing a "recent" posting dated 1999 (this book is dated 2002). A running glossary is presented at the end of each chapter and to ensure a few more pages, the items are presented a second time at the end of the book. Many important terms are missed, for example, autoimmune is used in a definition from the Myositis Association of America (now The Myositis Association) on page 15 without any explanation or background. We are directed to webpages that offer criteria for the myopathies but no diagnostic criteria are offered directly. Support groups are mentioned but again the references are mostly generic. Specific IBM support groups are largely ignored, for example, the excellent http://www.myositissupportgroup.org/IBM/ Information is presented on how to find a Doctor and how to find a neurologist but the reader is left in the lurch as to whom, if anyone specializes in IBM. A list of 5 or 10 of the clinics across North America with an interest or specialty in IBM would have been appreciated. A strength of the web is that a search will produce thousands of hits on even an obscure topic. Readers (in this case, the editors) must be careful consumers to judge what is relevant, credible and useful to include. For example, I don't know how useful it is to include a 1918 publication on myositis ossificans progressiva under the section books on IBM. To their credit, they do reference the only book ever published on the clinical aspects of IBM, the volume by Askanas et al (1998). But, I did not see "Coping with a Myositis Disease" by James Kilpatrick, a collection of patient's personal stories (2000). Chapter 6 is more cut and paste, again of questionable relevance. Under multimedia on IBM, we find films on the diagnosis of anemia and the prediction of adult height. Chapter 7 refers us to publications from the Inclusion Body Myositis Association. Unfortunately, this organization no longer exists. Some basic fact checking would have led the editors to discover that "The Inclusion Body Myositis Association became the Myositis Association of America in 1996, when it expanded to include polymyositis (PM) and dermatomyositis (DM). As of January 1, 2003, the name changed to The Myositis Association (TMA)." My quote is from The Myositis Association, https://www.myositis.org/about_tma/ I will also note that IBM is now under the umbrella of The Muscular Dystrophy Association and they also provide a lot of useful information on IBM, see: http://www.mdausa.org/home.html In appendix A, on page 90, a list of IBM medications is compiled (notwithstanding the section on page 11 on treatment). This list is a "sample", one that only includes azathioprine and various corticosteroids. IVIG is curiously missing from this sampling; even more curious is where IVIG turns up - under the subsequent section on "complementary and alternative medicine." Again, the editor's lack of specific knowledge about IBM is illustrated in this section when they list an article on high-dose vitamin C therapy for IBM but fail to even mention the use of coenzyme Q10 and L-Carnitine in the treatment of IBM. The section "finding studies on IBM" - information on dietary supplements lists several studies that do not appear to belong in the section, for example, a study on weakness progression in cases treated with methotrexate. A more honest approach would have seen Icon publish one book on how to find and use research and medical information on the internet with chapters or appendices on each rare disorder. In the current book, only about 5 pages can be distilled on IBM and unfortunately, these materials are not very good. The reviewer has IBM and has presented a great deal of information on the disorder in a web page that can be found at: http://members.shaw.ca/btillieribm/
I expected more. The book is presented as a sourcebook for patients and to a large degree it is - patients in general, not patients with IBM. It also says it is a revised and updated directory for the internet age. A book about internet sites is almost an oxymoron - in the rapidly changing landscape of medical research and the internet how current is it? Not very as we will see. Most of the book presents very generic information obtained from the internet and adapted by the editors (I can see why they don't call themselves authors - it appears that they did not write much of the material themselves). Sadly, the phrase inclusion body myositis is simply inserted where appropriate - where the name of any disease could just as easily be substituted. I imagine that the other books in the series simply reprint a great deal of this basic information on internet health care and disease resources. The book has a jumpy and pasted together feeling - like the editors just put material in to fill up space. Some illustrations are in order. First we are presented a description of IBM "adapted from the National Institute of Neurological Disorders and Stroke" (an excellent organization to be sure). We are told that IBM is "very similar" to polymyositis. In fact, the two diseases share initial symptoms that are very similar (thus IBM is often misdiagnosed as polymyositis), but the two diseases are in fact very different beasts. On page 11 we are told in four sentences that there is no standard course of treatment for IBM. No specific treatments are mentioned. We are presented with the web addresses of a number of organizations offering pamphlets and brochures on IBM. Page 15 presents us with the results of an internet search the editors did producing a "recent" posting dated 1999 (this book is dated 2002). A running glossary is presented at the end of each chapter and to ensure a few more pages, the items are presented a second time at the end of the book. Many important terms are missed, for example, autoimmune is used in a definition from the Myositis Association of America (now The Myositis Association) on page 15 without any explanation or background. We are directed to webpages that offer criteria for the myopathies but no diagnostic criteria are offered directly. Support groups are mentioned but again the references are mostly generic. Specific IBM support groups are largely ignored, for example, the excellent http://www.myositissupportgroup.org/IBM/ Information is presented on how to find a Doctor and how to find a neurologist but the reader is left in the lurch as to whom, if anyone specializes in IBM. A list of 5 or 10 of the clinics across North America with an interest or specialty in IBM would have been appreciated. A strength of the web is that a search will produce thousands of hits on even an obscure topic. Readers (in this case, the editors) must be careful consumers to judge what is relevant, credible and useful to include. For example, I don't know how useful it is to include a 1918 publication on myositis ossificans progressiva under the section books on IBM. To their credit, they do reference the only book ever published on the clinical aspects of IBM, the volume by Askanas et al (1998). But, I did not see "Coping with a Myositis Disease" by James Kilpatrick, a collection of patient's personal stories (2000). Chapter 6 is more cut and paste, again of questionable relevance. Under multimedia on IBM, we find films on the diagnosis of anemia and the prediction of adult height. Chapter 7 refers us to publications from the Inclusion Body Myositis Association. Unfortunately, this organization no longer exists. Some basic fact checking would have led the editors to discover that "The Inclusion Body Myositis Association became the Myositis Association of America in 1996, when it expanded to include polymyositis (PM) and dermatomyositis (DM). As of January 1, 2003, the name changed to The Myositis Association (TMA)." My quote is from The Myositis Association, https://www.myositis.org/about_tma/ I will also note that IBM is now under the umbrella of The Muscular Dystrophy Association and they also provide a lot of useful information on IBM, see: http://www.mdausa.org/home.html In appendix A, on page 90, a list of IBM medications is compiled (notwithstanding the section on page 11 on treatment). This list is a "sample", one that only includes azathioprine and various corticosteroids. IVIG is curiously missing from this sampling; even more curious is where IVIG turns up - under the subsequent section on "complementary and alternative medicine." Again, the editor's lack of specific knowledge about IBM is illustrated in this section when they list an article on high-dose vitamin C therapy for IBM but fail to even mention the use of coenzyme Q10 and L-Carnitine in the treatment of IBM. The section "finding studies on IBM" - information on dietary supplements lists several studies that do not appear to belong in the section, for example, a study on weakness progression in cases treated with methotrexate. A more honest approach would have seen Icon publish one book on how to find and use research and medical information on the internet with chapters or appendices on each rare disorder. In the current book, only about 5 pages can be distilled on IBM and unfortunately, these materials are not very good. The reviewer has IBM and has presented a great deal of information on the disorder in a web page that can be found at: http://members.shaw.ca/btillieribm/ ... Read more |
6. Myositis: Facts, Feelings and Future Hopes by Jenny Fenton | |
Paperback: 350
Pages
(2006-04)
Isbn: 0954530713 Canada | United Kingdom | Germany | France | Japan | |
7. Myositis - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by ICON Health Publications | |
Paperback: 192
Pages
(2004-10-21)
list price: US$28.95 -- used & new: US$24.95 (price subject to change: see help) Asin: 0497007428 Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
8. Myositis: Facts, Feelings and Future Hopes | |
Paperback: 350
Pages
(2006-04-01)
Isbn: 0954530705 Canada | United Kingdom | Germany | France | Japan | |
9. Coping with a Myositis Disease | |
Paperback: 172
Pages
(2000-09-01)
list price: US$14.95 -- used & new: US$239.22 (price subject to change: see help) Asin: 0970167105 Average Customer Review: Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description Polymyositis (PM) means inflammation of many muscles. Dermatomyositis (DM) means inflammation of many muscles and skin Inclusion Body Myositis (IBM) means inflammation of many muscles with"Inclusion" (abnormal protein deposits) and vacoules (holes) in themuscle cells and fibers.Virtually 95% of physicians are unlearned about this chronic, lifetimemuscle disorder. So little information is given to the patients afterthey have finally been diagnosed, but offered no further informationabout the future expectations might be. The four Myositis diseases have individual case reports from patientswith the diseases, telling how the disease affected them, theirfamilies, their working and the dark future that no physician had toldthem would happen. The Myositis patients are telling their stories to help newlydiagnosed Myositis individuals learn more about the disease, what toexpect.Several Neurologists who have read the stories have said thebook will be a great teacher to the medical profession because thestories give a glimpse into the daily life, the philosophy on the mindand inner workings of the patient's body; whereas the medicalprofession can only ascertain what they learn through diagnosticprocedures. Customer Reviews (16)
Outstanding book with real patient stories
testimonials from sufferers
Coping with a Myositis Disease
Review of Coping with a Myositis Disease
A fantastic insight into Mysosis for a DM sufferer |
10. If treatment fails, think inclusion body myositis.(Musculoskeletal Disorders): An article from: Family Practice News by Diana Mahoney | |
Digital: 3
Pages
(2007-11-01)
list price: US$9.95 -- used & new: US$9.95 (price subject to change: see help) Asin: B000ZN294W Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
11. Inclusion body myositis by Frederic P. Miller, Agnes F. Vandome, John McBrewster | |
Paperback: 96
Pages
(2010-01-20)
list price: US$49.00 -- used & new: US$45.00 (price subject to change: see help) Asin: 6130249896 Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
12. Alternative Diagnoses: Sensory Integration Dysfunction, Morgellons, Sensory Processing Disorder, Tension Myositis Syndrome | |
Paperback: 72
Pages
(2010-05-05)
list price: US$19.99 -- used & new: US$19.99 (price subject to change: see help) Asin: 1155610407 Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
13. Severe statin-induced problems rare in diabetes: statin users had higher myopathy and myalgia rates, but not higher myositis and rhabdomyolysis rates.: An article from: Internal Medicine News by Miriam E. Tucker | |
Digital: 3
Pages
(2006-07-15)
list price: US$5.95 -- used & new: US$5.95 (price subject to change: see help) Asin: B000HXDB06 Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
14. 21st Century Complete Medical Guide to Myositis, including Dermatomyositis and Polymyositis, Authoritative Government Documents, Clinical References, and ... for Patients and Physicians (CD-ROM) by PM Medical Health News | |
CD-ROM: 32735
Pages
(2004-05)
list price: US$25.00 -- used & new: US$25.00 (price subject to change: see help) Asin: 159248851X Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description This thoroughly researched collection presents vital information from many authoritative sources: National Institutes of Health (NIH), Centers for Disease Control (CDC), the Combined Health Information Database (CHID), the Food and Drug Administration (FDA), and Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). Contents include clinical and medical information, with information on signs, symptoms, testing, diagnosis, treatment, research, and more. In addition, as a bonus we have included an encyclopedic collection of general medical and health documents – thousands of pages with extensive material from the NIH on hundreds of diseases and health topics from A to Z, along with government consumer healthcare tips, disease prevention programs, dietary guidelines, and travelers’ health information. Since navigating the Internet to find additional non-governmental medical information can be confusing, we've also provided our exclusive "Guide to Leading Medical Websites" with updated links to 73 of the best sites for medical information! By using weblinks on the CD-ROM, you can quickly check for the latest clinical updates directly from the government. This CD-ROM has over 32,000 pages reproduced using Adobe Acrobat PDF software and Reader software is included. Advanced search and indexing features are built into our reproduction, providing a complete full-text index. This enables the user to search all the files on the disk at one time for words or phrases using just one search command! The Acrobat cataloging technology adds enormous value and uncommon functionality to this impressive collection of government documents and material. There is no other reference that is as fast, convenient, comprehensive, and portable! Our CD-ROMs are privately-compiled collections of official public domain U.S. government files and documents - they are not produced by the federal government. They are designed to provide a convenient user-friendly reference work, utilizing the benefits of the Acrobat format to uniformly present thousands of pages that can be rapidly reviewed or printed without untold hours of tedious searching and downloading. This book-on-a-disc makes a superb reference work and educational tool for patients and their families, physicians, and other medical professionals. (Information on this CD-ROM is NOT a substitute for professional medical advice; of course, readers are urged to consult with a professional health care provider for any suspected illness.) |
15. UEBER MYOSITIS OSSIFICANS PROGRESSIVA. by F. von. RECKLINGHAUSEN | |
Paperback:
Pages
(1894)
Asin: B003VWVDM8 Canada | United Kingdom | Germany | France | Japan | |
16. Sdokt myositis, myalgia, neuralgia. Better methods of treatment and control bo / SDokt Miozity, mialgii, nevralgii. Luchshie metody lecheniya i borby s bo by Shevchenko V.G. | |
Paperback:
Pages
(2009)
-- used & new: US$3.40 (price subject to change: see help) Asin: 5968413573 Canada | United Kingdom | Germany | France | Japan | |
17. Myositis: An entry from Gale's <i>Gale Encyclopedia of Medicine, 3rd ed.</i> by Judith Sims | |
Digital: 4
Pages
(2006)
list price: US$5.90 -- used & new: US$5.90 (price subject to change: see help) Asin: B002DGQZVM Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
18. Vsv.bol Visit otmenyaetsya.mialgii, myositis, neuralgia / VSV.Bol vizit otmenyaetsya.Mialgii,miozity,nevralgii by Sadov | |
Paperback: 128
Pages
(2007)
-- used & new: US$4.90 (price subject to change: see help) Asin: 5971703900 Canada | United Kingdom | Germany | France | Japan | |
19. 21st Century Ultimate Medical Guide to Myositis - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set) by PM Medical Health News | |
CD-ROM: 61222
Pages
(2009-05-30)
list price: US$25.00 -- used & new: US$25.00 (price subject to change: see help) Asin: 1422022404 Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
20. Inclusion body myositis associated with celiac sprue and idiopathic thrombocytopenic purpura. (Case Report).: An article from: Southern Medical Journal by Sandra F. Williams, Betty A. Mincey, Kenneth T. Calamia | |
Digital: 6
Pages
(2003-07-01)
list price: US$5.95 -- used & new: US$5.95 (price subject to change: see help) Asin: B0008DQWJ2 Canada | United Kingdom | Germany | France | Japan | |
Editorial Review Product Description |
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